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  1.  12
    How Does Functional Neurodiagnostics Inform Surrogate Decision-Making for Patients with Disorders of Consciousness? A Qualitative Interview Study with Patients’ Next of Kin.Leah Schembs, Maria Ruhfass, Eric Racine, Ralf J. Jox, Andreas Bender, Martin Rosenfelder & Katja Kuehlmeyer - 2020 - Neuroethics 14 (3):327-346.
    BackgroundFunctional neurodiagnostics could allow researchers and clinicians to distinguish more accurately between the unresponsive wakefulness syndrome and the minimally conscious state. It remains unclear how it informs surrogate decision-making.ObjectiveTo explore how the next of kin of patients with disorders of consciousness interpret the results of a functional neurodiagnostics measure and how/why their interpretations influence their attitudes towards medical decisions.Methods and SampleWe conducted problem-centered interviews with seven next of kin of patients with DOC who had undergone a functional HD-EEG examination at (...)
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  2.  21
    Principle-Based Structured Case Discussions: Do They Foster Moral Competence in Medical Students? - A Pilot Study.Orsolya Friedrich, Kay Hemmerling, Katja Kuehlmeyer, Stefanie Nörtemann, Martin Fischer & Georg Marckmann - 2017 - BMC Medical Ethics 18 (1):21.
    Recent findings suggest that medical students’ moral competence decreases throughout medical school. This pilot study gives preliminary insights into the effects of two educational interventions in ethics classes on moral competence among medical students in Munich, Germany. Between 2012 and 2013, medical students were tested using Lind’s Moral Competence Test prior to and after completing different ethics classes. The experimental group participated in principle-based structured case discussions and was compared with a control group with theory-based case discussions. The pre/post C-scores (...)
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  3.  23
    How Family Caregivers' Medical and Moral Assumptions Influence Decision Making for Patients in the Vegetative State: A Qualitative Interview Study.Katja Kuehlmeyer, Gian Domenico Borasio & Ralf J. Jox - 2012 - Journal of Medical Ethics 38 (6):332-337.
    Background Decisions on limiting life-sustaining treatment for patients in the vegetative state (VS) are emotionally and morally challenging. In Germany, doctors have to discuss, together with the legal surrogate (often a family member), whether the proposed treatment is in accordance with the patient's will. However, it is unknown whether family members of the patient in the VS actually base their decisions on the patient's wishes. Objective To examine the role of advance directives, orally expressed wishes, or the presumed will of (...)
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  4.  2
    Empirical Research and Recommendations for Moral Action: A Plea for the Transparent Reporting of Bridge Principles in Public Health Research.Katja Kuehlmeyer, Marcel Mertz, Joschka Haltaufderheide, Alexander Kremling, Sebastian Schleidgen & Julia Inthorn - forthcoming - Public Health Ethics.
    Academic publications of empirical public health research often entail recommendations for moral action that address practitioners and policy makers. These recommendations are regularly based on implicit moral judgments with the underlying reasons not explicitly stated. In this paper, we elaborate on the moral relevance of such judgments and the need to explain them in order to account for academic argumentation. We argue for an explicit reporting of bridge principles to increase the transparency of the reporting of public health research. The (...)
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  5.  29
    Social Uncertainty in Disorders of Consciousness: Shedding Light on the Various Perspectives of Family Caregivers and Surrogates.Leah Schembs, Ralf J. Jox & Katja Kuehlmeyer - 2018 - American Journal of Bioethics Neuroscience 9 (2):85-87.
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  6.  12
    Migration, Health, and Ethics.Corinna Klingler, Dennis Odukoya & Katja Kuehlmeyer - 2018 - Bioethics 32 (6):330-333.
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  7.  3
    Informal Caregivers of Patients with Disorders of Consciousness: a Qualitative Study of Communication Experiences and Information Needs with Physicians.Karoline Boegle, Marta Bassi, Angela Comanducci, Katja Kuehlmeyer, Philipp Oehl, Theresa Raiser, Martin Rosenfelder, Jaco Diego Sitt, Chiara Valota, Lina Willacker, Andreas Bender & Eva Grill - 2022 - Neuroethics 15 (3):1-19.
    Due to improvements in medicine, the figures of patients with disorders of consciousness are increasing. Diagnostics of DoC and prognostication of rehabilitation outcome is challenging but necessary to evaluate recovery potential and to decide on treatment options. Such decisions should be made by doctors and patients’ surrogates based on medico-ethical principles. Meeting information needs and communicating effectively with caregivers as the patients´ most common surrogate-decision makers is crucial, and challenging when novel tech-nologies are introduced. This qualitative study aims to explore (...)
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  8. Introduction: Reconsidering Disorders of Consciousness in Light of Neuroscientific Evidence.Ralf J. Jox & Katja Kuehlmeyer - 2011 - Neuroethics 6 (1):1-3.
    Disorders of consciousness pose a substantial ethical challenge to clinical decision making, especially regarding the use of life-sustaining medical treatment. For these decisions it is paramount to know whether the patient is aware or not. Recent brain research has been striving to assess awareness by using mainly functional magnetic resonance imaging. We review the neuroscientific evidence and summarize the potential and problems of the different approaches to prove awareness. Finally, we formulate the crucial ethical questions and outline the different articles (...)
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  9.  5
    Next of kin’s Reactions to Results of Functional Neurodiagnostics of Disorders of Consciousness: a Question of Information Delivery or of Differing Epistemic Beliefs?Katja Kuehlmeyer, Andreas Bender, Ralf J. Jox, Eric Racine, Maria Ruhfass & Leah Schembs - 2021 - Neuroethics 14 (3):357-363.
    Our recent publication in Neuroethics re-constructed the perspectives of family caregivers of patients with disorders of consciousness on functional neurodiagnostics. Two papers criticized some of our methodological decisions and commented on some conclusions. In this commentary, we would like to further explain our methodological decisions. Despite the limitations of our findings, which we readily acknowledged, we continue to think they entail valid hypotheses that need further investigation. We conclude that some caregivers with high hopes for the recovery of their loved (...)
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  10.  3
    Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?Niels Nijsingh, Bianca Jansky, Georg Marckmann & Katja Kuehlmeyer - 2020 - American Journal of Bioethics 20 (4):89-91.
    Volume 20, Issue 4, May 2020, Page 89-91.
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