13 found
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  1.  35
    “That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark.Zainab Sheikh & Klaus Hoeyer - 2018 - Medicine, Health Care and Philosophy 21 (2):169-179.
    Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in (...)
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  2.  9
    Dangers of the digital fit: Rethinking seamlessness and social sustainability in data-intensive healthcare.Klaus Hoeyer & Sarah Wadmann - 2018 - Big Data and Society 5 (1).
    For years, attempts at ensuring the social sustainability of digital solutions have focused on ensuring that they are perceived as helpful and easy to use. A smooth and seamless work experience has been the goal to strive for. Based on document analysis and interviews with 15 stakeholders, we trace the setting up of a data infrastructure in Danish General Practice that had achieved just this goal – only to end in a scandal and subsequent loss of public support. The ease (...)
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  3.  27
    Motivating Donors to Genetic Research? Anthropological Reasons to Rethink the Role of Informed Consent.Klaus Hoeyer & Niels Lynöe - 2005 - Medicine, Health Care and Philosophy 9 (1):13-23.
    In this article we explore the contribution from social anthropology to the medical ethical debates about the use of informed consent in research, based on blood samples and other forms of tissue. The article springs from a project exploring donors’ motivation for providing blood and healthcare data for genetic research to be executed by a Swedish start-up genomics company. This article is not confined to empirical findings, however, as we suggest that anthropology provides reason to reassess the theoretical understanding of (...)
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  4.  9
    Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows.Malene Bøgehus Rasmussen, Aaro Tupasela & Klaus Hoeyer - 2017 - Science, Technology, and Human Values 42 (3):381-404.
    In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confidentiality. Both sets of policy making, however, pay limited attention to the moral decisions and social ties enacted in (...)
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  5.  11
    “Ethics wars”: Reflections on the Antagonism between Bioethicists and Social Science Observers of Biomedicine1.Klaus Hoeyer - 2006 - Human Studies 29 (2):203-227.
    Social scientists often lament the fact that philosophically trained ethicists pay limited attention to the insights they generate. This paper presents an overview of tendencies in sociological and anthropological studies of morality, ethics and bioethics, and suggests that a lack in philosophical interest might be related to a tendency among social scientists to employ either a deficit model (social science perspectives accommodate the sense of context that philosophical ethics lacks), a replacement model (social scientists have finally found the “right way” (...)
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  6.  23
    An organizational perspective on ethics as a form of regulation.Klaus Hoeyer & Niels Lynöe - 2009 - Medicine, Health Care and Philosophy 12 (4):385-392.
    In this paper we propose a theoretical framework for analysing the history and function of ethics as a form of regulation. Ethics in the form of codes, rules and declarations, constitutes regulatory policies, and we wish to suggest analysing such policies from an organizational perspective. In many instances ethics policies are reactions to particular events involving harm of patients or research participants. As such they seem to come forward as solutions to specific problems. However, not all such events that instigate (...)
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  7.  6
    Regulatory Anatomy: How “Safety Logics” Structure European Transplant Medicine.Klaus Hoeyer - 2015 - Science, Technology, and Human Values 40 (4):516-538.
    This article proposes the term “safety logics” to understand attempts within the European Union to harmonize member state legislation to ensure a safe and stable supply of human biological material for transplants and transfusions. With safety logics, I refer to assemblages of discourses, legal documents, technological devices, organizational structures, and work practices aimed at minimizing risk. I use this term to reorient the analytical attention with respect to safety regulation. Instead of evaluating whether safety is achieved, the point is to (...)
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  8.  9
    The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization.Sara Green, Line Hillersdal, Jette Holt, Klaus Hoeyer & Sarah Wadmann - 2023 - Medicine, Health Care and Philosophy 26 (1):119-132.
    Throughout the Global North, policymakers invest in large-scale integration of health-data infrastructures to facilitate the reuse of clinical data for administration, research, and innovation. Debates about the ethical implications of data repurposing have focused extensively on issues of patient autonomy and privacy. We suggest that it is time to scrutinize also how the everyday work of healthcare staff is affected by political ambitions of data reuse for an increasing number of purposes, and how different purposes are prioritized. Our analysis builds (...)
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  9.  7
    Embryonic Entitlements: Stem Cell Patenting and the Co-production of Commodities and Personhood.Klaus Hoeyer, Sniff Nexoe, Mette Hartlev & Lene Koch - 2009 - Body and Society 15 (1):1-24.
    With the aim of understanding current problematizations of embryonic stem cell patenting this article rehearses the history of social entitlements related to reproductive material derived from women seeking care in institutions for reproductive health in Denmark. Our interest lies in the emergence of commercial exchange of material derived from embryos. Such exchange is characterized by contestation of the status of the embryo: is it a person or a commodity? To understand the modus operandi of the exchanges, we first explore how (...)
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  10.  15
    Webb Keane, Ethical Life. Its Natural and Social Histories: New Jersey and London: Princeton University Press. 2016. 304 pages, ISBN: 978-0-691-16773-2, £19.95.Klaus Hoeyer - 2016 - Ethical Theory and Moral Practice 19 (5):1341-1343.
  11. Ethical conflicts during the social study of clinical practice: the need to reassess the mutually challenging research ethics traditions of social scientists and medical researchers.Klaus Hoeyer, Lisa Dahlager & Niels Lynöe - 2006 - Clinical Ethics 1 (1):41-45.
    When anthropologists and other social scientists study health services in medical institutions, tensions sometimes arise as a result of the social scientists and health care professionals having different ideas about the ethics of research. In order to resolve this type of conflict and to facilitate mutual learning, we describe two general categories of research ethics framing: those of anthropology and those of medicine. The latter focuses on protection of the individual through the preservation of autonomy expressed through the requirement of (...)
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  12.  11
    A Data-Political Spectacle: How COVID-19 Became A Source of Societal Division in Denmark.Sofie á Rogvi & Klaus Hoeyer - 2023 - Minerva 61 (3):335-355.
    The COVID-19 pandemic has been a data-political spectacle. Data are omnipresent in prediction and surveillance, and even in resistance to governmental measures. How have citizens, whose lives were suddenly governed by pandemic data, understood and reacted to the pandemic as a data-political phenomenon? Based on a study carried out in Denmark, we show how society became divided into those viewing themselves as supporters of the governmental approach to the COVID-19 pandemic, and those who oppose it. These groups seem to subscribe (...)
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  13. “Ethics wars”: Reflections on the Antagonism between Bioethicists and Social Science Observers of Biomedicine1. [REVIEW]Klaus Hoeyer - 2006 - Human Studies 29 (2):203 - 227.
    Social scientists often lament the fact that philosophically trained ethicists pay limited attention to the insights they generate. This paper presents an overview of tendencies in sociological and anthropological studies of morality, ethics and bioethics, and suggests that a lack in philosophical interest might be related to a tendency among social scientists to employ either a deficit model (social science perspectives accommodate the sense of context that philosophical ethics lacks), a replacement model (social scientists have finally found the “right way” (...)
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