57 found
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  1. (1 other version)Precise Worlds for Certain Minds: An Ecological Perspective on the Relational Self in Autism.Axel Constant, Jo Bervoets, Kristien Hens & Sander Van de Cruys - 2018 - Topoi:1-12.
    Autism Spectrum Condition presents a challenge to social and relational accounts of the self, precisely because it is broadly seen as a disorder impacting social relationships. Many influential theories argue that social deficits and impairments of the self are the core problems in ASC. Predictive processing approaches address these based on general purpose neurocognitive mechanisms that are expressed atypically. Here we use the High, Inflexible Precision of Prediction Errors in Autism approach in the context of cultural niche construction to explain (...)
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  2.  63
    A plea for an experimental philosophy of medicine.Andreas De Block & Kristien Hens - 2021 - Theoretical Medicine and Bioethics 42 (3):81-89.
    This special issue aims to explore and investigate a new subfield, namely experimental philosophy of medicine. Whereas experimental philosophy is relatively new on the philosophical block, some of its takes and findings have already shaped central debates in ethics, philosophy of action, philosophy of language, and epistemology. Interestingly, the approach of this program was for a long time almost wholly ignored within bioethics and philosophy of medicine—although this seems to have changed somewhat recently. In this introduction, we briefly sketch the (...)
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  3. Going Beyond the Catch-22 of Autism Diagnosis and Research. The Moral Implications of (Not) Asking “What Is Autism?”.Jo Bervoets & Kristien Hens - 2020 - Frontiers in Psychology 11.
    Psychiatric diagnoses such as Autism Spectrum Disorder (ASD) are primarily attributed on the basis of behavioral criteria. The aim of most of the biomedical research on ASD is to uncover the underlying mechanisms that lead to or even cause pathological behavior. However, in the philosophical and sociological literature, it has been suggested that autism is also to some extent a ‘social construct’ that cannot merely be reduced to its biological explanation. We show that a one-sided adherence to either a biological (...)
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  4. The ethics of autism.Kristien Hens, Ingrid Robeyns & Katrien Schaubroeck - 2018 - Philosophy Compass 14 (1):e12559.
    The diagnosis of autism is on the rise. Autistic people, parents, professionals, and policy makers alike face important questions about the right approach toward autism. For example, there are questions about the desirability of early detection, the role and consequences of underlying cognitive theories, and whether autism is a disorder to be treated or an identity to be respected. How does the fact that autism is a heterogeneous concept affect the answers to these questions? Who has the authority or knowledge (...)
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  5.  71
    Exculpation and Stigma in Tourette Syndrome: An Experimental Philosophy Study.Jo Bervoets, Jarl K. Kampen & Kristien Hens - 2022 - Neuroethics 15 (1):1-16.
    Purpose: There is a widespread recognition that biomedical explanations offer benefits to those diagnosed with a mental disorder. Recent research points out that such explanations may nevertheless have stigmatizing effects. In this study, this ‘mixed blessing’ account of biomedical explanations is investigated in a case of philosophical interest: Tourette Syndrome. Method: We conducted a vignette survey with 221 participants in which we first assessed quantitative attributions of blame as well as the desire for social distance for behavior associated with Tourette (...)
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  6.  31
    Philosophy of Science Can Prevent Manslaughter.Andreas De Block, Pierre Delaere & Kristien Hens - 2022 - Journal of Bioethical Inquiry 19 (4):537-543.
    In September 2020, the surgeon Paulo Macchiarini, who used stem cell technology to enable the transplants of artificial and donor trachea, was charged with aggravated assault in Sweden. In this comment, we argue that the Ethics Council of the Karolinska Institute should have considered issues from philosophy of science when they were brought to their attention, rather than dismiss them as irrelevant to research ethics. We demonstrate how conceptual issues of a philosophy-of-science-kind about clinical research and medical practice should be (...)
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  7.  11
    Introduction: Whither (Experimental) Philosophy of Medicine?Kristien Hens & Andreas De Block - 2023 - In Kristien Hens & Andreas de Block (eds.), Advances in experimental philosophy of medicine. New York: Bloomsbury Academic. pp. 1-10.
    This chapter describes the field of philosophy of medicine and its methods. We discuss the history and potential of experimental approaches in philosophy of medicine. We give an overview of the chapters in the book.
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  8.  54
    The Ethics of Postponed Fatherhood.Kristien Hens - 2017 - International Journal of Feminist Approaches to Bioethics 10 (1):103-118.
    In this paper, I review some of the discussions on procreative beneficence and procreative autonomy in the context of postponed motherhood and compare the considerations to the context of advanced paternal age. In doing so, I will give an overview of the main scientific findings with regard to how older age in men affects the health of future offspring. I shall demonstrate how the discrepancy between the media coverage and policies on postponed motherhood and postponed fatherhood mistakenly suggests that women (...)
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  9.  82
    Attuning to the deep. On the opportunities of thinking with art for an ethics of the deep sea.Kristien Hens, Christina Stadlbauer & Bart Vandeput - manuscript
    Seabed mining, the extraction of minerals from the deep-sea floor, is hotly contested. Policymakers have agreed on the need for a regulatory framework. However, traditional ethical theories and principles are not well equipped for the ethics of the alien deep sea. Engaging with the sea means engaging with something abstract that we can only access indirectly. We argue that this invisibility and alienness of the sea and its inhabitants can give new insights into how ethics are done. Rather than getting (...)
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  10. Parental Responsibility: A Moving Target.Kristien Hens, Daniela Cutas & Dorothee Horstkötter - 2016 - In Kristien Hens, Daniela Cutas & Dorothee Horstkötter (eds.), Parental Responsibility in the Context of Neuroscience and Genetics. Cham: Springer International Publishing.
    Beliefs about the moral status of children have changed significantly in recent decades in the Western world. At the same time, knowledge about likely consequences for children of individual, parental, and societal choices has grown, as has the array of choices that (prospective) parents may have at their disposal. The intersection between these beliefs, this new knowledge, and these new choices has created a minefield of expectations from parents and a seemingly ever-expanding responsibility towards their children. Some of these new (...)
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  11.  77
    If Marc is Suzanne’s father, does it follow that Suzanne is Marc’s child? An experimental philosophy study in reproductive ethics.Kristien Hens, Emma Moormann, Anna Smajdor & Daniela Cutas - 2024 - Journal of Medical Ethics.
    In this paper, we report the results from an experimental reproductive ethics study exploring questions about reproduction and parenthood. The main finding in our study is that, while we may assume that everyone understands these concepts and their relationship in the same way, this assumption may be unwarranted. For example, we may assume that if ‘x is y’s father’, it follows that ‘y is x’s child’. However, the participants in our study did not necessarily agree that it does follow. This (...)
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  12.  74
    Beyond the central dogma: ecogenomics and the implication for bioethics.Kristien Hens & Daan Kenis - manuscript
    In this chapter, we describe three areas within the broad field of ecogenomics or postgenomics: epigenetics, proteomics, and microbiomics. We argue that these fields challenge traditional bioethics in different ways. Since epigenetic, proteomic, and microbiomic data may contain phenotypical information, they may intensify discussions about consent, privacy, and return of results. But these fields also firmly position organisms, including human beings, as deeply entangled with their environments, as constituted by context, history, and experiences as much as genes. This yields new (...)
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  13.  59
    Paper: The return of individual research findings in paediatric genetic research.Kristien Hens, Herman Nys, Jean-Jacques Cassiman & Kris Dierickx - 2011 - Journal of Medical Ethics 37 (3):179-183.
    The combination of the issue of return of individual genetic results/incidental findings and paediatric biobanks is not much discussed in ethical literature. The traditional arguments pro and con return of such findings focus on principles such as respect for persons, autonomy and solidarity. Two dimensions have been distilled from the discussion on return of individual results in a genetic research context: the respect for a participant’s autonomy and the duty of the researcher. Concepts such as autonomy and solidarity do not (...)
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  14.  38
    Preserving children’s fertility: two tales about children’s right to an open future and the margins of parental obligations.Daniela Cutas & Kristien Hens - 2015 - Medicine, Health Care and Philosophy 18 (2):253-260.
    The sources, extent and margins of parental obligations in taking decisions regarding their children’s medical care are subjects of ongoing debates. Balancing children’s immediate welfare with keeping their future open is a delicate task. In this paper, we briefly present two examples of situations in which parents may be confronted with the choice of whether to authorise or demand non-therapeutic interventions on their children for the purpose of fertility preservation. The first example is that of children facing cancer treatment, and (...)
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  15.  57
    Pandemic Risk and Standpoint Epistemology: A Matter of Solidarity.Katrien Schaubroeck & Kristien Hens - 2022 - Health Care Analysis 30 (2):146-162.
    Current and past pandemics have several aspects in common. It is expected that all members of society contribute to beat it. But it is also clear that the risks associated with the pandemic are different for different groups. This makes that appeals to solidarity based on technocratic risk calculations are only partially successful. Objective ‘risks of transmission’ may, for example, be trumped by risks of letting down people in need of help or by missing out certain opportunities in life. In (...)
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  16.  39
    Chromosome Screening Using Noninvasive Prenatal Testing Beyond Trisomy-21: What to Screen for and Why It Matters.Kristien Hens - 2018 - Journal of Medicine and Philosophy 43 (1):8-21.
    With the new and highly accurate noninvasive prenatal test, new options for screening become available. I contend that the current state of the art of NIPT is already in need of a thorough ethical investigation and that there are different points to consider before any chromosomal or subchromosomal condition is added to the screening panel of a publicly funded screening program. Moreover, the application of certain ethical principles makes the inclusion of some conditions unethical in a privately funded scheme, even (...)
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  17. Neurological Diversity and Epigenetic Influences in Utero. An Ethical Investigation of Maternal Responsibility Towards the Future Child.Kristien Hens - 2016 - In Kristien Hens, Daniela Cutas & Dorothee Horstkötter (eds.), Parental Responsibility in the Context of Neuroscience and Genetics. Cham: Springer International Publishing.
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  18. The ethics of complexity. Genetics and autism, a literature review.Kristien Hens, Hilde Peeters & Kris Dierickx - 2016 - American Journal of Medical Genetics Part B: Neuropsychiatric Genetics 171 (3).
    -/- It is commonly believed that the etiology of autism is at least partly explained through genetics. Given the complexity of autism and the variability of the autistic phenotype, genetic research and counseling in this field are also complex and associated with specific ethical questions. Although the ethics of autism genetics, especially with regard to reproductive choices, has been widely discussed on the public fora, an in depth philosophical or bioethical reflection on all aspects of the theme seems to be (...)
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  19.  72
    (1 other version)The history of the concept of pain: how the experts came to be out of touch with the folk.Benjamin Goldberg, Kevin Reuter, Justin Sytsma, Kristien Hens & Andreas De Block - 2019 - In Richard Samuels & Daniel Wilkenfeld (eds.), Advances in Experimental Philosophy of Science. London: Bloomsbury. pp. 173-190.
    In this chapter we consider the tension between how pain researchers today typically define pains and the dominant, ordinary conception of pain. While both philosophers and pain scientists define pains as experiences, taking this to correspond with the ordinary understanding, recent empirical evidence indicates that laypeople tend to think of pains as qualities of bodily states. How did this divide come about? To answer, we sketch the historical origins of the concept of pain in Western medicine, providing evidence that during (...)
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  20.  22
    Global Health Disparities: Can Liberal Perfectionism Better Address the Problem?Eman Ahmed & Kristien Hens - 2021 - American Journal of Bioethics 21 (9):48-50.
    In his article, Ismaili M’hamdi argues that a neutralist approach in public health policy might turn into a gap that separates citizens who endure preventable poor conditions from the state...
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  21.  76
    Parental Choices and the Prospect of Regret: An Alternative Account.Katrien Schaubroeck & Kristien Hens - 2017 - International Journal of Philosophical Studies 25 (5):586-607.
    ABSTRACTIs the question ‘will you regret it if you do this?’ helpful when people face difficult life decisions, such as terminating a pregnancy if a disability is detected or deciding to become a parent? Despite the commonness of the question in daily life, several philosophers have argued lately against its usefulness. We reconstruct four arguments from recent literature on regret, transformative experience and the use of imagination in deliberation. After analysis of these arguments we conclude that the prospect of regret (...)
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  22.  26
    Cognitive Enhancement: Toward a Rational Public Consensus.Eman Ahmed & Kristien Hens - 2020 - American Journal of Bioethics Neuroscience 11 (4):263-265.
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  23.  33
    Ethics is everywhere: Human Geography, Bioethics and the value of interdisciplinary collaboration.Kristien Hens & Daniel P. Jones - 2023 - Bioethics 37 (7):615-616.
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  24.  42
    Parental Responsibility in the Context of Neuroscience and Genetics.Kristien Hens, Daniela Cutas & Dorothee Horstkötter (eds.) - 2016 - Cham: Springer International Publishing.
    Should parents aim to make their children as normal as possible to increase their chances to “fit in”? Are neurological and mental health conditions a part of children’s identity and if so, should parents aim to remove or treat these? Should they aim to instill self-control in their children? Should prospective parents take steps to insure that, of all the children they could have, they choose the ones with the best likely start in life? -/- This volume explores all of (...)
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  25.  15
    Epigenetics, Bioethics and a Developmental Outlook on Life.Kristien Hens - 2024 - In Emma Moormann, Anna Smajdor & Daniela Cutas (eds.), Epigenetics and Responsibility: Ethical Perspectives. Bristol University Press. pp. 23-36.
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  26.  35
    Part of my story. The meaning and experiences of genes and genetics for sperm donor-conceived offspring.Astrid Indekeu & Kristien Hens - 2019 - New Genetics and Society 38 (1):18-37.
    Existing empirical research often do not explain which concepts about genetics underlie the assumption that genetic information is deemed important for donor-conceived offspring. This study focused on how donor-conceived individuals following anonymous sperm donation give meaning to and make sense of genes and genetics. Analysis is based on focus groups and interviews with adult donor-conceived offspring. Findings suggest that genes are part of their specific context of being donor-conceived but also play a role in daily life. Genes make sense on (...)
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  27.  55
    Ethical issues surrounding the provider initiated opt – Out prenatal HIV screening practice in Sub – Saharan Africa: a literature review.Luchuo Engelbert Bain, Kris Dierickx & Kristien Hens - 2015 - BMC Medical Ethics 16 (1):1-12.
    BackgroundPrevention of mother to child transmission of HIV remains a key public health priority in most developing countries. The provider Initiated Opt – Out Prenatal HIV Screening Approach, recommended by the World Health Organization lately has been adopted and translated into policy in most Sub – Saharan African countries. To better ascertain the ethical reasons for or against the use of this approach, we carried out a literature review of the ethics literature.MethodsPapers published in English and French Languages between 1990 (...)
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  28.  40
    Double Trouble: Preventive Genomic Sequencing and the Case of Minors.Kristien Hens & Kris Dierickx - 2015 - American Journal of Bioethics 15 (7):30-31.
  29.  9
    Introduction.Emma Moormann & Kristien Hens - 2024 - In Emma Moormann, Anna Smajdor & Daniela Cutas (eds.), Epigenetics and Responsibility: Ethical Perspectives. Bristol University Press. pp. 1-22.
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  30.  33
    Editorial: Dis/Abling Gender in Crisis Times.Evelien Geerts, Josephine Hoegaerts, Kristien Hens & Daniel Blackie - 2022 - Tijdschrift Voor Genderstudies 25 (1).
    The ongoing COVID-19 pandemic has made explicit what many of us already knew and some of us are constantly made to feel: good health and the abilities of our bodies & minds1 are fluid and uncertain. We can only ever hold them precariously (Butler, 2004; Scully, 2014). In the end, we are all vulnerable beings. And, yet, vulnerability, perhaps especially in times of crisis, can never be fully universalised, nor is it distributed equally: the value and definition of what our (...)
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  31.  8
    Responsibility and the Microbiome.Kristien Hens & Eman Ahmed - 2024 - In Emma Moormann, Anna Smajdor & Daniela Cutas (eds.), Epigenetics and Responsibility: Ethical Perspectives. Bristol University Press. pp. 129-141.
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  32.  25
    Microbiome in Precision Psychiatry: An Overview of the Ethical Challenges Regarding Microbiome Big Data and Microbiome-Based Interventions.Eman Ahmed & Kristien Hens - 2022 - American Journal of Bioethics Neuroscience 13 (4):270-286.
    There has been a spurt in both fundamental and translational research that examines the underlying mechanisms of the human microbiome in psychiatric disorders. The personalized and dynamic features of the human microbiome suggest the potential of its manipulation for precision psychiatry in ways to improve mental health and avoid disease. However, findings in the field of microbiome also raise philosophical and ethical questions. From a philosophical point of view, they may yet be another attempt at providing a biological cause for (...)
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  33.  40
    Autisme als meerduidig en dynamisch fenomeen.Kristien Hens & Leni Van Goidsenhoven - 2018 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 110 (4):421-451.
    Autism as a polysemic and dynamic phenomenonIn this paper we demonstrate how the dominant discourse about autism, that stresses biological explanations, has certain ethical implications. On the one hand, such discourse is exculpating. In autism’s history, genetic explanations helped removing the blame from so-called refrigerator mothers. In present-day diagnostic practice, the idea of having a biological diagnosis helps people and their parents see beyond blame and guilt. On the other hand, a simplistic approach to biology risks neglecting the experiences and (...)
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  34.  45
    Advances in experimental philosophy of medicine.Kristien Hens & Andreas de Block (eds.) - 2023 - New York: Bloomsbury Academic.
    This open access collection brings together a team of leading scholars and rising stars to consider what experimental philosophy of medicine is and can be. While experimental philosophy of science is an established field, attempts to tackle issues in philosophy of medicine from an experimental angle are still surprisingly scarce. A team of interdisciplinary scholars demonstrate how we can make progress by integrating a variety of methods from experimental philosophy, including experiments, sociological surveys, simulations, as well as history and philosophy (...)
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  35. Beyond the central dogma: ecogenomics and the implication for bioethics.Kristien Hens & Daan Kenis - manuscript
    In this chapter, we describe three areas within the broad field of ecogenomics or postgenomics: epigenetics, proteomics, and microbiomics. We argue that these fields challenge traditional bioethics in different ways. Since epigenetic, proteomic, and microbiomic data may contain phenotypical information, they may intensify discussions about consent, privacy, and return of results. But these fields also firmly position organisms, including human beings, as deeply entangled with their environments, as constituted by context, history, and experiences as much as genes. This yields new (...)
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  36. Chance encounters: a bioethics for a damaged planet.Kristien Hens - 2022 - Cambridge, UK: Open Book Publishers.
     
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  37.  22
    Conceptualizing neurodevelopmental disorders as networks: Promises and challenges.Kristien Hens, Kris Evers & Johan Wagemans - 2019 - Behavioral and Brain Sciences 42.
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  38.  2
    Denken met wetenschap. Een ander verhaal dat we zouden kunnen vertellen.Kristien Hens - 2023 - de Uil Van Minerva 36 (4).
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  39.  18
    Inleiding.Kristien Hens & Katrien Schaubroeck - 2019 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 111 (4):499-504.
    Amsterdam University Press is a leading publisher of academic books, journals and textbooks in the Humanities and Social Sciences. Our aim is to make current research available to scholars, students, innovators, and the general public. AUP stands for scholarly excellence, global presence, and engagement with the international academic community.
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  40.  26
    Kinderen krijgen in apocalyptische tijden.Kristien Hens & Katrien Schaubroeck - 2019 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 111 (4):621-641.
    Procreation in the face of an apocalypse: Some ethical considerations In the field of procreation ethics both Kantian and consequentialist arguments have been developed purporting to show the moral impermissibility of having (more than two) children. A survey of the most important arguments leaves us wondering whether one could derive general obligations or prohibitions from abstract principles and apply them to deeply personal decisions about whether or not to have children (and how many). At the same time it is undeniably (...)
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  41.  16
    Normaal versus abnormaal, typisch versus atypisch.Kristien Hens - 2020 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 112 (1):59-63.
    Amsterdam University Press is a leading publisher of academic books, journals and textbooks in the Humanities and Social Sciences. Our aim is to make current research available to scholars, students, innovators, and the general public. AUP stands for scholarly excellence, global presence, and engagement with the international academic community.
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  42.  9
    Toevallige ontmoetingen: bio-ethiek voor een gehavende planeet.Kristien Hens - 2023 - Cambridge, UK: Open Book Publishers.
  43.  13
    What DNA ancestry testing can and cannot tell us.Kristien Hens - 2023 - Metascience 32 (2):185-187.
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  44.  28
    Whole Genome Sequencing of Children’s DNA for Research: Points to Consider.Kristien Hens - 2011 - Journal of Clinical Research and Bioethics 2 (7).
    This report is grounded in several social concepts: First, the primary goal of genetic testing should be to promote the well-being of the child. Second, the recognition that children are part of a network of family relationships supports an approach to potential conflicts that is not adversarial but, rather, emphasizes a deliberative process that seeks to promote the child's well-being within this context. Third, as children grow through successive stages of cognitive and moral development, parents and professionals should be attentive (...)
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  45.  51
    The Diversity of Genetic Perfection.Heidi Mertes & Kristien Hens - 2015 - American Journal of Bioethics 15 (6):34-36.
  46. Ethical responsibilities towards dogs: An inquiry into the dog–human relationship. [REVIEW]Kristien Hens - 2009 - Journal of Agricultural and Environmental Ethics 22 (1):3-14.
    The conditions of life of many companion animals and the rate at which they are surrendered to shelters raise many ethical issues. What duties do we have towards the dogs that live in our society? To suggest answers to these questions, I first give four possible ways of looking at the relationship between man and dog: master–slave, employer–worker, parent–child, and friend–friend. I argue that the morally acceptable relationships are of a different kind but bears family resemblances to the latter three. (...)
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  47.  16
    Book Review: David Koepsell-Who Owns You? The Corporate Gold Rush to Patent Your Genes. [REVIEW]Kristien Hens - 2010 - Ethical Perspectives 17 (1):125.
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  48.  19
    (1 other version)Book Review: Donna Haraway-When Species Meet. [REVIEW]Kristien Hens - 2008 - Ethical Perspectives 15 (3):422-423.
  49.  17
    (1 other version)Book Review: Evandro Agassi and Fabio Minazzi (eds.)-Science and Ethics, The Axiological Contexts of Science. [REVIEW]Kristien Hens - 2009 - Ethical Perspectives 16 (4):521-522.
  50.  22
    (1 other version)Book Review: Grant Gillett-Subjectivity and Being Somebody: Human Identity and Neuroethics. [REVIEW]Kristien Hens - 2009 - Ethical Perspectives 16 (3):397.
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