14 found
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  1.  70
    Death and organ procurement: Public beliefs and attitudes.Laura A. Siminoff, Christopher Burant & Stuart J. Youngner - 2004 - Kennedy Institute of Ethics Journal 14 (3):217-234.
    : Although "brain death" and the dead donor rule—i.e., patients must not be killed by organ retrieval—have been clinically and legally accepted in the U.S. as prerequisites to organ removal, there is little data about public attitudes and beliefs concerning these matters. To examine the public attitudes and beliefs about the determination of death and its relationship to organ transplantation, 1351 Ohio residents ≥18 years were randomly selected and surveyed using random digit dialing (RDD) sample frames. The RDD telephone survey (...)
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  2.  15
    The Fallacy of the “Gift of Life”.Laura A. Siminoff & Kata Chillag - 1999 - Hastings Center Report 29 (6):34-41.
    In the dominant metaphor for organ transplantation, the organ is the ultimate gift, the dying donor's life‐giving bequest, conveyed and made possible by a heroic transplant team. The metaphor encourages donation and enforces recipients’ compliance with post‐transplant treatment. It is also inaccurate and sometimes deeply damaging for the recipient.
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  3.  81
    Public Policy, Public Opinion, and Consent for Organ Donation.Laura A. Siminoff & Mary Beth Mercer - 2001 - Cambridge Quarterly of Healthcare Ethics 10 (4):377-386.
    Medical advances in transplantation techniques have driven an exponential increase in the demand for transplantable organs. Unfortunately, policy efforts to bolster the organ supply have been less than effective, failing to provide a stopgap for ever-increasing numbers of patients who await organ transplantation. The number of registrations on waiting lists exceeded 65,245 in early 1999, a 325% increase over the 20,000 that existed 11 years earlier in 1988. Regrettably, more than 4,000 patients die each year while awaiting transplantation.
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  4.  12
    Conducting Empirical Research on Informed Consent: Challenges and Questions.Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson & Anita Weiss - 2003 - IRB: Ethics & Human Research 25 (5):S4.
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  5.  28
    Empirical research on informed consent with the cognitively impaired.Gavin W. Hougham, Greg A. Sachs, Deborah Danner, Jim Mintz, Marian Patterson, Laura W. Roberts, Laura A. Siminoff, Jeremy Sugarman, Peter J. Whitehouse & Donna Wirshing - 2003 - IRB: Ethics & Human Research 25 (5):s26 - 32.
  6.  91
    African-american reluctance to donate: Beliefs and attitudes about organ donation and implications for policy.Laura A. Siminoff & Christina M. Saunders Sturm - 2000 - Kennedy Institute of Ethics Journal 10 (1):59-74.
    : This paper reviews current and suggested policies designed to increase organ donation in the United States and indicates the problems inherent to these approaches for increasing organ donation by African Americans. Data from a population-based study assessing attitudes and beliefs about organ donation among white and African-American respondents are presented and discussed. We pose the question of whether it is reasonable to maintain the existing system or whether we should institute a system that uses policies based on the attitudes (...)
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  7.  56
    The promise of empirical research in the study of informed consent theory and practice.Laura A. Siminoff, Marie Caputo & Christopher Burant - 2004 - HEC Forum 16 (1):53-71.
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  8.  14
    Children in research: new perspectives and practices for informed consent.Marion E. Broome, Eric Kodish, Gail Geller & Laura A. Siminoff - 2003 - IRB: Ethics & Human Research 5 (5):S20 - S23.
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  9.  24
    The dead donor rule: Not dead yet.Laura A. Siminoff - 2003 - American Journal of Bioethics 3 (1):30.
  10.  19
    Money and the Research Subject: A Comment on Grady.Laura A. Siminoff - 2001 - American Journal of Bioethics 1 (2):65-66.
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  11.  4
    The psychosocial burden of visible disfigurement following traumatic injury.David B. Sarwer, Laura A. Siminoff, Heather M. Gardiner & Jacqueline C. Spitzer - 2022 - Frontiers in Psychology 13.
    Hundreds of thousands of individuals experience traumatic injuries each year. Some are mild to moderate in nature and patients experience full functional recovery and little change to their physical appearance. Others result in enduring, if not permanent, changes in physical functioning and appearance. Reconstructive plastic surgical procedures are viable treatments options for many patients who have experienced the spectrum of traumatic injuries. The goal of these procedures is to restore physical functioning and reduce the psychosocial burden of living with an (...)
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  12.  13
    Toward Improving the Informed Consent Process in Research with Humans.Laura A. Siminoff - 2003 - IRB: Ethics & Human Research 25 (5):S1.
  13.  2
    Impact of Cognitive Load on Family Decision Makers’ Recall and Understanding of Donation Requests for the Genotype-Tissue Expression (GTEx) Project.Gary Walters, Richard D. Hasz, Howard M. Nathan, Heather M. Traino, Jennifer Trgina, Laura Barker, Maghboeba Mosavel, Maureen Wilson-Genderson & Laura A. Siminoff - 2018 - Journal of Clinical Ethics 29 (1):20-30.
    Genomic research projects that collect tissues from deceased organ and tissue donors must obtain the authorization of family decision makers under difficult circumstances that may affect the authorization process. Using a quasi-experimental design, the Ethical, Legal, and Social Issues (ELSI) substudy of the Genotype-Tissue Expression (GTEx) project compared the recall and understanding of the donation authorization process of two groups: family members who had authorized donation of tissues to the GTEx project (the comparison group) and family members who had authorized (...)
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  14.  24
    Introduction.Stuart J. Youngner, Laura A. Siminoff & Renie Schapiro - 2004 - Kennedy Institute of Ethics Journal 14 (3):211-215.
    In lieu of an abstract, here is a brief excerpt of the content:IntroductionStuart J. Youngner (bio), Laura A. Siminoff (bio), and Renie Schapiro (bio)This issue of the Kennedy Institute of Ethics Journal (KIEJ) centers on a piece of empirical research. The motivation behind the study of Laura Siminoff, Christopher Burant, and Stuart Youngner (2004) was to find out more about what the general public understands and believes about when a person is dead. More specifically, the study tried to determine how (...)
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