10 found
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  1. Exit from Brain Device Research: A Modified Grounded Theory Study of Researcher Obligations and Participant Experiences.Lauren R. Sankary, Megan Zelinsky, Andre Machado, Taylor Rush, Alexandra White & Paul J. Ford - 2022 - American Journal of Bioethics Neuroscience 13 (4):215-226.
    As clinical trials end, little is understood about how participants exiting from clinical trials approach decisions related to the removal or post-trial use of investigational brain implants, such as deep brain stimulation (DBS) devices. This empirical bioethics study examines how research participants experience the process of exit from research at the end of clinical trials of implanted neural devices. Using a modified grounded theory study design, we conducted semi-structured, in-depth interviews with 16 former research participants from clinical trials of DBS (...)
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  2.  17
    Proceedings of the Seventh Annual Deep Brain Stimulation Think Tank: Advances in Neurophysiology, Adaptive DBS, Virtual Reality, Neuroethics and Technology.Adolfo Ramirez-Zamora, James Giordano, Aysegul Gunduz, Jose Alcantara, Jackson N. Cagle, Stephanie Cernera, Parker Difuntorum, Robert S. Eisinger, Julieth Gomez, Sarah Long, Brandon Parks, Joshua K. Wong, Shannon Chiu, Bhavana Patel, Warren M. Grill, Harrison C. Walker, Simon J. Little, Ro’ee Gilron, Gerd Tinkhauser, Wesley Thevathasan, Nicholas C. Sinclair, Andres M. Lozano, Thomas Foltynie, Alfonso Fasano, Sameer A. Sheth, Katherine Scangos, Terence D. Sanger, Jonathan Miller, Audrey C. Brumback, Priya Rajasethupathy, Cameron McIntyre, Leslie Schlachter, Nanthia Suthana, Cynthia Kubu, Lauren R. Sankary, Karen Herrera-Ferrá, Steven Goetz, Binith Cheeran, G. Karl Steinke, Christopher Hess, Leonardo Almeida, Wissam Deeb, Kelly D. Foote & Okun Michael S. - 2020 - Frontiers in Human Neuroscience 14.
  3.  2
    When Obligations Conflict: Necessary Violations of Trauma Informed Care in Ethics Consultation?Paul J. Ford, Georgina Morley & Lauren R. Sankary - 2022 - American Journal of Bioethics 22 (5):60-62.
    Complex clinical ethics cases require a blend of compassion, sensitivity, and tenacity in order to navigate the hard work required of stakeholders. Each person comes to the table with rich historie...
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  4.  3
    Deconstructing Structural Injustices in the Clinic, Classroom, and Boardroom.Georgina Morley, Timothy E. Brown, Lauren R. Sankary & Sundus H. Riaz - 2022 - American Journal of Bioethics 22 (3):29-32.
    Russell articulates compelling reasons that bioethicists and health care professionals should take individual responsibility for deconstructing structural injustices in healthcare through in...
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  5.  16
    Treating Medically Unexplained Symptoms Empirically: Ethical Implications for Concurrent Diagnosis.Lauren R. Sankary & Paul J. Ford - 2018 - American Journal of Bioethics 18 (5):16-17.
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  6.  3
    Publication of Study Exit Procedures in Clinical Trials of Deep Brain Stimulation: A Focused Literature Review.Lauren R. Sankary, Akila M. Nallapan, Olivia Hogue, Andre G. Machado & Paul J. Ford - 2020 - Frontiers in Human Neuroscience 14.
  7.  14
    Good Samaritan Ethics for Doctors Watching Edutainment.Lauren R. Sankary & Paul J. Ford - 2016 - American Journal of Bioethics 16 (11):53-54.
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  8.  2
    Overcoming barriers to informed consent in neurological research: Perspectives from a national survey.Lauren R. Sankary, Megan E. Zelinsky, Paul J. Ford, Eric C. Blackstone & Robert J. Fox - 2023 - Research Ethics 19 (1):42-61.
    The ethical recruitment of participants with neurological disorders in clinical research requires obtaining initial and ongoing informed consent. The purpose of this study is to characterize barriers faced by research personnel in obtaining informed consent from research participants with neurological disorders and to identify strategies applied by researchers to overcome those barriers. This study was designed as a web-based survey of US researchers with an optional follow-up interview. A subset of participants who completed the survey were selected using a stratified (...)
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    Reconciling Supported Decision Making with Shared Decision Making in the Context of Potential Vulnerability.Paul J. Ford, Lauren R. Sankary & Devora Shapiro - 2021 - American Journal of Bioethics 21 (11):35-37.
    Supported decision making, as outlined by Peterson et al. highlights real-world challenges in the messy context of clinical care. We agree with Peterson et al. that patients...
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  10.  3
    Mitigating Moral Distress through Ethics Consultation.Georgina Morley, Lauren R. Sankary & Cristie Cole Horsburgh - 2022 - American Journal of Bioethics 22 (4):61-63.
    While the phenomenon of ‘moral distress’ has been of interest to the nursing community since Jameton first described it in 1984, moral distress is now understood to effect healthcare professionals...
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