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  1.  45
    Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue.Donald J. Willison, Marilyn Swinton, Lisa Schwartz, Julia Abelson, Cathy Charles, David Northrup, Ji Cheng & Lehana Thabane - 2008 - BMC Medical Ethics 9 (1):18-.
    BackgroundThe role of consent for research use of health information is contentious. Most discussion has focused on when project-specific consent may be waived but, recently, a broader range of consent options has been entertained, including broad opt-in for multiple studies with restrictions and notification with opt-out. We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues.MethodsWe conducted seven (...)
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  2.  49
    Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?Donald J. Willison, Valerie Steeves, Cathy Charles, Lisa Schwartz, Jennifer Ranford, Gina Agarwal, Ji Cheng & Lehana Thabane - 2009 - BMC Medical Ethics 10 (1):10-.
    BackgroundStigma refers to a distinguishing personal trait that is perceived as or actually is physically, socially, or psychologically disadvantageous. Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research.MethodsWe surveyed the opinions of people 18 years and older with seven health conditions. Participants were drawn from: physicians' offices and clinics in southern Ontario; and from a cross-Canada marketing panel of individuals (...)
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  3.  22
    Putting a positive spin on ethics teaching.Marion G. Ben-Jacob, Nancy L. Jones, Robert W. Brock, Kathleen H. Moore, Paul Ndebele & Lehana Thabane - 2018 - International Journal of Ethics Education 3 (2):125-133.
    Scientific endeavor is the pursuit of knowledge with the aim of advancing the welfare of all human beings. This endeavor is built on the ideology of science; thus, society relies on the integrity of the practice of science and of scientists themselves. The responsible conduct of research is the essence of good science; however, many of the pedagogical approaches used to instill integrity in science accentuate the negative rather than exemplify ideal professionalism. This paper makes an argument for the inculcation (...)
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  4.  32
    Determining the Level of Statistician Participation on Canadian-Based Research Ethics Boards.Lehana Thabane, Aaron Childs & Amanda Lafontaine - 2005 - IRB: Ethics & Human Research 27 (2):11.
  5.  7
    Protocol for the development of a CONSORT extension for RCTs using cohorts and routinely collected health data.Brett D. Thombs, David Torgerson, Maureen Sauvé, David Erlinge, Eric I. Benchimol, Helena M. Verkooijen, Rudolf Uher, Lehana Thabane, Tjeerd P. van Staa, Kimberly A. Mc Cord, Marion K. Campbell, Philippe Ravaud, Isabelle Boutron, David Moher, Sinéad M. Langan, Merrick Zwarenstein, Chris Gale, Clare Relton, Ole Fröbert, Margaret Sampson, Lars G. Hemkens, Edmund Juszczak & Linda Kwakkenbos - 2018 - Research Integrity and Peer Review 3 (1).
    BackgroundRandomized controlled trials (RCTs) are often complex and expensive to perform. Less than one third achieve planned recruitment targets, follow-up can be labor-intensive, and many have limited real-world generalizability. Designs for RCTs conducted using cohorts and routinely collected health data, including registries, electronic health records, and administrative databases, have been proposed to address these challenges and are being rapidly adopted. These designs, however, are relatively recent innovations, and published RCT reports often do not describe important aspects of their methodology in (...)
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