5 found
Order:
  1.  17
    Making Researchers Moral: Why Trustworthiness Requires More Than Ethics Guidelines and Review.Linus Johnsson, Stefan Eriksson, Gert Helgesson & Mats G. Hansson - 2014 - Research Ethics 10 (1):29-46.
    Research ethics, once a platform for declaring intent, discussing moral issues and providing advice and guidance to researchers, has developed over time into an extra-legal regulatory system, complete with steering documents (ethics guidelines), overseeing bodies (research ethics committees) and formal procedures (informed consent). The process of institutionalizing distrust is usually motivated by reference to past atrocities committed in the name of research and the need to secure the trustworthiness of the research system. This article examines some limitations of this approach. (...)
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  2.  26
    Autonomy is a Right, Not a Feat: How Theoretical Misconceptions Have Muddled the Debate on Dynamic Consent to Biobank Research.Linus Johnsson & Stefan Eriksson - 2016 - Bioethics 30 (7):471-478.
    Should people be involved as active participants in longitudinal medical research, as opposed to remaining passive providers of data and material? We argue in this article that misconceptions of ‘autonomy’ as a kind of feat rather than a right are to blame for much of the confusion surrounding the debate of dynamic versus broad consent. Keeping in mind two foundational facts of human life, freedom and dignity, we elaborate three moral principles – those of autonomy, integrity and authority – to (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  3.  17
    The Right to Withdraw Consent to Research on Biobank Samples.Gert Helgesson & Linus Johnsson - 2005 - Medicine, Health Care and Philosophy 8 (3):315-321.
    Ethical guidelines commonly state that research subjects should have a right to withdraw consent to participate. According to the guidelines we have studied, this right applies also to research on biological samples. However, research conducted on human subjects themselves differs in important respects from research on biological samples. It is therefore not obvious that the same rights should be granted research participants in the two cases. This paper investigates arguments for and against granting a right to withdraw consent to research (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  4.  28
    Adequate Trust Avails, Mistaken Trust Matters: On the Moral Responsibility of Doctors as Proxies for Patients' Trust in Biobank Research.Linus Johnsson, Gert Helgesson, Mats G. Hansson & Stefan Eriksson - 2013 - Bioethics 27 (9):485-492.
    In Sweden, most patients are recruited into biobank research by non-researcher doctors. Patients' trust in doctors may therefore be important to their willingness to participate. We suggest a model of trust that makes sense of such transitions of trust between domains and distinguishes adequate trust from mistaken trust. The unique position of doctors implies, we argue, a Kantian imperfect duty to compensate for patients' mistaken trust. There are at least three kinds of mistaken trust, each of which requires a different (...)
    Direct download (8 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  5.  4
    How General Practitioners Decide on Maxims of Action in Response to Demands From Conflicting Sets of Norms: A Grounded Theory Study.Linus Johnsson & Lena Nordgren - 2019 - BMC Medical Ethics 20 (1):33.
    The work of general practitioners is infused by norms from several movements, of which evidence based medicine, patient-centredness, and virtue ethics are some of the most influential. Their precepts are not clearly reconcilable, and structural factors may limit their application. In this paper, we develop a conceptual framework that explains how GPs respond, across different fields of interaction in their daily work, to the pressure exerted by divergent norms. Data was generated from unstructured interviews with and observations of sixteen Swedish (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark