4 found
  1.  7
    Making Researchers Moral: Why Trustworthiness Requires More Than Ethics Guidelines and Review.Linus Johnsson, Stefan Eriksson, Gert Helgesson & Mats G. Hansson - 2014 - Research Ethics 10 (1):29-46.
    Research ethics, once a platform for declaring intent, discussing moral issues and providing advice and guidance to researchers, has developed over time into an extra-legal regulatory system, complete with steering documents (ethics guidelines), overseeing bodies (research ethics committees) and formal procedures (informed consent). The process of institutionalizing distrust is usually motivated by reference to past atrocities committed in the name of research and the need to secure the trustworthiness of the research system. This article examines some limitations of this approach. (...)
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  2.  23
    Adequate Trust Avails, Mistaken Trust Matters: On the Moral Responsibility of Doctors as Proxies for Patients' Trust in Biobank Research.Linus Johnsson, Gert Helgesson, Mats G. Hansson & Stefan Eriksson - 2013 - Bioethics 27 (9):485-492.
    In Sweden, most patients are recruited into biobank research by non-researcher doctors. Patients' trust in doctors may therefore be important to their willingness to participate. We suggest a model of trust that makes sense of such transitions of trust between domains and distinguishes adequate trust from mistaken trust. The unique position of doctors implies, we argue, a Kantian imperfect duty to compensate for patients' mistaken trust. There are at least three kinds of mistaken trust, each of which requires a different (...)
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    The Right to Withdraw Consent to Research on Biobank Samples.Gert Helgesson & Linus Johnsson - 2005 - Medicine, Health Care and Philosophy 8 (3):315-321.
  4.  8
    Autonomy is a Right, Not a Feat: How Theoretical Misconceptions Have Muddled the Debate on Dynamic Consent to Biobank Research.Linus Johnsson & Stefan Eriksson - 2016 - Bioethics 30 (7):471-478.
    Should people be involved as active participants in longitudinal medical research, as opposed to remaining passive providers of data and material? We argue in this article that misconceptions of ‘autonomy’ as a kind of feat rather than a right are to blame for much of the confusion surrounding the debate of dynamic versus broad consent. Keeping in mind two foundational facts of human life, freedom and dignity, we elaborate three moral principles – those of autonomy, integrity and authority – to (...)
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