9 found
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  1. Country Reports.Ma'N. H. Zawati, Don Chalmers, Sueli G. Dallari, Marina de Neiva Borba, Miriam Pinkesz, Yann Joly, Haidan Chen, Mette Hartlev, Liis Leitsalu, Sirpa Soini, Emmanuelle Rial-Sebbag, Nils Hoppe, Tina Garani-Papadatos, Panagiotis Vidalis, Krishna Ravi Srinivas, Gil Siegal, Stefania Negri, Ryoko Hatanaka, Maysa Al-Hussaini, Amal Al-Tabba', Lourdes Motta-Murgía, Laura Estela Torres Moran, Aart Hendriks, Obiajulu Nnamuchi, Rosario Isasi, Dorota Krekora-Zajac, Eman Sadoun, Calvin Ho, Pamela Andanda, Won Bok Lee, Pilar Nicolás, Titti Mattsson, Vladislava Talanova, Alexandre Dosch, Dominique Sprumont, Chien-Te Fan, Tzu-Hsun Hung, Jane Kaye, Andelka Phillips, Heather Gowans, Nisha Shah & James W. Hazel - 2019 - Journal of Law, Medicine and Ethics 47 (4):582-704.
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  2.  19
    International Guidelines for Privacy in Genomic Biobanking.Adrian Thorogood & Ma'N. H. Zawati - 2015 - Journal of Law, Medicine and Ethics 43 (4):690-702.
    In an era of unrivalled sequencing, computation and networking capability, international sharing of genomic samples and data is becoming a modus operandi for modern medical research. Researchers are collaborating to establish large collections with global scale. Having never before set foot outside the cell, the molecules that shape us are being digitized and launched across the globe. Protecting individual privacy interests in this information is a central challenge of the genomic research era. This article reviews international privacy norms governing human (...)
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  3.  14
    The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs.Gabrielle Bertier, Ma'N. H. Zawati & Yann Joly - 2015 - American Journal of Bioethics 15 (7):22-24.
  4.  6
    Demystifying Biobanks.Bartha M. Knoppers, Edward S. Dove & Ma'N. H. Zawati - 2013 - Hastings Center Report 43 (5):4-5.
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    Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations.Mark A. Rothstein, Ma'N. H. Zawati, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Catherine M. Hammack-Aviran, James W. Hazel, Yann Joly, Michael Lang, Dimitri Patrinos, Andrea Saltzman & Bartha Maria Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (4):705-731.
  6.  1
    Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?Mark A. Rothstein, Ma'N. H. Zawati & Bartha Maria Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (2):336-341.
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    Biobanks and the Return of Research Results: Out with the Old and In with the New?Ma'N. H. Zawati & Amélie Rioux - 2011 - Journal of Law, Medicine and Ethics 39 (4):614-620.
    This article examines the complex and contemporary issue of the return of research results in biobanks. After suggesting the exclusion of some adjacent issues usually flanking the debate, this article reviews the current practices of biobanks on the disclosure of research results to participants. It then focuses more specifically on the debate in the literature before turning to a review of the typology of recent reforms being put forward.
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    Biobanks and the Return of Research Results: Out with the Old and in with the New?Ma'N. H. Zawati & Amélie Rioux - 2011 - Journal of Law, Medicine and Ethics 39 (4):614-620.
    In 2009, Time magazine named “biobanks” as one of the 10 ideas changing the world. These organized collections of human biological material and associated data have been identified as “vital research tools in the drive to uncover the consequences of human health and disease.” Since their inception, however, biobanks have faced ethical and legal challenges. Whether these pertain to informed consent, access by researchers, commercialization, confidentiality, or governance, biobanks must continue to address jurisdictional matters, operational difficulties, and normative frameworks that (...)
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  9. Introduction to the Country Reports.Ma'N. H. Zawati - 2019 - Journal of Law, Medicine and Ethics 47 (4):581-581.
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