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Mara Buchbinder [18]Mara H. Buchbinder [2]
  1.  23
    Opening the Door: Rethinking “Difficult Conversations” about Living and Dying with Dementia.Mara Buchbinder & Nancy Berlinger - 2024 - Hastings Center Report 54 (S1):22-28.
    This essay looks closely at metaphors and other figures of speech that often feature in how Americans talk about dementia, becoming part of cultural narratives: shared stories that convey ideas and values, and also worries and fears. It uses approaches from literary studies to analyze how cultural narratives about dementia may surface in conversations with family members or health care professionals. This essay also draws on research on a notable social effect of legalizing medical aid in dying: patients may find (...)
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  2.  22
    MAID in America: Expanding Our Gaze on the Ethics of Assistance.Mara Buchbinder - 2023 - American Journal of Bioethics 23 (9):22-24.
    Bioethical concerns about the potential for abuse in medical aid in dying (MAID) have focused primarily on the risk of coercion (Battin et al. 2007; Foley and Hendin 2002). Accordingly, the require...
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  3.  62
    Reframing Conscientious Care: Providing Abortion Care When Law and Conscience Collide.Mara Buchbinder, Dragana Lassiter, Rebecca Mercier, Amy Bryant & Anne Drapkin Lyerly - 2016 - Hastings Center Report 46 (2):22-30.
    “It's almost like putting salt in a wound, for this person who's already made a very difficult decision,” suggested Meghan Patterson, a licensed obstetrician-gynecologist whom we interviewed in our qualitative study of the experiences of North Carolina abortion providers practicing under the state's Woman's Right to Know Act. The act requires that women receive counseling with state-mandated information at least twenty-four hours prior to obtaining an abortion. After the law was passed, Patterson worked with clinic administrators, in consultation with a (...)
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  4.  33
    Advancing a Data Justice Framework for Public Health Surveillance.Mara Buchbinder, Eric Juengst, Stuart Rennie, Colleen Blue & David L. Rosen - 2022 - AJOB Empirical Bioethics 13 (3):205-213.
    Background Bioethical debates about privacy, big data, and public health surveillance have not sufficiently engaged the perspectives of those being surveilled. The data justice framework suggests that big data applications have the potential to create disproportionate harm for socially marginalized groups. Using examples from our research on HIV surveillance for individuals incarcerated in jails, we analyze ethical issues in deploying big data in public health surveillance. -/- Methods We conducted qualitative, semi-structured interviews with 24 people living with HIV who had (...)
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  5.  38
    Aid-in-dying laws and the physician's duty to inform.Mara Buchbinder - 2017 - Journal of Medical Ethics 43 (10):666-669.
    On 19 July 2016, three medical organisations filed a federal lawsuit against representatives from several Vermont agencies over the Patient Choice and Control at End of Life Act. The law is similar to aid-in-dying laws in four other US states, but the lawsuit hinges on a distinctive aspect of Vermont's law pertaining to patients' rights to information. The lawsuit raises questions about whether, and under what circumstances, there is an ethical obligation to inform terminally ill patients about AID as an (...)
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  6.  15
    Moral Stress and Moral Distress: Confronting Challenges in Healthcare Systems under Pressure.Mara Buchbinder, Alyssa Browne, Nancy Berlinger, Tania Jenkins & Liza Buchbinder - forthcoming - American Journal of Bioethics:1-15.
    Stresses on healthcare systems and moral distress among clinicians are urgent, intertwined bioethical problems in contemporary healthcare. Yet conceptualizations of moral distress in bioethical inquiry often overlook a range of routine threats to professional integrity in healthcare work. Using examples from our research on frontline physicians working during the COVID-19 pandemic, this article clarifies conceptual distinctions between moral distress, moral injury, and moral stress and illustrates how these concepts operate together in healthcare work. Drawing from the philosophy of healthcare, we (...)
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  7.  10
    Protecting Practitioners in Stressed Systems: Translational Bioethics and the COVID-19 Pandemic.Mara Buchbinder, Nancy Berlinger & Tania M. Jenkins - 2022 - Perspectives in Biology and Medicine 65 (4):637-645.
    ABSTRACT:COVID-19 revealed health-care systems in crisis. Intersecting crises of stress, overwork, and poor working conditions have led to workforce strain, under-staffing, and high rates of job turnover. Bioethics researchers have responded to these conditions by investigating the ethical challenges of pandemic response for individuals, institutions, and health systems. This essay draws on pandemic findings to explore how empirical bioethics can inform post-pandemic translational bioethics. Borrowing from the concept of translational science in medicine, this essay proposes that translational bioethics should communicate (...)
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  8.  19
    Scraping the Web for Public Health Gains: Ethical Considerations from a ‘Big Data’ Research Project on HIV and Incarceration.Stuart Rennie, Mara Buchbinder, Eric Juengst, Lauren Brinkley-Rubinstein, Colleen Blue & David L. Rosen - 2020 - Public Health Ethics 13 (1):111-121.
    Web scraping involves using computer programs for automated extraction and organization of data from the Web for the purpose of further data analysis and use. It is frequently used by commercial companies, but also has become a valuable tool in epidemiological research and public health planning. In this paper, we explore ethical issues in a project that “scrapes” public websites of U.S. county jails as part of an effort to develop a comprehensive database to enhance HIV surveillance and improve continuity (...)
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  9.  23
    Understanding Health Inequalities and Justice: New Conversations across the Disciplines.Mara Buchbinder, Michele R. Rivkin-Fish & Rebecca L. Walker (eds.) - 2016 - University of North Carolina Press.
    The need for informed analyses of health policy is now greater than ever. The twelve essays in this volume show that public debates routinely bypass complex ethical, sociocultural, historical, and political questions about how we should address ideals of justice and equality in health care. Integrating perspectives from the humanities, social sciences, medicine, and public health, this volume illuminates the relationships between justice and health inequalities to enrich debates. Understanding Health Inequalities and Justice explores three questions: How do scholars approach (...)
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  10.  11
    Clinicians’ Perspectives on the Duty to Inform Patients About Medical Aid-in-Dying.Elizabeth R. Brassfield & Mara Buchbinder - 2020 - AJOB Empirical Bioethics 11 (1):53-62.
    As of 2019, ten jurisdictions in the United States—Oregon, Washington, Montana, Vermont, California, Colorado, the District of Columbia, Hawaii, New Jersey, and Maine—have authorized physicians to...
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  11.  51
    “Prefacing the Script” as an ethical response to state-mandated abortion counseling.Mara Buchbinder, Dragana Lassiter, Rebecca Mercier, Amy Bryant & Anne Drapkin Lyerly - 2016 - AJOB Empirical Bioethics 7 (1):48-55.
    Background: Laws governing abortion provision are proliferating throughout the United States, yet little is known about how these laws affect providers. We investigated the experiences of abortion...
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  12.  15
    Responding to Requests for Aid-in-Dying: Rethinking the Role of Conscience.Elizabeth R. Brassfield, Manisha Mishra & Mara Buchbinder - 2019 - Narrative Inquiry in Bioethics 9 (1):67-72.
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  13.  6
    Beyond coercion: reframing the influencing other in medically assisted death.Mara Buchbinder & Noah Berens - forthcoming - Journal of Medical Ethics.
    This essay considers how we are to understand the decision to end one’s life under medical aid-in-dying (MAID) statutes and the role of influencing others. Bioethical concerns about the potential for abuse in MAID have focused predominantly on the risk of coercion and other forms of undue influence. Most bioethical analyses of relational influences in MAID have been made by opponents of MAID, who argue that MAID is unethical, in part, because it cannot cleanly accommodate relational influences. In contrast, proponents (...)
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  14.  3
    How Should We Allocate Divisible Resources? An Overlooked Question.Mara Buchbinder & Noah Berens - 2024 - Journal of Clinical Ethics 35 (1):59-64.
    The ethical allocation of scarce medical resources has received significant attention, yet a key question remains unaddressed: how should scarce, divisible resources be allocated? We present a case from the COVID-19 pandemic in which scarce resources were divided among patients rather than allocated to some patients over others. We assess how widely accepted allocation principles could be applied to this case, and we show how these principles provide insufficient guidance. We then propose alternatives that may help guide decision-making in such (...)
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  15.  13
    On Talking Together about Ordinary Abortion.Mara Buchbinder - 2018 - Hastings Center Report 48 (4):44-45.
    The scarlet “A” that the protagonist of Nathaniel Hawthorne's seventeenth‐century novel is forced to pin to her dress symbolizes the shame and social disgrace that she endures for conceiving a child out of adultery. In Scarlet A: The Ethics, Law, & Politics of Ordinary Abortion, Katie Watson argues that abortion is our era's scarlet letter: a mark of stigma that is invisible yet no less shameful, causing unnecessary cultural silences around what is a remarkably common practice. In this brilliant new (...)
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  16.  7
    `You're still sick!' Framing, footing, and participation in children's medical play.Mara H. Buchbinder - 2008 - Discourse Studies 10 (2):139-159.
    Building on foundational work in activity theory and cultural psychology, this article examines children's play to discern how biomedical practices and understandings of illness are negotiated, modeled, and reproduced among children dealing with a parent's cancer. Using discourse analytic methods, I analyze a videotaped playroom interaction involving three preschool-age girls, all of whom have a parent with cancer, and myself. The article employs notions of `frame' and `footing' to illustrate fantasy and reality as overlapping and embedded frames of experience that (...)
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  17.  11
    Corrigendum: Scraping the Web for Public Health Gains: Ethical Considerations from a ‘Big Data’ Research Project on HIV and Incarceration.Stuart Rennie, Mara Buchbinder, Eric Juengst, Lauren Brinkley-Rubinstein & Colleen Blue and David L. Rosen - 2020 - Public Health Ethics 13 (3):314-314.
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  18.  6
    Corrigendum: Scraping the Web for Public Health Gains: Ethical Considerations from a ‘Big Data’ Research Project on HIV and Incarceration.Stuart Rennie, Mara Buchbinder, Eric Juengst, Lauren Brinkley-Rubinstein & Colleen Blue and David L. Rosen - 2020 - Public Health Ethics 13 (3):314-314.
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  19.  17
    In Sickness and in Play: Children Coping with Chronic Illnesses. Cindy Dell Clark. New Brunswick, NJ: Rutgers University Press, 2003. xi + 225 pp. [REVIEW]Mara H. Buchbinder - 2010 - Ethos: Journal of the Society for Psychological Anthropology 38 (1):1-3.
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