16 found
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  1.  16
    Heritable Genome Editing in a Global Context: National and International Policy Challenges.Achim Rosemann, Adam Balen, Brigitte Nerlich, Christine Hauskeller, Margaret Sleeboom-Faulkner, Sarah Hartley, Xinqing Zhang & Nick Lee - 2019 - Hastings Center Report 49 (3):30-42.
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  2.  39
    Tensions Between Medical Professionals and Patients in Mainland China.Xinqing Zhang & Margaret Sleeboom-Faulkner - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):458-465.
    In China, state investment into public hospitals has radically decreased since the early 1980s and has brought on the dismantling of the healthcare system in most parts of the country, especially in rural areas. As a result of this overhaul, the majority of public hospitals have needed to compete in the so-called socialist market economy. The market economy stimulated public hospitals to modernize, take on highly qualified medical professionals, and dispense new therapies and drugs. At same time, liberalization has clearly (...)
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  3.  10
    Informed Consent in Genetic Research and Biobanking in India: Some Common Impediments.Margaret Sleeboom-Faulkner & Prasanna Patra - 2009 - Genomics, Society and Policy 5 (1):1-14.
    The principle of informed consent, codified in the Declaration of Helsinki, has been widely seen as fundamental to bio-medical and research ethics. The importance of informed consent is increasing in procedures regulating the acquisition, possession and use of personal information, including genetic and medical information. Informed consent, it is believed, ensures that patients and research subjects can decide autonomously whether to permit or refuse actions that affect them. In response to this assurance, there are numerous guidelines at local, national and (...)
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  4.  3
    Data Management in Anthropology: The Next Phase in Ethics Governance?Peter Pels, Igor Boog, J. Henrike Florusbosch, Zane Kripe, Tessa Minter, Metje Postma, Margaret Sleeboom-Faulkner, Bob Simpson, Hansjörg Dilger, Michael Schönhuth, Anita Poser, Rosa Cordillera A. Castillo, Rena Lederman & Heather Richards-Rissetto - 2018 - Social Anthropology 3.
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  5.  9
    " Asia" as a Platform for Debate: Grouping and Bioethics.Margaret Sleeboom-Faulkner - 2016 - Kennedy Institute of Ethics Journal 26 (3):277-301.
    This paper discusses the ways in which the use of the notion of Asian bioethics since the 1990s has become a tool for building a platform of debate among East Asian countries. In many ways, the use of “Asian bioethics” is in an effort to counter what is perceived as Western bioethics and characterized by what are regarded as Western tendencies of individualism, rationalism, and modernization. I will argue, however, that, just as any notion of “Western bioethics,” the concept of (...)
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  6.  28
    Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement.Margaret Sleeboom-Faulkner (ed.) - 2009 - Routledge.
    This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, ...
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  7. The Indian Genomic Biobank Initiative and Emerging Bioethical Issues : A Community-Based Perspective.Prasanna Kumar Patra & Margaret Sleeboom-Faulkner - 2009 - In Margaret Sleeboom-Faulkner (ed.), Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
     
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  8. Collecting Families : An Institutional Approach to Human Genetic Biobanking in Indonesia.Margaret Sleeboom-Faulkner - 2009 - In Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
     
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  9. Human Genetic Biobanking in Asia : Issues of Trust, Wealth and Ambition.Margaret Sleeboom-Faulkner - 2009 - In Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
     
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  10. Human Genetic Sampling in Indonesia : The Interplay Between Biosocieties and Non-Biosocieties.Margaret Sleeboom-Faulkner - 2009 - In Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
     
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  11.  51
    Commercial Genetic Testing in Mainland China: Social, Financial and Ethical Issues. [REVIEW]Suli Sui & Margaret Sleeboom-Faulkner - 2007 - Journal of Bioethical Inquiry 4 (3):229-237.
    This paper provides an empirical account of commercial genetic predisposition testing in mainland China, based on interviews with company mangers, regulators and clients, and literature research during fieldwork in mainland China from July to September 2006. This research demonstrates that the commercialization of genetic testing and the lack of adequate regulation have created an environment in which dubious advertising practices and misleading and unprofessional medical advice are commonplace. The consequences of these ethically problematic activities for the users of predictive tests (...)
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  12.  42
    Predictive Genetic Testing in Asia: Social Science Perspectives on the Bioethics of Choice. [REVIEW]Margaret Sleeboom-Faulkner - 2007 - Journal of Bioethical Inquiry 4 (3):193-195.
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  13.  35
    Social-Science Perspectives on Bioethics: Predictive Genetic Testing (PGT) in Asia. [REVIEW]Margaret Sleeboom-Faulkner - 2007 - Journal of Bioethical Inquiry 4 (3):197-206.
    In this essay, I indicate how social-science approaches can throw light on predictive genetic testing (PGT) in various societal contexts. In the first section, I discuss definitions of various forms of PGT, and point out their inherent ambiguity and inappropriateness when taken out of an ideal–typical context. In section two, I argue further that an ethics approach proceeding from the point of view of the abstract individual in a given society should be supplemented by an approach that regards bioethics as (...)
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  14.  17
    Commercial Genetic Testing and its Governance in Chinese Society.Suli Sui & Margaret Sleeboom-Faulkner - 2015 - Minerva 53 (3):215-234.
    This paper provides an empirical account of commercial genetic testing in China. Commercial predictive genetic testing has emerged and is developing rapidly in China, but there is no strict and effective governance. This raises a number of serious social and ethical issues as a consequence of the enormous potential market for such tests. The paper demonstrates that the commercialization of genetic testing and the lack of adequate regulation have created an environment in which dubious advertising practices and misleading and unprofessional (...)
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  15.  14
    Introducting Democracy in a Wuhan Primary School: Please, Vote for Me (2007) Directed by Weijun Chen.Margaret Sleeboom-Faulkner - 2014 - Journal of Moral Education 43 (2):227-233.
    In the film, Please Vote for Me, director Weijun Chen illustrates how leadership ambitions allowed ‘undemocratic’ means of competition during a democratic election among primary school children. Parents encouraged and teachers allowed unscrupulous competition among preselected eight-year-old candidates. The competition led to classmates being manipulated and disappointed and a ‘dictatorship’ similar to that of previous years. This film shows that a ‘democratic election’ in a primary school in Wuhan was guided by native Chinese values of ‘good leadership’ in reformed China. (...)
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  16.  26
    Chinese Concepts of Euthanasia and Health Care.Margaret Sleeboom-Faulkner - 2006 - Bioethics 20 (4):203–212.
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