19 found
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  1.  92
    Anticipating the Interaction between Technology and Morality: A Scenario Study of Experimenting with Humans in Bionanotechnology.Marianne Boenink, Tsjalling Swierstra & Dirk Stemerding - 2010 - Studies in Ethics, Law, and Technology 4 (2).
    During the last decades several tools have been developed to anticipate the future impact of new and emerging technologies. Many of these focus on ‘hard,’ quantifiable impacts, investigating how novel technologies may affect health, environment and safety. Much less attention is paid to what might be called ‘soft’ impacts: the way technology influences, for example, the distribution of social roles and responsibilities, moral norms and values, or identities. Several types of technology assessment and of scenario studies can be used to (...)
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  2. Can we learn from hidden mistakes? Self-fulfilling prophecy and responsible neuroprognostic innovation.Mayli Mertens, Owen C. King, Michel J. A. M. van Putten & Marianne Boenink - 2021 - Journal of Medical Ethics 48 (11):922-928.
    A self-fulfilling prophecy in neuroprognostication occurs when a patient in coma is predicted to have a poor outcome, and life-sustaining treatment is withdrawn on the basis of that prediction, thus directly bringing about a poor outcome for that patient. In contrast to the predominant emphasis in the bioethics literature, we look beyond the moral issues raised by the possibility that an erroneous prediction might lead to the death of a patient who otherwise would have lived. Instead, we focus on the (...)
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  3. Chasing Certainty After Cardiac Arrest: Can a Technological Innovation Solve a Moral Dilemma?Mayli Mertens, Janine van Til, Eline Bouwers-Beens & Marianne Boenink - 2021 - Neuroethics 14 (3):541-559.
    When information on a coma patient’s expected outcome is uncertain, a moral dilemma arises in clinical practice: if life-sustaining treatment is continued, the patient may survive with unacceptably poor neurological prospects, but if withdrawn a patient who could have recovered may die. Continuous electroencephalogram-monitoring is expected to substantially improve neuroprognostication for patients in coma after cardiac arrest. This raises expectations that decisions whether or not to withdraw will become easier. This paper investigates that expectation, exploring cEEG’s impacts when it becomes (...)
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  4.  49
    Beyond Bench and Bedside: Disentangling the Concept of Translational Research.Anna Laura van der Laan & Marianne Boenink - 2015 - Health Care Analysis 23 (1):32-49.
    The label ‘Translational Research’ (TR) has become ever more popular in the biomedical domain in recent years. It is usually presented as an attempt to bridge a supposed gap between knowledge produced at the lab bench and its use at the clinical bedside. This is claimed to help society harvest the benefits of its investments in scientific research. The rhetorical as well as moral force of the label TR obscure, however, that it is actually used in very different ways. In (...)
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  5.  17
    Downgrades: a potential source of moral tension.Anke J. M. Oerlemans, Ilse Feenstra, Helger G. Yntema & Marianne Boenink - 2023 - Journal of Medical Ethics 49 (12):815-816.
    While Gabriel Watts and Ainsley Newson argue that diagnostic laboratories do not have a general duty to routinely reinterpret genomic variant classifications, they do formulate several restricted duties to actively reinterpret specific types of classifications.1 They place these duties with laboratories, acknowledging that they are setting aside any responsibilities that might arise for clinicians. Here, we will discuss the implications of this obligation for clinicians and the moral tension it may confront them with. We focus in particular on the consequences (...)
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  6.  77
    Taking care of the symbolic order. How converging technologies challenge our concepts.Tsjalling Swierstra, Rinie van Est & Marianne Boenink - 2009 - NanoEthics 3 (3):269-280.
    In this article we briefly summarize how converging technologies challenge elements of the existing symbolic order, as shown in the contributions to this special issue. We then identify the vision of ‘life as a do it yourself kit’ as a common denominator in the various forms of convergence and proceed to show how this vision provokes unrest and debate about existing moral frameworks and taboos. We conclude that, just as the problems of the industrial revolution sparked off the now broadly (...)
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  7. Converging technologies, shifting boundaries.Tsjalling Swierstra, Marianne Boenink, B. Walhout & R. Van Est - 2009 - NanoEthics 3 (3):213-216.
    Converging Technologies, Shifting Boundaries Content Type Journal Article Pages 213-216 DOI 10.1007/s11569-009-0075-x Authors Tsjalling Swierstra, University of Twente Enschede Netherlands Marianne Boenink, University of Twente Enschede Netherlands B. Walhout, Rathenau Institute The Hague Netherlands R. Van Est, Rathenau Institute The Hague Netherlands Journal NanoEthics Online ISSN 1871-4765 Print ISSN 1871-4757 Journal Volume Volume 3 Journal Issue Volume 3, Number 3.
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  8.  43
    The Benefits of Patient Involvement for Translational Research.Lieke van der Scheer, Elisa Garcia, Anna Laura van der Laan, Simone van der Burg & Marianne Boenink - 2017 - Health Care Analysis 25 (3):225-241.
    The question we raise in this paper is, whether patient involvement might be a beneficial way to help determine and achieve the aims of translational research and, if so, how to proceed. TR is said to ensure a more effective movement of basic scientific findings to relevant and useful clinical applications. In view of the fact that patients are supposed to be the primary beneficiaries of such translation and also have relevant knowledge based on their experience, listening to their voice (...)
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  9.  32
    Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research.Marianne Boenink, Lieke van der Scheer, Elisa Garcia & Simone van der Burg - 2018 - NanoEthics 12 (3):181-197.
    Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving (...)
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  10.  27
    Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research.Simone Burg, Elisa Garcia, Lieke Scheer & Marianne Boenink - 2018 - NanoEthics 12 (3):181-197.
    Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving (...)
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  11. Prognostication of patients in coma after cardiac arrest: public perspectives.Mayli Mertens, Janine van Til, Eline Bouwers-Beens, Marianne Boenink, Jeannette Hofmeijer & Catherina Groothuis-Oudshoorn - 2021 - Resuscitation 169:4-10.
    Aim: To elicit preferences for prognostic information, attitudes towards withdrawal of life-sustaining treatment (WLST) and perspectives on acceptable quality of life after post-anoxic coma within the adult general population of Germany, Italy, the Netherlands and the United States of America. Methods: A web-based survey, consisting of questions on respondent characteristics, perspectives on quality of life, communication of prognostic information, and withdrawal of life-sustaining treatment, was taken by adult respondents recruited from four countries. Statistical analysis included descriptive analysis and chi2-tests for (...)
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  12.  11
    Informed decision making about predictive DNA tests: arguments for more public visibility of personal deliberations about the good life.Marianne Boenink & Simone Burg - 2010 - Medicine, Health Care and Philosophy 13 (2):127-138.
    Since its advent, predictive DNA testing has been perceived as a technology that may have considerable impact on the quality of people’s life. The decision whether or not to use this technology is up to the individual client. However, to enable well considered decision making both the negative as well as the positive freedom of the individual should be supported. In this paper, we argue that current professional and public discourse on predictive DNA-testing is lacking when it comes to supporting (...)
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  13.  34
    The Benefits of Patient Involvement for Translational Research.Marianne Boenink, Simone Burg, Anna Laan, Elisa Garcia & Lieke Scheer - 2017 - Health Care Analysis 25 (3):225-241.
    The question we raise in this paper is, whether patient involvement might be a beneficial way to help determine and achieve the aims of translational research and, if so, how to proceed. TR is said to ensure a more effective movement of basic scientific findings to relevant and useful clinical applications. In view of the fact that patients are supposed to be the primary beneficiaries of such translation and also have relevant knowledge based on their experience, listening to their voice (...)
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  14. Assessing Expectations: Towards a Toolbox for an Ethics of Emerging Technologies. [REVIEW]Federica Lucivero, Tsjalling Swierstra & Marianne Boenink - 2011 - NanoEthics 5 (2):129-141.
    In recent years, several authors have argued that the desirability of novel technologies should be assessed early, when they are still emerging. Such an ethical assessment of emerging technologies is by definition focused on an elusive object. Usually promises, expectations, and visions of the technology are taken as a starting point. As Nordmann and Rip have pointed out in a recent article, however, ethicists should not take for granted the plausibility of such expectations and visions. In this paper, we explore (...)
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  15.  77
    (1 other version)Molecular medicine and concepts of disease: the ethical value of a conceptual analysis of emerging biomedical technologies. [REVIEW]Marianne Boenink - 2010 - Medicine, Health Care and Philosophy 13 (1):11-23.
    Although it is now generally acknowledged that new biomedical technologies often produce new definitions and sometimes even new concepts of disease, this observation is rarely used in research that anticipates potential ethical issues in emerging technologies. This article argues that it is useful to start with an analysis of implied concepts of disease when anticipating ethical issues of biomedical technologies. It shows, moreover, that it is possible to do so at an early stage, i.e. when a technology is only just (...)
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  16.  67
    Beyond Bench and Bedside: Disentangling the Concept of Translational Research. [REVIEW]Anna Laura Laan & Marianne Boenink - 2012 - Health Care Analysis (1):1-18.
    The label ‘Translational Research’ (TR) has become ever more popular in the biomedical domain in recent years. It is usually presented as an attempt to bridge a supposed gap between knowledge produced at the lab bench and its use at the clinical bedside. This is claimed to help society harvest the benefits of its investments in scientific research. The rhetorical as well as moral force of the label TR obscure, however, that it is actually used in very different ways. In (...)
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  17.  78
    Tensions and opportunities in convergence: Shifting concepts of disease in emerging molecular medicine. [REVIEW]Marianne Boenink - 2009 - NanoEthics 3 (3):243-255.
    The convergence of biomedical sciences with nanotechnology as well as ICT has created a new wave of biomedical technologies, resulting in visions of a ‘molecular medicine’. Since novel technologies tend to shift concepts of disease and health, this paper investigates how the emerging field of molecular medicine may shift the meaning of ‘disease’ as well as the boundary between health and disease. It gives a brief overview of the development towards and the often very speculative visions of molecular medicine. Subsequently (...)
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  18.  57
    Debating the Desirability of New Biomedical Technologies: Lessons from the Introduction of Breast Cancer Screening in the Netherlands. [REVIEW]Marianne Boenink - 2012 - Health Care Analysis 20 (1):84-102.
    Health technology assessment (HTA) was developed in the 1970s and 1980s to facilitate decision making on the desirability of new biomedical technologies. Since then, many of the standard tools and methods of HTA have been criticized for their implicit normativity. At the same time research into the character of technology in practice has motivated philosophers, sociologists and anthropologists to criticize the traditional view of technology as a neutral instrument designed to perform a specific function. Such research suggests that the tools (...)
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  19.  34
    Informed decision making about predictive DNA tests: arguments for more public visibility of personal deliberations about the good life. [REVIEW]Marianne Boenink & Simone van der Burg - 2010 - Medicine, Health Care and Philosophy 13 (2):127-138.
    Since its advent, predictive DNA testing has been perceived as a technology that may have considerable impact on the quality of people’s life. The decision whether or not to use this technology is up to the individual client. However, to enable well considered decision making both the negative as well as the positive freedom of the individual should be supported. In this paper, we argue that current professional and public discourse on predictive DNA-testing is lacking when it comes to supporting (...)
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