45 found
Order:
  1.  5
    Patient and Family Descriptions of Ethical Concerns.Hae Lin Cho, Christine Grady, Anita Tarzian, Gail Povar, Jed Mangal & Marion Danis - 2020 - American Journal of Bioethics 20 (6):52-64.
    Ethically challenging situations routinely arise in the course of illness and healthcare. However, very few studies have surveyed patients and family members about their experiences with ethically challenging situations. To address this gap in the literature, we surveyed patients and family members at three hospitals. We conducted a content analysis of their responses to open-ended questions about their most memorable experience with an ethical concern for them or their family member. Participants described 219 unique ethical experiences that spanned many of (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   9 citations  
  2.  24
    Intersectionality in Clinical Medicine: The Need for a Conceptual Framework.Yolonda Wilson, Amina White, Akilah Jefferson & Marion Danis - 2019 - American Journal of Bioethics 19 (2):8-19.
    Intersectionality has become a significant intellectual approach for those thinking about the ways that race, gender, and other social identities converge in order to create unique forms of oppression. Although the initial work on intersectionality addressed the unique position of black women relative to both black men and white women, the concept has since been expanded to address a range of social identities. Here we consider how to apply some of the theoretical tools provided by intersectionality to the clinical context. (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   13 citations  
  3.  32
    A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants.Joseph J. Fins, Eric Kodish, Felicia Cohn, Marion Danis, Arthur R. Derse, Nancy Neveloff Dubler, Barbara Goulden, Mark Kuczewski, Mary Beth Mercer, Robert A. Pearlman, Martin L. Smith, Anita Tarzian & Stuart J. Youngner - 2016 - American Journal of Bioethics 16 (3):15-24.
    Although clinical ethics consultation is a high-stakes endeavor with an increasing prominence in health care systems, progress in developing standards for quality is challenging. In this article, we describe the results of a pilot project utilizing portfolios as an evaluation tool. We found that this approach is feasible and resulted in a reasonably wide distribution of scores among the 23 submitted portfolios that we evaluated. We discuss limitations and implications of these results, and suggest that this is a significant step (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   25 citations  
  4.  38
    Quality Attestation for Clinical Ethics Consultants: A Two‐Step Model From the American Society for Bioethics and Humanities.Eric Kodish, Joseph J. Fins, Clarence Braddock, Felicia Cohn, Nancy Neveloff Dubler, Marion Danis, Arthur R. Derse, Robert A. Pearlman, Martin Smith, Anita Tarzian, Stuart Youngner & Mark G. Kuczewski - 2013 - Hastings Center Report 43 (5):26-36.
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   41 citations  
  5.  22
    Bioethicists Can and Should Contribute to Addressing Racism.Marion Danis, Yolonda Wilson & Amina White - 2016 - American Journal of Bioethics 16 (4):3-12.
    The problems of racism and racially motivated violence in predominantly African American communities in the United States are complex, multifactorial, and historically rooted. While these problems are also deeply morally troubling, bioethicists have not contributed substantially to addressing them. Concern for justice has been one of the core commitments of bioethics. For this and other reasons, bioethicists should contribute to addressing these problems. We consider how bioethicists can offer meaningful contributions to the public discourse, research, teaching, training, policy development, and (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   23 citations  
  6.  16
    The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.Kathryn M. Porter, Marion Danis, Holly A. Taylor, Mildred K. Cho & Benjamin S. Wilfond - 2018 - American Journal of Bioethics 18 (1):39-45.
    The increasing complexity of human subjects research and its oversight has prompted researchers, as well as institutional review boards, to have a forum in which to discuss challenging or novel ethical issues not fully addressed by regulations. Research ethics consultation services provide such a forum. In this article, we rely on the experiences of a national Research Ethics Consultation Collaborative that collected more than 350 research ethics consultations in a repository and published 18 challenging cases with accompanying ethical commentaries to (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   11 citations  
  7.  46
    Does Ethics Education Influence the Moral Action of Practicing Nurses and Social Workers?Christine Grady, Marion Danis, Karen L. Soeken, Patricia O'Donnell, Carol Taylor, Adrienne Farrar & Connie M. Ulrich - 2008 - American Journal of Bioethics 8 (4):4 – 11.
    Purpose/methods: This study investigated the relationship between ethics education and training, and the use and usefulness of ethics resources, confidence in moral decisions, and moral action/activism through a survey of practicing nurses and social workers from four United States (US) census regions. Findings: The sample (n = 1215) was primarily Caucasian (83%), female (85%), well educated (57% with a master's degree). no ethics education at all was reported by 14% of study participants (8% of social workers had no ethics education, (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   29 citations  
  8. Are Physicians Willing to Ration Health Care? Conflicting Findings in a Systematic Review of Survey Research.Daniel Strech, Govind Persad, Georg Marckmann & Marion Danis - 2009 - Health Policy 90 (2):113-124.
    Several quantitative surveys have been conducted internationally to gather empirical information about physicians’ general attitudes towards health care rationing. Are physicians ready to accept and implement rationing, or are they rather reluctant? Do they prefer implicit bedside rationing that allows the physician–patient relationship broad leeway in individual decisions? Or do physicians prefer strategies that apply explicit criteria and rules?
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   10 citations  
  9.  51
    Physicians' Access to Ethics Support Services in Four European Countries.Samia A. Hurst, Stella Reiter-Theil, Arnaud Perrier, Reidun Forde, Anne-Marie Slowther, Renzo Pegoraro & Marion Danis - 2007 - Health Care Analysis 15 (4):321-335.
    Clinical ethics support services are developing in Europe. They will be most useful if they are designed to match the ethical concerns of clinicians. We conducted a cross-sectional mailed survey on random samples of general physicians in Norway, Switzerland, Italy, and the UK, to assess their access to different types of ethics support services, and to describe what makes them more likely to have used available ethics support. Respondents reported access to formal ethics support services such as clinical ethics committees (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   18 citations  
  10.  8
    What Is the Minimal Competency for a Clinical Ethics Consult Simulation? Setting a Standard for Use of the Assessing Clinical Ethics Skills Tool.Katherine Wasson, William H. Adams, Kenneth Berkowitz, Marion Danis, Arthur R. Derse, Mark G. Kuczewski, Michael McCarthy, Kayhan Parsi & Anita J. Tarzian - 2019 - Ajob Empirical Bioethics 10 (3):164-172.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  11.  23
    Examining the Ethics of Clinical Use of Unproven Interventions Outside of Clinical Trials During the Ebola Epidemic.Seema K. Shah, David Wendler & Marion Danis - 2015 - American Journal of Bioethics 15 (4):11-16.
    The recent Ebola outbreak in West Africa began in the spring of 2014 and has since caused the deaths of over 6,000 people. Since there are no approved treatments or prevention modalities specifically targeted at Ebola Virus Disease , debate has focused on whether unproven interventions should be offered to Ebola patients outside of clinical trials. Those engaged in the debate have responded rapidly to a complex and evolving crisis, however, and this debate has not provided much opportunity for in-depth (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  12. Parents of Adults with Diminished Self-Governance.Jennifer Desante, David Degrazia & Marion Danis - 2016 - Cambridge Quarterly of Healthcare Ethics 25 (1):93-107.
    Most theories of parenthood assume, at least implicitly, that a child will grow up to be an independent, autonomous adult. However, some children with cognitive limitations or psychiatric illness are unable to do so. For this reason, these accounts do not accommodate the circumstances and responsibilities of parents of such adult children. Our article attempts to correct this deficiency. In particular, we describe some of the common characteristics and experiences of this population of parents and children, examine the unique aspects (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  13.  45
    A Framework for Rationing by Clinical Judgment.Samia A. Hurst & Marion Danis - 2007 - Kennedy Institute of Ethics Journal 17 (3):247-266.
    : Although rationing by clinical judgment is controversial, its acceptability partly depends on how it is practiced. In this paper, rationing by clinical judgment is defined in three different circumstances that represent increasingly wider circles of resource pools in which the rationing decision takes place: triage during acute shortage, comparison to other potential patients in a context of limited but not immediately strained resources, and determination of whether expected benefit of an intervention is deemed sufficient to warrant its cost by (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   13 citations  
  14.  30
    Participation of Citizen Scientists in Clinical Research and Access to Research Ethics Consultation.Elaine Collier & Marion Danis - 2017 - American Journal of Bioethics 17 (4):70-72.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  15.  22
    Allocation of Scarce Biospecimens for Use in Research.Leah Pierson, Sophia Gibert, Benjamin Berkman, Marion Danis & Joseph Millum - forthcoming - Journal of Medical Ethics:medethics-2019-105766.
    Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that allocators should aim to maximise the social value of the research enterprise (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark  
  16.  18
    Bedside Rationing Under Resource Constraints—A National Survey of Ethiopian Physicians’ Use of Criteria for Priority Setting.Frehiwot Berhane Defaye, Marion Danis, Paul Wakim, Yemane Berhane, Ole Frithjof Norheim & Ingrid Miljeteig - 2019 - Ajob Empirical Bioethics 10 (2):125-135.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  17.  6
    Clinical Ethics Dilemmas in a Low-Income Setting - a National Survey Among Physicians in Ethiopia.Ingrid Miljeteig, Frehiwot Defaye, Dawit Desalegn & Marion Danis - 2019 - BMC Medical Ethics 20 (1):1-13.
    Ethical dilemmas are part of medicine, but the type of challenges, the frequency of their occurrence and the nuances in the difficulties have not been systematically studied in low-income settings. The objective of this paper was to map out the ethical dilemmas from the perspective of Ethiopian physicians working in public hospitals. A national survey of physicians from 49 public hospitals using stratified, multi-stage sampling was conducted in six of the 11 regions in Ethiopia. Descriptive statistics were used and the (...)
    No categories
    Direct download (4 more)  
    Translate
     
     
    Export citation  
     
    Bookmark   1 citation  
  18.  40
    Response to Open Peer Commentaries on “Bioethicists Can and Should Contribute to Addressing Racism”.Yolonda Wilson, Marion Danis & Amina White - 2016 - American Journal of Bioethics 16 (5):1-4.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  19.  67
    Ethics of Patient Activation: Exploring its Relation to Personal Responsibility, Autonomy and Health Disparities.Sophia H. Gibert, David DeGrazia & Marion Danis - 2017 - Journal of Medical Ethics 43 (10):670-675.
    Discussions of patient-centred care and patient autonomy in bioethics have tended to focus on the decision-making context and the process of obtaining informed consent, leaving open the question of how patients ought to be counselled in the daily maintenance of their health and management of chronic disease. Patient activation is an increasingly prominent counselling approach and measurement tool that aims to improve patients’ confidence and skills in managing their own health conditions. The strategy, which has received little conceptual or ethical (...)
    Direct download (6 more)  
    Translate
     
     
    Export citation  
     
    Bookmark   1 citation  
  20.  11
    Floating All Boats: Promoting Solidarity to Advance Social Justice.Marion Danis - 2018 - American Journal of Bioethics 18 (10):15-17.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  21.  30
    How Can Bedside Rationing Be Justified Despite Coexisting Inefficiency? The Need for 'Benchmarks of Efficiency'.Daniel Strech & Marion Danis - 2014 - Journal of Medical Ethics 40 (2):89-93.
    Imperfect efficiency in healthcare delivery is sometimes given as a justification for refusing to ration or even discuss how to pursue fair rationing. This paper aims to clarify the relationship between inefficiency and rationing, and the conditions under which bedside rationing can be justified despite coexisting inefficiency. This paper first clarifies several assumptions that underlie the classification of a clinical practice as being inefficient. We then suggest that rationing is difficult to justify in circumstances where the rationing agent is or (...)
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  22.  18
    Federalism and Responsibility for Health Care.Douglas MacKay & Marion Danis - 2016 - Public Affairs Quarterly 30 (1):1-29.
    Political philosophers often formulate the problem of distributive justice as the problem of how the government ought to distribute different types of goods—for example, income or health care—to its citizens. They therefore presuppose that the government is a unitary agent that governs its citizens directly. However, although a number of governments are unitary in this way, many are federations, exhibiting a division of sovereignty between two or more levels of government having independent grounds of authority. In contrast to unitary states, (...)
    Direct download  
     
    Export citation  
     
    Bookmark   2 citations  
  23.  44
    Patient Autonomy and the Challenge of Clinical Uncertainty.Mark Parascandola, Jennifer Hawkins & Marion Danis - 2002 - Kennedy Institute of Ethics Journal 12 (3):245-264.
    : Bioethicists have articulated an ideal of shared decision making between physician and patient, but in doing so the role of clinical uncertainty has not been adequately confronted. In the face of uncertainty about the patient's prognosis and the best course of treatment, many physicians revert to a model of nondisclosure and nondiscussion, thus closing off opportunities for shared decision making. Empirical studies suggest that physicians find it more difficult to adhere to norms of disclosure in situations where there is (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   8 citations  
  24.  41
    Does Fear of Retaliation Deter Requests for Ethics Consultation?Marion Danis, Adrienne Farrar, Christine Grady, Carol Taylor, Patricia O’Donnell, Karen Soeken & Connie Ulrich - 2008 - Medicine, Health Care and Philosophy 11 (1):27-34.
    BackgroundReports suggest that some health care personnel fear retaliation from seeking ethics consultation. We therefore examined the prevalence and determinants of fear of retaliation and determined whether this fear is associated with diminished likelihood of consulting an ethics committee.MethodsWe surveyed registered nurses (RNs) and social workers (SWs) in four US states to identify ethical problems they encounter. We developed a retaliation index (1–7 point range) with higher scores indicating a higher perceived likelihood of retaliation. Linear regression analysis was performed to (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  25.  24
    Regulation of the Global Marketplace for the Sake of Health.Marion Danis & Amy Sepinwall - 2002 - Journal of Law, Medicine and Ethics 30 (4):667-676.
  26.  21
    Weighing the Importance of Palliation of Symptoms for Ebola Patients During the Epidemic in West Africa.Marion Danis - 2015 - American Journal of Bioethics 15 (4):70-72.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  27.  52
    No Exceptionalism Needed to Treat Terrorists.Chiara Lepora, Marion Danis & Alan Wertheimer - 2009 - American Journal of Bioethics 9 (10):53-54.
    Gesundheit and colleagues offer dramatic examples of the medical treatment of terrorists but then pose the suggestion that those who engage in terrorism forfeit their right to medical care, and, consequently, that physicians have no obligation to treat them. Their argument presupposes that a physician’s obligation to provide medical care depends on the patients’ right to health care. Therefore, someone who commits heinous and abhorrent acts thereby waives the right to health care and the physicians’ duty to provide health care (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  28.  26
    Developing the Capacity of Ethics Consultants to Promote Just Resource Allocation.Marion Danis & Samia Hurst - 2009 - American Journal of Bioethics 9 (4):37-39.
  29. Clinical Research Consultation: A Casebook.Marion Danis (ed.) - 2012 - Oxford University Press.
    Starting research -- Enrolling research participants -- Protecting research participants -- Conducting research with vulnerable populations -- Balancing clinical research and clinical care -- Navigating interpersonal difficulties -- Ending research.
     
    Export citation  
     
    Bookmark   1 citation  
  30.  13
    Autonomy and the Common Weal.Marion Danis & Larry R. Churchill - 1991 - Hastings Center Report 21 (1):25-31.
  31.  49
    Intransitivity and Priority Setting.Alex Friedman & Marion Danis - 2011 - Journal of Philosophical Research 36:173-189.
    It is a basic and intuitive assumption that the relation of moral preference must be transitive—if A is overall morally preferable to B; and B is overall morally preferably to C; then, if our views are coherent, it better be the case that A is overall morally preferable to C. However, recent work by Temkin and Rachels has undermined that assumption by showing that common-sense ethical distributive principles that we are unlikely to give up generate intransitive sets of moral preferences. (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  32.  22
    Making the Case for Talking to Patients About the Costs of End-of-Life Care.Greer Donley & Marion Danis - 2011 - Journal of Law, Medicine and Ethics 39 (2):183-193.
  33.  35
    Making the Case for Talking to Patients About the Costs of End-of-Life Care.Greer Donley & Marion Danis - 2011 - Journal of Law, Medicine and Ethics 39 (2):183-193.
    Costs at the end of life disproportionately contribute to health care costs in the United States. Addressing these costs will therefore be an important component in making the U.S. health care system more financially sustainable. In this paper, we explore the moral justifications for having discussions of end-of-life costs in the doctor-patient encounter as part of an effort to control costs. As health care costs are partly shared through pooled resources, such as insurance and taxation, and partly borne by individuals (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  34.  11
    Intransitivity and Priority Setting.Alex Friedman & Marion Danis - 2011 - Journal of Philosophical Research 36:173-189.
    It is a basic and intuitive assumption that the relation of moral preference must be transitive—if A is overall morally preferable to B; and B is overall morally preferably to C; then, if our views are coherent, it better be the case that A is overall morally preferable to C. However, recent work by Temkin and Rachels has undermined that assumption by showing that common-sense ethical distributive principles that we are unlikely to give up generate intransitive sets of moral preferences. (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  35.  39
    Indecent Coverage? Protecting the Goals of Health Insurance From the Impact of Co-Payments.Samia A. Hurst & Marion Danis - 2006 - Cambridge Quarterly of Healthcare Ethics 15 (1):107-113.
    As pressures increase to contain growing healthcare expenditures, there is currently a prominent rise in the shift of healthcare costs to patients in the form of deductibles, co-pays, and co-insurance. Rising co-payments are part of a larger picture of increasing overall out-of-pocket healthcare expenditures. From 1990 to 2000, per capita out-of-pocket payments for healthcare reached $707 in the United States, and doubled in several European countries with universal health insurance, reaching $396 in Denmark, $290 in Germany, and $466 in Italy (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark  
  36.  27
    Best to Exclude but Pay.Marion Danis, Sam Doernberg, Matthew Memoli & Joseph Millum - 2018 - American Journal of Bioethics 18 (4):87-88.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  37.  9
    Broadening the Conversation About Intersectionality in Clinical Medicine.Yolonda Wilson, Amina White, Akilah Jefferson & Marion Danis - 2019 - American Journal of Bioethics 19 (4):W1-W5.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  38.  14
    Blinds and Research Risks.Robert Steel & Marion Danis - 2018 - American Journal of Bioethics 18 (10):70-71.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  39.  18
    Following Advance Directives.Marion Danis - 1994 - Hastings Center Report 24 (6):21-23.
  40.  8
    Returning Individual Research Results Regarding Gadolinium Deposition in the Brain Is the Preferable Choice.Caroline J. Huang, W. Patricia Bandettini & Marion Danis - 2019 - American Journal of Bioethics 19 (4):77-78.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  41.  13
    Defining the Scope and Improving the Quality of Clinical Research Ethics Consultation: Response to Open Peer Commentaries About the National Collaborative.Kathryn M. Porter, Marion Danis, Holly A. Taylor, Mildred K. Cho & Benjamin S. Wilfond - 2018 - American Journal of Bioethics 18 (2):13-15.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  42.  32
    Request From a Middle Eastern Bride.Loane Skene, Jeremy Sugarman, Nancy E. Kass, Nadine Taub & Marion Danis - 1994 - Cambridge Quarterly of Healthcare Ethics 3 (3):422.
  43.  16
    Acceptable Approaches to Enrolling Adults Who Cannot Consent in More Than Minimal Risk Research.Marion Danis, David Wendler & Scott Kim - 2015 - American Journal of Bioethics 15 (10):70-71.
  44.  20
    By Author.Tom L. Beauchamp, Baruch Brody, Marion Danis, Samia A. See Hurst, David Degrazia, Must We Have, Alber W. Dzur, Daniel Levin, Daniel M. Fox & Diane Gianelli - 2007 - Kennedy Institute of Ethics Journal 17 (4):405-407.
  45.  26
    Response to Peer Commentary on “Does Ethics Education Influence the Moral Action of Practicing Nurses and Social Workers?”.Christine Grady, Marion Danis, Karen L. Soeken, Patricia O'Donnell, Carol Taylor, Adrienne Farrar & Connie M. Ulrich - 2008 - American Journal of Bioethics 8 (4):1-2.