84 found
Order:
  1.  5
    Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.Mark A. Rothstein, John T. Wilbanks, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Megan Doerr, Barbara J. Evans, Catherine M. Hammack-Aviran, Michelle L. McGowan & Stacey A. Tovino - 2020 - Journal of Law, Medicine and Ethics 48 (1_suppl):196-226.
    Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   9 citations  
  2.  23
    Is Deidentification Sufficient to Protect Health Privacy in Research?Mark A. Rothstein - 2010 - American Journal of Bioethics 10 (9):3-11.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   34 citations  
  3.  41
    Does Consent Bias Research?Mark A. Rothstein & Abigail B. Shoben - 2013 - American Journal of Bioethics 13 (4):27 - 37.
    Researchers increasingly rely on large data sets of health information, often linked with biological specimens. In recent years, the argument has been made that obtaining informed consent for conducting records-based research is unduly burdensome and results in ?consent bias.? As a type of selection bias, consent bias is said to exist when the group giving researchers access to their data differs from the group denying access. Therefore, to promote socially beneficial research, it is argued that consent should be unnecessary. After (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   14 citations  
  4.  6
    Comparative Approaches to Biobanks and Privacy.Mark A. Rothstein, Bartha Maria Knoppers & Heather L. Harrell - 2016 - Journal of Law, Medicine and Ethics 44 (1):161-172.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   8 citations  
  5.  31
    Ethical Issues in Big Data Health Research: Currents in Contemporary Bioethics.Mark A. Rothstein - 2015 - Journal of Law, Medicine and Ethics 43 (2):425-429.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   8 citations  
  6.  12
    Compelled Authorizations for Disclosure of Health Records: Magnitude and Implications.Mark A. Rothstein & Meghan K. Talbott - 2007 - American Journal of Bioethics 7 (3):38 – 45.
    Each year individuals are required to execute millions of authorizations for the release of their health records as a condition of employment, applying for various types of insurance, and submitting claims for benefits. Generally, there are no restrictions on the scope of information released pursuant to these compelled authorizations, and the development of a nationwide system of interoperable electronic health records will increase the amount of health information released. After quantifying the extent of these disclosures, this article discusses why it (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   21 citations  
  7.  38
    Rethinking the Meaning of Public Health.Mark A. Rothstein - 2002 - Journal of Law, Medicine and Ethics 30 (2):144-149.
  8.  6
    Rethinking the Meaning of Public Health.Mark A. Rothstein - 2002 - Journal of Law, Medicine and Ethics 30 (2):144-149.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   26 citations  
  9.  2
    Privacy Risks of Interoperable Electronic Health Records: Segmentation of Sensitive Information Will Help.Mark A. Rothstein & Stacey A. Tovino - 2019 - Journal of Law, Medicine and Ethics 47 (4):771-777.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  10.  1
    Regulation of International Direct-to-Participant Genomic Research: Symposium Introduction.Mark A. Rothstein & Bartha Maria Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (4):579-580.
  11.  24
    Genetic Exceptionalism & Legislative Pragmatism.Mark A. Rothstein - 2005 - Hastings Center Report 35 (4):27-33.
    : Can passing antidiscrimination laws ever be a bad idea? Yes, if broad policy reform is abandoned in favor of genetic-specific legislation. But in spite of its serious flaws, both in concept and in practice, genetic-specific legislation is sometimes worth passing anyway—sometimes a bad idea is reasonable.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   18 citations  
  12.  3
    Introduction: Unregulated Health Research Using Mobile Devices.Mark A. Rothstein & John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (1_suppl):7-8.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  13.  16
    Currents in Contemporary Ethics GINA, the ADA, and Genetic Discrimination in Employment.Mark A. Rothstein - 2008 - Journal of Law, Medicine and Ethics 36 (4):837-840.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   13 citations  
  14.  59
    Currents in Contemporary Bioethics.Mark A. Rothstein - 2012 - Journal of Law, Medicine and Ethics 40 (2):394-400.
    Direct download (16 more)  
     
    Export citation  
     
    Bookmark   7 citations  
  15.  17
    Tiered Disclosure Options Promote the Autonomy and Well-Being of Research Subjects.Mark A. Rothstein - 2006 - American Journal of Bioethics 6 (6):20 – 21.
  16.  24
    Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.Suzanne M. Rivera, Kyle B. Brothers, R. Jean Cadigan, Heather L. Harrell, Mark A. Rothstein, Richard R. Sharp & Aaron J. Goldenberg - 2017 - American Journal of Bioethics 17 (7):1-3.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  17.  12
    Time to End the Use of Genetic Test Results in Life Insurance Underwriting.Mark A. Rothstein - 2018 - Journal of Law, Medicine and Ethics 46 (3):794-801.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  18.  5
    The End of the HIPAA Privacy Rule?Mark A. Rothstein - 2016 - Journal of Law, Medicine and Ethics 44 (2):352-358.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  19.  6
    The Hippocratic Bargain and Health Information Technology.Mark A. Rothstein - 2010 - Journal of Law, Medicine and Ethics 38 (1):7-13.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   10 citations  
  20.  9
    Expanding the Ethical Analysis of Biobanks.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):89-101.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   14 citations  
  21.  16
    Expanding the Ethical Analysis of Biobanks.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):89-101.
  22.  13
    Citizen Science on Your Smartphone: An ELSI Research Agenda.Mark A. Rothstein, John T. Wilbanks & Kyle B. Brothers - 2015 - Journal of Law, Medicine and Ethics 43 (4):897-903.
    The Journal of Law, Medicine &Ethics, Volume 43, Issue 4, Page 897-903, Winter 2015.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  23.  23
    The Hippocratic Bargain and Health Information Technology.Mark A. Rothstein - 2010 - Journal of Law, Medicine and Ethics 38 (1):7-13.
    The shift to longitudinal, comprehensive electronic health records means that any health care provider or third-party user of the EHR will be able to access much health information of questionable clinical utility and possibly of great sensitivity. Genetic test results, reproductive health, mental health, substance abuse, and domestic violence are examples of sensitive information that many patients would not want routinely available. The likely policy response is to give patients the ability to segment information in their EHRs and to sequester (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   8 citations  
  24.  31
    Epigenetic Exceptionalism.Mark A. Rothstein - 2013 - Journal of Law, Medicine and Ethics 41 (3):733-736.
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  25.  6
    Biobanking Research and Privacy Laws in the United States.Heather L. Harrell & Mark A. Rothstein - 2016 - Journal of Law, Medicine and Ethics 44 (1):106-127.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  26.  32
    Epigenetic Exceptionalism.Mark A. Rothstein - 2013 - Journal of Law, Medicine and Ethics 41 (3):733-736.
    This article considers the distinctive features of epigenetics and discusses whether, as a matter of ethics and law, epigenetics should be considered separate from genetics.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  27.  6
    California Takes the Lead on Data Privacy Law.Mark A. Rothstein & Stacey A. Tovino - 2019 - Hastings Center Report 49 (5):4-5.
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  28.  2
    How Genetics Might Affect Real Property Rights.Mark A. Rothstein & Laura Rothstein - 2016 - Journal of Law, Medicine and Ethics 44 (1):216-221.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  29.  29
    Currents in Contemporary Ethics: Improve Privacy in Research by Eliminating Informed Consent? IOM Report Misses the Mark.Mark A. Rothstein - 2009 - Journal of Law, Medicine and Ethics 37 (3):507-512.
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   7 citations  
  30.  6
    Currents in Contemporary Ethics.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):154-159.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   11 citations  
  31.  2
    Currents in Contemporary Ethics: Research Privacy Under HIPAA and the Common Rule.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):154-159.
  32.  12
    Genetic Privacy and Confidentiality: Why They Are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   15 citations  
  33.  4
    Compelled Disclosures of Health Records: Updated Estimates.Mark A. Rothstein & Meghan K. Talbott - 2017 - Journal of Law, Medicine and Ethics 45 (1):149-155.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  34.  8
    The Coronavirus Pandemic: Public Health and American Values.Mark A. Rothstein - 2020 - Journal of Law, Medicine and Ethics 48 (2):354-359.
  35.  7
    The Role of IRBs in Research Involving Commerical Biobanks.Mark A. Rothstein - 2002 - Journal of Law, Medicine and Ethics 30 (1):105-108.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   10 citations  
  36.  8
    Genetic Privacy and Confidentiality: Why They Are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   12 citations  
  37.  13
    International Health Research After Schrems V. Data Protection Commissioner.Mark A. Rothstein - 2016 - Hastings Center Report 46 (2):5-6.
    On October 6, 2015, in Schrems v. Data Protection Commissioner, the European Court of Justice, the European Union's highest court, held that the fifteen-year-old Safe Harbor Framework Agreement with the United States was invalid. Under the agreement, about forty-five hundred American companies each year self-certified to the U.S. Department of Commerce that they were in compliance with the essential privacy protections of the European Union, and therefore it was permissible for entities in the European Union to send personal data to (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  38.  6
    Currents in Contemporary Ethics.Mark A. Rothstein - 2010 - Journal of Law, Medicine and Ethics 38 (2):412-419.
    No categories
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  39.  22
    Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.Susan M. Wolf, Emily Scholtes, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness & Benjamin S. Wilfond - 2018 - Journal of Law, Medicine and Ethics 46 (1):87-109.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  40.  14
    The Expanding Use of DNA in Law Enforcement: What Role for Privacy?Mark A. Rothstein & Meghan K. Talbott - 2006 - Journal of Law, Medicine and Ethics 34 (2):153-164.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  41.  25
    Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Susan M. Wolf, Rebecca Branum, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness & Benjamin S. Wilfond - 2015 - Journal of Law, Medicine and Ethics 43 (3):440-463.
    Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death.
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  42.  23
    The Expanding Use of DNA in Law Enforcement: What Role for Privacy?Mark A. Rothstein & Meghan K. Talbott - 2006 - Journal of Law, Medicine and Ethics 34 (2):153-164.
    DNA identification is being used in ever-widening ways, including databases of greater scope, familial and lowstringency searches, and DNA dragnets. After examining the law enforcement and privacy interests, the article concludes that forensic DNA uses must be consistent with privacy and civil liberties.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   5 citations  
  43.  97
    The Limits of Public Health: A Response.Mark A. Rothstein - 2009 - Public Health Ethics 2 (1):84-88.
    Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine, 501 East Broadway # 310, Louisville, Kentucky 40202, USA. Tel.: 502 852 4980; Fax: 502 852 4963; Email: mark.rothstein{at}louisville.edu ' + u + '@' + d + ' '//--> Abstract In his article in this issue, Daniel Goldberg advocates a broad definition of public health and expressly rejects the narrow definition of public health I proposed in a (...)
    Direct download (8 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  44.  6
    Structural Challenges of Precision Medicine.Mark A. Rothstein - 2017 - Journal of Law, Medicine and Ethics 45 (2):274-279.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  45.  10
    Autonomy and Paternalism in Health Policy: Currents in Contemporary Bioethics.Mark A. Rothstein - 2014 - Journal of Law, Medicine and Ethics 42 (4):590-594.
  46.  5
    Autonomy and Paternalism in Health Policy: Currents in Contemporary Bioethics.Mark A. Rothstein - 2014 - Journal of Law, Medicine and Ethics 42 (4):590-594.
  47.  15
    Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (s2):59-65.
    Genetic-specific nondiscrimination laws have been enacted in most states, but the laws are ineffective and increase the stigma of genetic conditions. Whether these laws are better than no new legislation depends on their consequences and a recognition of their limitations.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  48.  8
    Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (2_suppl):59-65.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  49.  16
    Genetic Discrimination in Employment Is Indefensible.Mark A. Rothstein - 2013 - Hastings Center Report 43 (6):3-4.
  50.  1
    Currents in Contemporary Ethics: Malpractice Immunity for Volunteer Physicians in Public Health Emergencies: Adding Insult to Injury.Mark A. Rothstein - 2010 - Journal of Law, Medicine and Ethics 38 (1):149-153.
1 — 50 / 84