17 found
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  1.  25
    Own Data? Ethical Reflections on Data Ownership.Patrik Hummel, Matthias Braun & Peter Dabrock - 2020 - Philosophy and Technology 34 (3):545-572.
    In discourses on digitization and the data economy, it is often claimed that data subjects shall be owners of their data. In this paper, we provide a problem diagnosis for such calls for data ownership: a large variety of demands are discussed under this heading. It thus becomes challenging to specify what—if anything—unites them. We identify four conceptual dimensions of calls for data ownership and argue that these help to systematize and to compare different positions. In view of this pluralism (...)
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  2.  33
    Primer on an Ethics of AI-Based Decision Support Systems in the Clinic.Matthias Braun, Patrik Hummel, Susanne Beck & Peter Dabrock - 2021 - Journal of Medical Ethics 47 (12):3-3.
    Making good decisions in extremely complex and difficult processes and situations has always been both a key task as well as a challenge in the clinic and has led to a large amount of clinical, legal and ethical routines, protocols and reflections in order to guarantee fair, participatory and up-to-date pathways for clinical decision-making. Nevertheless, the complexity of processes and physical phenomena, time as well as economic constraints and not least further endeavours as well as achievements in medicine and healthcare (...)
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  3.  18
    Represent Me: Please! Towards an Ethics of Digital Twins in Medicine.Matthias Braun - 2021 - Journal of Medical Ethics 47 (6):394-400.
    Simulations are used in very different contexts and for very different purposes. An emerging development is the possibility of using simulations to obtain a more or less representative reproduction of organs or even entire persons. Such simulations are framed and discussed using the term ‘digital twin’. This paper unpacks and scrutinises the current use of such digital twins in medicine and the ideas embedded in this practice. First, the paper maps the different types of digital twins. A special focus is (...)
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  4.  14
    Data Sovereignty: A Review.Peter Dabrock, Max Tretter, Matthias Braun & Patrik Hummel - 2021 - Big Data and Society 8 (1).
    New data-driven technologies yield benefits and potentials, but also confront different agents and stakeholders with challenges in retaining control over their data. Our goal in this study is to arrive at a clear picture of what is meant by data sovereignty in such problem settings. To this end, we review 341 publications and analyze the frequency of different notions such as data sovereignty, digital sovereignty, and cyber sovereignty. We go on to map agents they concern, in which context they appear, (...)
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  5.  10
    Vulnerable Life: Reflections on the Relationship Between Theological and Philosophical Ethics.Matthias Braun - 2020 - American Journal of Bioethics 20 (12):21-23.
    It is very timely and highly important to think the relationship between theological and philosophical ethics. In this issue, Michael McCarthy et al. make a plea for a stronger dialogue...
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  6.  17
    Just Data? Solidarity and Justice in Data-Driven Medicine.Matthias Braun & Patrik Hummel - 2020 - Life Sciences, Society and Policy 16 (1):1-18.
    This paper argues that data-driven medicine gives rise to a particular normative challenge. Against the backdrop of a distinction between the good and the right, harnessing personal health data towards the development and refinement of data-driven medicine is to be welcomed from the perspective of the good. Enacting solidarity drives progress in research and clinical practice. At the same time, such acts of sharing could—especially considering current developments in big data and artificial intelligence—compromise the right by leading to injustices and (...)
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  7. The Trust Game CRISPR for Human Germline Editing Unsettles Scientists and Society.Matthias Braun & Darian Meacham - 2019 - EMBO Reports 20 (2).
  8.  5
    Between Moral Hazard and Legal Uncertainty: Ethical, Legal and Societal Challenges of Human Genome Editing.Matthias Braun, Hannah Schickl & Peter Dabrock (eds.) - 2018 - Springer Fachmedien Wiesbaden.
    Genome Editing Techniques are seen to be at the frontier of current research in the field of emerging biotechnologies. The latest revolutionary development, the so-called CRISPR technology, represents a paradigmatic example of the ambiguity of such techniques and has resulted in an international interdisciplinary debate on whether or not it is necessary to ban the application of this technique by means of a moratorium on its use for human germline modifications, particularly in human embryos in the reproduction process. However, given (...)
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  9.  2
    Risikoadaptierte Prävention: Governance Perspective Für Leistungsansprüche Bei Genetischen (Brustkrebs-)Risiken.Friedhelm Meier, Anke Harney, Kerstin Rhiem, Anja Neumann, Silke Neusser, Matthias Braun, Jürgen Wasem, Rita Schmutzler, Stefan Huster & Peter Dabrock - 2018 - Springer Fachmedien Wiesbaden.
    Die vorliegende Studie empfiehlt, Leistungsansprüche für Personen mit interventionsfordernden Risiken anhand einer neuen Rechtskategorie, der ‚risikoadaptieren Prävention‘, abzubilden. Spätestens seit dem bioinformatischen Innovationsschub kann eine risikoadaptierte Anwendung von prophylaktischen Maßnahmen umfassend gewährleistet werden. Jedoch können die gegebenen Rechtskategorien das medizinische Anwendungsfeld nicht adäquat steuern. Die Autoren Friedhelm Meier, Anke Harney, Kerstin Rhiem, Anja Neumann, Silke Neusser, Matthias Braun, Jürgen Wasem, Rita Schmutzler, Stefan Huster und Peter Dabrock haben zusammen im BMBF geförderten Projekt SYSKON. Re-Konfiguration von Gesundheit und Krankheit. Ethische, psychosoziale, (...)
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  10.  11
    Ways Out of the Patenting Prohibition? Human Parthenogenetic and Induced Pluripotent Stem Cells.Hannah Schickl, Matthias Braun & Peter Dabrock - 2017 - Bioethics 31 (5):409-417.
    According to the judgement of the European Court of Justice in 2014, human parthenogenetic stem cells are excluded from the patenting prohibition of procedures based on hESC by the European Biopatent Directive, because human parthenotes are not human embryos. This article is based on the thesis that in light of the technological advances in the field of stem cell research, the attribution of the term ‘human embryo’ to certain entities on a descriptive level as well as the attribution of a (...)
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  11.  19
    A Leap of Faith: Is There a Formula for “Trustworthy” AI?Matthias Braun, Hannah Bleher & Patrik Hummel - 2021 - Hastings Center Report 51 (3):17-22.
  12. The Ethics of Medical Data Donation.Peter Dabrock, Matthias Braun & Patrik Hummel (eds.) - 2019 - Springer Verlag.
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  13.  6
    Riding New Waves. Sozialethische Metabeobachtungen Zur Individualisierten MedizinRiding New Waves. Socioethical Meta Observations in Individualized Medicine.Matthias Braun, Jens Ried & Peter Dabrock - 2013 - Ethik in der Medizin 25 (3):251-258.
    ZusammenfassungNeben grundsätzlichen konzeptionellen Fragen der sog. Individualisierten Medizin, prägen ethische Bedenken und Fragen die aktuellen Debatten um die IM. Allerdings ist bislang noch nicht geklärt, in welchem methodischen Rahmen diese Fragen verortet werden können. Für die Entwicklung eines solchen Rahmens wird das Modell der First- und Second-Wave-Bioethics diskutiert und an zwei konkreten Herausforderungen – 1) dem Verhältnis der IM zur evidenz-basierten Medizin und 2) am Konzept der genetischen Risikoperson – aufgezeigt. Eine solche Kontextualisierung der IM-Debatte legt den Grundstein für eine (...)
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  14.  14
    Riding New Waves. Sozialethische Metabeobachtungen zur Individualisierten Medizin.Matthias Braun, Dr Jens Ried & Prof Dr Peter Dabrock - 2013 - Ethik in der Medizin 25 (3):251-258.
    Neben grundsätzlichen konzeptionellen Fragen der sog. Individualisierten Medizin (IM), prägen ethische Bedenken und Fragen die aktuellen Debatten um die IM. Allerdings ist bislang noch nicht geklärt, in welchem methodischen Rahmen diese Fragen verortet werden können. Für die Entwicklung eines solchen Rahmens wird das Modell der First- und Second-Wave-Bioethics diskutiert und an zwei konkreten Herausforderungen – 1) dem Verhältnis der IM zur evidenz-basierten Medizin und 2) am Konzept der genetischen Risikoperson – aufgezeigt. Eine solche Kontextualisierung der IM-Debatte legt den Grundstein für (...)
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  15.  10
    Riding New Waves. Sozialethische Metabeobachtungen zur Individualisierten Medizin.Matthias Braun, Jens Ried & Peter Dabrock - 2013 - Ethik in der Medizin 25 (3):251-258.
    ZusammenfassungNeben grundsätzlichen konzeptionellen Fragen der sog. Individualisierten Medizin, prägen ethische Bedenken und Fragen die aktuellen Debatten um die IM. Allerdings ist bislang noch nicht geklärt, in welchem methodischen Rahmen diese Fragen verortet werden können. Für die Entwicklung eines solchen Rahmens wird das Modell der First- und Second-Wave-Bioethics diskutiert und an zwei konkreten Herausforderungen – 1) dem Verhältnis der IM zur evidenz-basierten Medizin und 2) am Konzept der genetischen Risikoperson – aufgezeigt. Eine solche Kontextualisierung der IM-Debatte legt den Grundstein für eine (...)
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  16.  5
    Hybridisierungsdynamiken im Verständnis von und im Umgang mit ‚Leben'.Jens Ried, Matthias Braun & Peter Dabrock - 2014 - Jahrbuch für Wissenschaft Und Ethik 18 (1).
    Name der Zeitschrift: Jahrbuch für Wissenschaft und Ethik Jahrgang: 18 Heft: 1 Seiten: 173-198.
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  17.  1
    Between Moral Hazard and Legal Uncertainty.Matthias Braun, Hannah Schickl & Peter Dabrock - 2018 - In Matthias Braun, Hannah Schickl & Peter Dabrock (eds.), Between Moral Hazard and Legal Uncertainty: Ethical, Legal and Societal Challenges of Human Genome Editing. Springer Fachmedien Wiesbaden. pp. 1-14.
    Genome editing techniques are seen to be at the frontier of current research in the field of emerging biotechnologies. However, such biotechnological research is tensioned at the interface of science, technology and society. On the one hand, this means that it offers a tremendous potential to provide new concepts, methods and – in the long run – novel applications for urgent challenges and needs within society.
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