22 found
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  1.  61
    Structural Racism in the COVID-19 Pandemic: Moving Forward.Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien - 2021 - American Journal of Bioethics 21 (3):56-74.
    Pandemics first and foremost hit those who are most vulnerable, and the COVID-19 pandemic is not different. Although the infection rate in the nation’s poorest neighborhoods is twice as it is in th...
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  2.  33
    Precision medicine and the problem of structural injustice.Sara Green, Barbara Prainsack & Maya Sabatello - 2023 - Medicine, Health Care and Philosophy 26 (3):433-450.
    Many countries currently invest in technologies and data infrastructures to foster precision medicine (PM), which is hoped to better tailor disease treatment and prevention to individual patients. But who can expect to benefit from PM? The answer depends not only on scientific developments but also on the willingness to address the problem of structural injustice. One important step is to confront the problem of underrepresentation of certain populations in PM cohorts via improved research inclusivity. Yet, we argue that the perspective (...)
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  3.  36
    The Precision Medicine Nation.Maya Sabatello & Paul S. Appelbaum - 2017 - Hastings Center Report 47 (4):19-29.
    The United States’ ambitious Precision Medicine Initiative proposes to accelerate exponentially the adoption of precision medicine, an approach to health care that tailors disease diagnosis, treatment, and prevention to individual variability in genes, environment, and lifestyle. It aims to achieve this by creating a cohort of volunteers for precision medicine research, accelerating biomedical research innovation, and adopting policies geared toward patients’ empowerment. As strategies to implement the PMI are formulated, critical consideration of the initiative's ethical and sociopolitical dimensions is needed. (...)
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  4.  36
    Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.Maya Sabatello & Eric Juengst - 2019 - Hastings Center Report 49 (S1):10-18.
    Since the inception of large‐scale human genome research, there has been much caution about the risks of exacerbating a number of socially dangerous attitudes linked to human genetics. These attitudes are usually labeled with one of a family of genetic or genomic “isms” or “ations” such as “genetic essentialism,” “genetic determinism,” “genetic reductionism,” “geneticization,” “genetic stigmatization,” and “genetic discrimination.” The psychosocial processes these terms refer to are taken to exacerbate several ills that are similarly labeled, from medical racism and psychological (...)
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  5.  40
    Wrongful Birth: AI-Tools for Moral Decisions in Clinical Care in the Absence of Disability Ethics.Maya Sabatello - 2022 - American Journal of Bioethics 22 (7):43-46.
    Meier et al. describe a pilot study that developed METHAD, an AI-based Medical Ethics Advisor tool that draws on the principlism approach and was tested using text-book cases and clinical et...
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  6.  25
    Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.Maya Sabatello, Shawneequa Callier, Nanibaa' A. Garrison & Elizabeth G. Cohn - 2018 - American Journal of Bioethics 18 (4):34-36.
    Through the use of culturally appropriate videos on precision medicine research (PMR) that were developed and tailored to five racial and ethnic groups of patients, and subsequent focus-group discu...
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  7.  34
    Nature vs. Nurture in Precision Education: Insights of Parents and the Public.Maya Sabatello, Bree Martin, Thomas Corbeil, Seonjoo Lee, Bruce G. Link & Paul S. Appelbaum - 2022 - AJOB Empirical Bioethics 13 (2):79-88.
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  8.  33
    Pediatric Participation in Medical Decision Making: Optimized or Personalized?Maya Sabatello, Annie Janvier, Eduard Verhagen, Wynne Morrison & John Lantos - 2018 - American Journal of Bioethics 18 (3):1-3.
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  9.  32
    Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Maya Sabatello & Paul S. Appelbaum - 2016 - Journal of Law, Medicine and Ethics 44 (2):292-308.
    Whole genome and exome sequencing techniques raise hope for a new scale of diagnosis, prevention, and prediction of genetic conditions, and improved care for children. For these hopes to materialize, extensive genomic research with children will be needed. However, the use of WGS/WES in pediatric research settings raises considerable challenges for families, researchers, and policy development. In particular, the possibility that these techniques will generate genetic findings unrelated to the primary goal of sequencing has stirred intense debate about whether, which, (...)
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  10.  27
    Psychiatric Genomics and Public Mental Health in the Young Mind.Maya Sabatello - 2017 - American Journal of Bioethics 17 (4):27-29.
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  11.  17
    Moving to Equity in the All of Us Research Program.Kadija Ferryman, Aaron J. Goldenberg & Maya Sabatello - 2024 - American Journal of Bioethics 24 (3):115-117.
    In the article, “Precision Medicine for Whom? Public Health Outputs from “Genomics England” and “All of Us” to Make Up for Upstream and Downstream Exclusion,” Galasso focuses on how marginalized pe...
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  12.  12
    Whether Whole Eye Transplant is a Benefit or Harm Depends on More Than the Observer.Maya Sabatello & Mika Baugh - 2024 - American Journal of Bioethics 24 (5):87-90.
    Laspro et al. (2024) contemplate the first whole eye transplant (WET) procedure in humans. They discuss the implications of such a procedure on the physical, social, and psychological well-being of...
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  13.  23
    A Genomically Informed Education System? Challenges for Behavioral Genetics.Maya Sabatello - 2018 - Journal of Law, Medicine and Ethics 46 (1):130-144.
    The exponential growth of genetic knowledge and precision medicine research raises hopes for improved prevention, diagnosis, and treatment options for children with behavioral and psychiatric conditions. Although well-intended, this prospect also raise the possibility — and concern — that behavioral, including psychiatric genetic data would be increasingly used — or misused — outside the clinical context, such as educational settings. Indeed, there are ongoing calls to endorse a “personalized education” model that would tailor educational interventions to children's behavioral and psychiatric (...)
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  14.  16
    Invisible: People with Disability and (In)equity in Precision Medicine Research.Maya Sabatello & Katherine E. McDonald - 2024 - American Journal of Bioethics 24 (3):103-106.
    Galasso (2024) shares findings from narrative analyses of relevant constituting material of and interviews with leaders in two national precision medicine research (PMR) programs: 100KGP of Genomic...
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  15.  30
    Honey, I Sequenced the Kids: Preventive Genomics and the Complexities of Adolescence.Maya Sabatello & Paul S. Appelbaum - 2015 - American Journal of Bioethics 15 (7):19-21.
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  16.  15
    Correction to: Precision medicine and the problem of structural injustice.Sara Green, Barbara Prainsack & Maya Sabatello - 2024 - Medicine, Health Care and Philosophy 27 (1):133-133.
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  17.  2
    REDI in Bioethics Cannot Be Achieved Without the Promotion of Anti-Ableism.Kevin Todd Mintz & Maya Sabatello - 2024 - American Journal of Bioethics 24 (10):32-34.
    Volume 24, Issue 10, October 2024, Page 32-34.
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  18.  23
    An Open Dialogue on Health Disparities and Structural Racism: Response to Open Peer Commentaries.Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien - 2022 - American Journal of Bioethics 22 (9):1-3.
    In our target article (Sabatello et al. 2021), we proposed the use of community engagement and the establishment of a Truth and Reconciliation Commission (TRC) as pathways for promoting social just...
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  19.  5
    Between a Rock and a Hard Place: The Collective Good at a Time of Medical Narcissism.Maya Sabatello - 2019 - Hastings Center Report 49 (6):41-42.
    Not a single day goes by without some news about personalized medicine, especially in its genomic context (precision medicine). In tandem with the scientific excitement, however, come the cautionary notes. These include worries about Big Brother surveillance, concerns about the impact of genomic results on the psychosocial well‐being of patients and research subjects, and attention to issues of social and distributive justice. Personalised Medicine, Individual Choice and the Common Good, coedited by Britta van Beers, Sigrid Sterckx, and Donna Dickenson, falls (...)
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  20. Controlled parenthood: bioethics and the notion of the family.Maya Sabatello - 2014 - In Wanda Teays, John-Stewart Gordon & Alison Dundes Renteln (eds.), Global Bioethics and Human Rights: Contemporary Issues. Lanham: Rowman & Littlefield.
     
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  21.  18
    People With Disabilities in COVID-19: Fixing Our Priorities.Maya Sabatello, Scott D. Landes & Katherine E. McDonald - 2020 - American Journal of Bioethics 20 (7):187-190.
    Volume 20, Issue 7, July 2020, Page 187-190.
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  22.  17
    Review of Yechiel Michael Barilan, Human Dignity, Human Rights, and Responsibility: The New Language of Global Bioethics and Biolaw 1. [REVIEW]Maya Sabatello - 2013 - American Journal of Bioethics 13 (6):56-57.
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