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Michael Burgess [14]Michael M. Burgess [13]Michael Macdonald Burgess [1]
  1.  47
    Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, Vicky Chico, Sarah Cunningham-Burley, Julie Darbyshire, Rebecca Dawson, Andrew Evans, Nick Fahy, Teresa Finlay, Lucy Frith, Aaron Goldenberg, Lisa Hinton, Nils Hoppe, Nigel Hughes, Barbara Koenig, Sapfo Lignou, Michelle McGowan, Michael Parker, Barbara Prainsack, Mahsa Shabani, Ciara Staunton, Rachel Thompson, Kinga Varnai, Effy Vayena, Oli Williams, Max Williamson, Sarah Chan & Mark Sheehan - 2021 - Journal of Medical Ethics 47 (7):522-525.
    Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 experts and stakeholders using the World Café method to identify key governance challenges and explore how public involvement can (...)
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  2.  29
    Nursing and euthanasia: A narrative review of the nursing ethics literature.Barbara Pesut, Madeleine Greig, Sally Thorne, Janet Storch, Michael Burgess, Carol Tishelman, Kenneth Chambaere & Robert Janke - forthcoming - Nursing Ethics:096973301984512.
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  3.  37
    Moving From Understanding of Consent Conditions to Heuristics of Trust.Michael M. Burgess & Kieran C. O’Doherty - 2019 - American Journal of Bioethics 19 (5):24-26.
    Volume 19, Issue 5, May 2019, Page 24-26.
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  4.  89
    Multiple diversity concepts and their ethical-epistemic implications.Daniel Steel, Sina Fazelpour, Kinley Gillette, Bianca Crewe & Michael Burgess - 2018 - European Journal for Philosophy of Science 8 (3):761-780.
    A concept of diversity is an understanding of what makes a group diverse that may be applicable in a variety of contexts. We distinguish three diversity concepts, show that each can be found in discussions of diversity in science, and explain how they tend to be associated with distinct epistemic and ethical rationales. Yet philosophical literature on diversity among scientists has given little attention to distinct concepts of diversity. This is significant because the unappreciated existence of multiple diversity concepts can (...)
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  5.  17
    Narratives in Public Deliberation: Empowering Gene Editing Debate with Storytelling.Kaiping Chen & Michael M. Burgess - 2021 - Hastings Center Report 51 (S2):85-91.
    Gene editing in the environment must consider uncertainty about potential benefits and risks for different populations and under different conditions. There are disagreements about the weight and balance of harms and benefits. Deliberative and community‐led approaches offer the opportunity to engage and empower diverse publics to co‐create responses and solutions to controversial policy choices in a manner that is inclusive of diverse perspectives. Stories, understood as situated accounts that reflect a person's life experiences, can enable the articulation of nuanced perspectives, (...)
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  6.  50
    Public consultation in ethics an experiment in representative ethics.Michael M. Burgess - 2004 - Journal of Bioethical Inquiry 1 (1):4-13.
    Genome Canada has funded a research project to evaluate the usefulness of different forms of ethical analysis for assessing the moral weight of public opinion in the governance of genomics. This paper will describe a role of public consultation for ethical analysis and a contribution of ethical analysis to public consultation and the governance of genomics/biotechnology. Public consultation increases the robustness of ethical analysis with a more diverse and rich accounts experiences. Consultation must be carefully and respectfully designed to generate (...)
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  7.  87
    Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining.Kieran C. O’Doherty & Michael M. Burgess - 2013 - Research Ethics 9 (2):55-77.
    Public participation is increasingly an aspect of policy development in many areas, and the governance of biomedical research is no exception. There are good reasons for this: biomedical research relies on public funding; it relies on biological samples and information from large numbers of patients and healthy individuals; and the outcomes of biomedical research are dramatically and irrevocably changing our society. There is thus arguably a democratic imperative for including public values in strategic decisions about the governance of biomedical research. (...)
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  8.  85
    The medicalization of dying.Michael M. Burgess - 1993 - Journal of Medicine and Philosophy 18 (3):269-279.
    Physician assisted suicide or active euthanasia is analyzed as a medicalization of the needs of persons who are suffering interminably. As with other medicalized responses to personal needs, the availability of active euthanasia will likely divert attention and resources from difficult social and personal aspects of the needs of dying and suffering persons, continuing the pattern of privatization of the costs of caregiving for persons who are candidates for active euthanasia, limiting the ability of caregivers to assist suffering persons to (...)
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  9.  98
    Social contract theory and just decision making: Lessons from genetic testing for the BRCA mutations.Bryn Williams-Jones & Michael M. Burgess - 2004 - Kennedy Institute of Ethics Journal 14 (2):115-142.
    : Decisions about funding health services are crucial to controlling costs in health care insurance plans, yet they encounter serious challenges from intellectual property protection—e.g., patents—of health care services. Using Myriad Genetics' commercial genetic susceptibility test for hereditary breast cancer (BRCA testing) in the context of the Canadian health insurance system as a case study, this paper applies concepts from social contract theory to help develop more just and rational approaches to health care decision making. Specifically, Daniels's and Sabin's "accountability (...)
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  10.  42
    Genetic Testing for Hereditary Disease: Attending to Relational Responsibility.Michael M. Burgess & Lori D'Agincourt-Canning - 2001 - Journal of Clinical Ethics 12 (4):361-372.
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  11.  19
    Sequencing the salmon genome: A deliberative public engagement.David M. Secko, Michael Burgess & Kieran O'Doherty - 2010 - Genomics, Society and Policy 6 (1):1-18.
    Salmon genomics is an emerging field that represents a convergence between socially important scientific innovation and a politically volatile topic of significant interest to the public. These factors provide a strong rationale for public input. This report describes such input from a public engagement event based on the principles of deliberative democracy. The event involved a random, demographically stratified sample of 25 British Columbians (Canada). While some participants opposed sequencing the salmon genome on principle, on the whole participants responded favourably, (...)
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  12.  15
    Deliberation on Childhood Vaccination in Canada: Public Input on Ethical Trade-Offs in Vaccination Policy.Kieran C. O’Doherty, Sara Crann, Lucie Marisa Bucci, Michael M. Burgess, Apurv Chauhan, Maya J. Goldenberg, C. Meghan McMurtry, Jessica White & Donald J. Willison - 2021 - AJOB Empirical Bioethics 12 (4):253-265.
    Background Policy decisions about childhood vaccination require consideration of multiple, sometimes conflicting, public health and ethical imperatives. Examples of these decisions are whether vaccination should be mandatory and, if so, whether to allow for non-medical exemptions. In this article we argue that these policy decisions go beyond typical public health mandates and therefore require democratic input.Methods We report on the design, implementation, and results of a deliberative public forum convened over four days in Ontario, Canada, on the topic of childhood (...)
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  13.  19
    A Cross-Cultural Dialogue on Health Care Ethics.Joan Anderson, Arthur Blue, Michael Burgess, Harold Coward, Robert Florida, Barry Glickman, Barry Hoffmaster, Edwin Hui, Edward Keyserlingk, Michael McDonald, Pinit Ratanakul, Sheryl Reimer Kirkham, Patricia Rodney, Rosalie Starzomski, Peter Stephenson, Khannika Suwonnakote & Sumana Tangkanasingh (eds.) - 2006 - Wilfrid Laurier Press.
    The ethical theories employed in health care today assume, in the main, a modern Western philosophical framework. Yet the diversity of cultural and religious assumptions regarding human nature, health and illness, life and death, and the status of the individual suggest that a cross-cultural study of health care ethics is needed. A Cross-Cultural Dialogue on Health Care Ethics provides this study. It shows that ethical questions can be resolved by examining the ethical principles present in each culture, critically assessing each (...)
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  14. Cae.Michael Burgess & Kieran O'Doherty - 2006 - In Laurie Dimauro (ed.), Ethics. Greenhaven Press. pp. 1Z2.
     
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  15. Cultural authority of informed consent: indigenous participation in biobanking and salmon genomics focus groups.Michael Burgess & James Tansey - 2009 - In Oonagh Corrigan (ed.), The limits of consent: a socio-ethical approach to human subject research in medicine. New York: Oxford University Press.
     
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  16.  11
    Contemporary Issues in Paediatric Ethics.Michael M. Burgess & Brian E. Woodrow - 1991 - Lewiston, N.Y. ; Queenston, Ont. : E. Mellen Press.
    This collection of essays by a group of international scholars focuses on specific issues in bioethics and paediatrics. It reflects interdisciplinary approaches to practical problems at the level of policy and practice.
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  17.  4
    End-of-Life Decisions: Clinical Decisions about Dying and Perspectives on Life and Death.Michael Burgess, Peter Stephenson, Pinit Ratanakul & Khannika Suwonnakote - 2006 - In Joan Anderson, Arthur Blue, Michael Burgess, Harold Coward, Robert Florida, Barry Glickman, Barry Hoffmaster, Edwin Hui, Edward Keyserlingk, Michael McDonald, Pinit Ratanakul, Sheryl Reimer Kirkham, Patricia Rodney, Rosalie Starzomski, Peter Stephenson, Khannika Suwonnakote & Sumana Tangkanasingh (eds.), A Cross-Cultural Dialogue on Health Care Ethics. Wilfrid Laurier Press. pp. 190-206.
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  18.  5
    Pediatric Care: Judgments about Best Interests at the Onset of Life.Michael Burgess, Patricia Rodney, Harold Coward, Pinit Ratanakul & Khannika Suwonnakote - 2006 - In Joan Anderson, Arthur Blue, Michael Burgess, Harold Coward, Robert Florida, Barry Glickman, Barry Hoffmaster, Edwin Hui, Edward Keyserlingk, Michael McDonald, Pinit Ratanakul, Sheryl Reimer Kirkham, Patricia Rodney, Rosalie Starzomski, Peter Stephenson, Khannika Suwonnakote & Sumana Tangkanasingh (eds.), A Cross-Cultural Dialogue on Health Care Ethics. Wilfrid Laurier Press. pp. 160-175.
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  19. Reference Guide to Science Fiction, Fantasy and Horror.Michael Burgess & Lisa R. Bartle - 2003 - Utopian Studies 14 (2):147-149.
  20.  32
    Should HECs involved in case review have a healthcare ethics consultant?Michael M. Burgess, Elizabeth A. Flagler & Veronica A. Dalla-Longa - 1993 - HEC Forum 5 (3):196-204.
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  21.  40
    A survey of calgary paediatricians'attitudes regarding the treatment of defective newborns. A report from canada.B. A. Y. E. & MICHAEL M. BURGESS - 1991 - Bioethics 5 (2):139–149.
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  22.  43
    Commentary.Michael M. Burgess - 1998 - Cambridge Quarterly of Healthcare Ethics 7 (4):363-366.
    In Michael Stingl argues that the legalization of euthanasia can be made reasonable social policy only in the context of healthcare reform to deliver primary- and community-based care. Stingl accepts that euthanasia and that includes not only pain, but He is not worried The failure of the healthcare system to adequately respond to the needs of people who are suffering with chronic or terminal conditions may lead competent people to elect euthanasia. Stingl argues that it is the institutionalization of care (...)
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  23.  25
    Correction to: Multiple diversity concepts and their ethical-epistemic implications.Daniel Steel, Sina Fazelpour, Kinley Gillette, Bianca Crewe & Michael Burgess - 2018 - European Journal for Philosophy of Science 8 (3):781-781.
    The original version of this article unfortunately contained a mistake. The fourth author’s name is Bianca Crewe, not Bianca Crew. The original article has been corrected.
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