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Michelle L. McGowan [13]Michelle McGowan [2]
  1.  32
    Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye & Eric T. Juengst - 2016 - BMC Medical Ethics 17 (1):1.
    The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. Originally, these labels were invoked by volunteer research efforts propelled by amateurs outside of traditional research institutions and aimed at appealing to those looking for more “democratic,” “patient-centric,” or “lay” alternatives to the professional science establishment. As mainstream translational biomedical research requires increasingly larger participant pools, however, corporate, academic and governmental research programs (...)
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  2.  28
    From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.Eric Juengst, Michelle L. McGowan, Jennifer R. Fishman & Richard A. Settersten - 2016 - Hastings Center Report 46 (5):21-33.
    Since the late 1980s, the human genetics and genomics research community has been promising to usher in a “new paradigm for health care”—one that uses molecular profiling to identify human genetic variants implicated in multifactorial health risks. After the completion of the Human Genome Project in 2003, a wide range of stakeholders became committed to this “paradigm shift,” creating a confluence of investment, advocacy, and enthusiasm that bears all the marks of a “scientific/intellectual social movement” within biomedicine. Proponents of this (...)
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  3.  6
    Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.Mark A. Rothstein, John T. Wilbanks, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Megan Doerr, Barbara J. Evans, Catherine M. Hammack-Aviran, Michelle L. McGowan & Stacey A. Tovino - 2020 - Journal of Law, Medicine and Ethics 48 (S1):196-226.
    Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of (...)
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  4.  20
    Big Data, Open Science and the Brain: Lessons Learned From Genomics.Suparna Choudhury, Jennifer R. Fishman, Michelle L. McGowan & Eric T. Juengst - 2014 - Frontiers in Human Neuroscience 8.
  5.  2
    Filling a Federal Void: Promises and Perils of State Law in Addressing Women’s Health Disparities.Valarie K. Blake & Michelle L. McGowan - 2020 - Journal of Law, Medicine and Ethics 48 (3):485-490.
    Federal law often avoids setting minimum standards for women’s health and reproductive rights issues, leaving legislative and regulatory gaps for the states to fill as they see fit. This has mixed results. It can lead to state innovation that improves state-level health outcomes, informs federal health reform, and provides data on best practices for other states. On the other hand, some states may use the absence of a federal floor to impose draconian policies that pose risks to women’s and maternal (...)
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  6.  17
    Using Lessons Learned From Brca Testing and Marketing: What Lies Ahead for Whole Genome Scanning Services.Michelle L. McGowan & Jennifer R. Fishman - 2008 - American Journal of Bioethics 8 (6):18 – 20.
  7.  22
    Emerging Ethical Issues in Reproductive Medicine:Are Bioethics Educators Ready?Ruth M. Farrell, Jonathan S. Metcalfe, Michelle L. McGowan, Kathryn L. Weise, Patricia K. Agatisa & Jessica Berg - 2014 - Hastings Center Report 44 (5):21-29.
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  8.  13
    Conflicts of Interest and Effective Oversight of Assisted Reproduction Using Donated Oocytes.Valarie K. Blake, Michelle L. McGowan & Aaron D. Levine - 2015 - Journal of Law, Medicine and Ethics 43 (2):410-424.
    Oocyte donation raises conflicts of interest and commitment for physicians but little attention has been paid to how to reduce these conflicts in practice. Yet the growing popularity of assisted reproduction has increased the stakes of maintaining an adequate oocyte supply and minimizing conflicts. A growing body of professional guidelines, legal challenges to professional self-regulation, and empirical research on the practice of oocyte donation all call for renewed attention to the issue. As empirical findings better inform existing conflicts and their (...)
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  9.  19
    Egg Donation Compensation: Ethical and Legal Challenges.Nancy Kenney & Michelle McGowan - 2014 - Medicolegal and Bioethics:15.
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  10.  7
    Whose Right to Know? The Subjectivity of Mothers in Mandatory Paternity Testing.Erin Heidt-Forsythe & Michelle L. McGowan - 2013 - American Journal of Bioethics 13 (5):42-44.
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  11.  2
    Public Involvement in the Governance of Population-Level Biomedical Research: Unresolved Questions and Future Directions.Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, Vicky Chico, Sarah Cunningham-Burley, Julie Darbyshire, Rebecca Dawson, Andrew Evans, Nick Fahy, Teresa Finlay, Lucy Frith, Aaron Goldenberg, Lisa Hinton, Nils Hoppe, Nigel Hughes, Barbara Koenig, Sapfo Lignou, Michelle McGowan, Michael Parker, Barbara Prainsack, Mahsa Shabani, Ciara Staunton, Rachel Thompson, Kinga Varnai, Effy Vayena, Oli Williams, Max Williamson, Sarah Chan & Mark Sheehan - forthcoming - Journal of Medical Ethics:medethics-2020-106530.
    Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 experts and stakeholders using the World Café method to identify key governance challenges and explore how public involvement can (...)
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  12.  18
    Are Social Networkers and Genome Testers One in the Same? The Limitations of Public Opinion Research for Guiding Clinical Practice.Michelle L. McGowan & Marcie A. Lambrix - 2009 - American Journal of Bioethics 9 (6-7):21-23.
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  13.  10
    Review of John D. Lantos and Diane S. Lauderdale, Preterm Babies, Fetal Patients, and Childbearing Choices1. [REVIEW]Michelle L. McGowan - 2016 - American Journal of Bioethics 16 (10):3-5.
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  14.  28
    Reframing the Justice Implications of Preserving the Right to Future Children.Michelle L. McGowan & Julie Redding - 2012 - American Journal of Bioethics 12 (6):53-55.
    The American Journal of Bioethics, Volume 12, Issue 6, Page 53-55, June 2012.
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  15. Justice in the Context of Family Balancing.Richard R. Sharp & Michelle L. McGowan - 2013 - Science, Technology, and Human Values 38 (2):271-293.
    Bioethics and feminist scholarship has explored various justice implications of nonmedical sex selection and family balancing. However, prospective users’ viewpoints have been absent from the debate over the socially acceptable bounds of nonmedical sex selection. This qualitative study provides a set of empirically grounded perspectives on the moral values that underpin prospective users’ conceptualizations of justice in the context of a family balancing program in the United States. The results indicate that couples pursuing family balancing understand justice primarily in individualist (...)
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