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Michelle Pham [4]Michelle Trang Pham [4]Michelle T. Pham [4]
  1.  76
    Recommendations for Responsible Development and Application of Neurotechnologies.Sara Goering, Eran Klein, Laura Specker Sullivan, Anna Wexler, Blaise Agüera Y. Arcas, Guoqiang Bi, Jose M. Carmena, Joseph J. Fins, Phoebe Friesen, Jack Gallant, Jane E. Huggins, Philipp Kellmeyer, Adam Marblestone, Christine Mitchell, Erik Parens, Michelle Pham, Alan Rubel, Norihiro Sadato, Mina Teicher, David Wasserman, Meredith Whittaker, Jonathan Wolpaw & Rafael Yuste - 2021 - Neuroethics 14 (3):365-386.
    Advancements in novel neurotechnologies, such as brain computer interfaces and neuromodulatory devices such as deep brain stimulators, will have profound implications for society and human rights. While these technologies are improving the diagnosis and treatment of mental and neurological diseases, they can also alter individual agency and estrange those using neurotechnologies from their sense of self, challenging basic notions of what it means to be human. As an international coalition of interdisciplinary scholars and practitioners, we examine these challenges and make (...)
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  2.  52
    Keeping Disability in Mind: A Case Study in Implantable Brain–Computer Interface Research.Laura Specker Sullivan, Eran Klein, Tim Brown, Matthew Sample, Michelle Pham, Paul Tubig, Raney Folland, Anjali Truitt & Sara Goering - 2018 - Science and Engineering Ethics 24 (2):479-504.
    Brain–Computer Interface research is an interdisciplinary area of study within Neural Engineering. Recent interest in end-user perspectives has led to an intersection with user-centered design. The goal of user-centered design is to reduce the translational gap between researchers and potential end users. However, while qualitative studies have been conducted with end users of BCI technology, little is known about individual BCI researchers’ experience with and attitudes towards UCD. Given the scientific, financial, and ethical imperatives of UCD, we sought to gain (...)
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  3.  37
    Testimonial injustice: considering caregivers in paediatric behavioural healthcare.Michelle Trang Pham, Eric A. Storch & Gabriel Lázaro-Muñoz - 2021 - Journal of Medical Ethics 47 (11):738-739.
    Harcourt argues that in clinical contexts, children and young people with mental health illness can experience epistemic, specifically testimonial, injustice when their perspectives are unjustifiably discounted by health service providers.1 Our goal in this commentary was to illustrate how caregivers, a critical component of CYP treatment triad, can also engage in testimonial injustice towards CYP patients. Testimonial injustice occurs when one suffers a credibility deficit and that credibility deficit is based on prejudice.2 Harcourt expands Fricker’s account of testimonial injustice by (...)
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  4.  25
    Trust in Neuroethics.Michelle Trang Pham & Gabriel Lázaro-Muñoz - 2022 - American Journal of Bioethics Neuroscience 13 (1):33-35.
    Dubljević et al. (2022) argue that neuroethics has a socio-political role that can “(1) serve to clarify and resolve conflicts, (2) orient the public with regards to the moral status of neurotechno...
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  5.  34
    Engagement, Exploitation, and Human Intracranial Electrophysiology Research.Michelle T. Pham, Nader Pouratian & Ashley Feinsinger - 2022 - Neuroethics 15 (3):1-15.
    Motivated by exploitation concerns, we argue for the importance of participant engagement in basic human intracranial electrophysiology research. This research takes advantage of unique neurosurgical opportunities to better understand complex systems of the human brain, but it also exposes participants to additional risks without immediate therapeutic intent. We argue that understanding participant values and incorporating their perspectives into the research process may help determine whether and to what extent research practices and the resulting distributions of risks and benefits constitute exploitation (...)
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  6.  25
    The Value of Heterogeneity in Practices to Promote Ethical Research.Ashley Feinsinger, Michelle Pham & Nader Pouratian - 2021 - American Journal of Bioethics Neuroscience 12 (1):80-82.
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  7.  18
    Asilomar Survey: Researcher Perspectives on Ethical Guidelines for BCI Research.Michelle Trang Pham, Sara Goering, Matthew Sample, Jane Huggins & Eran Klein - 2018 - Brain-Computer Interfaces 4 (5):97-111.
    Brain-computer Interface (BCI) research is rapidly expanding, and it engages domains of human experience that many find central to our current understanding of ourselves. Ethical principles or guidelines can provide researchers with tools to engage in ethical reflection and to address practical problems in research. Though researchers have called for clearer ethical principles or guidelines, there is little existing data on what form these should take. We developed a prospective set of ethical principles for BCI research with specific guidelines and (...)
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  8.  25
    Examining right to try practices.Leslie Jasmine Morgan & Michelle T. Pham - 2024 - Journal of Medical Ethics 50 (2):118-119.
    In ‘Discrimination Against the Dying’, Phillip Reed argues that terminally ill patients are subjected to a distinct form of discrimination called ‘terminalism’. One of Reed’s primary examples of terminalism is right to try laws, which offer terminally ill patients the option to request medications that are not FDA-approved and without IRB involvement. In this analysis, we consider additional contextual factors about right to try, suggesting that it may not neatly count as an exemplar of terminalism. When pursued with appropriate protocols (...)
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  9.  26
    Who’s Experience, Which Liability?Jennifer McCurdy & Michelle T. Pham - 2023 - American Journal of Bioethics 23 (1):41-43.
    Nelson et al. (2023) make a unique contribution, raising key questions and considerations about the value of lived experiences as they pertain to normative debates in bioethics. The authors grapple...
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  10.  3
    Medical Interpretation Services: Challenges for LEP Communities.Mariam Habhab & Michelle T. Pham - 2024 - American Journal of Bioethics 24 (11):72-74.
    Chipman, Meagher, and Barwise (2024) propose a public health ethics framework to assess current medical interpretation policies and provide guidelines for healthcare providers to meet their respons...
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  11. Neuroengineering and Ethics: Identifying Common Themes and Areas of Need Across Proposed Ethical Frameworks.Michelle Trang Pham, Matthew Sample, Ishan Dasgupta, Sara Goering & Eran Klein - forthcoming - In Nitish V. Thakor (ed.), Springer Handbook of Neuroengineering.
    Recent advancements in neuroengineering research have prompted neuroethicists to propose a variety of “ethical guidance” frameworks (e.g., principles, guidelines, framing questions, responsible research innovation frameworks, and ethical priorities) to inform this work. In this chapter, we offer a comparative analysis of five recently proposed ethical guidance frameworks (NIH neuroethics guiding principles, Nuffield Council on Bioethics, Global Neuroethics Summit Delegates, the Center for Neurotechnology’s neuroethical principles and guidelines, and the Neurotechnology Ethics Taskforce’s ethical priorities). We identify some common themes among these (...)
     
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  12.  31
    Review of Making Medical Knowledge. [REVIEW]Michelle Pham - 2017 - Philosophy of Science 84 (2):377-384.
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