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  1.  39
    Autonomy and Fear of Synthetic Biology: How Can Patients’ Autonomy Be Enhanced in the Field of Synthetic Biology? A Qualitative Study with Stable Patients.Milenko Rakic, Isabelle Wienand, David Shaw, Rebecca Nast & Bernice S. Elger - 2017 - Science and Engineering Ethics 23 (2):375-388.
    We analyzed stable patients’ views regarding synthetic biology in general, the medical application of synthetic biology, and their potential participation in trials of synthetic biology in particular. The aim of the study was to find out whether patients’ views and preferences change after receiving more detailed information about synthetic biology and its clinical applications. The qualitative study was carried out with a purposive sample of 36 stable patients, who suffered from diabetes or gout. Interviews were transcribed verbatim, translated and fully (...)
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    14 How Should One Die? Nietzsche’s Contribution to the Issue of Suicide in Medical Ethics.Isabelle Wienand, Milenko Rakic, Sophie Haesen & Bernice Elger - 2018 - In Emilian Mihailov, Tenzin Wangmo, Victoria Federiuc & Bernice S. Elger (eds.), Contemporary Debates in Bioethics: European Perspectives. [Berlin]: De Gruyter Open. pp. 160-168.
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  3.  43
    The Beneficence of Hope: Findings from a Qualitative Study with Gout and Diabetes Patients.Isabelle Wienand, Milenko Rakic, David Shaw & Bernice Elger - 2018 - Journal of Bioethical Inquiry 15 (2):211-218.
    This paper explores the importance of hope as a determining factor for patients to participate in first-in-human trials for synthetic biology therapies. This paper focuses on different aspects of hope in the context of human health and well-being and explores the varieties of hope expressed by patients. The research findings are based on interview data collected from stable gout and diabetes patients. Three concepts of hope have emerged from the interviews: hope as certainty ; hope as reflective uncertainty ; hope (...)
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