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  1.  33
    The ECOUTER methodology for stakeholder engagement in translational research.Madeleine J. Murtagh, Joel T. Minion, Andrew Turner, Rebecca C. Wilson, Mwenza Blell, Cynthia Ochieng, Barnaby Murtagh, Stephanie Roberts, Oliver W. Butters & Paul R. Burton - 2017 - BMC Medical Ethics 18 (1):24.
    Because no single person or group holds knowledge about all aspects of research, mechanisms are needed to support knowledge exchange and engagement. Expertise in the research setting necessarily includes scientific and methodological expertise, but also expertise gained through the experience of participating in research and/or being a recipient of research outcomes. Engagement is, by its nature, reciprocal and relational: the process of engaging research participants, patients, citizens and others brings them closer to the research but also brings the research closer (...)
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  2.  19
    Reproductive justice for the haunted Nordic welfare state: Race, racism, and queer bioethics in Finland.Tiia Sudenkaarne & Mwenza Blell - 2021 - Bioethics 36 (3):328-335.
    Bioethics, Volume 36, Issue 3, Page 328-335, March 2022.
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    Direct to consumer genetic testing.Mwenza Blell & M. A. Diamond-Hunter - 2019 - Frontiers in Medicine 6 (48).
    The growth in the direct-to-consumer genetic testing industry poses a number of challenges for healthcare practice, among a number of other areas of concern. Several companies providing this service send their customers reports including information variously referred to as genetic ethnicity, genetic heritage, biogeographic ancestry, and genetic ancestry. In this article, we argue that such information should not be used in healthcare consultations or to assess health risks. Far from representing a move toward personalized medicine, use of this information poses (...)
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  4.  36
    What does engagement mean to participants in longitudinal cohort studies? A qualitative study.Madeleine J. Murtagh, Mwenza Blell, Andrew Turner, Joel T. Minion & Cynthia A. Ochieng - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundEngagement is important within cohort studies for a number of reasons. It is argued that engaging participants within the studies they are involved in may promote their recruitment and retention within the studies. Participant input can also improve study designs, make them more acceptable for uptake by participants and aid in contextualising research communication to participants. Ultimately it is also argued that engagement needs to provide an avenue for participants to feedback to the cohort study and that this is an (...)
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