11 found
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  1.  3
    Taking a Step Back: The Ethical Significance of DTC Neurotechnology.Verina Wild, Niels Nijsingh & Tereza Hendl - 2019 - American Journal of Bioethics Neuroscience 10 (4):170-172.
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  2.  49
    The New Genetics and Informed Consent: Differentiating Choice to Preserve Autonomy.Eline M. Bunnik, Antina Jong, Niels Nijsingh & Guido M. W. R. Wert - 2013 - Bioethics 27 (6):348-355.
    The advent of new genetic and genomic technologies may cause friction with the principle of respect for autonomy and demands a rethinking of traditional interpretations of the concept of informed consent. Technologies such as whole-genome sequencing and micro-array based analysis enable genome-wide testing for many heterogeneous abnormalities and predispositions simultaneously. This may challenge the feasibility of providing adequate pre-test information and achieving autonomous decision-making. At a symposium held at the 11th World Congress of Bioethics in June 2012 (Rotterdam), organized by (...)
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  3.  9
    Consent to Epistemic Interventions: A Contribution to the Debate on the Right (Not) to Know.Niels Nijsingh - 2016 - Medicine, Health Care and Philosophy 19 (1):103-110.
    The debate on the ‘right to know’ has simmered on for over 30 years. New examples where a right to be informed is contrasted to a right to be kept in ignorance occasionally surface and spark disagreement on the extent to which patients and research subjects have a right to be self-determining concerning the health related information they receive. Up until now, however, this debate has been unsatisfactory with regard to the question what type of rights—if any—are in play here (...)
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  4. Informed Consent and the Expansion of Newborn Screening.Niels Nijsingh - 2007 - In Angus Dawson & Marcel Verweij (eds.), Ethics, Prevention, and Public Health. Clarendon Press.
     
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  5.  2
    Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?Niels Nijsingh, Bianca Jansky, Georg Marckmann & Katja Kuehlmeyer - 2020 - American Journal of Bioethics 20 (4):89-91.
    Volume 20, Issue 4, May 2020, Page 89-91.
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  6.  79
    Krabbe Newborn Screening: The Issue of Informed Consent.Niels Nijsingh - 2013 - Public Health Ethics 6 (1):126-128.
    In their article, Dees and Kwon (2013) describe the case of newborn screening for Krabbe disease and argue compellingly that a mandatory newborn screening program for this disease is problematic in several respects. Therefore, they submit, testing on Krabbe disease should only be offered on a voluntary basis, under a research protocol. In my opinion, Dees and Kwon are correct to point out the problematic character of a mandatory screening program for Krabbe disease. Their move toward a research paradigm is (...)
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  7.  11
    Health‐Related Research Ethics and Social Value: Antibiotic Resistance Intervention Research and Pragmatic Risks.Christian Munthe, Niels Nijsingh, Karl Fine Licht & D. G. Joakim Larsson - 2019 - Bioethics 33 (3):335-342.
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  8.  5
    The Ethics of Antibiotic Resistance: Towards an Agenda for Feasible and Justified Global Health Policy.Christian Munthe, Niels Nijsingh, Karl de Fine Licht & D. G. Joakim Larsson - 2019 - Bioethics 33 (7):731-733.
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  9.  3
    Cutting Red Tape to Manage Public Health Threats: An Ethical Dilemma of Expediting Antibiotic Drug Innovation.Christian Munthe & Niels Nijsingh - 2019 - Bioethics 33 (7):785-791.
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  10.  5
    Disputing with Patients in Person-Centered Care.Christian Munthe, Leila El-Alti, Thomas Hartvigsson & Niels Nijsingh - 2018 - Journal of Argumentation in Context 7 (2):231-244.
    This article explores ethical aspects of using open argumentation in person-centered care, where health professionals openly criticize or contradict factual claims, assumptions, preferences, or value commitments of patients. We argue that suchdisputingmay be claimed to have an important place in advanced versions of PCC, but that it actualizes important clinical ethical aspects of doing such disputation well. This may prompt caution in the implementation of PCC, but also inspire educational and organizational reform. We also probe the notion of openly disputing (...)
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  11.  7
    Blurring Boundaries.Niels Nijsingh - 2012 - American Journal of Bioethics 12 (10):26-27.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 26-27, October 2012.
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