16 found
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  1.  4
    Cutting Red Tape to Manage Public Health Threats: An Ethical Dilemma of Expediting Antibiotic Drug Innovation.Christian Munthe & Niels Nijsingh - 2019 - Bioethics 33 (7):785-791.
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  2.  6
    Digital Contact Tracing and Exposure Notification: Ethical Guidance for Trustworthy Pandemic Management.Robert Ranisch, Niels Nijsingh, Angela Ballantyne, Anne van Bergen, Alena Buyx, Orsolya Friedrich, Tereza Hendl, Georg Marckmann, Christian Munthe & Verina Wild - forthcoming - Ethics and Information Technology.
    There is growing interest in contact tracing apps for pandemic management. It is crucial to consider ethical requirements before, while, and after implementing such apps. In this paper, we illustrate the complexity and multiplicity of the ethical considerations by presenting an ethical framework for a responsible design and implementation of CT apps. Using this framework as a starting point, we briefly highlight the interconnection of social and political contexts, available measures of pandemic management, and a multi-layer assessment of CT apps. (...)
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  3.  53
    The New Genetics and Informed Consent: Differentiating Choice to Preserve Autonomy.Eline M. Bunnik, Antina Jong, Niels Nijsingh & Guido M. W. R. Wert - 2013 - Bioethics 27 (6):348-355.
    The advent of new genetic and genomic technologies may cause friction with the principle of respect for autonomy and demands a rethinking of traditional interpretations of the concept of informed consent. Technologies such as whole-genome sequencing and micro-array based analysis enable genome-wide testing for many heterogeneous abnormalities and predispositions simultaneously. This may challenge the feasibility of providing adequate pre-test information and achieving autonomous decision-making. At a symposium held at the 11th World Congress of Bioethics in June 2012 (Rotterdam), organized by (...)
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  4.  11
    Consent to Epistemic Interventions: A Contribution to the Debate on the Right (Not) to Know.Niels Nijsingh - 2016 - Medicine, Health Care and Philosophy 19 (1):103-110.
    The debate on the ‘right to know’ has simmered on for over 30 years. New examples where a right to be informed is contrasted to a right to be kept in ignorance occasionally surface and spark disagreement on the extent to which patients and research subjects have a right to be self-determining concerning the health related information they receive. Up until now, however, this debate has been unsatisfactory with regard to the question what type of rights—if any—are in play here (...)
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  5.  5
    Applying a Precautionary Approach to Mobile Contact Tracing for COVID-19: The Value of Reversibility.Niels Nijsingh, Anne van Bergen & Verina Wild - 2020 - Journal of Bioethical Inquiry 17 (4):823-827.
    The COVID-19 pandemic presents unprecedented challenges to public health decision-making. Specifically, the lack of evidence and the urgency with which a response is called for, raise the ethical challenge of assessing how much evidence is required for the justification of interventions in response to the various threats we face. Here we discuss the intervention of introducing technology that aims to trace and alert contacts of infected persons—contact tracing technology. Determining whether such an intervention is proportional is complicated by complex trade-offs (...)
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  6.  9
    The Ethics of Antibiotic Resistance: Towards an Agenda for Feasible and Justified Global Health Policy.Christian Munthe, Niels Nijsingh, Karl de Fine Licht & D. G. Joakim Larsson - 2019 - Bioethics 33 (7):731-733.
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  7.  8
    Taking a Step Back: The Ethical Significance of DTC Neurotechnology.Verina Wild, Niels Nijsingh & Tereza Hendl - 2019 - American Journal of Bioethics Neuroscience 10 (4):170-172.
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  8.  2
    Screening for Multi-Drug-Resistant Gram-Negative Bacteria: What is Effective and Justifiable?Christina Åhrén, Anna Lindblom, Christian Munthe & Niels Nijsingh - 2020 - Monash Bioethics Review 38 (Suppl 1):72-90.
    Effectiveness is a key criterion in assessing the justification of antibiotic resistance interventions. Depending on an intervention’s effectiveness, burdens and costs will be more or less justified, which is especially important for large scale population-level interventions with high running costs and pronounced risks to individuals in terms of wellbeing, integrity and autonomy. In this paper, we assess the case of routine hospital screening for multi-drug-resistant Gram-negative bacteria from this perspective. Utilizing a comparison to screening programs for Methicillin-Resistant Staphylococcus aureus we (...)
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  9. Informed Consent and the Expansion of Newborn Screening.Niels Nijsingh - 2007 - In Angus Dawson & Marcel Verweij (eds.), Ethics, Prevention, and Public Health. Clarendon Press.
     
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  10. The New Genetics and Informed Consent: Differentiating Choice to Preserve Autonomy.Eline M. Bunnik, Antina de Jong, Niels Nijsingh & Guido M. W. R. de Wert - 2013 - Bioethics 27 (6):348-355.
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  11.  6
    Disputing with Patients in Person-Centered Care.Christian Munthe, Leila El-Alti, Thomas Hartvigsson & Niels Nijsingh - 2018 - Journal of Argumentation in Context 7 (2):231-244.
    This article explores ethical aspects of using open argumentation in person-centered care, where health professionals openly criticize or contradict factual claims, assumptions, preferences, or value commitments of patients. We argue that such disputing may be claimed to have an important place in advanced versions of PCC, but that it actualizes important clinical ethical aspects of doing such disputation well. This may prompt caution in the implementation of PCC, but also inspire educational and organizational reform. We also probe the notion of (...)
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  12.  14
    Health‐Related Research Ethics and Social Value: Antibiotic Resistance Intervention Research and Pragmatic Risks.Christian Munthe, Niels Nijsingh, Karl Fine Licht & D. G. Joakim Larsson - 2019 - Bioethics 33 (3):335-342.
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  13.  7
    Blurring Boundaries.Niels Nijsingh - 2012 - American Journal of Bioethics 12 (10):26-27.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 26-27, October 2012.
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  14.  2
    Correction To: Applying a Precautionary Approach to Mobile Contact Tracing for COVID-19: The Value of Reversibility.Niels Nijsingh, Anne van Bergen & Verina Wild - forthcoming - Journal of Bioethical Inquiry:1-1.
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  15.  85
    Krabbe Newborn Screening: The Issue of Informed Consent.Niels Nijsingh - 2013 - Public Health Ethics 6 (1):126-128.
    In their article, Dees and Kwon (2013) describe the case of newborn screening for Krabbe disease and argue compellingly that a mandatory newborn screening program for this disease is problematic in several respects. Therefore, they submit, testing on Krabbe disease should only be offered on a voluntary basis, under a research protocol. In my opinion, Dees and Kwon are correct to point out the problematic character of a mandatory screening program for Krabbe disease. Their move toward a research paradigm is (...)
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  16.  3
    Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?Niels Nijsingh, Bianca Jansky, Georg Marckmann & Katja Kuehlmeyer - 2020 - American Journal of Bioethics 20 (4):89-91.
    Volume 20, Issue 4, May 2020, Page 89-91.
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