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  1.  4
    It’s a Shame! Stigma Against Fetal Alcohol Spectrum Disorder: Examining the Ethical Implications for Public Health Practices and Policies.Bell Emily, Andrew Gail, Di Pietro Nina, E. Chudley Albert, N. Reynolds James & Racine Eric - 2016 - Public Health Ethics 9 (1):65-77.
    Stigma can influence the prevention and identification of fetal alcohol spectrum disorder, a leading cause of developmental delay in North America. Understanding the effects of public health practices and policies on stigma is imperative. We reviewed social science and biomedical literatures to understand the nature of stigma in FASD and its relevance from an ethics standpoint in matters of health practices and policies. We propose a descriptive model of stigma in FASD and note current knowledge gaps; discuss the ethical implications (...)
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  2.  2
    Closing Gaps: Strength-Based Approaches to Research with Aboriginal Children with Neurodevelopmental Disorders.Nina Di Pietro & Judy Illes - 2016 - Neuroethics 9 (3):243-252.
    There is substantial literature on fetal alcohol spectrum disorder research involving Aboriginal children, but little related literature on other common neurodevelopmental conditions such as autism spectrum disorder or cerebral palsy for this population. As part of our work in cross-cultural neuroethics, we examined this phenomenon as a case study in Canada. We conducted semi-structured interviews with health researchers working on the frontline with First Nation communities to obtain perspectives about: reasons for the lack of ASD and CP research within the (...)
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  3.  17
    Treatments and Services for Neurodevelopmental Disorders on Advocacy Websites: Information or Evaluation? [REVIEW]Nina di Pietro, Louise Whiteley & Judy Illes - 2012 - Neuroethics 5 (2):197-209.
    The Internet has quickly gained popularity as a major source of health-related information, but its impact is unclear. Here, we investigate the extent to which advocacy websites for three neurodevelopmental disorders—cerebral palsy (CP), autism spectrum disorder (ASD) and fetal alcohol spectrum disorder (FASD)—inform stakeholders about treatment options, and discuss the ethical challenges inherent in providing such information online. We identified major advocacy websites for each disorder and assessed website accountability, the number, attributes, and accessibility of treatments described, and the valence (...)
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