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Pamela Sankar [13]Pamela L. Sankar [2]
  1.  40
    Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research.Sara Chandros Hull, Richard Sharp, Jeffrey Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian Clarridge & Benjamin Wilfond - 2008 - American Journal of Bioethics 8 (10):62-70.
    It is unclear whether the regulatory distinction between non-identifiable and identifiable information—information used to determine informed consent practices for the use of clinically derived samples for genetic research—is meaningful to patients. The objective of this study was to examine patients' attitudes and preferences regarding use of anonymous and identifiable clinical samples for genetic research. Telephone interviews were conducted with 1,193 patients recruited from general medicine, thoracic surgery, or medical oncology clinics at five United States academic medical centers. Wanting to know (...)
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  2.  51
    Engineering Values Into Genetic Engineering: A Proposed Analytic Framework for Scientific Social Responsibility.Pamela L. Sankar & Mildred K. Cho - 2015 - American Journal of Bioethics 15 (12):18-24.
    Recent experiments have been used to “edit” genomes of various plant, animal and other species, including humans, with unprecedented precision. Furthermore, editing the Cas9 endonuclease gene with a gene encoding the desired guide RNA into an organism, adjacent to an altered gene, could create a “gene drive” that could spread a trait through an entire population of organisms. These experiments represent advances along a spectrum of technological abilities that genetic engineers have been working on since the advent of recombinant DNA (...)
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  3.  17
    Factors Affecting Willingness to Share Electronic Health Data Among California Consumers.Katherine K. Kim, Pamela Sankar, Machelle D. Wilson & Sarah C. Haynes - 2017 - BMC Medical Ethics 18 (1):25.
    Robust technology infrastructure is needed to enable learning health care systems to improve quality, access, and cost. Such infrastructure relies on the trust and confidence of individuals to share their health data for healthcare and research. Few studies have addressed consumers’ views on electronic data sharing and fewer still have explored the dual purposes of healthcare and research together. The objective of the study is to explore factors that affect consumers’ willingness to share electronic health information for healthcare and research. (...)
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  4. Conducting Empirical Research on Informed Consent: Challenges and Questions.Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson & Anita Weiss - 2003 - IRB: Ethics & Human Research 25 (5):S4.
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  5.  13
    Mandating Moral Reflection?Jessica Mozersky & Pamela Sankar - 2017 - American Journal of Bioethics 17 (1):32-34.
  6. Open Label Extension Studies & the Ethical Design of Clinical Trials.David Casarett, Jason Karlawish, Pamela Sankar, Karen B. Hirschman & David A. Asch - 2001 - IRB: Ethics & Human Research 23 (4):1.
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  7.  9
    Reporting Race and Ethnicity in Genetics Research: Do Journal Recommendations or Resources Matter?Pamela Sankar, Mildred K. Cho, Keri Monahan & Kamila Nowak - 2015 - Science and Engineering Ethics 21 (5):1353-1366.
    Appeals to scrutinize the use of race and ethnicity as variables in genetics research notwithstanding, these variables continue to be inadequately explained and inconsistently used in research publications. In previous research, we found that published genetic research fails to follow suggestions offered for addressing this problem, such as explaining the basis on which these labels are assigned to populations. This study, an analysis of genetic research articles using race or ethnicity terms, explores possible features of journals that are associated with (...)
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  8. Semi-Structured Interviews in Bioethics Research.Pamela Sankar & Nora L. Jones - 2007 - Advances in Bioethics 11:117-136.
     
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  9.  12
    Bringing Down Barriers. [REVIEW]Pamela Sankar - 1997 - Hastings Center Report 27 (2):44.
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  10.  2
    “What Is the FDA Going to Think?”: Negotiating Values Through Reflective and Strategic Category Work in Microbiome Science.Pamela L. Sankar, Mildred K. Cho, Angie M. Boyce & Katherine W. Darling - 2015 - Science, Technology, and Human Values 40 (1):71-95.
    The US National Institute of Health’s Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a series of interdisciplinary workshops conducted with microbiome researchers, we argue that negotiations of epistemic, social, and institutional values were inextricable (...)
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  11.  9
    Hospital Consent for Disclosure of Medical Records.Jon F. Merz, Pamela Sankar & Simon S. Yoo - 1998 - Journal of Law, Medicine and Ethics 26 (3):241-248.
    Physicians and other health care providers owe ethical and legal duties to patients to maintain the secrecy of the information learned during the course of patient care. This obligation is fulfilled by limiting access to such information to only those involved in the patient's care-that is, to those within the “circle of confidentiality.” As a general rule, providers may only disclose to others with the written prior consent of the patient. Exceptions may be “ethically and legally justified because of overriding (...)
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  12.  8
    Pilot Study: Does the White Coat Influence Research Participation?Jon F. Merz, Timothy R. Rebbeck, Pamela Sankar & Emma A. Meagher - 2002 - IRB: Ethics & Human Research 24 (4):6.
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  13.  7
    Hospital Consent for Disclosure of Medical Records.Jon F. Merz, Pamela Sankar & Simon S. Yoo - 1998 - Journal of Law, Medicine and Ethics 26 (3):241-248.
    Physicians and other health care providers owe ethical and legal duties to patients to maintain the secrecy of the information learned during the course of patient care. This obligation is fulfilled by limiting access to such information to only those involved in the patient's care-that is, to those within the “circle of confidentiality.” As a general rule, providers may only disclose to others with the written prior consent of the patient. Exceptions may be “ethically and legally justified because of overriding (...)
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  14.  7
    Genetics Research and Race: Whither Bioethics?Pamela Sankar - 2009 - In Vardit Ravitsky, Autumn Fiester & Arthur L. Caplan (eds.), The Penn Center Guide to Bioethics. Springer Publishing Company. pp. 391.
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  15.  21
    Public Mistrust: The Unrecognized Risk of the CDC Smallpox Vaccination Program.Pamela Sankar, Cynthia Schairer & Susan Coffin - 2003 - American Journal of Bioethics 3 (4):22 – 25.
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