25 found
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  1.  29
    The Birth of the Empirical Turn in Bioethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2005 - Bioethics 19 (1):49–71.
  2.  78
    'Nobody Tosses a Dwarf!' The Relation Between the Empirical and the Normative Reexamined.Carlo Leget, Pascal Borry & Raymond de Vries - 2009 - Bioethics 23 (4):226-235.
    This article discusses the relation between empirical and normative approaches in bioethics. The issue of dwarf tossing, while admittedly unusual, is chosen as a point of departure because it challenges the reader to look with fresh eyes upon several central bioethical themes, including human dignity, autonomy, and the protection of vulnerable people. After an overview of current approaches to the integration of empirical and normative ethics, we consider five ways that the empirical and normative can be brought together to speak (...)
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  3.  23
    What is the Role of Empirical Research in Bioethical Reflection and Decision-Making? An Ethical Analysis.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2004 - Medicine, Health Care and Philosophy 7 (1):41-53.
    The field of bioethics is increasingly coming into contact with empirical research findings. In this article, we ask what role empirical research can play in the process of ethical clarification and decision-making. Ethical reflection almost always proceeds in three steps: the description of the moral question,the assessment of the moral question and the evaluation of the decision-making. Empirical research can contribute to each step of this process. In the description of the moral object, first of all, empirical research has a (...)
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  4. On the Epistemic Status of Prenatal Ultrasound: Are Ultrasound Scans Photographic Pictures?Maddalena Favaretto, Danya F. Vears & Pascal Borry - 2020 - Journal of Medicine and Philosophy 45 (2):231-250.
    Medical imaging is predominantly a visual field. In this context, prenatal ultrasound images assume intense social, ethical, and psychological significance by virtue of the subject they represent: the fetus. This feature, along with the sophistication introduced by three-dimensional ultrasound imaging that allows improved visualization of the fetus, has contributed to the common impression that prenatal ultrasound scans are like photographs of the fetus. In this article we discuss the consistency of such a comparison. First, we investigate the epistemic role of (...)
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  5.  13
    “You Hoped We Would Sleep Walk Into Accepting the Collection of Our Data”: Controversies Surrounding the UK Care.Data Scheme and Their Wider Relevance for Biomedical Research.Sigrid Sterckx, Vojin Rakic, Julian Cockbain & Pascal Borry - 2016 - Medicine, Health Care and Philosophy 19 (2):177-190.
    An ‘Information Centre’ has recently been established by law which has the power to collect, collate and provide access to the medical information forall patients treated by the National Health Service in England, whether in hospitals or by General Practitioners. This so-called ‘care.data’ scheme has given rise to major and ongoing controversies. We will sketch the background of the scheme and look at the responses it has elicited from citizens and medical professionals. In Autumn 2013, NHS England set up a (...)
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  6.  15
    Empirical Ethics: A Challenge to Bioethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2004 - Medicine, Health Care and Philosophy 7 (1):1-3.
    The field of bioethics is increasingly coming into contact with empirical research findings. In this article, we ask what role empirical research can play in the process of ethical clarification and decision-making. Ethical reflection almost always proceeds in three steps: the description of the moral question,the assessment of the moral question and the evaluation of the decision-making. Empirical research can contribute to each step of this process. In the description of the moral object, first of all, empirical research has a (...)
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  7.  35
    Evidence‐Based Medicine and its Role in Ethical Decision‐Making.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2006 - Journal of Evaluation in Clinical Practice 12 (3):306-311.
  8.  22
    Donation After Uncontrolled Cardiac Death (uDCD): A Review of the Debate From a European Perspective. [REVIEW]Pascal Borry, Walter Van Reusel, Leo Roels & Paul Schotsmans - 2008 - Journal of Law, Medicine and Ethics 36 (4):752-759.
    Presumed consent alone will not solve the organ shortage, but it will create an ethical and legal context that supports organ donation, respects individuals who object to organ donation, relieves families from the burden of decision making, and can save lives.
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  9.  18
    Author, Contributor or Just a Signer? A Quantitative Analysis of Authorship Trends in the Field of Bioethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2006 - Bioethics 20 (4):213–220.
  10.  18
    Nonpropositional Content in Direct-to-Consumer Genetic Testing Advertisements.Pascal Borry, Mahsa Shabani & Heidi Carmen Howard - 2013 - American Journal of Bioethics 13 (5):14-16.
  11.  6
    Donation After Uncontrolled Cardiac Death : A Review of the Debate From a European Perspective. [REVIEW]Pascal Borry, Walter Van Reusel, Leo Roels & Paul Schotsmans - 2008 - Journal of Law, Medicine and Ethics 36 (4):752-759.
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  12.  26
    Is There a Right Time to Know?: The Right Not to Know and Genetic Testing in Children.Pascal Borry, Mahsa Shabani & Heidi Carmen Howard - 2014 - Journal of Law, Medicine and Ethics 42 (1):19-27.
    The increasing implementation of next-generation sequencing technologies in the clinical context and the expanding commercial offer of genetic tests directly-toconsumers has increased the availability of previously inaccessible genetic information. A particular concern in both situations is how the volume of novel information will affect the processing of genetic and genomic information from minors. For minors, it is argued that in the provision of genetic testing, their “right not to know” should be respected as much as possible. Testing a minor early (...)
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  13.  15
    Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.Vida Jeremic, Karine Sénécal, Pascal Borry, Davit Chokoshvili & Danya F. Vears - 2016 - Journal of Bioethical Inquiry 13 (4):525-534.
    Participation in healthcare decision-making is considered to be an important right of minors, and is highlighted in both international legislation and public policies. However, despite the legal recognition of children’s rights to participation, and also the benefits that children experience by their involvement, there is evidence that legislation is not always translated into healthcare practice. There are a number of factors that may impact on the ability of the child to be involved in decisions regarding their medical care. Some of (...)
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  14.  7
    Is There a Right Time to Know?: The Right Not to Know and Genetic Testing in Children.Pascal Borry, Mahsa Shabani & Heidi Carmen Howard - 2014 - Journal of Law, Medicine and Ethics 42 (1):19-27.
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  15.  9
    Challenges of Web-Based Personal Genomic Data Sharing.Pascal Borry & Mahsa Shabani - 2015 - Life Sciences, Society and Policy 11 (1):1-13.
    In order to study the relationship between genes and diseases, the increasing availability and sharing of phenotypic and genotypic data have been promoted as an imperative within the scientific community. In parallel with data sharing practices by clinicians and researchers, recent initiatives have been observed in which individuals are sharing personal genomic data. The involvement of individuals in such initiatives is facilitated by the increased accessibility of personal genomic data, offered by private test providers along with availability of online networks. (...)
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  16.  15
    Personal Genome Testing: Do You Know What You Are Buying?Heidi Howard & Pascal Borry - 2009 - American Journal of Bioethics 9 (6-7):11-13.
  17. The Origin and Emergence of Empirical Ethics.Pascal Borry, Paul Schotsmans & Dierickx & Kris - 2008 - In Guy Widdershoven, John McMillan, Tony Hope & Lieke van der Scheer (eds.), Empirical Ethics in Psychiatry. Oxford University Press.
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  18.  5
    The Landscape of the “Spirit of Sport”: A Systematic Review.Mojisola Obasa & Pascal Borry - 2019 - Journal of Bioethical Inquiry 16 (3):443-453.
    The World Anti-Doping Agency sets out a detailed description of what its own conception of the “spirit of sport” as employed in the World Anti-Doping Code entails. However, controversies as to the significance and meaning to be ascribed to the term abound in the literature. In order to unravel the core of the debates and to move discussions forward, the authors aimed at reviewing understandings of the spirit of sport in the conceptual literature. The main databases were searched using relevant (...)
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  19.  25
    Dtc Genetic Services: A Look Across the Pond.Pascal Borry & Heidi Howard - 2008 - American Journal of Bioethics 8 (6):14 – 16.
  20.  65
    Moss, Lenny. What Genes Can't Do.Pascal Borry - 2004 - Theoretical Medicine and Bioethics 25 (1):75-77.
  21.  6
    Bookreviews.P. C. Beentjes, Hans Lammers, R. Bieringer, Martin Parmentier, Bart J. Koet, C. T. M. van Vliet, Rob Faesen, Arie L. Molendijk, Walter Van Herck & Pascal Borry - 2005 - Bijdragen 66 (4):458-471.
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  22.  17
    The Origin and Emergence of Empirical Ethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2008 - In Guy Widdershoven (ed.), Empirical Ethics in Psychiatry. Oxford University Press. pp. 37--50.
  23.  6
    Pre- and Post-Testing Counseling Considerations for the Provision of Expanded Carrier Screening: Exploration of European Geneticists’ Views.Sandra Janssens, Davit Chokoshvili, Danya F. Vears, Anne De Paepe & Pascal Borry - 2017 - BMC Medical Ethics 18 (1):46.
    BackgroundCarrier screening is generally performed with the aim of identifying healthy couples at risk of having a child affected with a monogenic disorder to provide them with reproductive options. Expanded carrier screening, which provides the opportunity for multiple conditions to be screened in one test, offers a more cost-effective and comprehensive option than screening for single disorders. However, implementation of ECS at a population level would have implications for genetic counseling practice.MethodsWe conducted semi-structured interviews with sixteen European clinical and molecular (...)
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  24.  13
    Empirical Ethics.Carlo Leget & Pascal Borry - 2010 - Ethical Perspectives 17 (2):231-252.
    The actual rise of empirical contributions in bioethics questions – at a fundamental level – the place bioethics will reserve for empirical approaches in its field. This article aims to discuss the relationship between empirical research and normative evaluations and to apply this to the use of the concept of dignity in end-of-life research.It describes five possible ways in which empirical research can be related to normative ethics: prescriptive applied ethics, theorist ethics, critical applied ethics, particularist ethics and integrated empirical (...)
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  25.  2
    Informed Consent in Children and Young People: An Introduction.Pascal Borry, Louise Stultiëns, Herman Nys & Kris Dierickx - unknown
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