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  1.  11
    Pathogenic Variants in the Healthy Elderly: Unique Ethical and Practical Challenges.Paul Lacaze, Joanne Ryan, Robyn Woods, Ingrid Winship & John McNeil - 2017 - Journal of Medical Ethics 43 (10):714-722.
    Genetic research into ageing, longevity and late-onset disease is becoming increasingly common. Yet, there is a paucity of knowledge related to clinical actionability and the return of pathogenic variants to otherwise healthy elderly individuals. Whether or not genetic research in the elderly should be managed differently from standard practices adapted for younger populations has not yet been defined. In this article, we provide an overview of ethical and practical challenges in preparing for a genetic study of over 14 000 healthy (...)
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    The Dangers of Direct-to-Consumer Genetic Testing for Alzheimer’s Disease: Comment on “Personal Genomic Testing, Genetic Inheritance, and Uncertainty”.Paul Lacaze, Jane Tiller & Joanne Ryan - 2017 - Journal of Bioethical Inquiry 14 (4):585-587.
    The overarching issue with this case study is poor regulation and quality control over direct-to-consumer genetic testing, delivered in the absence of any medical oversight.
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    Study Protocol: The Australian Genetics and Life Insurance Moratorium—Monitoring the Effectiveness and Response (A-GLIMMER) Project.Paul Lacaze, Louise Keogh, Margaret Otlowski, Ingrid Winship, Kristine Barlow-Stewart, Martin Delatycki, Penny Gleeson, Tiffany Boughtwood, Andrea Belcher, Aideen McInerney-Leo & Jane Tiller - 2021 - BMC Medical Ethics 22 (1):1-14.
    BackgroundThe use of genetic test results in risk-rated insurance is a significant concern internationally, with many countries banning or restricting the use of genetic test results in underwriting. In Australia, life insurers’ use of genetic test results is legal and self-regulated by the insurance industry ). In 2018, an Australian Parliamentary Inquiry recommended that insurers’ use of genetic test results in underwriting should be prohibited. In 2019, the FSC introduced an industry self-regulated moratorium on the use of genetic test results. (...)
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