13 found
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  1.  9
    Solidarity and Community Engagement in Global Health Research.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (5):43-56.
    Community engagement is gaining prominence in global health research. A number of ethical goals–spanning the instrumental, intrinsic, and transformative–have been ascribed to CE in global heal...
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  2.  55
    Exploitation and Community Engagement: Can Community Advisory Boards Successfully Assume a Role Minimising Exploitation in International Research?Bridget Pratt, Khin Maung Lwin, Deborah Zion, Francois Nosten, Bebe Loff & Phaik Yeong Cheah - 2015 - Developing World Bioethics 15 (1):18-26.
    It has been suggested that community advisory boards can play a role in minimising exploitation in international research. To get a better idea of what this requires and whether it might be achievable, the paper first describes core elements that we suggest must be in place for a CAB to reduce the potential for exploitation. The paper then examines a CAB established by the Shoklo Malaria Research Unit under conditions common in resource-poor settings – namely, where individuals join with a (...)
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  3.  12
    Motivations and Perceptions of Community Advisory Boards in the Ethics of Medical Research: The Case of the Thai-Myanmar Border.Michael Parker, Francois Nosten, Nicholas P. J. Day, Nicholas J. White, Phaik Kin Cheah, Phaik Yeong Cheah & Khin Maung Lwin - 2014 - BMC Medical Ethics 15 (1).
    BackgroundCommunity engagement is increasingly promoted as a marker of good, ethical practice in the context of international collaborative research in low-income countries. There is, however, no widely agreed definition of community engagement or of approaches adopted. Justifications given for its use also vary. Community engagement is, for example, variously seen to be of value in: the development of more effective and appropriate consent processes; improved understanding of the aims and forms of research; higher recruitment rates; the identification of important ethical (...)
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  4.  52
    Closing the Translation Gap for Justice Requirements in International Research.Bridget Pratt, Deborah Zion, Khin Maung Lwin, Phaik Yeong Cheah, Francois Nosten & Bebe Loff - 2012 - Journal of Medical Ethics 38 (9):552-558.
    Bioethicists have long debated the content of sponsors and researchers' obligations of justice in international clinical research. However, there has been little empirical investigation as to whether and how obligations of responsiveness, ancillary care, post-trial benefits and research capacity strengthening are upheld in low- and middle-income country settings. In this paper, the authors argue that research ethics guidelines need to be more informed by international research practice. Practical guidance on how to fulfil these obligations is needed if research groups and (...)
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  5. Exploitation and Community Engagement: Can Community Advisory Boards Successfully Assume a Role Minimising Exploitation in International Research?Bridget Pratt, Khin Maung Lwin, Deborah Zion, Francois Nosten, Beatrice Loff & Phaik Yeong Cheah - unknown
     
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  6.  13
    Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda.Phaik Yeong Cheah, Nicholas P. J. Day, Michael Parker & Susan Bull - 2017 - Asian Bioethics Review 9 (4):393-400.
    Since January 2016, the Mahidol Oxford Tropical Medicine Research Unit has trialled a data-sharing policy where requests to access research datasets are processed through a Data Access Committee. In this paper, we share our experiences establishing data management systems and data-sharing infrastructure including a data-sharing policy, data access committee and related procedures. We identified a number of practical and ethical challenges including requests for datasets collected without specific or broad consent to data sharing and requests from pharmaceutical companies for data (...)
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  7.  17
    Art and Theatre for Health in Rural Cambodia.Chea Nguon, Lek Dysoley, Chan Davoeung, Yok Sovann, Nou Sanann, Ma Sareth, Pich Kunthea, San Vuth, Kem Sovann, Kayna Kol, Chhouen Heng, Rouen Sary, Thomas J. Peto, Rupam Tripura, Renly Lim & Phaik Yeong Cheah - 2018 - Global Bioethics 29 (1):16-21.
    ABSTRACTThis article describes our experience using art and theatre to engage rural communities in western Cambodia to understand malaria and support malaria control and elimination. The project was a pilot science–arts initiative to supplement existing engagement activities conducted by local authorities. In 2016, the project was conducted in 20 villages, involved 300 community members and was attended by more than 8000 people. Key health messages were to use insecticide-treated bed-nets and repellents, febrile people should attend village malaria workers, and to (...)
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  8.  15
    Challenges Arising When Seeking Broad Consent for Health Research Data Sharing: A Qualitative Study of Perspectives in Thailand.Phaik Yeong Cheah, Nattapat Jatupornpimol, Borimas Hanboonkunupakarn, Napat Khirikoekkong, Podjanee Jittamala, Sasithon Pukrittayakamee, Nicholas P. J. Day, Michael Parker & Susan Bull - 2018 - BMC Medical Ethics 19 (1):86.
    Research funders, regulatory agencies, and journals are increasingly expecting that individual-level data from health research will be shared. Broad consent to such sharing is considered appropriate, feasible and acceptable in low- and middle-income settings, but to date limited empirical research has been conducted to inform the design of such processes. We examined stakeholder perspectives about how best to seek broad consent to sharing data from the Mahidol Oxford Tropical Medicine Research Unit, which implemented a data sharing policy and broad consent (...)
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  9.  2
    Data Access Committees.Jan Piasecki & Phaik Yeong Cheah - 2020 - BMC Medical Ethics 21 (1):1-8.
    BackgroundSharing de-identified individual-level health research data is widely promoted and has many potential benefits. However there are also some potential harms, such as misuse of data and breach of participant confidentiality. One way to promote the benefits of sharing while ameliorating its potential harms is through the adoption of a managed access approach where data requests are channeled through a Data Access Committee, rather than making data openly available without restrictions. A DAC, whether a formal or informal group of individuals, (...)
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  10.  4
    Community Engagement and Ethical Global Health Research.Bipin Adhikari, Christopher Pell & Phaik Yeong Cheah - 2020 - Global Bioethics 31 (1):1-12.
    Community engagement is increasingly recognized as a critical element of medical research, recommended by ethicists, required by research funders and advocated in ethics guidelines. The benefits of community engagement are often stressed in instrumental terms, particularly with regard to promoting recruitment and retention in studies. Less emphasis has been placed on the value of community engagement with regard to ethical good practice, with goals often implied rather than clearly articulated. This article outlines explicitly how community engagement can contribute to ethical (...)
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  11.  21
    Are Children Always Vulnerable Research Participants?Phaik Yeong Cheah & Michael Parker - 2015 - Asian Bioethics Review 7 (2):151-163.
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  12.  24
    The Ethics of Using Placebo in Randomised Controlled Trials: A Case Study of a Plasmodium Vivax Antirelapse Trial.Phaik Yeong Cheah, Norbert Steinkamp, Lorenz von Seidlein & Ric N. Price - 2018 - BMC Medical Ethics 19 (1):19.
    The use of placebos in randomised controlled trials is a subject of considerable ethical debate. In this paper we present a set of considerations to evaluate the ethics of placebo controlled trials that includes: social value of the study; need for a randomised controlled trial and placebo; standards of care; risks of harm due to administration of placebo and the harm benefit balance; clinical equipoise; and double standards. We illustrate the application of these considerations using a case study of a (...)
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  13.  2
    Response to Open Peer Commentaries on “Solidarity and Community Engagement in Global Health Research”.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (8):W14-W16.
    Volume 20, Issue 8, August 2020, Page W14-W16.
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