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  1.  13
    Medium-Range Narratives as a Complementary Tool to Principle-Based Prioritization in Sweden: Test Case “ADHD”.Pier Jaarsma & Petra Gelhaus - 2019 - Journal of Bioethical Inquiry 16 (1):113-125.
    In this paper, for the benefit of reflection processes in clinical and in local, regional, and national priority-setting, we aim to develop an ethical theoretical framework that includes both ethical principles and medium-range narratives. We present our suggestion in the particular case of having to choose between treatment interventions for attention deficit hyperactivity disorder (ADHD) and treatment interventions for other conditions or diseases, under circumstances of scarcity. In order to arrive at our model, we compare two distinct ethical approaches: a (...)
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  2. Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement. [REVIEW]Pier Jaarsma & Stellan Welin - 2012 - Health Care Analysis 20 (1):20-30.
    Neurodiversity has remained a controversial concept over the last decade. In its broadest sense the concept of neurodiversity regards atypical neurological development as a normal human difference. The neurodiversity claim contains at least two different aspects. The first aspect is that autism, among other neurological conditions, is first and foremost a natural variation. The other aspect is about conferring rights and in particular value to the neurodiversity condition, demanding recognition and acceptance. Autism can be seen as a natural variation on (...)
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  3.  24
    Autism, Accommodation and Treatment: A Rejoinder to Chong‐Ming Lim's Critique.Pier Jaarsma & Stellan Welin - 2015 - Bioethics 29 (9):684-685.
    We are very grateful to Chong-Ming Lim for his thoughtful reply published in this journal on one of our articles, which motivated us to think more carefully about accommodating autistic individuals and treating autism. However we believe there are some confusions in Lim's argument. Lim uses the accommodation thesis, according to which we should accommodate autistic individuals rather than treat autism, as the starting point for his reasoning. He claims that if the accommodation thesis is right, then we should not (...)
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  4.  7
    Ethical challenges around thirst in end-of-life care –experiences of palliative care physicians.Maria Friedrichsen, Caroline Lythell, Nana Waldréus, Tiny Jaarsma, Helene Ångström, Micha Milovanovic, Marit Karlsson, Anna Milberg, Hans Thulesius, Christel Hedman, Anne Söderlund Schaller & Pier Jaarsma - 2023 - BMC Medical Ethics 24 (1):1-10.
    Background Thirst and dry mouth are common symptoms in terminally ill patients. In their day-to-day practice, palliative care physicians regularly encounter ethical dilemmas, especially regarding artificial hydration. Few studies have focused on thirst and the ethical dilemmas palliative care physicians encounter in relation to this, leading to a knowledge gap in this area. Aim The aim of this study was to explore palliative care physicians’ experiences of ethical challenges in relation to thirst in terminally ill patients. Methods A qualitative interview (...)
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  5.  3
    Nurses’ priority-setting for older nursing home residents during COVID-19.My Eklund Saksberg, Therése Bielsten, Suzanne Cahill, Tiny Jaarsma, Ann-Charlotte Nedlund, Lars Sandman & Pier Jaarsma - forthcoming - Nursing Ethics.
    Background Ethical principles behind prioritization in healthcare are continuously relevant. However, applying ethical principles during times of increased need, such as during the COVID-19 pandemic, is challenging. Also, little is known about nursing home nurses’ prioritizations in their work to achieve well-being and health for nursing home residents. Aim The aim of this study was to explore nursing home nurses’ priority-setting for older nursing home residents in Sweden during the COVID-19 pandemic. Research design, participants, and research context We conducted a (...)
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  6.  38
    Cultivation of empathy in individuals with high-functioning autism spectrum disorder.Pier Jaarsma - 2013 - Ethics and Education 8 (3):290-300.
    High-functioning individuals with autism spectrum disorder typically lack cognitive empathy, compromising their moral agency from both a Kantian and a Humean perspective. Nevertheless, they are capable of exhibiting moral behavior, and sometimes, they exhibit what may be deemed ‘super-moral’ behavior. The empathy deficit poses, to varying degrees, limitations with respect to their moral motivation and moral agency. To compensate for this deficit, individuals with HF-ASD rely primarily, and justifiably, on the formation and application of moral rules. Educators who focus predominantly (...)
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  7.  50
    Human capabilities, mild autism, deafness and the morality of embryo selection.Pier Jaarsma & Stellan Welin - 2013 - Medicine, Health Care and Philosophy 16 (4):817-824.
    A preimplantation genetic test to discriminate between severe and mild autism spectrum disorder might be developed in the foreseeable future. Recently, the philosophers Julian Savulescu and Guy Kahane claimed that there are strong reasons for prospective parents to make use of such a test to prevent the birth of children who are disposed to autism or Asperger’s disorder. In this paper we will criticize this claim. We will discuss the morality of selection for mild autism in embryo selection in a (...)
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  8.  3
    Two cases of nursing older nursing home residents during COVID-19.Pier Jaarsma, Petra Gelhaus & My Eklund Saksberg - forthcoming - Nursing Ethics.
    Introduction Two ethical challenges of nursing home nurses during the COVID-19 pandemic in Sweden are discussed in this paper. Background Historically, the nurse’s primary concern is for the person who is ill, which is the core of nurses’ moral responsibility and identity. In Sweden, person-centered care is generally deemed important in nursing older nursing home residents. Objective To chart moral responsibilities of nursing home nurses in two cases involving older residents during the COVID-19 pandemic in Sweden. Methods We used Margaret (...)
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  9.  72
    Living the categorical imperative: autistic perspectives on lying and truth telling–between Kant and care ethics. [REVIEW]Pier Jaarsma, Petra Gelhaus & Stellan Welin - 2012 - Medicine, Health Care and Philosophy 15 (3):271-277.
    Lying is a common phenomenon amongst human beings. It seems to play a role in making social interactions run more smoothly. Too much honesty can be regarded as impolite or downright rude. Remarkably, lying is not a common phenomenon amongst normally intelligent human beings who are on the autism spectrum. They appear to be ‘attractively morally innocent’ and seem to have an above average moral conscientious objection against deception. In this paper, the behavior of persons with autism with regard to (...)
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