PURPOSE: There is an increasing demand for researchers to provide research results to participants. Our aim was to define an appropriate process for this, based on needs and attitudes of participants. METHODS: A multicenter survey in five sites in the United States and Canada was offered to parents of children with cancer and adolescents with cancer. Respondents indicated their preferred mode of communication of research results with respect to implications; timing, provider, and content of the results; reasons for and against (...) providing results; and barriers to providing results. RESULTS: Four hundred nine parents (including 19 of deceased children) and 86 adolescents responded. Most parents (n = 385; 94.2%) felt that they had a strong right to research results. For positive results, most wanted a letter or e-mail summary (n = 238; 58.2%) or a phone call followed by a letter (n = 100; 24.4%). If the results were negative, phone call (n = 136; 33.3%) or personal visits (n = 150; 36.7%) were preferred. Parents wanted the summary to include long-term sequelae and suggestions for participants (n = 341; 83.4%), effect on future treatments (n = 341; 83.4%), and subsequent research steps (n = 284; 69.5%). Understanding the researcher was a main concern about receiving results (n = 145; 35.5%). Parents felt that results provide information to support quality of life (n = 315; 77%) and raise public awareness of research (n = 282; 68.9%). Adolescents identified similar preferences. CONCLUSION: Parents of children with cancer and adolescents with cancer feel strongly that they have a right to be offered research results and have specific preferences of how and what information should be communicated. (shrink)
Background: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer. Methods: This is a secondary analysis of data from validated questionnaires provided to adolescents (>12 years old) diagnosed with cancer and parents of children with cancer at 3 sites in Canada (...) (Halifax, Vancouver, and Montreal) and 2 in the United States (Atlanta, GA, and Memphis, TN). Respondents reported their own research participation and cited factors that would influence their own decision to participate in, or to provide parental authorization for their child to participate in health research. Results: Completed questionnaire rates for AYAs and parents were 86 (46.5%) of 185 and 409 (65.2%) of 627, respectively. AYAs (n = 86 [67%]) and parents (n = 409 [85%]) cited that they would participate in research because it would help others. AYAs perceived pressure by their family and friends (16%) and their physician (19%). Having too much to think about at the time of accrual was an impediment to both groups (36% AYAs and 47% parents). The main deterrent for AYAs was that research would take up too much time (45%). Nonwhite parents (7 of 56 [12.5%]) were more apt to decline than white parents (12 of 32 [3.7%]; P < .01). Conclusions: AYAs identified time commitment and having too much to think about as significant impediments to research participation. Addressing these barriers by minimizing time requirements and further supporting decision-making may improve informed consent and impact on enrollment in trials. (shrink)
Machine generated contents note: 1. Socrates, Plato and the invention of the ancient quarrel; 2. Aristotle, poetry and ethics; 3. Plotinus, Augustine and strange sweetness; 4. Boethius, Dionysius and the forms; 5. Thomas, and some Thomists; 6. Vico's new science; 7. Kant and His Students on the Genius of Nature; 8. Hegel and the owl of Minerva; 9. Kierkegaard: a poet, alas; 10. Dilthey: poetry and the escape from metaphysics; 11. Nietzsche, Heidegger and the saving power of poetry; 12. Mikhail (...) Bakhtin and novelistic consciousness. (shrink)
The Raymond Tallis Reader provides a comprehensive survey of the work of this passionate, perceptive, and often controversial thinker. Key selections from Tallis's major works are supplemented by Michael Grant's detailed introduction and linking commentary. From nihilism to Theorrhoea, from literary theory to the role of the unconscious, The Raymond Tallis Reader guides us through the panoptic sweep of Tallis's critical insights and reveals a way of thinking for the 21st century.
In a devastating critique Raymond Tallis exposes the exaggerated claims made for the ability of neuroscience and evolutionary theory to explain human consciousness, behaviour, culture and society. While readily acknowledging the astounding progress neuroscience has made in helping us understand how the brain works, Tallis directs his guns at neuroscience’s dark companion – "Neuromania" as he describes it – the belief that brain activity is not merely a necessary but a sufficient condition for human consciousness and that consequently our (...) everyday behaviour can be entirely understood in neural terms. With the formidable acuity and precision of both clinician and philosopher, Tallis dismantles the idea that "we are our brains", which has given rise to a plethora of neuro-prefixed pseudo-disciplines laying claim to explain everything from art and literature to criminality and religious belief, and shows it to be confused and fallacious, and an abuse of the prestige of science, one that sidesteps a whole range of mind–body problems. The belief that human beings can be understood essentially in biological terms is a serious obstacle, argues Tallis, to clear thinking about what human beings are and what they might become. To explain everyday behaviour in Darwinian terms and to identify human consciousness with the activity of the evolved brain denies human uniqueness, and by minimising the differences between us and our nearest animal kin, misrepresents what we are, offering a grotesquely simplified and degrading account of humanity. We are, shows Tallis, infinitely more interesting and complex than we appear in the mirror of biologism. Combative, fearless and always thought-provoking, _Aping Mankind _is an important book, one that scientists, cultural commentators and policy-makers cannot ignore. (shrink)
Former colleagues of distinguished philosopher Raymond Klibansky examine tolerance from a number of perspectives, including historical roots in Bayle and Locke, the plea for tolerance in literature and poetry, as well as judicial, cultural and societal aspects.
The organizing principle of this book is the discovery that the idea of culture, and the word itself in its general modern uses, came into English thinking in the period which we commonly describe as that of the Industrial Revolution.
A lucid, elegant, and complete survey of set theory, this three-part treatment explores axiomatic set theory, the consistency of the continuum hypothesis, and forcing and independence results. 1996 edition.
Does anyone ever survive his or her bodily death ? Could anyone? No speculative questions are older than these, or have been answered more frequently or more variously. None have been laid to rest more often, or — in our times — with more claimed decisiveness. Jay Rosenberg, for instance, no doubt speaks for many contemporary philosophers when he claims, in his recent book, to have ‘ demonstrated ’ that ‘ we cannot [even] make coherent sense of the supposed possibility (...) that a person's history might continue beyond that person's [bodily] death’. (shrink)
In this entertaining and challenging collection of logic puzzles, Raymond Smullyan-author of Forever Undecided-continues to delight and astonish us with his gift for making available, in the thoroughly pleasurable form of puzzles, some of the most important mathematical thinking of our time.
What is privacy? Why do we need it and value it so much? This Very Short Introduction examines why privacy has become one of the most important topics in contemporary society. Considering issues of privacy in relation to security, the protection of personal data, and the paparazzi, its implications are wide-ranging and affect us all.
This completely self-contained study, widely considered the best book in the field, is intended to serve both as an introduction to quantification theory and as ...
In earlier work, Raymond Tallis defends the distinctive nature of human consciousness against the misrepresentations of many philosophers and cognitive scientists who aimed to reduce it to a set of functions understood in evolutionary, neurobiological, and computational terms. This book continues to investigate these implications of human nature advanced in his earlier works for our understanding of the nature of truth, of language, of the mind, and of the self.
This work subjects the fundamental ideas of Derrida, Lacan, Barthes and their followers to an examination and demonstrates the baselessness of post-Saussurean claims about the relations between language, reality and self.
The philosophy of computer science is concerned with issues that arise from reflection upon the nature and practice of the discipline of computer science. This book presents an approach to the subject that is centered upon the notion of computational artefact. It provides an analysis of the things of computer science as technical artefacts. Seeing them in this way enables the application of the analytical tools and concepts from the philosophy of technology to the technical artefacts of computer science. With (...) this conceptual framework the author examines some of the central philosophical concerns of computer science including the foundations of semantics, the logical role of specification, the nature of correctness, computational ontology and abstraction, formal methods, computational epistemology and explanation, the methodology of computer science, and the nature of computation. The book will be of value to philosophers and computer scientists. (shrink)
With the Supreme Court’s landmark _Brown_ decisions of 1954 and 1955, American education changed forever. But _Brown_ was just the beginning, and Raymond Wolters contends that its best intentions have been taken to unnecessary extremes. In this compelling study, a scholar who has long observed the traumas of school desegregation uncovers the changes and difficulties with which public education has dealt over the last fifty years—and argues that some judicial decisions were ill-advised. Dealing candidly with matters usually considered taboo (...) in academic discourse, Wolters argues that the Supreme Court acted correctly and in accordance with public sentiment in _Brown_ but that it later took a wrong turn by equating desegregation with integration. Retracing the history of desegregation and integration in America’s schools, Wolters distinguishes between several Court decisions, explaining that while _Brown_ called for desegregation by requiring that schools deal with students on a racially nondiscriminatory basis, subsequent decisions—_Green, Swann, Keyes_—required actual integration through racial balancing. He places these decisions in the context of educational reform in the 1950s that sought to encourage bright students through advanced placement and honors courses—courses in which African American and Hispanic students were less likely to be enrolled. Then with the racial unrest of the 1960s, the pursuit of academic excellence yielded to concerns for uplifting disadvantaged youths and ensuring the predominance of middle-class peer groups in schools. Wolters draws on rich historical records to document the devastating consequences of requiring racial balance and sheds new light on America’s legal, social, and cultural landscapes. He reexamines the educational theories of Kenneth Clark and James Coleman, and he challenges statistics that support the results of racial balancing by describing how school desegregation and integration actually proceeded in several towns, cities, and counties. _Race and Education_ is a bold challenge to political correctness in education and a corrective to the now widely accepted notion that desegregation and racially balanced integration are one and the same. It is essential reading for scholars of law and education and a wake-up call for citizens concerned about the future of America’s schools. (shrink)
