11 found
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Raymond Fitzpatrick [10]Raymond W. Fitzpatrick [1]
  1.  31
    Developing a New Justification for Assent.Amanda Sibley, Andrew J. Pollard, Raymond Fitzpatrick & Mark Sheehan - 2016 - BMC Medical Ethics 17 (1):1-9.
    BackgroundCurrent guidelines do not clearly outline when assent should be attained from paediatric research participants, nor do they detail the necessary elements of the assent process. This stems from the fact that the fundamental justification behind the concept of assent is misunderstood. In this paper, we critically assess three widespread ethical arguments used for assent: children’s rights, the best interests of the child, and respect for a child’s developing autonomy. We then outline a newly-developed two-fold justification for the assent process: (...)
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  2.  35
    Competence to Make Treatment Decisions in Anorexia Nervosa: Thinking Processes and Values.Jacinta Oa Tan, Tony Hope, Anne Stewart & Raymond Fitzpatrick - 2006 - Philosophy, Psychiatry, and Psychology: Ppp 13 (4):267.
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  3.  50
    Forms of Benefit Sharing in Global Health Research Undertaken in Resource Poor Settings: A Qualitative Study of Stakeholders' Views in Kenya.Geoffrey Lairumbi, Michael Parker, Raymond Fitzpatrick & Michael English - 2012 - Philosophy, Ethics, and Humanities in Medicine 7:7.
    Background Increase in global health research undertaken in resource poor settings in the last decade though a positive development has raised ethical concerns relating to potential for exploitation. Some of the suggested strategies to address these concerns include calls for providing universal standards of care, reasonable availability of proven interventions and more recently, promoting the overall social value of research especially in clinical research. Promoting the social value of research has been closely associated with providing fair benefits to various stakeholders (...)
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  4.  58
    Consulting Communities on Feedback of Genetic Findings in International Health Research: Sharing Sickle Cell Disease and Carrier Information in Coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.
    International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on disclosing genetic findings in the context of research highlights the role of community consultation in understanding and balancing ethically important issues from participants’ perspectives, including social forms of benefit and harm, and the influence of access to care. To inform research practice locally, (...)
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  5.  30
    Ethics in Practice: The State of the Debate on Promoting the Social Value of Global Health Research in Resource Poor Settings Particularly Africa.Geoffrey M. Lairumbi, Michael Parker, Raymond Fitzpatrick & Michael C. English - 2011 - BMC Medical Ethics 12 (1):22.
    BackgroundPromoting the social value of global health research undertaken in resource poor settings has become a key concern in global research ethics. The consideration for benefit sharing, which concerns the elucidation of what if anything, is owed to participants, their communities and host nations that take part in such research, and the obligations of researchers involved, is one of the main strategies used for promoting social value of research. In the last decade however, there has been intense debate within academic (...)
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  6.  23
    Knowing Who to Trust: Exploring the Role of 'Ethical Metadata' in Mediating Risk of Harm in Collaborative Genomics Research in Africa.Jantina de Vries, Thomas N. Williams, Kalifa Bojang, Dominic P. Kwiatkowski, Raymond Fitzpatrick & Michael Parker - 2014 - BMC Medical Ethics 15 (1):62.
    The practice of making datasets publicly available for use by the wider scientific community has become firmly integrated in genomic science. One significant gap in literature around data sharing concerns how it impacts on scientists’ ability to preserve values and ethical standards that form an essential component of scientific collaborations. We conducted a qualitative sociological study examining the potential for harm to ethnic groups, and implications of such ethical concerns for data sharing. We focused our empirical work on the MalariaGEN (...)
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  7.  20
    Stakeholders Understanding of the Concept of Benefit Sharing in Health Research in Kenya: A Qualitative Study.Geoffrey M. Lairumbi, Michael Parker, Raymond Fitzpatrick & Mike C. English - 2011 - BMC Medical Ethics 12 (1):20.
    BackgroundThe concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in international collaborative health research.The influence of benefit sharing framework on the conduct of collaborative health research is for instance evidenced by the number of publications and research ethics guidelines that require prior engagement between stakeholders to determine the (...)
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  8.  17
    The Involvement of Pharmacists in Professional and Clinical Audit in the UK: A Review and Assessment of Their Potential Role.Rhona Panton & Raymond Fitzpatrick - 1996 - Journal of Evaluation in Clinical Practice 2 (3):193-198.
  9.  12
    Assessing the Impact of NICE Guidance on the Prescribing of Hormonal Treatments of Breast Cancer in England.Raymond W. Fitzpatrick & Ronald G. Pate - 2015 - Journal of Evaluation in Clinical Practice 21 (4):759-761.
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  10.  43
    Older People Specific Health Status and Quality of Life: A Structured Review of Self‐Assessed Instruments.Kirstie L. Haywood, Andrew M. Garratt & Raymond Fitzpatrick - 2005 - Journal of Evaluation in Clinical Practice 11 (4):315-327.
  11.  5
    What Effect Does Medicine Advice Provided by UK Medicines Information Pharmacists Have on Prescriber Practice and Patient Care: A Qualitative Primary Care Study.Jill Rutter, Raymond Fitzpatrick & Paul Rutter - 2015 - Journal of Evaluation in Clinical Practice 21 (2):307-312.
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