16 found
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Rebecca D. Pentz [14]Rebecca Davis Pentz [2]
  1.  44
    Reframing Consent for Clinical Research: A Function-Based Approach.Scott Y. H. Kim, David Wendler, Kevin P. Weinfurt, Robert Silbergleit, Rebecca D. Pentz, Franklin G. Miller, Bernard Lo, Steven Joffe, Christine Grady, Sara F. Goldkind, Nir Eyal & Neal W. Dickert - 2017 - American Journal of Bioethics 17 (12):3-11.
    Although informed consent is important in clinical research, questions persist regarding when it is necessary, what it requires, and how it should be obtained. The standard view in research ethics is that the function of informed consent is to respect individual autonomy. However, consent processes are multidimensional and serve other ethical functions as well. These functions deserve particular attention when barriers to consent exist. We argue that consent serves seven ethically important and conceptually distinct functions. The first four functions pertain (...)
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  2.  22
    Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children with Cancer.Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    PURPOSE: There is an increasing demand for researchers to provide research results to participants. Our aim was to define an appropriate process for this, based on needs and attitudes of participants. METHODS: A multicenter survey in five sites in the United States and Canada was offered to parents of children with cancer and adolescents with cancer. Respondents indicated their preferred mode of communication of research results with respect to implications; timing, provider, and content of the results; reasons for and against (...)
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  3.  17
    Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    Background: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer. Methods: This is a secondary analysis of data from validated questionnaires provided to adolescents (>12 years old) diagnosed with cancer and parents of children with cancer at 3 sites in Canada (...)
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  4.  20
    Revisiting Ethical Guidelines for Research with Terminal Wean and Brain‐Dead Participants.Rebecca D. Pentz, Anne L. Flamm, Renata Pasqualini, Christopher J. Logothetis & Wadih Arap - 2003 - Hastings Center Report 33 (1):20-26.
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  5.  21
    Designing an Ethical Policy for Bone Marrow Donation by Minors and Others Lacking Capacity.Rebecca D. Pentz, Ka Wah Chan, Joyce L. Neumann, Richard E. Champlin & Martin Korbling - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (2):149-155.
    The child was 2 years, 8 months old and weighed 25 pounds, one-fifth the weight of her mother, for whom she was to be the bone marrow donor. The mother had suffered a relapse of acute myelogenous leukemia; her physicians recommended a bone marrow transplant. The child was the closest human leukocyte antigen match and thus the best donor candidate for her mother's transplant.
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  6.  31
    Bioethics Training in Uganda: Report on Research and Clinical Ethics Workshops. [REVIEW]Cynthia Griggins, Christian Simon, Frederick Nelson Nakwagala & Rebecca D. Pentz - 2011 - HEC Forum 23 (1):43-56.
    This essay describes and critically evaluates a co-operative educational program to train Ugandan health care workers in bioethics. It describes one bottom-up effort, a week-long intensive workshop in bioethics provided by the authors to health care professionals in a developing country—Uganda. We will describe the background and circumstances that led to the organization of the workshop, and review its planning, design, curriculum, and outcome. We will focus especially on measures taken to make the workshop relevant for the audience of Ugandan (...)
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  7.  46
    Core Values: An Ethics Committee's Foray Into Management Theory. [REVIEW]Rebecca D. Pentz - 2000 - HEC Forum 12 (3):225-234.
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  8.  10
    Expanding Into Organizational Ethics: The Experience of One Clinical Ethics Committee. [REVIEW]Rebecca D. Pentz - 1998 - HEC Forum 10 (2):213-221.
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  9. Book Reviews-Genetic Ethics: Do the Ends Justify the Genes?John F. Kilner, Rebecca D. Pentz, Frank E. Young & Richard Ashcroft - 2000 - Bioethics 14 (3):274-275.
     
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  10.  15
    Rules and Values and the Problem of Evil.Rebecca D. Pentz - 1982 - Sophia 21 (2):23-29.
  11.  17
    Does Experience Matter? Implications for Community Consultation for Research in Emergency Settings.Victoria M. Scicluna, Mohammed K. Ali, Rebecca D. Pentz, David W. Wright & Neal W. Dickert - 2017 - Ajob Empirical Bioethics 8 (2):75-81.
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  12.  10
    Patient Perspectives on Compensation for Biospecimen Donation.Samuel C. Allen, Minisha Lohani, Kristopher A. Hendershot, Travis R. Deal, Taylor White, Margie D. Dixon & Rebecca D. Pentz - 2018 - Ajob Empirical Bioethics 9 (2):77-81.
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  13.  17
    Nancy Berlinger, Ph. D., M. Div., is Deputy Director and Associate for Religious Studies at The Hastings Center, Garrison, New York. Michael A. DeVita, MD, is Associate Professor of Critical Care Medicine and Internal Medicine and Chair of the UPMC Ethics Committee, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania. [REVIEW]Barbara J. Evans, Sven Ove Hansson, Steve Heilig, Ana Smith Iltis, Kenneth V. Iserson, Anita F. Khayat, Greg Loeben, Jerry Menikoff & Rebecca D. Pentz - 2004 - Cambridge Quarterly of Healthcare Ethics 13:313-314.
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  14.  12
    The Newly and Nearly Dead.Rebecca D. Pentz & Anne L. Flamm - 2003 - Hastings Center Report 33 (1):4-4.
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  15.  14
    The Poster Child for the Need for Central Review of Research Protocols: The Children's Oncology Group.Rebecca D. Pentz & Anita F. Khayat - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (4):359-365.
    Multiple groups, including the National Bioethics Advisory Commission, the American Society of Clinical Oncology, the National Coalition of Comprehensive Cancer Centers, Workgroup 6 of the Summit Series on Cancer, PRIM&R, the Bell Report, and prominent ethicists have called for replacing the current system of local institutional review with central review for multisite national trials. We argue that this need is particularly acute in pediatric oncology, as shown by the experience of the Children's Oncology Group.
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  16.  8
    Who Should Go First in Trials with Scarce Agents? The Views of Potential Participants.Rebecca D. Pentz, Anne L. Flamm, Jeremy Sugarman, Marlene Z. Cohen, Zhiheng Xu, Roy S. Herbst & James L. Abbruzzese - 2007 - IRB: Ethics & Human Research 29 (4):1.
    Access to investigational drugs is a concern to patients and regulatory agencies. In order to determine potential trial participants’ views on access to investigational drugs, we surveyed one hundred people who had been referred to a phase I clinical trial. Most respondents indicated that patients had a right to investigational drugs, that the drugs should be offered only in the context of research, that getting access to these drugs is too hard, and that knowing the right people and being persistent (...)
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