Results for 'Rebecca Davis Pentz'

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  1.  29
    Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children with Cancer.Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    PURPOSE: There is an increasing demand for researchers to provide research results to participants. Our aim was to define an appropriate process for this, based on needs and attitudes of participants. METHODS: A multicenter survey in five sites in the United States and Canada was offered to parents of children with cancer and adolescents with cancer. Respondents indicated their preferred mode of communication of research results with respect to implications; timing, provider, and content of the results; reasons for and against (...)
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  2.  29
    Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    Background: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer. Methods: This is a secondary analysis of data from validated questionnaires provided to adolescents (>12 years old) diagnosed with cancer and parents of children with cancer at 3 sites in Canada (...)
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  3.  91
    Out of Bounds? A Critique of the New Policies on Hyperandrogenism in Elite Female Athletes.Katrina Karkazis, Rebecca Jordan-Young, Georgiann Davis & Silvia Camporesi - 2012 - American Journal of Bioethics 12 (7):3-16.
    In May 2011, more than a decade after the International Association of Athletics Federations (IAAF) and the International Olympic Committee (IOC) abandoned sex testing, they devised new policies in response to the IAAF's treatment of Caster Semenya, the South African runner whose sex was challenged because of her spectacular win and powerful physique that fueled an international frenzy questioning her sex and legitimacy to compete as female. These policies claim that atypically high levels of endogenous testosterone in women (caused by (...)
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  4.  9
    Rebecca Davis, Piers Plowman and the Books of Nature. Oxford and New York: Oxford University Press, 2016. Pp. Xiv, 272; 9 Black-and-White Figures. $90. ISBN: 978-0-19-877840-0. [REVIEW]Kellie Robertson - 2019 - Speculum 94 (2):523-524.
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  5. Silvia Camporesi, King's College, London and University of California San Francisco.Katrina Karkazis, Rebecca Jordan-Young & Georgiann Davis - 2012 - American Journal of Bioethics 12 (8):43.
     
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  6.  21
    Revisiting Ethical Guidelines for Research with Terminal Wean and Brain‐Dead Participants.Rebecca D. Pentz, Anne L. Flamm, Renata Pasqualini, Christopher J. Logothetis & Wadih Arap - 2003 - Hastings Center Report 33 (1):20-26.
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  7.  35
    Reassessing Biopsychosocial Psychiatry.Will Davies & Rebecca Roache - 2017 - British Journal of Psychiatry 210 (1):3-5.
    Psychiatry uncomfortably spans biological and psychosocial perspectives on mental illness, an idea central to Engel's biopsychosocial paradigm. This paradigm was extremely ambitious, proposing new foundations for clinical practice as well as a non-reductive metaphysics for mental illness. Perhaps given this scope, the approach has failed to engender a clearly identifiable research programme. And yet the view remains influential. We reassess the relevance of the biopsychosocial paradigm for psychiatry, distinguishing a number of ways in which it could be (re)conceived.
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  8.  23
    Designing an Ethical Policy for Bone Marrow Donation by Minors and Others Lacking Capacity.Rebecca D. Pentz, Ka Wah Chan, Joyce L. Neumann, Richard E. Champlin & Martin Korbling - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (2):149-155.
    The child was 2 years, 8 months old and weighed 25 pounds, one-fifth the weight of her mother, for whom she was to be the bone marrow donor. The mother had suffered a relapse of acute myelogenous leukemia; her physicians recommended a bone marrow transplant. The child was the closest human leukocyte antigen match and thus the best donor candidate for her mother's transplant.
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  9.  17
    The Poster Child for the Need for Central Review of Research Protocols: The Children's Oncology Group.Rebecca D. Pentz & Anita F. Khayat - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (4):359-365.
    Multiple groups, including the National Bioethics Advisory Commission, the American Society of Clinical Oncology, the National Coalition of Comprehensive Cancer Centers, Workgroup 6 of the Summit Series on Cancer, PRIM&R, the Bell Report, and prominent ethicists have called for replacing the current system of local institutional review with central review for multisite national trials. We argue that this need is particularly acute in pediatric oncology, as shown by the experience of the Children's Oncology Group.
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  10.  55
    Broad Consent for Research With Biological Samples: Workshop Conclusions.Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M. Fullerton, Hank Greely, Mats G. Hansson, Sara Hull, Scott Kim, Bernie Lo, Rebecca Pentz, Laura Rodriguez, Carol Weil, Benjamin S. Wilfond & David Wendler - 2015 - American Journal of Bioethics 15 (9):34-42.
    Different types of consent are used to obtain human biospecimens for future research. This variation has resulted in confusion regarding what research is permitted, inadvertent constraints on future research, and research proceeding without consent. The National Institutes of Health Clinical Center's Department of Bioethics held a workshop to consider the ethical acceptability of addressing these concerns by using broad consent for future research on stored biospecimens. Multiple bioethics scholars, who have written on these issues, discussed the reasons for consent, the (...)
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  11.  10
    Expanding Into Organizational Ethics: The Experience of One Clinical Ethics Committee. [REVIEW]Rebecca D. Pentz - 1998 - HEC Forum 10 (2):213-221.
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  12.  40
    Hick and Saints: Is Saint-Production a Valid Test?Rebecca Pentz - 1991 - Faith and Philosophy 8 (1):96-103.
  13.  58
    Reframing Consent for Clinical Research: A Function-Based Approach.Scott Y. H. Kim, David Wendler, Kevin P. Weinfurt, Robert Silbergleit, Rebecca D. Pentz, Franklin G. Miller, Bernard Lo, Steven Joffe, Christine Grady, Sara F. Goldkind, Nir Eyal & Neal W. Dickert - 2017 - American Journal of Bioethics 17 (12):3-11.
    Although informed consent is important in clinical research, questions persist regarding when it is necessary, what it requires, and how it should be obtained. The standard view in research ethics is that the function of informed consent is to respect individual autonomy. However, consent processes are multidimensional and serve other ethical functions as well. These functions deserve particular attention when barriers to consent exist. We argue that consent serves seven ethically important and conceptually distinct functions. The first four functions pertain (...)
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  14.  13
    The Newly and Nearly Dead.Rebecca D. Pentz & Anne L. Flamm - 2003 - Hastings Center Report 33 (1):4-4.
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  15.  11
    Incorporating Ethical Principles Into Clinical Research Protocols: A Tool for Protocol Writers and Ethics Committees.Rebecca H. Li, Mary C. Wacholtz, Mark Barnes, Liam Boggs, Susan Callery-D'Amico, Amy Davis, Alla Digilova, David Forster, Kate Heffernan, Maeve Luthin, Holly Fernandez Lynch, Lindsay McNair, Jennifer E. Miller, Jacquelyn Murphy, Luann Van Campen, Mark Wilenzick, Delia Wolf, Cris Woolston, Carmen Aldinger & Barbara E. Bierer - 2016 - Journal of Medical Ethics 42 (4):229-234.
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  16.  46
    Core Values: An Ethics Committee's Foray Into Management Theory. [REVIEW]Rebecca D. Pentz - 2000 - HEC Forum 12 (3):225-234.
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  17.  5
    Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy.Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis - 2014 - Journal of Law, Medicine and Ethics 42 (2):220-231.
    Research uses of human bodies maintained by mechanical ventilation after being declared dead by neurological criteria, were first published in the early 1980s with a renewed interest in research on the newly or nearly dead occurring in about last decade. While this type of research may take many different forms, recent technologic advances in genomic sequencing along with high hopes for genomic medicine, have inspired interest in genomic research with the newly dead. For example, the Genotype-Tissue Expression program through the (...)
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  18.  8
    Who Should Go First in Trials with Scarce Agents? The Views of Potential Participants.Rebecca D. Pentz, Anne L. Flamm, Jeremy Sugarman, Marlene Z. Cohen, Zhiheng Xu, Roy S. Herbst & James L. Abbruzzese - 2007 - IRB: Ethics & Human Research 29 (4):1.
    Access to investigational drugs is a concern to patients and regulatory agencies. In order to determine potential trial participants’ views on access to investigational drugs, we surveyed one hundred people who had been referred to a phase I clinical trial. Most respondents indicated that patients had a right to investigational drugs, that the drugs should be offered only in the context of research, that getting access to these drugs is too hard, and that knowing the right people and being persistent (...)
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  19.  18
    Rules and Values and the Problem of Evil.Rebecca D. Pentz - 1982 - Sophia 21 (2):23-29.
  20.  5
    Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.Neal W. Dickert, Amanda Michelle Bernard, JoAnne M. Brabson, Rodney J. Hunter, Regina McLemore, Andrea R. Mitchell, Stephen Palmer, Barbara Reed, Michele Riedford, Raymond T. Simpson, Candace D. Speight, Tracie Steadman & Rebecca D. Pentz - 2020 - American Journal of Bioethics 20 (5):7-17.
    Clinical trials for acute conditions such as myocardial infarction and stroke pose challenges related to informed consent due to time limitations, stress, and severe illness. Consent processes shou...
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  21.  12
    Hick and Saints: Is Saint-Production a Valid Test?Rebecca Pentz - 1991 - Faith and Philosophy 8 (1):96-103.
  22.  10
    Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy.Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis - 2014 - Journal of Law, Medicine and Ethics 42 (2):220-231.
    Recent advances in next generation sequencing along with high hopes for genomic medicine have inspired interest in genomic research with the newly dead. However, applicable law does not adequately determine ethical or policy responses to such research. In this paper we propose that such research stands at a crossroads between other more established biomedical clinical and research practices. In addressing the ethical and policy issues raised by a particular research project within our institution comparatively with these other practices, we illustrate (...)
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  23.  1
    Relieving Investigator Angst After an Appropriate But Concerning Ethics Consultation.Rebecca D. Pentz, Margie Dixon, Hannah Claire Sibold & Shannon Blee - 2021 - American Journal of Bioethics 21 (4):102-104.
    Even appropriate, ethically sound recommendations can generate angst. In this case, the principal investigator is concerned about the ethics consult recommendation to not inform the participan...
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  24. Book Reviews-Genetic Ethics: Do the Ends Justify the Genes?John F. Kilner, Rebecca D. Pentz, Frank E. Young & Richard Ashcroft - 2000 - Bioethics 14 (3):274-275.
     
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  25.  5
    Ethics Briefings.Martin Davies, Sophie Brannan, Eleanor Chrispin, Veronica English & Rebecca Mussell - 2012 - Journal of Medical Ethics 38 (5):322-324.
  26. 50 Ways to Help Save the Earth: How You and Your Church Can Make a Difference.Rebecca Barnes-Davies - 2009
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  27. Michael Davis, The Autobiography of Philosophy: Rousseau's Reveries of The Solitary Walker Reviewed By.Rebecca Kukla - 1999 - Philosophy in Review 19 (6):398-401.
     
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  28.  11
    Maps for a Fiesta. A Latina/o Perspective on Knowledge and the Global Crisis, by Otto Maduro, Edited by Eduardo Mendieta, NY, Fordham University Press, 2015, 177 Pp., USD 25.00 , ISBN 9780823263059. [REVIEW]Rebecca Berru Davis - 2015 - International Journal of Philosophy and Theology 76 (2):165-167.
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  29.  3
    Psychiatry Reborn: Biopsychosocial Psychiatry in Modern Medicine.Will Davies, Julian Savulescu & Rebecca Roache (eds.) - 2020 - Oxford University Press.
    With contributions from psychiatry, psychology, neuroscience, and philosophy, this book provides the most comprehensive account to date of the interplay between biological, psychological, and social factors in mental health and their ethical dimensions.
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  30.  9
    Appraising Harm in Phase I Trials: Healthy Volunteers' Accounts of Adverse Events.Lisa McManus, Arlene Davis, Rebecca L. Forcier & Jill A. Fisher - 2019 - Journal of Law, Medicine and Ethics 47 (2):323-333.
    While risk of harm is an important focus for whether clinical research on humans can and should proceed, there is uncertainty about what constitutes harm to a trial participant. In Phase I trials on healthy volunteers, the purpose of the research is to document and measure safety concerns associated with investigational drugs, and participants are financially compensated for their enrollment in these studies. In this article, we investigate how characterizations of harm are narrated by healthy volunteers in the context of (...)
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  31.  17
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2018 - Journal of Medical Ethics 44 (2):145-146.
    The British Medical Association has published a new report on health and human rights in immigration detention in the UK. Locked up, locked out outlines how aspects of current detention policies and practices are detrimental to the health of those detained and the challenges doctors face in providing healthcare in the immigration detention setting. It makes a number of recommendations aimed at addressing policy and practice which impact on health and well-being, including calling for an end to the routine use (...)
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  32.  20
    Ethics Briefing.Martin Davies, Sophie Brannan, Ruth Campbell, Veronica English, Rebecca Mussell & Julian Sheather - 2017 - Journal of Medical Ethics 43 (6):423-424.
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  33.  15
    Ethics briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2018 - Journal of Medical Ethics Recent Issues 44 (4):285-286.
    Erdoğan intensifies assault on Turkish civil society Deeply worrying reports from the Turkish Medical Association suggest that the Turkish President Recep Erdoğan is hardening his attack on civil society in Turkey, using the legitimate activities of the TTB as the flimsiest of pretexts. In January 2018, the TTB issued a short statement raising concerns about the impact on public health of Turkey’s military operation in the Kurdish-controlled region of northern Syria. It denounced the operation saying ‘No to war, peace immediately’. (...)
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  34.  56
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2018 - Journal of Medical Ethics 44 (9):653-654.
    Essex University, in association with Johns Hopkins Center for Public Health and Human Rights, has brought out a timely report highlighting the increasing global criminalisation of the provision of healthcare.1 The report, with a foreword by Professor Dainius Puras, United Nations Special Rapporteur on the right to health, explores the pressures on medical impartiality arising in large part from both global and national responses to the threat of terrorism. Both international humanitarian law, human rights law and long-established principles of medical (...)
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  35.  18
    Ethics Briefings.Martin Davies, Sophie Brannan, Eleanor Chrispin, Veronica English, Rebecca Mussell & Julian C. Sheather - 2012 - Journal of Medical Ethics 38 (7):446-448.
  36.  32
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2014 - Journal of Medical Ethics 40 (1):69-70.
    In February 2014, the Belgian Parliament passed legislation allowing euthanasia for terminally ill children of all ages by 86 votes to 44, with 12 abstentions. The Bill became law in early March after being signed by the King, making Belgium the first country in the world to abolish age restrictions for euthanasia. Previously, the youngest age at which euthanasia was permitted was 12 years old in The Netherlands.1Euthanasia was legalised in Belgium in 2002, and the new legislation introduces amendments to (...)
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  37.  17
    Ethics Briefing.Martin Davies, Ruth Campbell, Sophie Brannan, Veronica English, Rebecca Mussell & Julian C. Sheather - 2018 - Journal of Medical Ethics 44 (6):429-430.
    In April, the UK House of Commons Science and Technology committee published a report evaluating the readiness of the National Health Service to incorporate genomic testing into mainstream service provision.1 The committee also examined some of the research and regulatory considerations in relation to the ongoing development of genome editing. ### Genomics in the NHS The main focus of the report is the 100,000 Genomes Project and the various practical and ethical challenges associated with the planned roll-out of the Genomics (...)
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  38.  78
    Abortion—Northern Ireland.Martin Davies, Veronica English, Julian C. Sheather, Sophie Brannan, Ruth Campbell & Rebecca Mussell - 2016 - Journal of Medical Ethics 42 (2):141-143.
  39.  26
    Ethics Briefing.Martin Davies, Sophie Brannan, Ruth Campbell, Veronica English, Rebecca Mussell & Julian Sheather - 2017 - Journal of Medical Ethics 43 (3):188-190.
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  40.  15
    Ethics Briefings.Martin Davies, Sophie Brannan, Eleanor Chrispin, Veronica English & Rebecca Mussell - 2012 - Journal of Medical Ethics 38 (11):701-702.
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  41.  43
    The Return of Research Results to Participants: Pilot Questionnaire of Adolescents and Parents of Children with Cancer.Conrad V. Fernandez, Darcy Santor, Charles Weijer, Caron Strahlendorf, Albert Moghrabi, Rebecca Pentz, Jun Gao & Eric Kodish - unknown
    PURPOSE: The offer to return research results to participants is increasingly recognized as an ethical obligation, although few researchers routinely return results. We examined the needs and attitudes of parents of children with cancer and of adolescents with cancer to the return of research results. METHODS: Seven experts in research ethics scored content validity on parent and adolescent questionnaires previously developed through focus group and phone interviews. The questionnaires were revised and provided to 30 parents and 10 adolescents in a (...)
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  42.  19
    Ethics Briefings.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2015 - Journal of Medical Ethics 41 (5):429-430.
  43.  21
    Ethics Briefings.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2015 - Journal of Medical Ethics 41 (3):285-286.
  44.  3
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English & Rebecca Mussell - 2014 - Journal of Medical Ethics 40 (9):647-648.
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  45.  13
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian Sheather - 2017 - Journal of Medical Ethics 43 (8):571-573.
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  46.  25
    Ethics Briefing.Sophie Brannan, Ruth Campbell, Martin Davies, Veronica English, Rebecca Mussell & Julian C. Sheather - 2016 - Journal of Medical Ethics 42 (12):815-816.
  47.  41
    Ethics Briefing.Martin Davies, Sophie Brannan, Eleanor Chrispin, Veronica English, Rebecca Mussell & Julian C. Sheather - 2013 - Journal of Medical Ethics 39 (6):413-414.
    Ever so often in the UK, there is a flurry of activity around the information requirements of donor-conceived individuals. In April 2013, it was the launch of a report from the Nuffield Council on Bioethics that brought the issue back to public consciousness.1Since 1991, information about treatment with donor gametes or embryos has been collected by the Human Fertilisation and Embryology Authority . Since then, over 35 000 donor-conceived individuals have been born through treatment in licensed clinics. Medical information and (...)
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  48.  12
    Ethics Briefing.Martin Davies, Ruth Campbell, Sophie Brannan, Veronica English, Rebecca Mussell & Julian C. Sheather - 2018 - Journal of Medical Ethics 44 (10):725-726.
    The Supreme Court has ruled in the case of Y that there is no requirement to seek the approval of the Court of Protection in decisions to withdraw clinically assisted nutrition and hydration from patients in a prolonged disorder of consciousness.1 Mr Y was 52-year-old man who suffered a cardiac arrest after a myocardial infarction as a result of coronary artery disease. It was not possible to resuscitate him for well over 10 min, resulting in severe cerebral hypoxia which caused (...)
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  49.  24
    Ethics Briefing.Martin Davies, Sophie Brannan, Ruth Campbell, Veronica English, Rebecca Mussell & Julian C. Sheather - 2017 - Journal of Medical Ethics 43 (12):871-872.
    ### High Court rejects assisted dying challenge The High Court has rejected the latest challenge to the law on assisted dying in the UK, brought by Noel Conway. Mr Conway, a retired college lecturer, was diagnosed with motor neuron disease in 2012. Since his diagnosis, his health has deteriorated and he is dependent on ever-increasing levels of assistance with daily life, including the use of non-invasive ventilation to help him breathe. He sought a declaration from the court that section 2 (...)
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  50.  16
    Ethics Briefings.Martin Davies, Sophie Brannan, Eleanor Chrispin, Veronica English & Rebecca Mussell - 2013 - Journal of Medical Ethics 39 (9):599-600.
    Force-feeding of detainees at Guantánamo BayIn April, the US Department of Defense reportedly sent 40 additional military medical personnel, including doctors and nurses, to the Guantánamo Bay Naval Base to carry out the force-feeding of detainees on hunger strike.1 By the end of June, up to 104 of the remaining 166 individuals held in US military detention at Guantánamo were refusing food. The protest against conditions at the base, and the fate of those being held there—including those already cleared for (...)
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