34 found
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  1.  26
    Standards of Practice in Empirical Bioethics Research: Towards a Consensus.Jonathan Ives, Michael Dunn, Bert Molewijk, Jan Schildmann, Kristine Bærøe, Lucy Frith, Richard Huxtable, Elleke Landeweer, Marcel Mertz, Veerle Provoost, Annette Rid, Sabine Salloch, Mark Sheehan, Daniel Strech, Martine de Vries & Guy Widdershoven - 2018 - BMC Medical Ethics 19 (1):68.
    This paper responds to the commentaries from Stacy Carter and Alan Cribb. We pick up on two main themes in our response. First, we reflect on how the process of setting standards for empirical bioethics research entails drawing boundaries around what research counts as empirical bioethics research, and we discuss whether the standards agreed in the consensus process draw these boundaries correctly. Second, we expand on the discussion in the original paper of the role and significance of the concept of (...)
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  2.  23
    COVID-19: Where is the National Ethical Guidance?Richard Huxtable - 2020 - BMC Medical Ethics 21 (1):1-3.
    BackgroundAs the COVID-19 pandemic develops, healthcare professionals are looking for support with, and guidance to inform, the difficult decisions they face. In the absence of an authoritative national steer in England, professional bodies and local organisations have been developing and disseminating their own ethical guidance. Questions inevitably arise, some of which are particularly pressing during the pandemic, as events are unfolding quickly and the field is becoming crowded. My central question here is: which professional ethical guidance should the professional follow?Main (...)
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  3.  11
    Mapping, Framing, Shaping: A Framework for Empirical Bioethics Research Projects.Richard Huxtable & Jonathan Ives - 2019 - BMC Medical Ethics 20 (1):1-8.
    Background There is growing interest in the use and incorporation of empirical data in bioethics research. Much of the recent focus has been on specific “empirical bioethics” methodologies, which attempt to integrate the empirical and the normative. Researchers in the field are, however, beginning to explore broader questions, including around acceptable standards of practice for undertaking such research. The framework: In this article, we further widen the focus to consider the overall shape of an empirical bioethics research project. We outline (...)
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  4.  29
    The Cambridge Medical Ethics Workbook.Donna Dickenson, Richard Huxtable & Michael Parker (eds.) - 2010 - Cambridge University Press.
    This new edition of The Cambridge Medical Ethics Workbook builds on the success of the first edition by working from the 'bottom up', with a widely praised case ...
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  5. For and Against the Four Principles of Biomedical Ethics.Richard Huxtable - 2013 - Clinical Ethics 8 (2-3):39-43.
    The four principles approach to biomedical ethics points to respect for autonomy, beneficence, non-maleficence and justice as the norms that should guide moral agents working in the biosciences, and particularly in health care. While the approach is well known, it is not without its critics. In this paper, which is primarily aimed at health professionals and students (from various disciplines) who are studying health care ethics, I consider four problems with the four principles, which respectively claim that the approach is (...)
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  6.  51
    Setting a Principled Boundary'? Euthanasia as a Response to 'Life Fatigue.Richard Huxtable & Maaike Möller - 2007 - Bioethics 21 (3):117–126.
  7.  27
    Core Information Sets for Informed Consent to Surgical Interventions: Baseline Information of Importance to Patients and Clinicians.Barry G. Main, Angus G. K. McNair, Richard Huxtable, Jenny L. Donovan, Steven J. Thomas, Paul Kinnersley & Jane M. Blazeby - 2017 - BMC Medical Ethics 18 (1):29.
    Consent remains a crucial, yet challenging, cornerstone of clinical practice. The ethical, legal and professional understandings of this construct have evolved away from a doctor-centred act to a patient-centred process that encompasses the patient’s values, beliefs and goals. This alignment of consent with the philosophy of shared decision-making was affirmed in a recent high-profile Supreme Court ruling in England. The communication of information is central to this model of health care delivery but it can be difficult for doctors to gauge (...)
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  8.  85
    The Suicide Tourist Trap: Compromise Across Boundaries. [REVIEW]Richard Huxtable - 2009 - Journal of Bioethical Inquiry 6 (3):327-336.
    Amongst the latest, and ever-changing, pathways of death and dying, “suicide tourism” presents distinctive ethical, legal and practical challenges. The international media report that citizens from across the world are travelling or seeking to travel to Switzerland, where they hope to be helped to die. In this paper I aim to explore three issues associated with this phenomenon: how to define “suicide tourism” and “assisted suicide tourism”, in which the suicidal individual is helped to travel to take up the option (...)
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  9.  12
    Clinic, Courtroom or (Specialist) Committee: In the Best Interests of the Critically Ill Child?Richard Huxtable - 2018 - Journal of Medical Ethics 44 (7):471-475.
    Law’s processes are likely always to be needed when particularly intractable conflicts arise in relation to the care of a critically ill child like Charlie Gard. Recourse to law has its merits, but it also imposes costs, and the courts’ decisions about the best interests of such children appear to suffer from uncertainty, unpredictability and insufficiency. The insufficiency arises from the courts’ apparent reluctance to enter into the ethical dimensions of such cases. Presuming that such reflection is warranted, this article (...)
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  10.  13
    Have We Made Progress in Identifying (Surgical) Innovation?Giles Birchley, Richard Huxtable, Jonathan Ives & Jane Blazeby - 2019 - American Journal of Bioethics 19 (6):25-27.
    Volume 19, Issue 6, June 2019, Page 25-27.
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  11.  24
    Smart Homes, Private Homes? An Empirical Study of Technology Researchers’ Perceptions of Ethical Issues in Developing Smart-Home Health Technologies.Giles Birchley, Richard Huxtable, Madeleine Murtagh, Ruud ter Meulen, Peter Flach & Rachael Gooberman-Hill - 2017 - BMC Medical Ethics 18 (1):23.
    Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology’s potential to increase the autonomy of people living with long-term conditions. Studies of the ethics of smart-homes raise concerns about privacy, consent, social isolation and equity of access. Few studies have investigated the ethical perspectives of smart-home engineers themselves. By exploring the views of engineering researchers in a large smart-home project, we sought (...)
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  12.  48
    Splitting the Difference? Principled Compromise and Assisted Dying.Richard Huxtable - 2014 - Bioethics 28 (9):472-480.
    Compromise on moral matters attracts ambivalent reactions, since it seems at once laudable and deplorable. When a hotly-contested phenomenon like assisted dying is debated, all-or-nothing positions tend to be advanced, with little thought given to the desirability of, or prospects for, compromise. In response to recent articles by Søren Holm and Alex Mullock, in this article I argue that principled compromise can be encouraged even in relation to this phenomenon, provided that certain conditions are present . In order to qualify (...)
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  13.  82
    The Ethics of Sham Surgery in Parkinson's Disease: Back to the Future?Teresa Swift & Richard Huxtable - 2013 - Bioethics 27 (4):175-185.
    Despite intense academic debate in the recent past over the use of ‘sham surgery’ control groups in research, there has been a recent resurgence in their use in the field of neurodegenerative disease. Yet the primacy of ethical arguments in favour of sham surgery controls is not yet established. Preliminary empirical research shows an asymmetry between the views of neurosurgical researchers and patients on the subject, while different ethical guidelines and regulations support conflicting interpretations. Research ethics committees faced with a (...)
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  14.  45
    Whatever You Want? Beyond the Patient in Medical Law.Richard Huxtable - 2008 - Health Care Analysis 16 (3):288-301.
    Simon Woods proposes that we ought to re-orientate clinical decisions at the end of life back towards the patient, so as to honour his or her account of their “global” interests. Woods condemns the current medico-legal approach for remaining too closely tethered to the views of doctors. In this response, I trace the story of Mrs Kelly Taylor, who sought to be sedated and have life-sustaining treatment withdrawn, and I do so in order to show not only why Woods is (...)
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  15.  22
    Gaining Face or Losing Face? Framing the Debate on Face Transplants.Richard Huxtable & Julie Woodley - 2005 - Bioethics 19 (5-6):505-522.
  16.  39
    ‘In a Twilight World’? Judging the Value of Life for the Minimally Conscious Patient.Richard Huxtable - 2013 - Journal of Medical Ethics 39 (9):565-569.
    The recent ruling from England on the case of M is one of very few worldwide to consider whether life-sustaining treatment, in the form of clinically assisted nutrition and hydration, should continue to be provided to a patient in a minimally conscious state. Formally concerned with the English law pertaining to precedent autonomy (specifically advance decision-making) and the best interests of the incapacitated patient, the judgment issued in M's case implicitly engages with three different accounts of the value of human (...)
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  17.  17
    Recent Developments.John Coggon, Richard Huxtable & Cameron Stewart - 2009 - Journal of Bioethical Inquiry 6 (4):405-413.
  18.  33
    Dying Well with Reduced Agency: A Scoping Review and Thematic Synthesis of the Decision-Making Process in Dementia, Traumatic Brain Injury and Frailty.Giles Birchley, Kerry Jones, Richard Huxtable, Jeremy Dixon, Jenny Kitzinger & Linda Clare - 2016 - BMC Medical Ethics 17 (1):46.
    BackgroundIn most Anglophone nations, policy and law increasingly foster an autonomy-based model, raising issues for large numbers of people who fail to fit the paradigm, and indicating problems in translating practical and theoretical understandings of ‘good death’ to policy. Three exemplar populations are frail older people, people with dementia and people with severe traumatic brain injury. We hypothesise that these groups face some over-lapping challenges in securing good end-of-life care linked to their limited agency. To better understand these challenges, we (...)
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  19.  19
    When Opportunity Knocks Twice: Dual Living Kidney Donation, Autonomy and the Public Interest.Phillippa Bailey & Richard Huxtable - 2016 - Bioethics 30 (2):119-128.
    Living kidney transplantation offers the best treatment in terms of life-expectancy and quality of life for those with end-stage renal disease. The long-term risks of living donor nephrectomy, although real, are very small, with evidence of good medium-term outcomes. Who should be entitled to donate, and in which circumstances, is nevertheless a live question. We explore the ethical dimensions of a request by an individual to donate both of their kidneys during life: ‘dual living kidney donation’. Our ethical analysis is (...)
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  20.  8
    Conceptualising Surgical Innovation: An Eliminativist Proposal.Giles Birchley, Jonathan Ives, Richard Huxtable & Jane Blazeby - 2020 - Health Care Analysis 28 (1):73-97.
    Improving surgical interventions is key to improving outcomes. Ensuring the safe and transparent translation of such improvements is essential. Evaluation and governance initiatives, including the IDEAL framework and the Macquarie Surgical Innovation Identification Tool have begun to address this. Yet without a definition of innovation that allows non-surgeons to identify when it is occurring, these initiatives are of limited value. A definition seems elusive, so we undertook a conceptual study of surgical innovation. This indicated common conceptual areas in discussions of (...)
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  21.  42
    Authorizing Psychiatric Research: Principles, Practices and Problems.Siow Ann Chong, Richard Huxtable & Alastair Campbell - 2011 - Bioethics 25 (1):27-36.
    Psychiatric research is advancing rapidly, with studies revealing new investigative tools and technologies that are aimed at improving the treatment and care of patients with psychiatric disorders. However, the ethical framework in which such research is conducted is not as well developed as we might expect. In this paper we argue that more thought needs to be given to the principles that underpin research in psychiatry and to the problems associated with putting those principles into practice. In particular, we comment (...)
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  22.  43
    Domiciliary Tracheostomy Long-Term Ventilation for Children with Neuromuscular Disease: A Framework for Ethical Decision-Making.James Fraser, Richard Huxtable & John Henderson - 2015 - Clinical Ethics 10 (4):115-124.
    Decisions about long-term ventilation in children can be clinically contentious and ethically challenging. In this article, the relevant legal, professional and moral principles inherent in such cases are explored. We commend the central importance of deliberation in the assessment of best interests, and propose a practical framework to assist the parent–clinical team to reach decisions in as transparent and equitable a manner as possible.
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  23.  23
    Institute of Medical Ethics Guidelines for Confirmation of Appointment, Promotion and Recognition of UK Bioethics and Medical Ethics Researchers.Lucy Frith, Carwyn Hooper, Silvia Camporesi, Thomas Douglas, Anna Smajdor, Emma Nottingham, Zoe Fritz, Merryn Ekberg & Richard Huxtable - 2018 - Journal of Medical Ethics 44 (5):289-291.
    This document is designed to give guidance on assessing researchers in bioethics/medical ethics. It is intended to assist members of selection, confirmation and promotion committees, who are required to assess those conducting bioethics research when they are not from a similar disciplinary background. It does not attempt to give guidance on the quality of bioethics research, as this is a matter for peer assessment. Rather it aims to give an indication of the type, scope and amount of research that is (...)
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  24.  20
    Dignity's Steer, Dignity's Subjects, Dignity's Synonyms? Three Questions for Dignity's Supporter.Richard Huxtable - 2015 - Journal of Medical Ethics 41 (12):936-937.
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  25.  3
    Dying Too Soon or Living Too Long? Withdrawing Treatment From Patients with Prolonged Disorders of Consciousness After Re Y.Richard Huxtable - 2019 - BMC Medical Ethics 20 (1):1-11.
    Background In the ruling in Y [2018], the UK Supreme Court has confirmed that there is no general requirement for the courts in England and Wales to authorise the withdrawal of clinically assisted nutrition and hydration from patients with prolonged disorders of consciousness. The perceived requirement, which originated in a court ruling in 1993, encompassed those in the vegetative state and those in the minimally conscious state. The ruling in Y confirms that the court may still be approached to decide (...)
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  26.  5
    Principle or Process at the End of Life?Richard Huxtable - 2016 - American Journal of Bioethics Neuroscience 7 (1):69-71.
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  27.  14
    Sedation, Communication and Compromise: A British Perspective.Richard Huxtable - 2011 - Asian Bioethics Review 3 (2):131-136.
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  28.  19
    Under the Knife and Under the Lens: Ethical Issues in Broadcasting Live Surgery.Richard Huxtable - 2013 - Clinical Ethics 8 (1):9-14.
    Live broadcasts of surgical procedures are most common at professional conferences, but they are not uncommon in the wider public arena, with operations having recently been transmitted in realtime on public television in the UK. This phenomenon raises ethical concerns familiar from the professional context, along with some distinct considerations which merit further attention. In this article I aim to examine the issues in terms of patient autonomy, patient welfare and the public interest. Prompted by the interest recently expressed by (...)
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  29.  23
    Why I Wrote …Euthanasia, Ethics and the Law: From Conflict to Compromise.Richard Huxtable - 2009 - Clinical Ethics 4 (1):31-35.
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  30.  7
    Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?Jonathan Ives, Giles Birchley & Richard Huxtable - 2020 - American Journal of Bioethics 20 (4):80-82.
    Volume 20, Issue 4, May 2020, Page 80-82.
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  31. License to Kill: A New Model for Excusing Medically Assisted Dying?Jonathan Ives & Richard Huxtable - 1st ed. 2015 - In Jukka Varelius & Michael Cholbi (eds.), New Directions in the Ethics of Assisted Suicide and Euthanasia. Springer Verlag.
     
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  32. Protocol for a Scoping Review to Understand What is Known About How GPs Make Decisions with, for and on Behalf of Patients Who Lack Capacity.Simon Jack Ogden, Richard Huxtable & Jonathan Ives - 2020 - BMJ Open 10.
    General Practitioners (GPs) and allied healthcare professionals working in primary care are regularly required to make decisions with, for and on behalf of patients who lack capacity. In England and Wales, these decisions are made for incapacitated adult patients under the Mental Capacity Act 2005, which primarily requires that decisions are made in the patient’s ‘best interests’. Regarding children, decisions are also made in their best interests but are done so under the Children Act 1989, which places paramount importance on (...)
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  33.  32
    Sale of Sperm, Health Records, Minimally Conscious States, and Duties of Candour.Cameron Stewart, Bernadette Richards, Richard Huxtable, Bill Madden & Tina Cockburn - 2012 - Journal of Bioethical Inquiry 9 (1):7-14.
    Sale of Sperm, Health Records, Minimally Conscious States, and Duties of Candour Content Type Journal Article Category Recent Developments Pages 7-14 DOI 10.1007/s11673-011-9347-6 Authors Cameron Stewart, Centre for Health Governance, Law and Ethics, Sydney Law School, University of Sydney, Sydney, NSW, Australia 2006 Bernadette Richards, Law School, University of Adelaide, Adelaide, SA, Australia 5005 Richard Huxtable, Centre for Ethics in Medicine, University of Bristol, Bristol, BS8 1TH UK Bill Madden, School of Law, University of Western Sydney, Sydney, NSW, Australia Tina (...)
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  34.  5
    Forgoing Life-Sustaining Treatment – a Comparative Analysis of Regulations in Japan, Korea, Taiwan, and England.Miho Tanaka, Satoshi Kodama, Ilhak Lee, Richard Huxtable & Yicheng Chung - 2020 - BMC Medical Ethics 21 (1):1-15.
    Background Regulations on forgoing life-sustaining treatment have developed in Asian countries including Japan, Korea and Taiwan. However, other countries are relatively unaware of these due to the language barrier. This article aims to describe and compare the relevant regulatory frameworks, using the situation in England as a point of reference. We undertook literature reviews to ascertain the legal and regulatory positions on forgoing LST in Japan, Korea, Taiwan, and England. Main text Findings from a literature review are first presented to (...)
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