36 found
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Richard R. Sharp [37]Richard Roy Sharp [1]
  1.  54
    A Systematic Review of Activities at a High-Volume Ethics Consultation Service.Courtenay R. Bruce, Martin L. Smith, Sabahat Hizlan & Richard R. Sharp - 2011 - Journal of Clinical Ethics 22 (2):151-164.
    We describe the ethics consultation service (ECS) at the Cleveland Clinic and report on its activities over a 24-month period in which 478 consultations were performed. To our knowledge, this is the largest case series of ethics consultations reported to date. Established more than 25 years ago, the ECS at the Cleveland Clinic is staffed by multiple consultants with advanced training in bioethics. Several of these ethicists work closely with specialized clinical units and research departments, where they participate in multidisciplinary (...)
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  2.  45
    Toward Competency-Based Certification of Clinical Ethics Consultants: A Four-Step Process.Martin L. Smith, Richard R. Sharp, Kathryn Weise & Eric Kodish - 2010 - Journal of Clinical Ethics 21 (1):14-22.
    While consensus exists among many practitioners of ethics consultation about the need for and identification of core competencies and standards, there has been virtually no attempt to determine how these competencies and standards are best taught and assessed. We believe that clinical ethics consultation has reached a state of sufficient maturity that expert practitioners can evaluate those who are new to the field. We will outline several steps that can facilitate the creation of a certification process for clinical ethics consultants, (...)
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  3.  43
    Multiple Marginalizations: What Bioethics Can Learn From Black Feminism.Amal W. Cheema, Karen M. Meagher & Richard R. Sharp - 2019 - American Journal of Bioethics 19 (2):1-3.
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  4.  25
    Involving Study Populations in the Review of Genetic Research.Richard R. Sharp & Morris W. Foster - 2000 - Journal of Law, Medicine and Ethics 28 (1):41-51.
    Research on human genetic variation can present collective risks to all members of a socially identifiable group. Research that associates race or ethnicity with a genetic disposition to disease, for example, presents risks of group discrimination and stigmatization. To better protect against these risks, some have proposed supplemental community-based reviews of research on genetic differences between populations. The assumption behind these appeals is that involving members of study populations in the review process can help to identify and minimize collective risks (...)
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  5.  27
    A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.Kyle B. Brothers, Suzanne M. Rivera, R. Jean Cadigan, Richard R. Sharp & Aaron J. Goldenberg - 2019 - Journal of Law, Medicine and Ethics 47 (1):165-172.
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  6.  79
    Practical Guidance for Charting Ethics Consultations.Courtenay R. Bruce, Martin L. Smith, Olubukunola Mary Tawose & Richard R. Sharp - 2014 - HEC Forum 26 (1):79-93.
    It is generally accepted that appropriate documentation of activities and recommendations of ethics consultants in patients’ medical records is critical. Despite this acceptance, the bioethics literature is largely devoid of guidance on key elements of an ethics chart note, the degree of specificity that it should contain, and its stylistic tenor. We aim to provide guidance for a variety of persons engaged in clinical ethics consultation: new and seasoned ethics committee members who are new to ethics consultation, students and trainees (...)
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  7.  65
    The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.Gail E. Henderson, Susan M. Wolf, Kristine J. Kuczynski, Steven Joffe, Richard R. Sharp, D. Williams Parsons, Bartha M. Knoppers, Joon-Ho Yu & Paul S. Appelbaum - 2014 - Journal of Law, Medicine and Ethics 42 (3):344-355.
    Large-scale sequencing tests, including whole-exome and whole-genome sequencing, are rapidly moving into clinical use. Sequencing is already being used clinically to identify therapeutic opportunities for cancer patients who have run out of conventional treatment options, to help diagnose children with puzzling neurodevelopmental conditions, and to clarify appropriate drug choices and dosing in individuals. To evaluate and support clinical applications of these technologies, the National Human Genome Research Institute and National Cancer Institute have funded studies on clinical and research sequencing under (...)
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  8.  32
    Who Is Buying Bioethics Research?Richard R. Sharp, Angela L. Scott, David C. Landy & Laura A. Kicklighter - 2008 - American Journal of Bioethics 8 (8):54-58.
    Growing ties to private industry have prompted many to question the impartiality of academic bioethicists who receive financial support from for-profit corporations in exchange for ethics-related services and research. To the extent that corporate sponsors may view bioethics as little more than a way to strengthen public relations or avoid potential controversy, close ties to industry may pose serious threats to professional independence. New sources of support from private industry may also divert bioethicists from pursuing topics of greater social importance, (...)
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  9.  21
    The Value of Patient Perspectives in an Ethical Analysis of Recruitment and Consent for Intracranial Electrophysiology Research.Jordan P. Richardson, Irena Balzekas, Brian Nils Lundstrom, Gregory A. Worrell & Richard R. Sharp - 2021 - American Journal of Bioethics Neuroscience 12 (1):75-77.
    We commend Mergenthaler and colleagues for bringing the topic of patient recruitment and consent in intracranial electrophysiology research to the attention of the neuroethics community. Mergenthal...
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  10.  13
    Justice in the Context of Family Balancing.Richard R. Sharp & Michelle L. McGowan - 2013 - Science, Technology, and Human Values 38 (2):271-293.
    Bioethics and feminist scholarship has explored various justice implications of nonmedical sex selection and family balancing. However, prospective users’ viewpoints have been absent from the debate over the socially acceptable bounds of nonmedical sex selection. This qualitative study provides a set of empirically grounded perspectives on the moral values that underpin prospective users’ conceptualizations of justice in the context of a family balancing program in the United States. The results indicate that couples pursuing family balancing understand justice primarily in individualist (...)
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  11.  60
    Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.Suzanne M. Rivera, Kyle B. Brothers, R. Jean Cadigan, Heather L. Harrell, Mark A. Rothstein, Richard R. Sharp & Aaron J. Goldenberg - 2017 - American Journal of Bioethics 17 (7):1-3.
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  12.  23
    Marketing the Research Missions of Academic Medical Centers: Why Messages Blurring Lines Between Clinical Care and Research Are Bad for both Business and Ethics.Mark Yarborough, Timothy Houk, Sarah Tinker Perrault, Yael Schenker & Richard R. Sharp - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (3):468-475.
    :Academic Medical Centers offer patient care and perform research. Increasingly, AMCs advertise to the public in order to garner income that can support these dual missions. In what follows, we raise concerns about the ways that advertising blurs important distinctions between them. Such blurring is detrimental to AMC efforts to fulfill critically important ethical responsibilities pertaining both to science communication and clinical research, because marketing campaigns can employ hype that weakens research integrity and contributes to therapeutic misconception and misestimation, undermining (...)
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  13.  26
    Additional thoughts on rethinking research ethics.Richard R. Sharp & Mark Yarborough - 2005 - American Journal of Bioethics 5 (1):40 – 42.
    Like many trained in philosophy, we greatly value the work of those scholars with the courage to espouse contrarian views, particularly when the ideas in dispute lie at the very heart of entrenched...
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  14.  32
    Allocation of Opportunities to Participate in Clinical Trials during the Covid‐19 Pandemic and Other Public Health Emergencies.Kayte Spector-Bagdady, Holly Fernandez Lynch, Barbara E. Bierer, Luke Gelinas, Sara Chandros Hull, David Magnus, Michelle N. Meyer, Richard R. Sharp, Jeremy Sugarman, Benjamin S. Wilfond, Ruqaiijah Yearby & Seema Mohapatra - 2021 - Hastings Center Report 52 (1):51-58.
    Hastings Center Report, Volume 52, Issue 1, Page 51-58, January/February 2022.
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  15.  36
    Clinical utility and full disclosure of genetic results to research participants.Richard R. Sharp & Morris W. Foster - 2006 - American Journal of Bioethics 6 (6):42 – 44.
  16.  27
    Beyond the Belmont Report.Wamia Siddiqui & Richard R. Sharp - 2021 - American Journal of Bioethics 21 (10):1-4.
    For decades, the Belmont Report—and the associated regulatory framework it inspired—has been a cornerstone in the ethical conduct of research involving human subjects. Despite its canonic status, t...
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  17.  50
    Grappling with groups: Protecting collective interests in biomedical research.Richard R. Sharp & Morris W. Foster - 2007 - Journal of Medicine and Philosophy 32 (4):321 – 337.
    Strategies for protecting historically disadvantaged groups have been extensively debated in the context of genetic variation research, making this a useful starting point in examining the protection of social groups from harm resulting from biomedical research. We analyze research practices developed in response to concerns about the involvement of indigenous communities in studies of genetic variation and consider their potential application in other contexts. We highlight several conceptual ambiguities and practical challenges associated with the protection of group interests and argue (...)
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  18.  29
    Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy.Jordan P. Richardson & Richard R. Sharp - 2020 - American Journal of Bioethics 20 (4):1-3.
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  19.  33
    Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?Richard R. Sharp - 2015 - American Journal of Bioethics 15 (11):1-2.
  20.  68
    The environmental genome project and bioethics.Richard R. Sharp & J. Carl Barrett - 1999 - Kennedy Institute of Ethics Journal 9 (2):175-188.
    In lieu of an abstract, here is a brief excerpt of the content:The Environmental Genome Project and BioethicsRichard R. Sharp (bio) and J. Carl Barrett (bio)Eight years ago, the Kennedy Institute of Ethics Journal published a brief selection by Eric Juengst (1991) entitled “The Human Genome Project and Bioethics.” That essay introduced and described the Ethical, Legal, and Social Implications (ELSI) Program at the National Center for Human Genome Research. 1 Since that time, the ELSI program has grown to become (...)
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  21.  27
    Ethical Aspects of Machine Listening in Healthcare.Austin M. Stroud, Joel E. Pacyna & Richard R. Sharp - 2023 - American Journal of Bioethics 23 (5):1-3.
    Good listening is an essential element in the provision of quality healthcare (Attree 2001). Good listening also supports accurate diagnosis, patient adherence to medical recommendations, and stron...
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  22.  34
    Teaching old dogs new tricks: Continuing education in research ethics.Richard R. Sharp - 2002 - American Journal of Bioethics 2 (4):55 – 56.
  23.  36
    Prudentia Populo: Involving the Community in Biobank Governance.Megan A. Allyse, Jennifer B. McCormick & Richard R. Sharp - 2015 - American Journal of Bioethics 15 (9):1-3.
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  24.  19
    Examining Physician Interactions with Disease Advocacy Organizations.Caroline Horrow, Joel E. Pacyna, Carol Cosenza & Richard R. Sharp - forthcoming - AJOB Empirical Bioethics:1-9.
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  25.  36
    Bridging the gap: ethical considerations of providing psychological assessment results in research studies.Alexandra C. Kirsch, Michael J. Zaccariello, Jennifer B. McCormick, Richard R. Sharp, Randall P. Flick & David O. Warner - 2021 - Ethics and Behavior 31 (6):381-394.
    ABSTRACT There is limited guidance about whether and how to provide psychological assessment results to research participants. This paper considers several ethical challenges associated with offering individual research results in psychological assessment research. Additionally, the process used to return individual results within a study examining neurodevelopmental effects of anesthesia exposure in children and adolescents is described. Almost all participants requested to know if results were concerning; however, only around a third of those with concerning findings sought additional feedback. Ongoing research (...)
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  26.  29
    Conflicts of Interest in Bioethics: A Response to Our Critics.David C. Landy & Richard R. Sharp - 2008 - American Journal of Bioethics 8 (8):1-2.
    Growing ties to private industry have prompted many to question the impartiality of academic bioethicists who receive financial support from for-profit corporations in exchange for ethics-related services and research. To the extent that corporate sponsors may view bioethics as little more than a way to strengthen public relations or avoid potential controversy, close ties to industry may pose serious threats to professional independence. New sources of support from private industry may also divert bioethicists from pursuing topics of greater social importance, (...)
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  27.  15
    Currents in Contemporary Ethics: Informed Trust and the Financing of Biomedical Research.Richard R. Sharp & Mark Yarborough - 2006 - Journal of Law, Medicine and Ethics 34 (2):460-464.
    Academic medical centers and drug manufacturers have traditionally occupied very distinct positions with regard to public trust. As collaborations among medical researchers and pharmaceutical companies expand, however, worries about the aggressive pursuit of profit that has tarnished the reputation of the pharmaceutical industry may be transferred to medical institutions and clinical investigators, suggesting to some that biomedical research is more about increasing profit than promoting public health. Consequently, when medical institutions forge research collaborations with industry they should be mindful of (...)
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  28.  17
    Can the Principles of Research Ethics Help Us Distribute Clinical Resources More Fairly?Richard R. Sharp & Hannah Giunta - 2020 - American Journal of Bioethics 20 (2):1-4.
    Volume 20, Issue 2, February 2020, Page 1-4.
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  29.  31
    Knowing who you want to be when you grow up: Implications for pediatric assent.Richard R. Sharp & Rosemary B. Quigley - 2003 - American Journal of Bioethics 3 (4):14 – 15.
  30.  22
    Ruffling a Few Feathers.Richard R. Sharp - 2015 - American Journal of Bioethics 15 (6):1-1.
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  31.  26
    The Need for “Big Bioethics” Research.Richard R. Sharp & Joel E. Pacyna - 2022 - American Journal of Bioethics 22 (1):3-5.
    Empirical bioethics research has become an established field of study, with its own unique goals, vocabulary, and methods, and wi...
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  32.  36
    When to Avoid Giving Advice on the Ethical Conduct of Research.Richard R. Sharp & Megan A. Allyse - 2018 - American Journal of Bioethics 18 (4):94-95.
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  33.  16
    What To Do With the Could-Be-Knowns of Genomic Medicine.Richard R. Sharp - 2013 - American Journal of Bioethics 13 (2):1-2.
  34.  33
    Genetic Fingerprints and National Security.Beau P. Sperry, Megan Allyse & Richard R. Sharp - 2017 - American Journal of Bioethics 17 (5):1-3.
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  35.  22
    Assessing Digital Mental Health Apps: The Importance of Patient-Centric Measures of Utility.Austin M. Stroud, Jordan Richardson & Richard R. Sharp - 2022 - American Journal of Bioethics Neuroscience 13 (3):209-211.
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  36.  24
    Owning Medical Professionalism.Jon C. Tilburt & Richard R. Sharp - 2016 - American Journal of Bioethics 16 (9):1-2.
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