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Richard R. Sharp [39]Richard Sharp [4]Richard Roy Sharp [1]
  1.  34
    A Systematic Review of Activities at a High-Volume Ethics Consultation Service.Courtenay R. Bruce, Martin L. Smith, Sabahat Hizlan & Richard R. Sharp - 2011 - Journal of Clinical Ethics 22 (2):151.
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  2.  21
    Toward Competency-Based Certification of Clinical Ethics Consultants: A Four-Step Process.Martin L. Smith, Richard R. Sharp, Kathryn Weise & Eric Kodish - 2010 - Journal of Clinical Ethics 21 (1):14.
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  3.  48
    The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.Gail E. Henderson, Susan M. Wolf, Kristine J. Kuczynski, Steven Joffe, Richard R. Sharp, D. Williams Parsons, Bartha M. Knoppers, Joon-Ho Yu & Paul S. Appelbaum - 2014 - Journal of Law, Medicine and Ethics 42 (3):344-355.
    Large-scale sequencing tests, including whole-exome and whole-genome sequencing, are rapidly moving into clinical use. Sequencing is already being used clinically to identify therapeutic opportunities for cancer patients who have run out of conventional treatment options, to help diagnose children with puzzling neurodevelopmental conditions, and to clarify appropriate drug choices and dosing in individuals. To evaluate and support clinical applications of these technologies, the National Human Genome Research Institute and National Cancer Institute have funded studies on clinical and research sequencing under (...)
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  4.  40
    Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research.Sara Chandros Hull, Richard Sharp, Jeffrey Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian Clarridge & Benjamin Wilfond - 2008 - American Journal of Bioethics 8 (10):62-70.
    It is unclear whether the regulatory distinction between non-identifiable and identifiable information—information used to determine informed consent practices for the use of clinically derived samples for genetic research—is meaningful to patients. The objective of this study was to examine patients' attitudes and preferences regarding use of anonymous and identifiable clinical samples for genetic research. Telephone interviews were conducted with 1,193 patients recruited from general medicine, thoracic surgery, or medical oncology clinics at five United States academic medical centers. Wanting to know (...)
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  5.  11
    Involving Study Populations in the Review of Genetic Research.Richard R. Sharp & Morris W. Foster - 2000 - Journal of Law, Medicine and Ethics 28 (1):41-51.
    Research on human genetic variation can present collective risks to all members of a socially identifiable group. Research that associates race or ethnicity with a genetic disposition to disease, for example, presents risks of group discrimination and stigmatization. To better protect against these risks, some have proposed supplemental community-based reviews of research on genetic differences between populations. The assumption behind these appeals is that involving members of study populations in the review process can help to identify and minimize collective risks (...)
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  6.  49
    Practical Guidance for Charting Ethics Consultations.Courtenay R. Bruce, Martin L. Smith, Olubukunola Mary Tawose & Richard R. Sharp - 2014 - HEC Forum 26 (1):79-93.
    It is generally accepted that appropriate documentation of activities and recommendations of ethics consultants in patients’ medical records is critical. Despite this acceptance, the bioethics literature is largely devoid of guidance on key elements of an ethics chart note, the degree of specificity that it should contain, and its stylistic tenor. We aim to provide guidance for a variety of persons engaged in clinical ethics consultation: new and seasoned ethics committee members who are new to ethics consultation, students and trainees (...)
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  7.  7
    Involving Study Populations in the Review of Genetic Research.Richard R. Sharp & Morris W. Foster - 2000 - Journal of Law, Medicine and Ethics 28 (1):41-51.
    Research on human genetic variation can present collective risks to all members of a socially identifiable group. Research that associates race or ethnicity with a genetic disposition to disease, for example, presents risks of group discrimination and stigmatization. To better protect against these risks, some have proposed supplemental community-based reviews of research on genetic differences between populations. The assumption behind these appeals is that involving members of study populations in the review process can help to identify and minimize collective risks (...)
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  8.  9
    A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.Kyle B. Brothers, Suzanne M. Rivera, R. Jean Cadigan, Richard R. Sharp & Aaron J. Goldenberg - 2019 - Journal of Law, Medicine and Ethics 47 (1):165-172.
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  9.  13
    Multiple Marginalizations: What Bioethics Can Learn From Black Feminism.Amal W. Cheema, Karen M. Meagher & Richard R. Sharp - 2019 - American Journal of Bioethics 19 (2):1-3.
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  10.  10
    Marketing the Research Missions of Academic Medical Centers: Why Messages Blurring Lines Between Clinical Care and Research Are Bad for Both Business and Ethics.Mark Yarborough, Timothy Houk, Sarah Tinker Perrault, Yael Schenker & Richard R. Sharp - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (3):468-475.
    :Academic Medical Centers offer patient care and perform research. Increasingly, AMCs advertise to the public in order to garner income that can support these dual missions. In what follows, we raise concerns about the ways that advertising blurs important distinctions between them. Such blurring is detrimental to AMC efforts to fulfill critically important ethical responsibilities pertaining both to science communication and clinical research, because marketing campaigns can employ hype that weakens research integrity and contributes to therapeutic misconception and misestimation, undermining (...)
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  11.  25
    Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.Suzanne M. Rivera, Kyle B. Brothers, R. Jean Cadigan, Heather L. Harrell, Mark A. Rothstein, Richard R. Sharp & Aaron J. Goldenberg - 2017 - American Journal of Bioethics 17 (7):1-3.
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  12.  12
    Who Is Buying Bioethics Research?Richard R. Sharp, Angela L. Scott, David C. Landy & Laura A. Kicklighter - 2008 - American Journal of Bioethics 8 (8):54-58.
    Growing ties to private industry have prompted many to question the impartiality of academic bioethicists who receive financial support from for-profit corporations in exchange for ethics-related services and research. To the extent that corporate sponsors may view bioethics as little more than a way to strengthen public relations or avoid potential controversy, close ties to industry may pose serious threats to professional independence. New sources of support from private industry may also divert bioethicists from pursuing topics of greater social importance, (...)
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  13.  6
    Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy.Jordan P. Richardson & Richard R. Sharp - 2020 - American Journal of Bioethics 20 (4):1-3.
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  14.  2
    Justice in the Context of Family Balancing.Richard R. Sharp & Michelle L. McGowan - 2013 - Science, Technology, and Human Values 38 (2):271-293.
    Bioethics and feminist scholarship has explored various justice implications of nonmedical sex selection and family balancing. However, prospective users’ viewpoints have been absent from the debate over the socially acceptable bounds of nonmedical sex selection. This qualitative study provides a set of empirically grounded perspectives on the moral values that underpin prospective users’ conceptualizations of justice in the context of a family balancing program in the United States. The results indicate that couples pursuing family balancing understand justice primarily in individualist (...)
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  15.  12
    Additional Thoughts on Rethinking Research Ethics.Richard R. Sharp & Mark Yarborough - 2005 - American Journal of Bioethics 5 (1):40 – 42.
  16.  15
    Clinical Utility and Full Disclosure of Genetic Results to Research Participants.Richard R. Sharp & Morris W. Foster - 2006 - American Journal of Bioethics 6 (6):42 – 44.
  17.  13
    Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?Richard R. Sharp - 2015 - American Journal of Bioethics 15 (11):1-2.
  18.  26
    Grappling with Groups: Protecting Collective Interests in Biomedical Research.Richard R. Sharp & Morris W. Foster - 2007 - Journal of Medicine and Philosophy 32 (4):321 – 337.
    Strategies for protecting historically disadvantaged groups have been extensively debated in the context of genetic variation research, making this a useful starting point in examining the protection of social groups from harm resulting from biomedical research. We analyze research practices developed in response to concerns about the involvement of indigenous communities in studies of genetic variation and consider their potential application in other contexts. We highlight several conceptual ambiguities and practical challenges associated with the protection of group interests and argue (...)
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  19.  18
    A Study to Elicit Behavioral Health Patients' and Providers' Opinions on Health Records Consent.Maria Adela Grando, Anita Murcko, Srividya Mahankali, Michael Saks, Michael Zent, Darwyn Chern, Christy Dye, Richard Sharp, Laura Young, Patricia Davis, Megan Hiestand & Neda Hassanzadeh - 2017 - Journal of Law, Medicine and Ethics 45 (2):238-259.
    A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control (...)
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  20.  15
    Examining the Potential for Exploitation by Local Intermediaries.David Landy & Richard Sharp - 2010 - American Journal of Bioethics 10 (3):12-13.
  21.  42
    The Environmental Genome Project and Bioethics.Richard R. Sharp & J. Carl Barrett - 1999 - Kennedy Institute of Ethics Journal 9 (2):175-188.
  22.  3
    Assessing Digital Mental Health Apps: The Importance of Patient-Centric Measures of Utility.Austin M. Stroud, Jordan Richardson & Richard R. Sharp - 2022 - American Journal of Bioethics Neuroscience 13 (3):209-211.
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  23.  4
    The Need for “Big Bioethics” Research.Richard R. Sharp & Joel E. Pacyna - 2021 - American Journal of Bioethics 22 (1):3-5.
    Empirical bioethics research has become an established field of study, with its own unique goals, vocabulary, and methods, and wi...
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  24.  11
    Teaching Old Dogs New Tricks: Continuing Education in Research Ethics.Richard R. Sharp - 2002 - American Journal of Bioethics 2 (4):55 – 56.
  25. Allocation of Opportunities to Participate in Clinical Trials During the Covid‐19 Pandemic and Other Public Health Emergencies.Kayte Spector-Bagdady, Holly Fernandez Lynch, Barbara E. Bierer, Luke Gelinas, Sara Chandros Hull, David Magnus, Michelle N. Meyer, Richard R. Sharp, Jeremy Sugarman, Benjamin S. Wilfond, Ruqaiijah Yearby & Seema Mohapatra - 2022 - Wiley: Hastings Center Report 52 (1).
    Hastings Center Report, Volume 52, Issue 1, Page 51-58, January/February 2022.
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  26.  3
    Allocation of Opportunities to Participate in Clinical Trials During the Covid‐19 Pandemic and Other Public Health Emergencies.Kayte Spector-Bagdady, Holly Fernandez Lynch, Barbara E. Bierer, Luke Gelinas, Sara Chandros Hull, David Magnus, Michelle N. Meyer, Richard R. Sharp, Jeremy Sugarman, Benjamin S. Wilfond, Ruqaiijah Yearby & Seema Mohapatra - 2022 - Wiley: Hastings Center Report 52 (1):51-58.
    Hastings Center Report, Volume 52, Issue 1, Page 51-58, January/February 2022.
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  27.  17
    When to Avoid Giving Advice on the Ethical Conduct of Research.Richard R. Sharp & Megan A. Allyse - 2018 - American Journal of Bioethics 18 (4):94-95.
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  28.  16
    Currents in Contemporary Ethics: Informed Trust and the Financing of Biomedical Research.Richard R. Sharp & Mark Yarborough - 2006 - Journal of Law, Medicine and Ethics 34 (2):460-464.
    Academic medical centers and drug manufacturers have traditionally occupied very distinct positions with regard to public trust. As collaborations among medical researchers and pharmaceutical companies expand, however, worries about the aggressive pursuit of profit that has tarnished the reputation of the pharmaceutical industry may be transferred to medical institutions and clinical investigators, suggesting to some that biomedical research is more about increasing profit than promoting public health. Consequently, when medical institutions forge research collaborations with industry they should be mindful of (...)
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  29.  6
    Bridging the Gap: Ethical Considerations of Providing Psychological Assessment Results in Research Studies.Alexandra C. Kirsch, Michael J. Zaccariello, Jennifer B. McCormick, Richard R. Sharp, Randall P. Flick & David O. Warner - 2021 - Ethics and Behavior 31 (6):381-394.
    ABSTRACT There is limited guidance about whether and how to provide psychological assessment results to research participants. This paper considers several ethical challenges associated with offering individual research results in psychological assessment research. Additionally, the process used to return individual results within a study examining neurodevelopmental effects of anesthesia exposure in children and adolescents is described. Almost all participants requested to know if results were concerning; however, only around a third of those with concerning findings sought additional feedback. Ongoing research (...)
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  30.  5
    Examining Physician Interactions with Disease Advocacy Organizations.Caroline Horrow, Joel E. Pacyna, Carol Cosenza & Richard R. Sharp - forthcoming - Ajob Empirical Bioethics:1-9.
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  31.  10
    Owning Medical Professionalism.Jon C. Tilburt & Richard R. Sharp - 2016 - American Journal of Bioethics 16 (9):1-2.
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  32.  12
    AJOB 2.0: Taking Bioethics to a New Level.David Magnus, Kayhan Parsi & Richard Sharp - 2014 - American Journal of Bioethics 14 (8):1-2.
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  33.  9
    Prudentia Populo: Involving the Community in Biobank Governance.Megan A. Allyse, Jennifer B. McCormick & Richard R. Sharp - 2015 - American Journal of Bioethics 15 (9):1-3.
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  34.  4
    The Value of Patient Perspectives in an Ethical Analysis of Recruitment and Consent for Intracranial Electrophysiology Research.Jordan P. Richardson, Irena Balzekas, Brian Nils Lundstrom, Gregory A. Worrell & Richard R. Sharp - 2021 - American Journal of Bioethics Neuroscience 12 (1):75-77.
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  35.  15
    Knowing Who You Want to Be When You Grow Up: Implications for Pediatric Assent.Richard R. Sharp & Rosemary B. Quigley - 2003 - American Journal of Bioethics 3 (4):14 – 15.
  36.  6
    Genetic Fingerprints and National Security.Beau P. Sperry, Megan Allyse & Richard R. Sharp - 2017 - American Journal of Bioethics 17 (5):1-3.
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  37.  13
    Conflicts of Interest in Bioethics: A Response to Our Critics.David C. Landy & Richard R. Sharp - 2008 - American Journal of Bioethics 8 (8):1-2.
    Growing ties to private industry have prompted many to question the impartiality of academic bioethicists who receive financial support from for-profit corporations in exchange for ethics-related services and research. To the extent that corporate sponsors may view bioethics as little more than a way to strengthen public relations or avoid potential controversy, close ties to industry may pose serious threats to professional independence. New sources of support from private industry may also divert bioethicists from pursuing topics of greater social importance, (...)
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  38.  1
    Allocation of Opportunities to Participate in Clinical Trials During the Covid‐19 Pandemic and Other Public Health Emergencies.Kayte Spector-Bagdady, Holly Fernandez Lynch, Barbara E. Bierer, Luke Gelinas, Sara Chandros Hull, David Magnus, Michelle N. Meyer, Richard R. Sharp, Jeremy Sugarman, Benjamin S. Wilfond, Ruqaiijah Yearby & Seema Mohapatra - 2022 - Hastings Center Report 52 (1):51-58.
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  39.  7
    Ruffling a Few Feathers.Richard R. Sharp - 2015 - American Journal of Bioethics 15 (6):1-1.
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  40.  2
    Beyond the Belmont Report.Wamia Siddiqui & Richard R. Sharp - 2021 - American Journal of Bioethics 21 (10):1-4.
    For decades, the Belmont Report—and the associated regulatory framework it inspired—has been a cornerstone in the ethical conduct of research involving human subjects. Despite its canonic status, t...
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  41.  7
    What To Do With the Could-Be-Knowns of Genomic Medicine.Richard R. Sharp - 2013 - American Journal of Bioethics 13 (2):1 - 2.
  42.  2
    Can the Principles of Research Ethics Help Us Distribute Clinical Resources More Fairly?Richard R. Sharp & Hannah Giunta - 2020 - American Journal of Bioethics 20 (2):1-4.
    Volume 20, Issue 2, February 2020, Page 1-4.
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  43.  17
    Bioethics Consultation and Patient Advocacy Organizations: Expanding the Dialogue About Professional Conflicts of Interest.Mark Yarborough & Richard R. Sharp - 2007 - Cambridge Quarterly of Healthcare Ethics 16 (1):74-81.
    Although bioethics consultation has always drawn the ire of critics, its extension into areas such as paid consultation with private industry has raised new concerns. Critics of consulting relationships with industry question the sincerity of for-profit corporations who seek ethical advice, alleging that a desire for improved public relations is a primary motivation of these corporations. They also question whether compensation for ethical advice creates insuperable conflicts of interest that bias the work produced. The decision of two influential professional societies (...)
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