10 found
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  1.  9
    Evaluating Clinical Ethics Support: A Participatory Approach.Suzanne Metselaar, Guy Widdershoven, Rouven Porz & Bert Molewijk - 2017 - Bioethics 31 (4):258-266.
    The current process towards formalization within evaluation research, in particular the use of pre-set standards and the focus on predefined outcomes, implies a shift of ownership from the people who are actually involved in real clinical ethics support services in a specific context to external stakeholders who increasingly gain a say in what ‘good CESS’ should look like. The question is whether this does justice to the insights and needs of those who are directly involved in actual CESS practices, be (...)
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  2.  41
    How to Relate the Empirical to the Normative.Christoph Rehmann-Sutter, Rouven Porz & Jackie Leach Scully - 2012 - Cambridge Quarterly of Healthcare Ethics 21 (4):436-447.
  3.  23
    Donating Embryos to Stem Cell Research.Jackie Scully, Erica Haimes, Anika Mitzkat, Rouven Porz & Christoph Rehmann-Sutter - 2012 - Journal of Bioethical Inquiry 9 (1):19-28.
    This paper is based on linked qualitative studies of the donation of human embryos to stem cell research carried out in the United Kingdom, Switzerland, and China. All three studies used semi-structured interview protocols to allow an in-depth examination of donors’ and non-donors’ rationales for their donation decisions, with the aim of gaining information on contextual and other factors that play a role in donor decisions and identifying how these relate to factors that are more usually included in evaluations made (...)
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  4.  27
    'You Don't Make Genetic Test Decisions From One Day to the Next' – Using Time to Preserve Moral Space.Jackie Leach Scully, Rouven Porz & Christoph Rehmann-Sutter - 2007 - Bioethics 21 (4):208–217.
  5.  6
    A Pragmatist Approach to Clinical Ethics Support: Overcoming the Perils of Ethical Pluralism.Giulia Inguaggiato, Suzanne Metselaar, Rouven Porz & Guy Widdershoven - forthcoming - Medicine, Health Care and Philosophy.
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  6.  25
    Theory and Practice of Clinical Ethics Support Services: Narrative and Hermeneutical Perspectives.Rouven Porz, Elleke Landeweer & Guy Widdershoven - 2011 - Bioethics 25 (7):354-360.
    In this paper we introduce narrative and hermeneutical perspectives to clinical ethics support services (CESS). We propose a threefold consideration of ‘theory’ and show how it is interwoven with ‘practice’ as we go along. First, we look at theory in its foundational role: in our case ‘narrative ethics’ and ‘philosophical hermeneutics’ provide a theoretical base for clinical ethics by focusing on human identities entangled in stories and on moral understanding as a dialogical process. Second, we consider the role of theoretical (...)
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  7.  7
    How to Relate the Empirical to the Normative - Toward a Phenomenologically Informed Hermeneutic Approach to Bioethics.Christoph Rehmann-Sutter, Rouven Porz & Jackie Scully - 2012 - Cambridge Quarterly of Healthcare Ethics 21 (4):436-447.
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  8.  1
    “If an Acute Event Occurs, What Should We Do?” Diverse Ethical Approaches to Decision-Making in the ICU.Federico Nicoli, Paul Cummins, Joseph A. Raho, Rouven Porz, Giulio Minoja & Mario Picozzi - forthcoming - Medicine, Health Care and Philosophy.
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  9.  41
    Predictive Testing and Existential Absurdity: Resonances Between Experiences Around Genetic Diagnosis and the Philosophy of Albert Camus.Rouven Porz & Guy Widdershoven - 2011 - Bioethics 25 (6):342-350.
    Predictive genetic testing may confront those affected with difficult life situations that they have not experienced before. These life situations may be interpreted as ‘absurd’. In this paper we present a case study of a predictive test situation, showing the perspective of a woman going through the process of deciding for or against taking the test, and struggling with feelings of alienation. To interpret her experiences, we refer to the concept of absurdity, developed by the French Philosopher Albert Camus. Camus' (...)
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  10.  16
    Tragedy and Grenzsituationen in Genetic Prediction.Kjetil Rommetveit & Rouven Porz - 2009 - Medicine, Health Care and Philosophy 12 (1):9-16.
    Philosophical anthropologies that emphasise the role of the emotions can be used to expand existing notions of moral agency and learning in situations of great moral complexity. In this article we tell the story of one patient facing the tough decision of whether to be tested for Huntington’s disease or not. We then interpret her story from two different but compatible philosophical entry points: Aristotle’s conception of Greek tragedy and Karl Jaspers’ notion of Grenzsituationen (boundary situations). We continue by indicating (...)
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