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Ruth R. Faden [33]Ruth Faden [21]
  1.  68
    Social Justice: The Moral Foundations of Public Health and Health Policy.Madison Powers & Ruth Faden - 2008 - Oup Usa.
    In bioethics, discussions of justice have tended to focus on questions of fairness in access to health care: is there a right to medical treatment, and how should priorities be set when medical resources are scarce. But health care is only one of many factors that determine the extent to which people live healthy lives, and fairness is not the only consideration in determining whether a health policy is just. In this pathbreaking book, senior bioethicists Powers and Faden confront foundational (...)
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  2.  14
    The Limitations of "Vulnerability" as a Protection for Human Research Participants.Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler & Jeremy Sugarman - 2004 - American Journal of Bioethics 4 (3):44 – 49.
    Vulnerability is one of the least examined concepts in research ethics. Vulnerability was linked in the Belmont Report to questions of justice in the selection of subjects. Regulations and policy documents regarding the ethical conduct of research have focused on vulnerability in terms of limitations of the capacity to provide informed consent. Other interpretations of vulnerability have emphasized unequal power relationships between politically and economically disadvantaged groups and investigators or sponsors. So many groups are now considered to be vulnerable in (...)
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  3.  14
    Public Health Ethics: Mapping the Terrain.James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg - 2002 - Journal of Law, Medicine & Ethics 30 (2):170-178.
  4.  9
    An Ethics Framework for a Learning Health Care System: A Departure From Traditional Research Ethics and Clinical Ethics.Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):16-27.
  5.  21
    The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):4-15.
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  6. Liberty, Mill and the Framework of Public Health Ethics.Madison Powers, Ruth Faden & Yashar Saghai - 2012 - Public Health Ethics 5 (1):6-15.
    In this article, we address the relevance of J.S. Mill’s political philosophy for a framework of public health ethics. In contrast to some readings of Mill, we reject the view that in the formulation of public policies liberties of all kinds enjoy an equal presumption in their favor. We argue that Mill also rejects this view and discuss the distinction that Mill makes between three kinds of liberty interests: interests that are immune from state interference; interests that enjoy a presumption (...)
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  7.  11
    Women and Health Research: Ethical and Legal Issues of Including Women in Clinical Studies.Anna C. Mastroianni, Ruth R. Faden & Daniel D. Federman (eds.) - 1994 - National Academy Press.
    Executive Summary There is a general perception that biomedical research has not given the same attention to the health problems of women that it has given ...
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  8. Social Practices, Public Health and the Twin Aims of Justice: Responses to Comments.Madison Powers & Ruth Faden - 2013 - Public Health Ethics 6 (1):45-49.
  9.  3
    What Patients Say About Medical Research.Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden - forthcoming - IRB: Ethics & Human Research.
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  10.  4
    Public Health Ethics: Mapping the Terrain.James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg - 2002 - Journal of Law, Medicine and Ethics 30 (2):170-178.
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  11.  20
    Planning for an Influenza Pandemic: Social Justice and Disadvantaged Groups.Lori Uscher-Pines, Patrick S. Duggan, Joshua P. Garoon, Ruth A. Karron & Ruth R. Faden - 2007 - Hastings Center Report 37 (4):32-39.
    : Because an influenza pandemic would create the most serious hardships for those who already face most serious hardships, countries should take special measures to mitigate the effect of a pandemic on existing social inequalities. Unfortunately, there is little evidence that anybody is thinking about that.
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  12.  2
    Response to Open Peer Commentaries on “Medical and Nursing Students' Television Viewing Habits: Potential Implications for Bioethics”.Matthew Czarny, Ruth Faden, Marie Nolan, Edwin Bodensiek & Jeremy Sugarman - 2008 - American Journal of Bioethics 8 (12):1-1.
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  13.  17
    Trust The Fragile Foundation of Contemporary Biomedical Research.Nancy E. Kass, Jeremy Sugarman, Ruth Faden & Monica Schoch‐Spana - 1996 - Hastings Center Report 26 (5):25-29.
  14.  12
    The Second Wave: Toward Responsible Inclusion of Pregnant Women in Research.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth Faden - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):5-22.
    Though much progress has been made on inclusion of non-pregnant women in research, thoughtful discussion about including pregnant women has lagged behind. We outline resulting knowledge gaps and their costs and then highlight four reasons why ethically we are obliged to confront the challenges of including pregnant women in clinical research. These are: the need for effective treatment for women during pregnancy, fetal safety, harm from the reticence to prescribe potentially beneficial medication, and the broader issues of justice and access (...)
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  15.  5
    Categorizing Empirical Research in Bioethics: Why Count the Ways?Jeremy Sugarman, Nancy Kass & Ruth Faden - 2009 - American Journal of Bioethics 9 (6):66-67.
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  16.  21
    Public Stem Cell Banks: Considerations of Justice in Stem Cell Research and Therapy.Ruth R. Faden, Liza Dawson, Alison S. Bateman‐House, Dawn Mueller Agnew, Hilary Bok, Dan W. Brock, Aravinda Chakravarti, Xiao‐Jiang Gao, Mark Greene, John A. Hansen, Patricia A. King, Stephen J. O'Brien, David H. Sachs, Kathryn E. Schill, Andrew Siegel, Davor Solter, Sonia M. Suter, Catherine M. Verfaillie, Leroy B. Walters & John D. Gearhart - 2003 - Hastings Center Report 33 (6):13-27.
    If stem cell-based therapies are developed, we will likely confront a difficult problem of justice: for biological reasons alone, the new therapies might benefit only a limited range of patients. In fact, they might benefit primarily white Americans, thereby exacerbating long-standing differences in health and health care.
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  17.  13
    Medical and Nursing Students' Television Viewing Habits: Potential Implications for Bioethics.Matthew J. Czarny, Ruth R. Faden, Marie T. Nolan, Edwin Bodensiek & Jeremy Sugarman - 2008 - American Journal of Bioethics 8 (12):1 – 8.
    Television medical dramas frequently depict the practice of medicine and bioethical issues in a strikingly realistic but sometimes inaccurate fashion. Because these shows depict medicine so vividly and are so relevant to the career interests of medical and nursing students, they may affect these students' beliefs, attitudes, and perceptions regarding the practice of medicine and bioethical issues. We conducted a web-based survey of medical and nursing students to determine the medical drama viewing habits and impressions of bioethical issues depicted in (...)
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  18.  18
    Reframing the Framework: Toward Fair Inclusion of Pregnant Women as Participants in Research.Ruth R. Faden, Margaret Olivia Little & Anne Drapkin Lyerly - 2011 - American Journal of Bioethics 11 (5):50-52.
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  19.  14
    A Critique of the 'Fetus as Patient'.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - American Journal of Bioethics 8 (7):42 – 44.
  20.  48
    Inequalities in Health, Inequalities in Health Care: Four Generations of Discussion About Justice and Cost-Effectiveness Analysis.Madison Powers & Ruth R. Faden - 2000 - Kennedy Institute of Ethics Journal 10 (2):109-127.
    : The focus of questions of justice in health policy has shifted during the last 20 years, beginning with questions about rights to health care, and then, by the late 1980s, turning to issues of rationing. More recently, attention has focused on alternatives to cost-effectiveness analysis. In addition, health inequalities, and not just inequalities in access to health care, have become the subject of moral analysis. This article examines how such trends have transformed the philosophical landscape and encouraged some in (...)
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  21.  3
    On the Importance of Research Ethics and Mentoring.Ruth R. Faden, Michael J. Klag, Nancy E. Kass & Sharon S. Krag - 2002 - American Journal of Bioethics 2 (4):50 – 51.
  22.  26
    A Social Justice Framework for Health and Science Policy.Ruth Faden & Madison Powers - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (04):596-604.
    The goal of this article is to explore how a social justice framework can help illuminate the role that consent should play in health and science policy. In the first section, we set the stage for our inquiry with the important case of Henrietta Lacks. Without her knowledge or consent, or that of her family, Mrs. Lacks’s cells gave rise to an enormous advance in biomedical science—the first immortal human cell line, or HeLa cells.
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  23.  20
    The Ethics of Aggregation and Hormone Replacement Therapy.Anne Drapkin Lyerly, Evan R. Myers & Ruth R. Faden - 2001 - Health Care Analysis 9 (2):187-211.
    The use of aggregated quality of life estimatesin the formation of public policy and practiceguidelines raises concerns about the moralrelevance of variability in values inpreferences for health care. This variabilitymay reflect unique and deeply held beliefs thatmay be lost when averaged with the preferencesof other individuals. Feminist moral theorieswhich argue for attention to context andparticularity underline the importance ofascertaining the extent to which differences inpreferences for health states revealinformation which is morally relevant toclinicians and policymakers. To facilitatethese considerations, we present (...)
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  24.  13
    Learning Health Care Systems and Justice.Ruth R. Faden, Tom L. Beauchamp & Nancy E. Kass - 2011 - Hastings Center Report 41 (4):3-3.
    Emily Largent, Steven Joffe, and Franklin Miller offer a stimulating contribution to the literature on integrating medical research and practice. We agree on both the need to move toward what the Institute of Medicine has called a learning health care system and the need for new conceptions for integrating research and practice within it. We also agree with the authors’ view, first advanced by Robert Truog and colleagues in 1999, that it can be ethically acceptable to randomize patients without express (...)
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  25.  4
    The Advisory Committee on Human Radiation Experiments.Ruth Faden - 1996 - Hastings Center Report 26 (5):5-10.
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  26.  25
    Pregnancy and Clinical Research.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - Hastings Center Report 38 (6):3-3.
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  27. History of Informed Consent.Tom L. Beauchamp & Ruth R. Faden - forthcoming - Encyclopedia of Bioethics.
     
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  28.  33
    Biotechnology, Justice and Health.Ruth Faden & Madison Powers - 2013 - Journal of Practical Ethics 1 (1):49-61.
    New biotechnologies have the potential to both dramatically improve human well-being and dramatically widen inequalities in well-being. This paper addresses a question that lies squarely on the fault line of these two claims: When as a matter of justice are societies obligated to include a new biotechnology in a national healthcare system? This question is approached from the standpoint of a twin aim theory of justice, in which social structures, including nation-states, have double-barreled theoretical objectives with regard to human well-being. (...)
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  29.  4
    Bioethics: A Field in Transition.Ruth R. Faden - 2004 - Journal of Law, Medicine & Ethics 32 (2):276-278.
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  30.  6
    The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine & Ethics 31 (3):429-433.
  31.  3
    A Response to Commentators on “The Limitations of 'Vulnerability' as a Protection for Human Research Participants”.Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler & Jeremy Sugarman - 2004 - American Journal of Bioethics 4 (3):W32-W32.
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  32. The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine and Ethics 31 (3):429-433.
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  33.  10
    Managed Care and Informed Consent.Ruth R. Faden - 1997 - Kennedy Institute of Ethics Journal 7 (4):377-379.
    : Arguments for efficiency in health care delivery have been used to support some level of withholding of information about available treatment options from patients in managed care systems. To the extent that such arguments prevail, they may necessitate changes in the established understanding of and commitment to informed consent and the disclosure of information to patients.
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  34.  1
    Research with Pregnant Women: New Insights on Legal Decision‐Making.Anna C. Mastroianni, Leslie Meltzer Henry, David Robinson, Theodore Bailey, Ruth R. Faden, Margaret O. Little & Anne Drapkin Lyerly - 2017 - Hastings Center Report 47 (3):38-45.
    U.S. researchers and scholars often point to two legal factors as significant obstacles to the inclusion of pregnant women in clinical research: the Department of Health and Human Services’ regulatory limitations specific to pregnant women's research participation and the fear of liability for potential harm to children born following a pregnant woman's research participation. This article offers a more nuanced view of the potential legal complexities that can impede research with pregnant women than has previously been reflected in the literature. (...)
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  35.  15
    The Value of Unhealthy Eating and the Ethics of Healthy Eating Policies.Anne Barnhill, Katherine F. King, Nancy Kass & Ruth Faden - 2014 - Kennedy Institute of Ethics Journal 24 (3):187-217.
    As concerns about the negative health effects of unhealthy eating, overweight and obesity have increased, so too have policy efforts to promote healthy eating. Federal, state, and local governments have proposed and implemented a variety of healthy eating policies. Many of these policies are controversial, facing objections that range from the practical (e.g., the policy won’t succeed at improving people’s diets) to the ethical (e.g., the policy is paternalistic or inequitable). Especially controversial have been policies limiting the options offered in (...)
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  36.  3
    The Right To Know In The Workplace.Ruth R. Faden & Tom L. Beauchamp - 1982 - Canadian Journal of Philosophy 12 (sup1):177-210.
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  37.  4
    Women and Health Research: A Report From the Institute of Medicine.Anna C. Mastroianni, Ruth Faden & Daniel Federman - 1994 - Kennedy Institute of Ethics Journal 4 (1):55-62.
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  38.  1
    A Social Justice Framework For Health And Science Policy.Ruth Faden & Madison Powers - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):596-604.
    The goal of this article is to explore how a social justice framework can help illuminate the role that consent should play in health and science policy. In the first section, we set the stage for our inquiry with the important case of Henrietta Lacks. Without her knowledge or consent, or that of her family, Mrs. Lacks’s cells gave rise to an enormous advance in biomedical science—the first immortal human cell line, or HeLa cells.
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  39.  13
    Informed Consent and Clinical Research.Ruth R. Faden - 1996 - Kennedy Institute of Ethics Journal 6 (4):356-359.
  40.  7
    Physicians'Attitudes Toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine & Ethics 21 (2):238-240.
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  41.  3
    Social Value Judgements in Healthcare: A Philosophical Critique.Laura R. Biron, Ruth Faden & Benedict Rumbold - unknown
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  42.  2
    Respect and Dignity: A Conceptual Model for Patients in the Intensive Care Unit.Leslie Meltzer Henry, Cynda Rushton, Mary Catherine Beach & Ruth Faden - 2015 - Narrative Inquiry in Bioethics 5 (1A):5A-14A.
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  43.  2
    Stakeholders' Views of Alternatives to Prospective Informed Consent for Minimal‐Risk Pragmatic Comparative Effectiveness Trials.Danielle Whicher, Nancy Kass & Ruth Faden - 2015 - Journal of Law, Medicine and Ethics 43 (2):397-409.
    As interest in comparative effectiveness research grows, questions have emerged regarding whether it is ever acceptable to alter informed consent requirements for research when patients are randomly assigned to widely-used therapies. This paper reports on interviews with Institutional Review Board members and researchers and on focus groups with patients from Geisinger and Johns Hopkins health systems. The objective was to elicit participants' views of the acceptability of four different disclosure and authorization models for low-risk pragmatic comparative effectiveness trials of widely-used (...)
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  44.  7
    Alternatives to National Average Income Data as Eligibility Criteria for International Subsidies: A Social Justice Perspective.Sirine Shebaya, Andrea Sutherland, Orin Levine & Ruth Faden - 2010 - Developing World Bioethics 10 (3):141-149.
    Current strategies to address global inequities in access to life-saving vaccines use averaged national income data to determine eligibility. While largely successful in the lowest income countries, we argue that this approach could lead to significant inefficiencies from the standpoint of justice if applied to middle-income countries, where income inequalities are large and lead to national averages that obscure truly needy populations. Instead, we suggest alternative indicators more sensitive to social justice concerns that merit consideration by policy-makers developing new initiatives (...)
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  45.  1
    Physicians'Attitudes Toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine and Ethics 21 (2):238-240.
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  46.  1
    Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics.Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman - 1994 - Journal of Law, Medicine and Ethics 22 (1):29-35.
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  47.  4
    HIV and Assisted Reproductive Technology: Women and Healthcare Policy.Anne Drapkin Lyerly & Ruth R. Faden - 2003 - American Journal of Bioethics 3 (1):41-43.
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  48.  1
    The Effect of Education on Physicians' Knowledge of a Laboratory Test: The Case of Maternal Serum Alpha-Fetoprotein Screening.Neil A. Holtzman, Ruth R. Faden, Claire O. Leonard, Gary A. Chase & S. R. Ulrich - 1991 - Journal of Clinical Ethics 2 (4):243.
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  49.  1
    Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics.Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman - 1994 - Journal of Law, Medicine & Ethics 22 (1):29-35.
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  50.  1
    Chair's Perspective on the Work of the Advisory Committee on Human Radiation Experiments.Ruth R. Faden - 1996 - Kennedy Institute of Ethics Journal 6 (3):215-221.
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