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Ruth R. Faden [41]Ruth Faden [24]
  1. Social Justice: The Moral Foundations of Public Health and Health Policy.Madison Powers & Ruth Faden - 2008 - Oup Usa.
    In bioethics, discussions of justice have tended to focus on questions of fairness in access to health care: is there a right to medical treatment, and how should priorities be set when medical resources are scarce. But health care is only one of many factors that determine the extent to which people live healthy lives, and fairness is not the only consideration in determining whether a health policy is just. In this pathbreaking book, senior bioethicists Powers and Faden confront foundational (...)
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  2. Public Health Ethics: Mapping the Terrain.James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg - 2002 - Journal of Law, Medicine and Ethics 30 (2):170-178.
    Public health ethics, like the field of public health it addresses, traditionally has focused more on practice and particular cases than on theory, with the result that some concepts, methods, and boundaries remain largely undefined. This paper attempts to provide a rough conceptual map of the terrain of public health ethics. We begin by briefly defining public health and identifying general features of the field that are particularly relevant for a discussion of public health ethics.Public health is primarily concerned with (...)
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  3.  74
    An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics.Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):16-27.
    Calls are increasing for American health care to be organized as a learning health care system, defined by the Institute of Medicine as a health care system “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care.” We applaud this conception, and in this paper, we put forward a new ethics framework for it. No such (...)
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  4.  59
    Structural Injustice: Power, Advantage, and Human Rights.Madison Powers & Ruth R. Faden - 2019 - Oup Usa.
    Structural Injustice advances a theory of what structural injustice is and how it works. Powers and Faden present both a philosophically powerful, integrated theory about human rights violations and structural unfairness, alongside practical insights into how to improve them.
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  5. The limitations of "vulnerability" as a protection for human research participants.Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler & Jeremy Sugarman - 2004 - American Journal of Bioethics 4 (3):44 – 49.
    Vulnerability is one of the least examined concepts in research ethics. Vulnerability was linked in the Belmont Report to questions of justice in the selection of subjects. Regulations and policy documents regarding the ethical conduct of research have focused on vulnerability in terms of limitations of the capacity to provide informed consent. Other interpretations of vulnerability have emphasized unequal power relationships between politically and economically disadvantaged groups and investigators or sponsors. So many groups are now considered to be vulnerable in (...)
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  6.  73
    The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):4-15.
    Calls are increasing for American health care to be organized as a learning health care system, defined by the Institute of Medicine as a health care system “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care.” We applaud this conception, and in this paper, we put forward a new ethics framework for it. No such (...)
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  7.  45
    "Public Health Ethics".Ruth Faden & Justin Bernstein - 2020 - Stanford Encyclopedia of Philosophy.
    This encyclopedia entry provides an overview of the field of public health ethics. It focuses on what distinguishes public health ethics from other nearby subfields—especially biomedical ethics. It also frames the problems of public health ethics in terms of the concepts of justice and political legitimacy.
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  8.  39
    The second wave: Toward responsible inclusion of pregnant women in research.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth Faden - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):5-22.
    Though much progress has been made on inclusion of non-pregnant women in research, thoughtful discussion about including pregnant women has lagged behind. We outline resulting knowledge gaps and their costs and then highlight four reasons why ethically we are obliged to confront the challenges of including pregnant women in clinical research. These are: the need for effective treatment for women during pregnancy, fetal safety, harm from the reticence to prescribe potentially beneficial medication, and the broader issues of justice and access (...)
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  9. Liberty, Mill and the Framework of Public Health Ethics.Madison Powers, Ruth Faden & Yashar Saghai - 2012 - Public Health Ethics 5 (1):6-15.
    In this article, we address the relevance of J.S. Mill’s political philosophy for a framework of public health ethics. In contrast to some readings of Mill, we reject the view that in the formulation of public policies liberties of all kinds enjoy an equal presumption in their favor. We argue that Mill also rejects this view and discuss the distinction that Mill makes between three kinds of liberty interests: interests that are immune from state interference; interests that enjoy a presumption (...)
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  10.  47
    Women and health research: ethical and legal issues of including women in clinical studies.Anna C. Mastroianni, Ruth R. Faden & Daniel D. Federman (eds.) - 1994 - Washington, D.C.: National Academy Press.
    Executive Summary There is a general perception that biomedical research has not given the same attention to the health problems of women that it has given ...
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  11.  84
    The Value of Unhealthy Eating and the Ethics of Healthy Eating Policies.Anne Barnhill, Katherine F. King, Nancy Kass & Ruth Faden - 2014 - Kennedy Institute of Ethics Journal 24 (3):187-217.
    As concerns about the negative health effects of unhealthy eating, overweight and obesity have increased, so too have policy efforts to promote healthy eating. Federal, state, and local governments have proposed and implemented a variety of healthy eating policies. Many of these policies are controversial, facing objections that range from the practical (e.g., the policy won’t succeed at improving people’s diets) to the ethical (e.g., the policy is paternalistic or inequitable). Especially controversial have been policies limiting the options offered in (...)
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  12.  68
    Trust: The Fragile Foundation of Contemporary Biomedical Research.Nancy E. Kass, Jeremy Sugarman, Ruth Faden & Monica Schoch-Spana - 1996 - Hastings Center Report 26 (5):25-29.
    It is widely assumed that informing prospective subjects about the risks and possible benefits of research not only protects their rights as autonomous decisionmakers, but also empowers them to protect their own interests. Yet interviews with patient‐subjects conducted under the auspices of the Advisory Committee on Human Radiation Experiments suggest this is not always the case. Patient‐subjects often trust their physician to guide them through decisions on research participation. Clinicians, investigators, and IRBs must assure that such trust is not misplaced.
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  13.  13
    Ethical Tradeoffs in Public Health Emergency Crisis Communication.Justin Bernstein, Anne Barnhill & Ruth R. Faden - 2024 - American Journal of Bioethics 24 (4):83-85.
    Spitale et al. (2024) address a public health ethics question of great importance: How should governments communicate with the public during public health emergencies? The article highlights severa...
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  14.  44
    Learning Is Not Enough: Earning Institutional Trustworthiness Through Knowledge Translation.Stephanie R. Morain, Nancy E. Kass & Ruth R. Faden - 2018 - American Journal of Bioethics 18 (4):31-34.
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  15. History of informed consent.Tom L. Beauchamp & Ruth R. Faden - 1986 - Encyclopedia of Bioethics.
     
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  16.  40
    A critique of the 'fetus as patient'.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - American Journal of Bioethics 8 (7):42 – 44.
  17.  33
    Alternative consent models for comparative effectiveness studies: Views of patients from two institutions.Nancy Kass, Ruth Faden, Rachel E. Fabi, Stephanie Morain, Kristina Hallez, Danielle Whicher, Sean Tunis, Rachael Moloney, Donna Messner & James Pitcavage - 2016 - AJOB Empirical Bioethics 7 (2):92-105.
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  18.  99
    Planning for an influenza pandemic: Social justice and disadvantaged groups.Lori Uscher-Pines, Patrick S. Duggan, Joshua P. Garoon, Ruth A. Karron & Ruth R. Faden - 2007 - Hastings Center Report 37 (4):32-39.
    : Because an influenza pandemic would create the most serious hardships for those who already face most serious hardships, countries should take special measures to mitigate the effect of a pandemic on existing social inequalities. Unfortunately, there is little evidence that anybody is thinking about that.
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  19.  58
    Medical and nursing students' television viewing habits: Potential implications for bioethics.Matthew J. Czarny, Ruth R. Faden, Marie T. Nolan, Edwin Bodensiek & Jeremy Sugarman - 2008 - American Journal of Bioethics 8 (12):1 – 8.
    Television medical dramas frequently depict the practice of medicine and bioethical issues in a strikingly realistic but sometimes inaccurate fashion. Because these shows depict medicine so vividly and are so relevant to the career interests of medical and nursing students, they may affect these students' beliefs, attitudes, and perceptions regarding the practice of medicine and bioethical issues. We conducted a web-based survey of medical and nursing students to determine the medical drama viewing habits and impressions of bioethical issues depicted in (...)
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  20.  23
    Categorizing Empirical Research in Bioethics: Why Count the Ways?Jeremy Sugarman, Nancy Kass & Ruth Faden - 2009 - American Journal of Bioethics 9 (6-7):66-67.
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  21.  97
    Public Stem Cell Banks: Considerations of Justice in Stem Cell Research and Therapy.Ruth R. Faden, Liza Dawson, Alison S. Bateman-House, Dawn Mueller Agnew, Hilary Bok, Dan W. Brock, Aravinda Chakravarti, Xiao-Jiang Gao, Mark Greene, John A. Hansen, Patricia A. King, Stephen J. O'Brien, David H. Sachs, Kathryn E. Schill, Andrew Siegel, Davor Solter, Sonia M. Suter, Catherine M. Verfaillie, LeRoy B. Walters & John D. Gearhart - 2003 - Hastings Center Report 33 (6):13-27.
    If stem cell-based therapies are developed, we will likely confront a difficult problem of justice: for biological reasons alone, the new therapies might benefit only a limited range of patients. In fact, they might benefit primarily white Americans, thereby exacerbating long-standing differences in health and health care.
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  22.  22
    The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine and Ethics 31 (3):429-433.
    In the past ten years, there has been growing interest in and concern about protecting the privacy of personal medical information. Insofar as medical records increasingly are stored electronically, and electronic information can be shared easily and widely, there have been legislative efforts as well as scholarly analyses calling for greater privacy protections to ensure that patients can feel safe disclosing personal information to their health-care providers. At the same time, the volume of biomedical research conducted in this country continues (...)
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  23.  34
    What Patients Say about Medical Research.Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden - 1998 - IRB: Ethics & Human Research 20 (4):1.
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  24. Social Practices, Public Health and the Twin Aims of Justice: Responses to Comments.Madison Powers & Ruth Faden - 2013 - Public Health Ethics 6 (1):45-49.
    Articles by Lyn Horn and Alison Thompson highlight several points crucial to understanding how our theory figures in wider debates about social justice as well as the particular relevance of our theory for assessing the overall practice of public health (Horn, 2013; Thompson, 2013). We begin with these two articles, first to respond to and concur with many of their central points, and second to set the stage for dealing more efficiently with some points raised in the other articles.
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  25.  21
    Moral Reasons for Individuals in High-Income Countries to Limit Beef Consumption.Jessica Fanzo, Travis N. Rieder, Rebecca McLaren, Ruth Faden, Justin Bernstein & Anne Barnhill - 2022 - Food Ethics 7 (2):1-27.
    This paper argues that individuals in many high-income countries typically have moral reasons to limit their beef consumption and consume plant-based protein instead, given the negative effects of beef production and consumption. Beef production is a significant source of agricultural greenhouse gas emissions and other environmental impacts, high levels of beef consumption are associated with health risks, and some cattle production systems raise animal welfare concerns. These negative effects matter, from a variety of moral perspectives, and give us collective moral (...)
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  26.  47
    A Social Justice Framework for Health and Science Policy.Ruth Faden & Madison Powers - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):596-604.
    The goal of this article is to explore how a social justice framework can help illuminate the role that consent should play in health and science policy. In the first section, we set the stage for our inquiry with the important case of Henrietta Lacks. Without her knowledge or consent, or that of her family, Mrs. Lacks’s cells gave rise to an enormous advance in biomedical science—the first immortal human cell line, or HeLa cells.
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  27.  48
    Reframing the Framework: Toward Fair Inclusion of Pregnant Women as Participants in Research.Ruth R. Faden, Margaret Olivia Little & Anne Drapkin Lyerly - 2011 - American Journal of Bioethics 11 (5):50-52.
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  28.  31
    Women and Health Research: A Report from the Institute of Medicine.Anna C. Mastroianni, Ruth Faden & Daniel Federman - 1994 - Kennedy Institute of Ethics Journal 4 (1):55-62.
    In lieu of an abstract, here is a brief excerpt of the content:Women and Health Research:A Report from the Institute of MedicineAnna C. Mastroianni (bio), Ruth Faden (bio), and Daniel Federman (bio)In recent years, claims have been made by segments of the research community and by women's health advocacy groups that clinical research practices and policies have not benefitted women's health to the same extent as men's health. Central to these claims has been an assertion that women have been inadequately (...)
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  29.  34
    The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine and Ethics 31 (3):429-433.
    In the past ten years, there has been growing interest in and concern about protecting the privacy of personal medical information. Insofar as medical records increasingly are stored electronically, and electronic information can be shared easily and widely, there have been legislative efforts as well as scholarly analyses calling for greater privacy protections to ensure that patients can feel safe disclosing personal information to their health-care providers. At the same time, the volume of biomedical research conducted in this country continues (...)
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  30.  52
    Respect and Dignity: A Conceptual Model for Patients in the Intensive Care Unit.Leslie Meltzer Henry, Cynda Rushton, Mary Catherine Beach & Ruth Faden - 2015 - Narrative Inquiry in Bioethics 5 (1):5-14.
    Although the concept of dignity is commonly invoked in clinical care, there is not widespread agreement—in either the academic literature or in everyday clinical conversations—about what dignity means. Without a framework for understanding dignity, it is difficult to determine what threatens patients’ dignity and, conversely, how to honor commitments to protect and promote it. This article aims to change that by offering the first conceptual model of dignity for patients in the intensive care unit. The conceptual model we present is (...)
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  31.  36
    Response to Open Peer Commentaries on “Medical and Nursing Students' Television Viewing Habits: Potential Implications for Bioethics”.Matthew Czarny, Ruth Faden, Marie Nolan, Edwin Bodensiek & Jeremy Sugarman - 2008 - American Journal of Bioethics 8 (12):1-1.
    Television medical dramas frequently depict the practice of medicine and bioethical issues in a strikingly realistic but sometimes inaccurate fashion. Because these shows depict medicine so vividly and are so relevant to the career interests of medical and nursing students, they may affect these students' beliefs, attitudes, and perceptions regarding the practice of medicine and bioethical issues. We conducted a web-based survey of medical and nursing students to determine the medical drama viewing habits and impressions of bioethical issues depicted in (...)
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  32.  23
    On the importance of research ethics and mentoring.Ruth R. Faden, Michael J. Klag, Nancy E. Kass & Sharon S. Krag - 2002 - American Journal of Bioethics 2 (4):50 – 51.
  33.  91
    Inequalities in health, inequalities in health care: Four generations of discussion about justice and cost-effectiveness analysis.Madison Powers & Ruth R. Faden - 2000 - Kennedy Institute of Ethics Journal 10 (2):109-127.
    : The focus of questions of justice in health policy has shifted during the last 20 years, beginning with questions about rights to health care, and then, by the late 1980s, turning to issues of rationing. More recently, attention has focused on alternatives to cost-effectiveness analysis. In addition, health inequalities, and not just inequalities in access to health care, have become the subject of moral analysis. This article examines how such trends have transformed the philosophical landscape and encouraged some in (...)
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  34.  43
    Learning Health Care Systems and Justice.Ruth R. Faden, Tom L. Beauchamp & Nancy E. Kass - 2011 - Hastings Center Report 41 (4):3-3.
    Response to Emily A. Largent, Franklin G. Miller and Steven Joffe, A Prescription for Ethical Learning, Hastings Center Report, 43, s1, (S28-S29), (2013).
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  35.  43
    Pregnancy and Clinical Research.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - Hastings Center Report 38 (6):3-3.
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  36.  13
    The Advisory Committee on Human Radiation Experiments: Reflections on a Presidential Commission.Ruth Faden - 1996 - Hastings Center Report 26 (5):5-10.
    Like the National Commission and the President's Commission, the Advisory Committee on Human Radiation Experiments was formed to carry out specific ethical tasks. Yet the committee also had an “openness” mission, a charge to investigate allegations that the U.S. government secretly exposed Americans to environmental releases of radiation. Eighteen months later—and after sixteen public meetings, more than 200 interviews, and the review of about 400,000 documents—the committee delivered a 925‐page report to the president.
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  37.  16
    Social Value Judgements in Healthcare: A Philosophical Critique.Laura R. Biron, Ruth Faden & Benedict Rumbold - 2012 - Journal of Health Organization and Management 26 (3):317-30.
    PURPOSE: The purpose of this paper is to consider some of the philosophical and bioethical issues raised by the creation of the draft social values framework developed to facilitate data collection and country-specific presentations at the inaugural workshop on "Social values and health priority setting" held in February 2011. -/- DESIGN/METHODOLOGY/APPROACH: Conceptual analysis is used to analyse the term "social values", as employed in the framework, and its relationship to related ideas such as moral values. The structure of the framework (...)
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  38.  46
    Pregnant women should not be categorised as a ‘vulnerable population’ in biomedical research studies: ending a vicious cycle of ‘vulnerability’.Carleigh B. Krubiner & Ruth R. Faden - 2017 - Journal of Medical Ethics 43 (10):664-665.
    A new study published in Journal of Medical Ethics by van der Zande et al 1 further highlights why classifying pregnant women as a ‘vulnerable population’ in the context of research is deeply problematic. Because the designation of ‘vulnerable’ is otherwise applied to populations whose decision-making capacity about research participation is somehow compromised—such as children and adults of limited cognitive ability—many of us have been arguing for some time that using this designation for pregnant women is inappropriate and disrespectful.2–4 There (...)
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  39.  51
    A Response to Commentators on “The Limitations of 'Vulnerability' as a Protection for Human Research Participants”.Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler & Jeremy Sugarman - 2004 - American Journal of Bioethics 4 (3):W32-W32.
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  40.  22
    HIV and Assisted Reproductive Technology: Women and Healthcare Policy.Anne Drapkin Lyerly & Ruth R. Faden - 2003 - American Journal of Bioethics 3 (1):41-43.
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  41.  49
    The Ethics of Aggregation and Hormone Replacement Therapy.Anne Drapkin Lyerly, Evan R. Myers & Ruth R. Faden - 2001 - Health Care Analysis 9 (2):187-211.
    The use of aggregated quality of life estimatesin the formation of public policy and practiceguidelines raises concerns about the moralrelevance of variability in values inpreferences for health care. This variabilitymay reflect unique and deeply held beliefs thatmay be lost when averaged with the preferencesof other individuals. Feminist moral theorieswhich argue for attention to context andparticularity underline the importance ofascertaining the extent to which differences inpreferences for health states revealinformation which is morally relevant toclinicians and policymakers. To facilitatethese considerations, we present (...)
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  42.  56
    Research with Pregnant Women: New Insights on Legal Decision‐Making.Anna C. Mastroianni, Leslie Meltzer Henry, David Robinson, Theodore Bailey, Ruth R. Faden, Margaret O. Little & Anne Drapkin Lyerly - 2017 - Hastings Center Report 47 (3):38-45.
    U.S. researchers and scholars often point to two legal factors as significant obstacles to the inclusion of pregnant women in clinical research: the Department of Health and Human Services’ regulatory limitations specific to pregnant women's research participation and the fear of liability for potential harm to children born following a pregnant woman's research participation. This article offers a more nuanced view of the potential legal complexities that can impede research with pregnant women than has previously been reflected in the literature. (...)
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  43. Biotechnology, Justice and Health.Ruth Faden & Madison Powers - 2013 - Journal of Practical Ethics 1 (1):49-61.
    New biotechnologies have the potential to both dramatically improve human well-being and dramatically widen inequalities in well-being. This paper addresses a question that lies squarely on the fault line of these two claims: When as a matter of justice are societies obligated to include a new biotechnology in a national healthcare system? This question is approached from the standpoint of a twin aim theory of justice, in which social structures, including nation-states, have double-barreled theoretical objectives with regard to human well-being. (...)
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  44.  24
    The Ethics of Social Research: Surveys and Experiments.Gideon Sjoberg, Ted R. Vaughan, Tom L. Beauchamp, Ruth R. Faden, R. Jay Wallace, LeRoy Walters, Allan J. Kimmel, Martin Bulmer & Joan E. Sieber - 1983 - Hastings Center Report 13 (2):44.
    Book reviewed in this article: Ethical Issues in Social Research. Edited by Tom L. Beauchamp, Ruth R. Faden, R. Jay Wallace, Jr., and LeRoy Walters. Baltimore: The Johns Hopkins University Press, 1982. xii + 436 pp. $25.00 (hardcover); $8.95 (paper). Ethics of Human Subject Research. Edited by Allan J. Kimmel, Jr. San Francisco: Jossey‐Bass, 1981. 106 pp. $6.95 (paper). Social Research Ethics. Edited by Martin Bulmer. New York: Holmes & Meier, 1982. xiv + 284 pp. $39.50 (hardcover); $14.50 (paper). The (...)
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  45.  16
    Challenges in the Ethics and Implementation of Learning Health Care Systems.Matthew Crane, Stephanie Morain, Nancy Kass, Ruth Faden & Robert M. Califf - 2023 - American Journal of Bioethics 23 (8):1-4.
    Pragmatic clinical trials (PCTs) serve an important function in the modern research landscape: studying interventions in an environment that reflects real-world conditions, rather than the relative...
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  46. Stakeholders' Views of Alternatives to Prospective Informed Consent for Minimal‐Risk Pragmatic Comparative Effectiveness Trials.Danielle Whicher, Nancy Kass & Ruth Faden - 2015 - Journal of Law, Medicine and Ethics 43 (2):397-409.
    As interest in comparative effectiveness research grows, questions have emerged regarding whether it is ever acceptable to alter informed consent requirements for research when patients are randomly assigned to widely-used therapies. This paper reports on interviews with Institutional Review Board members and researchers and on focus groups with patients from Geisinger and Johns Hopkins health systems. The objective was to elicit participants' views of the acceptability of four different disclosure and authorization models for low-risk pragmatic comparative effectiveness trials of widely-used (...)
     
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  47.  12
    Bioethics: A Field in Transition.Ruth R. Faden - 2004 - Journal of Law, Medicine and Ethics 32 (2):276-278.
    Bioethics is clearly a field in transition, if not confusion. Bioethics began as a scholarly, reflective, academic enterprise. Increasingly, however, some in bioethics are not as interested in producing scholarship as they are in practicing bioethics by providing services to institutions and clients.Bioethics also began as an interdisciplinary line of inquiry, with its major contributors all trained in some established discipline. We were and for the most part still are a field composed of theologians, philosophers, lawyers, physicians, nurses, and social (...)
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  48.  17
    Bioethics: A Field in Transition.Ruth R. Faden - 2004 - Journal of Law, Medicine and Ethics 32 (2):276-278.
    Bioethics is clearly a field in transition, if not confusion. Bioethics began as a scholarly, reflective, academic enterprise. Increasingly, however, some in bioethics are not as interested in producing scholarship as they are in practicing bioethics by providing services to institutions and clients.Bioethics also began as an interdisciplinary line of inquiry, with its major contributors all trained in some established discipline. We were and for the most part still are a field composed of theologians, philosophers, lawyers, physicians, nurses, and social (...)
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  49.  35
    Streamlined versus traditional consent for low-risk comparative effectiveness trials: a randomized experimental study to measure patients' and public attitudes.Nancy Kass, Ruth Faden, Stephanie Morain, Kristina Hallez, Rebecca Stametz, Amanda Milo & Deserae Clarke - 2022 - Journal of Comparative Effectiveness Research 11 (5).
    Aim: Streamlining consent for low-risk comparative effectiveness research (CER) could facilitate research, while safeguarding patients' rights. Materials & methods: 2618 adults were randomized to one of seven consent approaches (six streamlined and one traditional) for a hypothetical, low-risk CER study. A survey measured understanding, voluntariness, and feelings of respect. Results: Participants in all arms had a high understanding of the trial and positive attitudes toward the consent interaction. Highest satisfaction was with a streamlined approach showing a video before the medical (...)
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  50.  22
    Chair's perspective on the work of the advisory committee on human radiation experiments.Ruth R. Faden - 1996 - Kennedy Institute of Ethics Journal 6 (3):215-221.
    In lieu of an abstract, here is a brief excerpt of the content:Chair’s Perspective on the Work of the Advisory Committee on Human Radiation ExperimentsRuth Faden (bio)On January 15, 1994, President Clinton created the Advisory Committee on Human Radiation Experiments in response to his concern about the increasing number of reports describing alleged unethical conduct of the U.S. Government, and institutions funded by the government, in the use of, or exposure to, ionizing radiation in human beings at the height of (...)
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