41 found
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  1. Public Health Ethics: Mapping the Terrain.James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg - 2002 - Journal of Law, Medicine and Ethics 30 (2):170-178.
    Public health ethics, like the field of public health it addresses, traditionally has focused more on practice and particular cases than on theory, with the result that some concepts, methods, and boundaries remain largely undefined. This paper attempts to provide a rough conceptual map of the terrain of public health ethics. We begin by briefly defining public health and identifying general features of the field that are particularly relevant for a discussion of public health ethics.Public health is primarily concerned with (...)
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  2.  74
    An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics.Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):16-27.
    Calls are increasing for American health care to be organized as a learning health care system, defined by the Institute of Medicine as a health care system “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care.” We applaud this conception, and in this paper, we put forward a new ethics framework for it. No such (...)
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  3.  59
    Structural Injustice: Power, Advantage, and Human Rights.Madison Powers & Ruth R. Faden - 2019 - Oup Usa.
    Structural Injustice advances a theory of what structural injustice is and how it works. Powers and Faden present both a philosophically powerful, integrated theory about human rights violations and structural unfairness, alongside practical insights into how to improve them.
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  4.  73
    The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):4-15.
    Calls are increasing for American health care to be organized as a learning health care system, defined by the Institute of Medicine as a health care system “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care.” We applaud this conception, and in this paper, we put forward a new ethics framework for it. No such (...)
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  5.  47
    Women and health research: ethical and legal issues of including women in clinical studies.Anna C. Mastroianni, Ruth R. Faden & Daniel D. Federman (eds.) - 1994 - Washington, D.C.: National Academy Press.
    Executive Summary There is a general perception that biomedical research has not given the same attention to the health problems of women that it has given ...
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  6.  13
    Ethical Tradeoffs in Public Health Emergency Crisis Communication.Justin Bernstein, Anne Barnhill & Ruth R. Faden - 2024 - American Journal of Bioethics 24 (4):83-85.
    Spitale et al. (2024) address a public health ethics question of great importance: How should governments communicate with the public during public health emergencies? The article highlights severa...
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  7.  44
    Learning Is Not Enough: Earning Institutional Trustworthiness Through Knowledge Translation.Stephanie R. Morain, Nancy E. Kass & Ruth R. Faden - 2018 - American Journal of Bioethics 18 (4):31-34.
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  8. History of informed consent.Tom L. Beauchamp & Ruth R. Faden - 1986 - Encyclopedia of Bioethics.
     
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  9.  40
    A critique of the 'fetus as patient'.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - American Journal of Bioethics 8 (7):42 – 44.
  10.  99
    Planning for an influenza pandemic: Social justice and disadvantaged groups.Lori Uscher-Pines, Patrick S. Duggan, Joshua P. Garoon, Ruth A. Karron & Ruth R. Faden - 2007 - Hastings Center Report 37 (4):32-39.
    : Because an influenza pandemic would create the most serious hardships for those who already face most serious hardships, countries should take special measures to mitigate the effect of a pandemic on existing social inequalities. Unfortunately, there is little evidence that anybody is thinking about that.
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  11.  58
    Medical and nursing students' television viewing habits: Potential implications for bioethics.Matthew J. Czarny, Ruth R. Faden, Marie T. Nolan, Edwin Bodensiek & Jeremy Sugarman - 2008 - American Journal of Bioethics 8 (12):1 – 8.
    Television medical dramas frequently depict the practice of medicine and bioethical issues in a strikingly realistic but sometimes inaccurate fashion. Because these shows depict medicine so vividly and are so relevant to the career interests of medical and nursing students, they may affect these students' beliefs, attitudes, and perceptions regarding the practice of medicine and bioethical issues. We conducted a web-based survey of medical and nursing students to determine the medical drama viewing habits and impressions of bioethical issues depicted in (...)
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  12.  22
    The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine and Ethics 31 (3):429-433.
    In the past ten years, there has been growing interest in and concern about protecting the privacy of personal medical information. Insofar as medical records increasingly are stored electronically, and electronic information can be shared easily and widely, there have been legislative efforts as well as scholarly analyses calling for greater privacy protections to ensure that patients can feel safe disclosing personal information to their health-care providers. At the same time, the volume of biomedical research conducted in this country continues (...)
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  13.  34
    What Patients Say about Medical Research.Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden - 1998 - IRB: Ethics & Human Research 20 (4):1.
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  14.  97
    Public Stem Cell Banks: Considerations of Justice in Stem Cell Research and Therapy.Ruth R. Faden, Liza Dawson, Alison S. Bateman-House, Dawn Mueller Agnew, Hilary Bok, Dan W. Brock, Aravinda Chakravarti, Xiao-Jiang Gao, Mark Greene, John A. Hansen, Patricia A. King, Stephen J. O'Brien, David H. Sachs, Kathryn E. Schill, Andrew Siegel, Davor Solter, Sonia M. Suter, Catherine M. Verfaillie, LeRoy B. Walters & John D. Gearhart - 2003 - Hastings Center Report 33 (6):13-27.
    If stem cell-based therapies are developed, we will likely confront a difficult problem of justice: for biological reasons alone, the new therapies might benefit only a limited range of patients. In fact, they might benefit primarily white Americans, thereby exacerbating long-standing differences in health and health care.
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  15.  48
    Reframing the Framework: Toward Fair Inclusion of Pregnant Women as Participants in Research.Ruth R. Faden, Margaret Olivia Little & Anne Drapkin Lyerly - 2011 - American Journal of Bioethics 11 (5):50-52.
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  16.  34
    The Use of Medical Records in Research: What Do Patients Want?Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman - 2003 - Journal of Law, Medicine and Ethics 31 (3):429-433.
    In the past ten years, there has been growing interest in and concern about protecting the privacy of personal medical information. Insofar as medical records increasingly are stored electronically, and electronic information can be shared easily and widely, there have been legislative efforts as well as scholarly analyses calling for greater privacy protections to ensure that patients can feel safe disclosing personal information to their health-care providers. At the same time, the volume of biomedical research conducted in this country continues (...)
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  17.  23
    On the importance of research ethics and mentoring.Ruth R. Faden, Michael J. Klag, Nancy E. Kass & Sharon S. Krag - 2002 - American Journal of Bioethics 2 (4):50 – 51.
  18.  91
    Inequalities in health, inequalities in health care: Four generations of discussion about justice and cost-effectiveness analysis.Madison Powers & Ruth R. Faden - 2000 - Kennedy Institute of Ethics Journal 10 (2):109-127.
    : The focus of questions of justice in health policy has shifted during the last 20 years, beginning with questions about rights to health care, and then, by the late 1980s, turning to issues of rationing. More recently, attention has focused on alternatives to cost-effectiveness analysis. In addition, health inequalities, and not just inequalities in access to health care, have become the subject of moral analysis. This article examines how such trends have transformed the philosophical landscape and encouraged some in (...)
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  19.  43
    Learning Health Care Systems and Justice.Ruth R. Faden, Tom L. Beauchamp & Nancy E. Kass - 2011 - Hastings Center Report 41 (4):3-3.
    Response to Emily A. Largent, Franklin G. Miller and Steven Joffe, A Prescription for Ethical Learning, Hastings Center Report, 43, s1, (S28-S29), (2013).
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  20.  43
    Pregnancy and Clinical Research.Anne Drapkin Lyerly, Margaret Olivia Little & Ruth R. Faden - 2008 - Hastings Center Report 38 (6):3-3.
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  21.  47
    Pregnant women should not be categorised as a ‘vulnerable population’ in biomedical research studies: ending a vicious cycle of ‘vulnerability’.Carleigh B. Krubiner & Ruth R. Faden - 2017 - Journal of Medical Ethics 43 (10):664-665.
    A new study published in Journal of Medical Ethics by van der Zande et al 1 further highlights why classifying pregnant women as a ‘vulnerable population’ in the context of research is deeply problematic. Because the designation of ‘vulnerable’ is otherwise applied to populations whose decision-making capacity about research participation is somehow compromised—such as children and adults of limited cognitive ability—many of us have been arguing for some time that using this designation for pregnant women is inappropriate and disrespectful.2–4 There (...)
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  22.  22
    HIV and Assisted Reproductive Technology: Women and Healthcare Policy.Anne Drapkin Lyerly & Ruth R. Faden - 2003 - American Journal of Bioethics 3 (1):41-43.
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  23.  49
    The Ethics of Aggregation and Hormone Replacement Therapy.Anne Drapkin Lyerly, Evan R. Myers & Ruth R. Faden - 2001 - Health Care Analysis 9 (2):187-211.
    The use of aggregated quality of life estimatesin the formation of public policy and practiceguidelines raises concerns about the moralrelevance of variability in values inpreferences for health care. This variabilitymay reflect unique and deeply held beliefs thatmay be lost when averaged with the preferencesof other individuals. Feminist moral theorieswhich argue for attention to context andparticularity underline the importance ofascertaining the extent to which differences inpreferences for health states revealinformation which is morally relevant toclinicians and policymakers. To facilitatethese considerations, we present (...)
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  24.  56
    Research with Pregnant Women: New Insights on Legal Decision‐Making.Anna C. Mastroianni, Leslie Meltzer Henry, David Robinson, Theodore Bailey, Ruth R. Faden, Margaret O. Little & Anne Drapkin Lyerly - 2017 - Hastings Center Report 47 (3):38-45.
    U.S. researchers and scholars often point to two legal factors as significant obstacles to the inclusion of pregnant women in clinical research: the Department of Health and Human Services’ regulatory limitations specific to pregnant women's research participation and the fear of liability for potential harm to children born following a pregnant woman's research participation. This article offers a more nuanced view of the potential legal complexities that can impede research with pregnant women than has previously been reflected in the literature. (...)
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  25.  24
    The Ethics of Social Research: Surveys and Experiments.Gideon Sjoberg, Ted R. Vaughan, Tom L. Beauchamp, Ruth R. Faden, R. Jay Wallace, LeRoy Walters, Allan J. Kimmel, Martin Bulmer & Joan E. Sieber - 1983 - Hastings Center Report 13 (2):44.
    Book reviewed in this article: Ethical Issues in Social Research. Edited by Tom L. Beauchamp, Ruth R. Faden, R. Jay Wallace, Jr., and LeRoy Walters. Baltimore: The Johns Hopkins University Press, 1982. xii + 436 pp. $25.00 (hardcover); $8.95 (paper). Ethics of Human Subject Research. Edited by Allan J. Kimmel, Jr. San Francisco: Jossey‐Bass, 1981. 106 pp. $6.95 (paper). Social Research Ethics. Edited by Martin Bulmer. New York: Holmes & Meier, 1982. xiv + 284 pp. $39.50 (hardcover); $14.50 (paper). The (...)
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  26.  12
    Bioethics: A Field in Transition.Ruth R. Faden - 2004 - Journal of Law, Medicine and Ethics 32 (2):276-278.
    Bioethics is clearly a field in transition, if not confusion. Bioethics began as a scholarly, reflective, academic enterprise. Increasingly, however, some in bioethics are not as interested in producing scholarship as they are in practicing bioethics by providing services to institutions and clients.Bioethics also began as an interdisciplinary line of inquiry, with its major contributors all trained in some established discipline. We were and for the most part still are a field composed of theologians, philosophers, lawyers, physicians, nurses, and social (...)
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  27.  17
    Bioethics: A Field in Transition.Ruth R. Faden - 2004 - Journal of Law, Medicine and Ethics 32 (2):276-278.
    Bioethics is clearly a field in transition, if not confusion. Bioethics began as a scholarly, reflective, academic enterprise. Increasingly, however, some in bioethics are not as interested in producing scholarship as they are in practicing bioethics by providing services to institutions and clients.Bioethics also began as an interdisciplinary line of inquiry, with its major contributors all trained in some established discipline. We were and for the most part still are a field composed of theologians, philosophers, lawyers, physicians, nurses, and social (...)
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  28.  22
    Chair's perspective on the work of the advisory committee on human radiation experiments.Ruth R. Faden - 1996 - Kennedy Institute of Ethics Journal 6 (3):215-221.
    In lieu of an abstract, here is a brief excerpt of the content:Chair’s Perspective on the Work of the Advisory Committee on Human Radiation ExperimentsRuth Faden (bio)On January 15, 1994, President Clinton created the Advisory Committee on Human Radiation Experiments in response to his concern about the increasing number of reports describing alleged unethical conduct of the U.S. Government, and institutions funded by the government, in the use of, or exposure to, ionizing radiation in human beings at the height of (...)
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  29.  32
    Informed consent and clinical research.Ruth R. Faden - 1996 - Kennedy Institute of Ethics Journal 6 (4):356-359.
    In lieu of an abstract, here is a brief excerpt of the content:Informed Consent and Clinical ResearchRuth Faden (bio)Informed consent is a powerful symbol of the commitment and impact of the new, interdisciplinary field of biomedical ethics that the Kennedy Institute has been so instrumental in developing. In the early years of biomedical ethics, there was considerable discussion about the nature of the doctor-patient relationship, about how it ought to be structured, and about how competing values within that relationship ought (...)
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  30.  12
    Learning Health Care and the Obligation to Participate in Research.Ruth R. Faden & Nancy E. Kass - 2022 - Hastings Center Report 52 (3):29-31.
    Hastings Center Report, Volume 52, Issue 3, Page 29-31, May–June 2022.
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  31.  19
    Managed care and informed consent.Ruth R. Faden - 1997 - Kennedy Institute of Ethics Journal 7 (4):377-379.
    : Arguments for efficiency in health care delivery have been used to support some level of withholding of information about available treatment options from patients in managed care systems. To the extent that such arguments prevail, they may necessitate changes in the established understanding of and commitment to informed consent and the disclosure of information to patients.
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  32.  9
    Monitoring Informed Consent Procedures: An Exploratory Record Review.Ruth R. Faden, Carol Lewis & Barbara Rimer - 1980 - IRB: Ethics & Human Research 2 (8):9.
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  33. The Right to Know in the Workplace.Ruth R. Faden - 1982 - Canadian Journal of Philosophy, Supplementary Volume 8:177.
     
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  34.  32
    The Right To Know In The Workplace.Ruth R. Faden & Tom L. Beauchamp - 1982 - Canadian Journal of Philosophy 12 (sup1):177-210.
    In recent years, the right of employees to know about health hazards in the workplace has emerged as a major issue in occupational health policy. A general consensus has gradually evolved that there is a right to know, and correlatively that there is a moral obligation to disclose relevant information to workers. For example, the National Institute for Occupational Safety and Health, and several other U.S. federal agencies, informed the U.S. Senate as early as July 1977 that ‘workers have the (...)
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  35.  39
    Physicians' Attitudes toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine and Ethics 21 (2):238-240.
    Confidentiality is a cornerstone of the physician-patient relationship. Breaches of confidentiality in the context of genetic testing are of particular concern for a number of reasons. First, genetic testing reveals information not only about a particular patient, but also about his or her family members. Second,genetic testing can label healthy people as “at risk,” subjecting them to possible stigmatization or discrimination by third parties. Third, as genetic testing becomes more widespread and is incorporated into primary care, breaches of confidentiality might (...)
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  36.  25
    Physicians' Attitudes toward Disclosure of Genetic Information to Third Parties.Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman - 1993 - Journal of Law, Medicine and Ethics 21 (2):238-240.
    Confidentiality is a cornerstone of the physician-patient relationship. Breaches of confidentiality in the context of genetic testing are of particular concern for a number of reasons. First, genetic testing reveals information not only about a particular patient, but also about his or her family members. Second,genetic testing can label healthy people as “at risk,” subjecting them to possible stigmatization or discrimination by third parties. Third, as genetic testing becomes more widespread and is incorporated into primary care, breaches of confidentiality might (...)
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  37.  19
    Rethinking “Elective” Procedures for Women's Reproduction during Covid‐19.Marielle S. Gross, Bryna J. Harrington, Carolyn B. Sufrin & Ruth R. Faden - 2020 - Hastings Center Report 50 (3):40-43.
    Common hospital and surgical center responses to the Covid‐19 pandemic included curtailing “elective” procedures, which are typically determined based on implications for physical health and survival. However, in the focus solely on physical health and survival, procedures whose main benefits advance components of well‐being beyond health, including self‐determination, personal security, economic stability, equal respect, and creation of meaningful social relationships, have been disproportionately deprioritized. We describe how female reproduction‐related procedures, including abortion, surgical sterilization, reversible contraception devices and in vitro fertilization, (...)
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  38.  19
    The Effect of Education on Physicians’ Knowledge of a Laboratory Test: The Case of Maternal Serum Alpha-Fetoprotein Screening.Neil A. Holtzman, Ruth R. Faden, Claire O. Leonard, Gary A. Chase & S. R. Ulrich - 1991 - Journal of Clinical Ethics 2 (4):243-247.
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  39.  2
    Beneath the Sword of Damocles: Moral Obligations of Physicians in a Post‐ Dobbs Landscape.Anne Drapkin Lyerly, Ruth R. Faden & Michelle M. Mello - 2024 - Hastings Center Report 54 (3):15-27.
    Since the U.S. Supreme Court's decision in Dobbs vs. Jackson Women's Health Organization, a growing web of state laws restricts access to abortion. Here we consider how, ethically, doctors should respond when terminating a pregnancy is clinically indicated but state law imposes restrictions on doing so. We offer a typology of cases in which the dilemma emerges and a brief sketch of the current state of legal prohibitions against providing such care. We examine the issue from the standpoints of conscience, (...)
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  40.  24
    Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics.Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman - 1994 - Journal of Law, Medicine and Ethics 22 (1):29-35.
    Recent legislation, such as the Patient Self-Determination Act, establishes advance directives as an acceptable procedural means of incorporating patients’ preferences for life-sustaining treatments into their medical care. Advance directives can enhance medical decision making since they provide patients with an opportunity to communicate their preferences before suffering from an acute illness that may preclude their ability to do so.Although patients expect discussions about life-sustaining therapies to be initiated by their physicians, very little is known about what prompts physicians to discuss (...)
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  41.  20
    Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics.Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman - 1994 - Journal of Law, Medicine and Ethics 22 (1):29-35.
    Recent legislation, such as the Patient Self-Determination Act, establishes advance directives as an acceptable procedural means of incorporating patients’ preferences for life-sustaining treatments into their medical care. Advance directives can enhance medical decision making since they provide patients with an opportunity to communicate their preferences before suffering from an acute illness that may preclude their ability to do so.Although patients expect discussions about life-sustaining therapies to be initiated by their physicians, very little is known about what prompts physicians to discuss (...)
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