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Søren Holm [135]S. Holm [50]Soren Holm [21]Sune Holm [14]
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Profile: Sjur Holm (University of Oslo)
  1.  12
    Doctors, Patients, and Nudging in the Clinical Context—Four Views on Nudging and Informed Consent.Thomas Ploug & Søren Holm - 2015 - American Journal of Bioethics 15 (10):28-38.
    In an analysis of recent work on nudging we distinguish three positions on the relationship between nudging founded in libertarian paternalism and the protection of personal autonomy through informed consent. We argue that all three positions fail to provide adequate protection of personal autonomy in the clinical context. Acknowledging that nudging may be beneficial, we suggest a fourth position according to which nudging and informed consent are valuable in different domains of interaction.
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  2. Big Data and Health Research—The Governance Challenges in a Mixed Data Economy.Søren Holm & Thomas Ploug - forthcoming - Journal of Bioethical Inquiry:1-11.
    Denmark is a society that has already moved towards Big Data and a Learning Health Care System. Data from routine healthcare has been registered centrally for years, there is a nationwide tissue bank, and there are numerous other available registries about education, employment, housing, pollution, etcetera. This has allowed Danish researchers to study the link between exposures, genetics and diseases in a large population. This use of public registries for scientific research has been relatively uncontroversial and has been supported by (...)
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  3.  3
    Informed Consent and Registry-Based Research - the Case of the Danish Circumcision Registry.Thomas Ploug & Søren Holm - 2017 - BMC Medical Ethics 18 (1):53.
    Research into personal health data holds great potential not only for improved treatment but also for economic growth. In these years many countries are developing policies aimed at facilitating such research often under the banner of ‘big data’. A central point of debate is whether the secondary use of health data requires informed consent if the data is anonymised. In 2013 the Danish Minister of Health established a new register collecting data about all ritual male childhood circumcisions in Denmark. The (...)
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  4.  3
    Informed Consent and Registry-Based Research - the Case of the Danish Circumcision Registry.Thomas Ploug & Søren Holm - 2017 - BMC Medical Ethics 18 (1):53.
    Research into personal health data holds great potential not only for improved treatment but also for economic growth. In these years many countries are developing policies aimed at facilitating such research often under the banner of ‘big data’. A central point of debate is whether the secondary use of health data requires informed consent if the data is anonymised. In 2013 the Danish Minister of Health established a new register collecting data about all ritual male childhood circumcisions in Denmark. The (...)
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  5. Informed consent and registry-based research - the case of the Danish circumcision registry.Thomas Ploug & Søren Holm - 2017 - Bmc Medical Ethics 2017 18:1 18 (1):53.
    Research into personal health data holds great potential not only for improved treatment but also for economic growth. In these years many countries are developing policies aimed at facilitating such research often under the banner of ‘big data’. A central point of debate is whether the secondary use of health data requires informed consent if the data is anonymised. In 2013 the Danish Minister of Health established a new register collecting data about all ritual male childhood circumcisions in Denmark. The (...)
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  6. Scientific Dishonesty—a Nationwide Survey of Doctoral Students in Norway.Bjørn Hofmann, Anne Ingeborg Myhr & Søren Holm - 2013 - BMC Medical Ethics 14 (1):3-.
    Background: The knowledge of scientific dishonesty is scarce and heterogeneous. Therefore this study investigates the experiences with and the attitudes towards various forms of scientific dishonesty among PhD-students at the medical faculties of all Norwegian universities.MethodAnonymous questionnaire distributed to all post graduate students attending introductory PhD-courses at all medical faculties in Norway in 2010/2011. Descriptive statistics. Results: 189 of 262 questionnaires were returned (72.1%). 65% of the respondents had not, during the last year, heard or read about researchers who committed (...)
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  7. Assistive Technology, Telecare and People with Intellectual Disabilities: Ethical Considerations.J. Perry, S. Beyer & S. Holm - 2009 - Journal of Medical Ethics 35 (2):81-86.
    Increasingly, commissioners and providers of services for people with intellectual disabilities are turning to assistive technology and telecare as a potential solution to the problem of the increased demand for services, brought about by an expanding population of people with intellectual disabilities in the context of relatively static or diminishing resources. While there are numerous potential benefits of assistive technology and telecare, both for service providers and service users, there are also a number of ethical issues. The aim of this (...)
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  8.  3
    Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data.Thomas Ploug & Søren Holm - 2016 - Bioethics 30 (9):721-732.
    In this article we provide an in-depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.
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  9. Ethical Problems in Clinical Practice: The Ethical Reasoning of Health Care Professionals.Søren Holm - 1997 - Distributed Exclusively in the Usa by St. Martin's Press.
     
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  10.  34
    Extending Human Lifespan and the Precautionary Paradox.John Harris & Søren Holm - 2002 - Journal of Medicine and Philosophy 27 (3):355 – 368.
    This paper argues that a precautionary approach to scientific progress of the sort advocated by Walter Glannon with respect to life-extending therapies involves both incoherence and irresolvable paradox. This paper demonstrates the incoherence of the precautionary approach in many circumstances and argues that with respect to life-extending therapies we have at present no persuasive reasons for a moratorium on such research.
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  11.  27
    Ethical Endgames: Broad Consent for Narrow Interests; Open Consent for Closed Minds.Jan Reinert Karlsen, Jan Helge Solbakk & Søren Holm - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):572-583.
    The ongoing legal and bioethics debates on consent requirements for collecting, storing, and utilizing human biological material for purposes of basic and applied research—that is, genomic research biobanking—have already managed to pass through three ostensibly dissimilar stages.
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  12.  12
    Informed Consent and Routinisation.T. Ploug & S. Holm - 2013 - Journal of Medical Ethics 39 (4):214-218.
    This article introduces the notion of ‘routinisation’ into discussions of informed consent. It is argued that the routinisation of informed consent poses a threat to the protection of the personal autonomy of a patient through the negotiation of informed consent. On the basis of a large survey, we provide evidence of the routinisation of informed consent in various types of interaction on the internet; among these, the routinisation of consent to the exchange of health related information. We also provide evidence (...)
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  13.  9
    “Nudging” and Informed Consent Revisited: Why “Nudging” Fails in the Clinical Context.Søren Holm & Thomas Ploug - 2013 - American Journal of Bioethics 13 (6):29 - 31.
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  14.  26
    Analogical Reasoning in Handling Emerging Technologies: The Case of Umbilical Cord Blood Biobanking.Bjørn Hofmann, Jan Helge Solbakk & Søren Holm - 2006 - American Journal of Bioethics 6 (6):49 – 57.
    How are we individually and as a society to handle new and emerging technologies? This challenging question underlies much of the bioethical debates of modern times. To address this question we need suitable conceptions of the new technology and ways of identifying its proper management and regulation. To establish conceptions and to find ways to handle emerging technologies we tend to use analogies extensively. The aim of this article is to investigate the role that analogies play or may play in (...)
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  15.  34
    Going to the Roots of the Stem Cell Controversy.Søren Holm - 2002 - Bioethics 16 (6):493–507.
  16.  12
    Accountability for Reasonableness: Opening the Black Box of Process.Andreas Hasman & Søren Holm - 2005 - Health Care Analysis 13 (4):261-273.
  17.  10
    Disease, Dysfunction, and Synthetic Biology.Sune Holm - 2014 - Journal of Medicine and Philosophy 39 (4):329-345.
    Theorists analyzing the concept of disease on the basis of the notion of dysfunction consider disease to be dysfunction requiring. More specifically, dysfunction-requiring theories of disease claim that for an individual to be diseased certain biological facts about it must be the case. Disease is not wholly a matter of evaluative attitudes. In this paper, I consider the dysfunction-requiring component of Wakefield’s hybrid account of disease in light of the artifactual organisms envisioned by current research in synthetic biology. In particular, (...)
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  18.  71
    Should We Presume Moral Turpitude in Our Children? – Small Children and Consent to Medical Research.John Harris & Søren Holm - 2003 - Theoretical Medicine and Bioethics 24 (2):121-129.
    When children are too young to make their ownautonomous decisions, decisions have to be madefor them. In certain contexts we allow parentsand others to make these decisions, and do notinterfere unless the decision clearly violatesthe best interest of the child. In othercontexts we put a priori limits on whatkind of decisions parents can make, and/or whatkinds of considerations they have to take intoaccount. Consent to medical research currentlyfalls into the second group mentioned here. Wewant to consider and ultimately reject one (...)
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  19.  48
    Doping Under Medical Control - Conceptually Possible but Impossible in the World of Professional Sports?Søren Holm - 2007 - Sport, Ethics and Philosophy 1 (2):135 – 145.
    This paper considers the argument that if the ban on doping in sports was abolished it would be possible to have doping under medical control, i.e. open doping, prescribed by doctors with collection of reliable information about effects and side-effects. A game-theoretic argument is developed showing that this positive scenario is very unlikely to be instantiated given reasonable assumptions about the motivation of sportspersons and sports doctors. It is furthermore shown that the standard arguments against the current ban on doping (...)
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  20.  28
    Biological Interests, Normative Functions, and Synthetic Biology.Sune Holm - 2012 - Philosophy and Technology 25 (4):525-541.
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  21.  17
    Euthanasia: Agreeing to Disagree? [REVIEW]Søren Holm - 2010 - Medicine, Health Care and Philosophy 13 (4):399-402.
    In discussions about the legalisation of active, voluntary euthanasia it is sometimes claimed that what should happen in a liberal society is that the two sides in the debate “agree to disagree”. This paper explores what is entailed by agreeing to disagree and shows that this is considerably more complicated than what is usually believed to be the case. Agreeing to disagree is philosophically problematic and will often lead to an unstable compromise.
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  22. Ethical Reasoning in Mixed Nurse-Physician Groups.S. Holm, P. Gjersoe, G. Grode, O. Hartling, K. E. Ibsen & H. Marcussen - 1996 - Journal of Medical Ethics 22 (3):168-173.
    OBJECTIVES: To study the ethical reasoning of nurses and physicians, and to assess whether or not modified focus groups are a valuable tool for this purpose. DESIGN: Discussion of cases in modified focus groups, each consisting of three physicians and three nurses. The discussion was taped and analysed by content analysis. SETTING: Five departments of internal medicine at Danish hospitals. SAMPLE: Seven discussion groups. MAIN MEASUREMENTS: Ethical content of statements, style of statements, time used by each participant. RESULTS: Danish physicians (...)
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  23. A Life in the Shadow: One Reason Why We Should Not Clone Humans.Søren Holm - 1998 - Cambridge Quarterly of Healthcare Ethics 7 (2):160-162.
    One of the arguments that is often put forward in the discussion of human cloning is that it is in itself wrong to create a copy of a human being.
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  24.  22
    Not Just Autonomy--The Principles of American Biomedical Ethics.S. Holm - 1995 - Journal of Medical Ethics 21 (6):332-338.
    The Principles of Biomedical Ethics by Tom L Beauchamp and James F Childress which is now in its fourth edition has had a great influence on the development of bioethics through its exposition of a theory based on the four principles: respect for autonomy; non-maleficence; beneficence, and justice (1). The theory is developed as a common-morality theory, and the present paper attempts to show how this approach, starting from American common-morality, leads to an underdevelopment of beneficence and justice, and that (...)
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  25.  16
    What Should Other Healthcare Professions Learn From Nursing Ethics.Soren Holm - 2006 - Nursing Philosophy 7 (3):165-174.
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  26.  52
    Parental Responsibility and Obesity in Children.Søren Holm - 2008 - Public Health Ethics 1 (1):21-29.
    Cardiff Law School, Museum Avenue, Cardiff CF10 3AX, UK. Tel: +44(0)2920875447, Fax: +44(0)2920874097; Email: Holms{at}cardiff.ac.uk ' + u + '@' + d + ' '//--> Abstract The paper presents a brief overview of current knowledge about (i) the link between parental behaviour and lifestyle and childhood obesity, (ii) the many other factors influencing overweight and obesity rates in children and (iii) the effectiveness of interventions in children who are already overweight and obese. On the basis of this, it is analysed (...)
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  27.  49
    Teaching Old Dogs New Tricks: The Role of Analogies in Bioethical Analysis and Argumentation Concerning New Technologies. [REVIEW]Bjørn Hofmann, Jan Helge Solbakk & Søren Holm - 2006 - Theoretical Medicine and Bioethics 27 (5):397-413.
    New medical technologies provide us with new possibilities in health care and health care research. Depending on their degree of novelty, they may as well present us with a whole range of unforeseen normative challenges. Partly, this is due to a lack of appropriate norms to perceive and handle new technologies. This article investigates our ways of establishing such norms. We argue that in this respect analogies have at least two normative functions: they inform both our understanding and our conduct. (...)
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  28.  5
    Organism, Machine, Artifact: The Conceptual and Normative Challenges of Synthetic Biology.Sune Holm & Russell Powell - 2013 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 44 (4):627-631.
    Synthetic biology is an emerging discipline that aims to apply rational engineering principles in the design and creation of organisms that are exquisitely tailored to human ends. The creation of artificial life raises conceptual, methodological and normative challenges that are ripe for philosophical investigation. This special issue examines the defining concepts and methods of synthetic biology, details the contours of the organism–artifact distinction, situates the products of synthetic biology vis-à-vis this conceptual typology and against historical human manipulation of the living (...)
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  29. Declaration of Helsinki.Søren Holm - 2013 - In Hugh LaFollette (ed.), The International Encyclopedia of Ethics. Wiley-Blackwell.
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  30.  3
    The Bioethicist Who Cried “Synthetic Biology”: An Analysis of the Function of Bioterrorism Predictions in Bioethics.Søren Holm - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (2):230-238.
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  31.  50
    Autonomy, Authenticity, or Best Interest: Everyday Decision-Making and Persons with Dementia. [REVIEW]Søren Holm - 2001 - Medicine, Health Care and Philosophy 4 (2):153-159.
    The question of when we have justification for overriding ordinary, everyday decisions of persons with dementia is considered. It is argued that no single criterion for competent decision-making is able to distinguish reliably between decisions we can legitimately override and decisions we cannot legitimately override.
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  32. Conflict of Interest Disclosure and the Polarisation of Scientific Communities.T. Ploug & S. Holm - 2015 - Journal of Medical Ethics 41 (4):356-358.
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  33.  3
    Patient Choice and Preventive Genomic Sequencing—More Trouble Upstream.Søren Holm & Thomas Ploug - 2015 - American Journal of Bioethics 15 (7):24-26.
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  34.  33
    Should Persons Detained During Public Health Crises Receive Compensation?Søren Holm - 2009 - Journal of Bioethical Inquiry 6 (2):197-205.
    One of the ways in which public health officials control outbreaks of epidemic disease is by attempting to control the situations in which the infectious agent can spread. This may include isolation of infected persons, quarantine of persons who may be infected and detention of persons who are present in or have entered premises where infected persons are being treated. Most who have analysed such measures think that the restrictions in liberty they entail and the detriments in welfare they impose (...)
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  35.  10
    Like a Frog in Boiling Water: The Public, the HFEA and Sex Selection.Søren Holm - 2004 - Health Care Analysis 12 (1):27-39.
    This paper analyses the British Human Fertilisation and Embryology Authority's 2002 public consultation on sex selection, a consultation that was mainly concerned with sex selection for non-medical reasons. Based on a close reading of the consultation document and questionnaire it is argued that the consultation is biased towards certain outcomes and can most plausibly be construed as an attempt not to investigate but to influence public opinion.
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  36.  2
    High Hopes and Automatic Escalators: A Critique of Some New Arguments in Bioethics.S. Holm & T. Takala - 2007 - Journal of Medical Ethics 33 (1):1-4.
    Two protechnology arguments, the “hopeful principle” and the “automatic escalator”, often used in bioethics, are identified and critically analysed in this paper. It is shown that the hopeful principle is closely related to the problematic precautionary principle, and the automatic escalator argument has close affinities to the often criticised empirical slippery slope argument. The hopeful principle is shown to be really hopeless as an argument, and automatic escalator arguments often lead nowhere when critically analysed. These arguments should therefore only be (...)
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  37.  17
    Global Bioethics – Myth or Reality?Søren Holm & Bryn Williams-Jones - 2006 - BMC Medical Ethics 7 (1):1-10.
    Background There has been debate on whether a global or unified field of bioethics exists. If bioethics is a unified global field, or at the very least a closely shared way of thinking, then we should expect bioethicists to behave the same way in their academic activities anywhere in the world. This paper investigates whether there is a 'global bioethics' in the sense of a unified academic community. Methods To address this question, we study the web-linking patterns of bioethics institutions, (...)
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  38.  60
    A Rose by Any Other Name... Is the Research / Non-Research Distinction Still Important and Relevant?Søren Holm - 2007 - Theoretical Medicine and Bioethics 28 (3):153-155.
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  39.  11
    Organs as Inheritable Property?Teck Chuan Voo & Soren Holm - 2014 - Journal of Medical Ethics 40 (1):57-61.
    It has been argued that organs should be treated as individual tradable property like other material possessions and assets, on the basis that this would promote individual freedom and increase efficiency in addressing the shortage of organs for transplantation. If organs are to be treated as property, should they be inheritable? This paper seeks to contribute to the idea of organs as inheritable property by providing a defence of a default of the family of a dead person as inheritors of (...)
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  40.  41
    What is Wrong with Compliance?S. Holm - 1993 - Journal of Medical Ethics 19 (2):108-110.
    Non-compliance is a label often used about patients who do not follow therapeutic advice. This paper analyses the notion of compliance, and tries to show that this notion is inextricably bound to a paternalistic conception of the doctor-patient relationship. It is proposed that we should perhaps not talk so much about the non-compliant patient, but instead shift the focus towards the non-compliant doctor.
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  41.  8
    Best Interest: A Philosophical Critique. [REVIEW]Søren Holm & Andrew Robert Edgar - unknown
    On one conception of "best interest" there can only be one course of action in a given situation that is in a person's best interest. In this paper we will first consider what theories of "best interest" and rational decision-making that can lead to this conclusion and explore some of the less commonly appreciated implications of these theories. We will then move on to consider what ethical theories that are compatible with such a view and explore their implications. In the (...)
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  42. The Future of Human Reproduction : Ethics, Choice, and Regulation.John Harris & Søren Holm (eds.) - 1998 - Oxford University Press.
     
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  43.  3
    Agreeing in Ignorance: Mapping the Routinisation of Consent in ICT-Services.Thomas Ploug & Søren Holm - 2014 - Science and Engineering Ethics 20 (4):1097-1110.
    Many ICT services require that users explicitly consent to conditions of use and policies for the protection of personal information. This consent may become ‘routinised’. We define the concept of routinisation and investigate to what extent routinisation occurs as well as the factors influencing routinisation in a survey study of internet use. We show that routinisation is common and that it is influenced by factors including gender, age, educational level and average daily internet use. We further explore the reasons users (...)
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  44.  39
    The Privacy of Tutankhamen – Utilising the Genetic Information in Stored Tissue Samples.Søren Holm - 2001 - Theoretical Medicine and Bioethics 22 (5):437-449.
    Recent technical developments in genetictesting has led to a situation where the DNA inpreviously stored tissue samples can beextracted and used for genetic analysis. Thisraises the question of how to decide whether aspecific use of such samples should be allowed.Using the genetic testing of ancient DNA ingeneral, and the DNA of the pharaoh Tutankhamenin particular as examples this paper analysesthe question. It investigates whether ethicalframeworks based on proxy consent, culturalaffiliation, ownership, or the privacy rightsof the dead are appropriate and justifiable (...)
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  45.  72
    A Theoria Round Table on Philosophy Publishing.Bengt Hansson, Hans van Ditmarsch, Pascal Engel, Sven Ove Hansson, Vincent Hendricks, Søren Holm, Pauline Jacobson, Anthonie Meijers, Henry S. Richardson & Hans Rott - 2011 - Theoria 77 (2):104-116.
    As part of the conference commemorating Theoria's 75th anniversary, a round table discussion on philosophy publishing was held in Bergendal, Sollentuna, Sweden, on 1 October 2010. Bengt Hansson was the chair, and the other participants were eight editors-in-chief of philosophy journals: Hans van Ditmarsch (Journal of Philosophical Logic), Pascal Engel (Dialectica), Sven Ove Hansson (Theoria), Vincent Hendricks (Synthese), Søren Holm (Journal of Medical Ethics), Pauline Jacobson (Linguistics and Philosophy), Anthonie Meijers (Philosophical Explorations), Henry S. Richardson (Ethics) and Hans Rott (Erkenntnis).
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  46.  45
    Large Scale Surveys for Policy Formation and Research–a Study in Inconsistency.Søren Holm & Lisa Bortolotti - 2007 - Theoretical Medicine and Bioethics 28 (3):205-220.
    In this paper we analyse the degree to which a distinction between social science and public health research and other non-research activities can account for differences between a number of large scale social surveys performed at the national and European level. The differences we will focus on are differences in how participation is elicited and how data are used for government, research and other purposes. We will argue that the research / non-research distinction does not account for the identified differences (...)
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  47.  70
    Building Bioethics-Conversations with Clouser and Friends on Medical Ethics: Edited by Loretta M Kopelman, Dordrecht, Kluwer Academic Publishers, 1999, 250 Pages, Pound72.00. [REVIEW]S. Holm - 2001 - Journal of Medical Ethics 27 (3):206-206.
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  48.  8
    Organism and Artifact: Proper Functions in Paley Organisms.Sune Holm - 2013 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 44 (4):706-713.
    In this paper I assess the explanatory powers of theories of function in the context of products that may result from synthetic biology. The aim is not to develop a new theory of functions, but to assess existing theories of function in relation to a new kind of biological and artifactual entity that might be produced in the not-too-distant future by means of synthetic biology. The paper thus investigates how to conceive of the functional nature of living systems that are (...)
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  49.  2
    How Many Lay Members Can You Have in Your IRB?: An Overview of the Danish System.Søren Holm - forthcoming - IRB: Ethics & Human Research.
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  50.  2
    Organism, Machine, Artifact: The Conceptual and Normative Challenges of Synthetic Biology.Sune Holm & Russell Powell - 2013 - Studies in History and Philosophy of Science Part C 44 (4b):627-631.
    Synthetic biology is an emerging discipline that aims to apply rational engineering principles in the design and creation of organisms that are exquisitely tailored to human ends. The creation of artificial life raises conceptual, methodological and normative challenges that are ripe for philosophical investigation. This special issue examines the defining concepts and methods of synthetic biology, details the contours of the organism–artifact distinction, situates the products of synthetic biology vis-à-vis this conceptual typology and against historical human manipulation of the living (...)
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