14 found
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  1.  12
    Racial Equity, Diversity and Inclusion in Bioethics: Recommendations from the Association of Bioethics Program Directors Presidential Task Force.Sandra Soo-Jin Lee, Alexis Walker, Shawneequa L. Callier, Faith E. Fletcher, Charlene Galarneau, Nanibaa’ Garrison, Jennifer E. James, Renee McLeod-Sordjan, Ubaka Ogbogu, Nneka Sederstrom, Patrick T. Smith, Clarence H. Braddock & Christine Mitchell - 2024 - American Journal of Bioethics 24 (10):3-14.
    Recent calls to address racism in bioethics reflect a sense of urgency to mitigate the lethal effects of a lack of action. While the field was catalyzed largely in response to pivotal events deeply rooted in racism and other structures of oppression embedded in research and health care, it has failed to center racial justice in its scholarship, pedagogy, advocacy, and practice, and neglected to integrate anti-racism as a central consideration. Academic bioethics programs play a key role in determining the (...)
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  2.  51
    Wrestling with Social and Behavioral Genomics: Risks, Potential Benefits, and Ethical Responsibility.Michelle N. Meyer, Paul S. Appelbaum, Daniel J. Benjamin, Shawneequa L. Callier, Nathaniel Comfort, Dalton Conley, Jeremy Freese, Nanibaa' A. Garrison, Evelynn M. Hammonds, K. Paige Harden, Sandra Soo-Jin Lee, Alicia R. Martin, Daphne Oluwaseun Martschenko, Benjamin M. Neale, Rohan H. C. Palmer, James Tabery, Eric Turkheimer, Patrick Turley & Erik Parens - 2023 - Hastings Center Report 53 (S1):2-49.
    In this consensus report by a diverse group of academics who conduct and/or are concerned about social and behavioral genomics (SBG) research, the authors recount the often‐ugly history of scientific attempts to understand the genetic contributions to human behaviors and social outcomes. They then describe what the current science—including genomewide association studies and polygenic indexes—can and cannot tell us, as well as its risks and potential benefits. They conclude with a discussion of responsible behavior in the context of SBG research. (...)
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  3.  27
    Wrestling with Public Input on an Ethical Analysis of Scientific Research.Erik Parens, Michelle N. Meyer, Patrick Turley, Sandra Soo-Jin Lee, Nanibaa’ A. Garrison, Shawneequa L. Callier & Daphne Oluwaseun Martschenko - 2023 - Hastings Center Report 53 (2):S50-S65.
    Bioethicists frequently call for empirical researchers to engage participants and community members in their research, but don't themselves typically engage community members in their normative research. In this article, we describe an effort to include members of the public in normative discussions about the risks, potential benefits, and ethical responsibilities of social and behavioral genomics (SBG) research. We reflect on what might—and might not— be gained from engaging the public in normative scholarship and on lessons learned about public perspectives on (...)
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  4.  56
    Ethical, Legal, and Social Implications of Personalized Genomic Medicine Research: Current Literature and Suggestions for the Future.Shawneequa L. Callier, Rachel Abudu, Maxwell J. Mehlman, Mendel E. Singer, Duncan Neuhauser, Charlisse Caga-Anan & Georgia L. Wiesner - 2016 - Bioethics 30 (9):698-705.
    Purpose: This review identifies the prominent topics in the literature pertaining to the ethical, legal, and social issues raised by research investigating personalized genomic medicine. Methods: The abstracts of 953 articles extracted from scholarly databases and published during a 5-year period were reviewed. A total of 299 articles met our research criteria and were organized thematically to assess the representation of ELSI issues for stakeholders, health specialties, journals, and empirical studies. Results: ELSI analyses were published in both scientific and ethics (...)
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  5.  34
    Taking a Stand: The Genetics Community's Responsibility for Intelligence Research.Shawneequa L. Callier & Vence L. Bonham - 2015 - Hastings Center Report 45 (S1):54-58.
    There is a longstanding debate about genetics research into intelligence. Some scholars question the value of focusing on genetic contributions to intelligence in a society where social and environmental determinants powerfully influence cognitive ability and educational outcomes. Others warn that censoring certain research questions, such as inquiries about genetic differences in intellectual potential, compromises academic freedom. Still others view interest in this subject as a corollary to a long and troublesome history of eugenics research. The dawn of a new era (...)
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  6.  40
    Swabbing Students: Should Universities Be Allowed to Facilitate Educational DNA Testing?Shawneequa L. Callier - 2012 - American Journal of Bioethics 12 (4):32-40.
    Recognizing the profound need for greater patient and provider familiarity with personalized genomic medicine, many university instructors are including personalized genotyping as part of their curricula. During seminars and lectures students run polymerase chain reactions on their own DNA or evaluate their experiences using direct-to-consumer genetic testing services subsidized by the university. By testing for genes that may influence behavioral or health-related traits, however, such as alcohol tolerance and cancer susceptibility, certain universities have stirred debate on the ethical concerns raised (...)
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  7.  50
    Managing Patient Expectations About Deidentification.Harald Schmidt & Shawneequa L. Callier - 2010 - American Journal of Bioethics 10 (9):21-23.
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  8.  4
    Anticipating Biopreservation Technologies that Pause Biological Time: Building Governance & Coordination Across Applications.Susan M. Wolf, Timothy L. Pruett, Claire Colby McVan, Evelyn Brister, Shawneequa L. Callier, Alexander M. Capron, James F. Childress, Michele Bratcher Goodwin, Insoo Hyun, Rosario Isasi, Andrew D. Maynard, Kenneth A. Oye, Paul B. Thompson & Terrence R. Tiersch - 2024 - Journal of Law, Medicine and Ethics 52 (3):534-552.
    Advanced biopreservation technologies using subzero approaches such as supercooling, partial freezing, and vitrification with reanimating techniques including nanoparticle infusion and laser rewarming are rapidly emerging as technologies with potential to radically disrupt biomedicine, research, aquaculture, and conservation. These technologies could pause biological time and facilitate large-scale banking of biomedical products including organs, tissues, and cell therapies.
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  9.  33
    The Slippery Slope of Prenatal Testing for Social Traits.Courtney Canter, Kathleen Foley, Shawneequa L. Callier, Karen M. Meagher, Margaret Waltz, Aurora Washington, R. Jean Cadigan, Anya E. R. Prince & the Beyond the Medical R01 Research Team - 2023 - American Journal of Bioethics 23 (3):36-38.
    Bowman-Smart et al. (2023) argue for a framework to examine the ethical issues associated with genetic screening for non-medical traits in the context of noninvasive prenatal testing (NIPT). Such s...
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  10.  47
    GINA and Preemployment Criminal Background Checks.Shawneequa L. Callier, John Huss & Eric T. Juengst - 2010 - Hastings Center Report 40 (1):15-19.
    This article examines the ethical, legal, and policy implications of using genetic information in preemployment criminal background checks, focusing on a case involving The University of Akron’s controversial policy requiring DNA samples from prospective employees. The article contextualizes this policy within the framework of the Genetic Information Nondiscrimination Act (GINA), which prohibits the use of genetic information in employment decisions. Key issues include the privacy concerns associated with collecting and retaining DNA, the potential for civil liberties infringements, and the risk (...)
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  11.  52
    Herbert J. Bonifacio is an adolescent.Shawneequa L. Callier, Christine Grady & Michael L. Gross - forthcoming - Hastings Center Report.
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  12.  2
    Ethical Issues in Emerging Technologies to Extend the Viability of Biological Materials Across Time and Space.James F. Childress, Evelyn Brister, Paul B. Thompson, Susan M. Wolf, Shawneequa L. Callier, Alexander M. Capron, Timothy L. Pruett & Nikolas Zuchowicz - 2024 - Journal of Law, Medicine and Ethics 52 (3):570-584.
    This article presents a framework of ethical analysis for anticipatory evaluation of advanced biopreservation technologies and employs the framework illustratively in three domains. The framework features four clusters of general ethical considerations: (1) Producing Benefits, Minimizing Harms, Balancing Benefits, Risk, and Costs; (2) Justice, Fairness, Equity; (3) Respect for Autonomy; and (4) Transparency, Trustworthiness, and Public Trust.
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  13.  2
    The Need for Early Engagement with Interested Groups on Advanced Biopreservation.Insoo Hyun, John Bischof, Shawneequa L. Callier, Alexander M. Capron, Michele Bratcher Goodwin, Ishan Goswami, Rosario Isasi, Andrew D. Maynard, Timothy L. Pruett, Korkut Uygun & Susan M. Wolf - 2024 - Journal of Law, Medicine and Ethics 52 (3):585-594.
    Research on advanced biopreservation — technologies that include, for example, partial freezing, supercooling, and vitrification with nanoparticle infusion and laser rewarming — is proceeding at a rapid pace, potentially affecting many areas of medicine and the life sciences, food, agriculture, and environmental conservation. Given the breadth and depth of its medical, scientific, and corresponding social impacts, advanced biopreservation is poised to emerge as a disruptive technology with real benefits, but also ethical challenges and risks. Early engagement with potentially affected groups (...)
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  14.  33
    Genomic Test Results and the Courtroom: The Roles of Experts and Expert Testimony.Edward Ramos, Shawneequa L. Callier, Peter B. Swann & Hosea H. Harvey - 2016 - Journal of Law, Medicine and Ethics 44 (1):205-215.
    The rapid advancement from single-gene testing to whole genome sequencing has significantly broadened the type and amount of information available to researchers, physicians, patients, and the public in general. Much debate has ensued about whether genomic test results should be reported to research participants, patients and consumers, and at what stage we can be sure that existing evidence justifies their use in clinical settings. Courts and judges evaluating the utility of these results will not be immune to this uncertainty. As (...)
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