18 found
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  1.  24
    Imagining the Future of Photoacoustic Mammography.Simone van der Burg - 2009 - Science and Engineering Ethics 15 (1):97-110.
    How can a realistic ethical imagination about the future of a technology take shape? This article contains a reflection which is based on the experiences of an embedded ethicist in the context of biophysical research conducive to the development of photoacoustic mammography, which is intended for the non-invasive detection of breast cancer. Imagination in this context already informs the activities of the biophysical researchers, but its role is limited: biophysical future scenarios concentrate on the technological advances that photoacoustics could bring (...)
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  2.  23
    Taking the “Soft Impacts” of Technology Into Account: Broadening the Discourse in Research Practice.Simone van der Burg - 2009 - Social Epistemology 23 (3):301-316.
    Public funding institutions are able to influence what aspects researchers take into account when they consider the future impacts of their research. On the basis of a description of the evaluation systems that public research funding institutes in the Netherlands (STW and SenterNovem) use to estimate the quality of engineering science, this article shows that researchers are now predominantly required to reflect on the intellectual merit of their research and on the usability and marketability of the technology it contributes to. (...)
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  3.  30
    A Lay Ethics Quest for Technological Futures: About Tradition, Narrative and Decision-Making.Simone van der Burg - 2016 - NanoEthics 10 (3):233-244.
    Making better choices about future technologies that are being researched or developed is an important motivator behind lay ethics interventions. However, in practice, they do not always succeed to serve that goal. Especially authors who have noted that lay ethicists sometimes take recourse to well-known themes which stem from old, even ‘archetypical’ stories, have been criticized for making too little room for agency and decision-making in their approach. This paper aims to contribute to a reflection on how lay ethics can (...)
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  4.  43
    Teaching Ethics and Technology with Agora , an Electronic Tool.Simone van der Burg & Ibo van de Poel - 2005 - Science and Engineering Ethics 11 (2):277-297.
    Courses on ethics and technology have become compulsory for many students at the three Dutch technical universities during the past few years. During this time, teachers have faced a number of didactic problems, which are partly due to a growing number of students. In order to deal with these challenges, teachers in ethics at the three technical universities in the Netherlands — in Delft, Eindhoven and Twente — have developed a web-based computer program called Agora (see www.ethicsandtechnology.com). This program enables (...)
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  5.  12
    The Benefits of Patient Involvement for Translational Research.Lieke van der Scheer, Elisa Garcia, Anna Laura van der Laan, Simone van der Burg & Marianne Boenink - 2017 - Health Care Analysis 25 (3):225-241.
    The question we raise in this paper is, whether patient involvement might be a beneficial way to help determine and achieve the aims of translational research and, if so, how to proceed. TR is said to ensure a more effective movement of basic scientific findings to relevant and useful clinical applications. In view of the fact that patients are supposed to be the primary beneficiaries of such translation and also have relevant knowledge based on their experience, listening to their voice (...)
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  6.  17
    Informed Decision Making About Predictive DNA Tests: Arguments for More Public Visibility of Personal Deliberations About the Good Life. [REVIEW]Marianne Boenink & Simone van der Burg - 2010 - Medicine, Health Care and Philosophy 13 (2):127-138.
    Since its advent, predictive DNA testing has been perceived as a technology that may have considerable impact on the quality of people’s life. The decision whether or not to use this technology is up to the individual client. However, to enable well considered decision making both the negative as well as the positive freedom of the individual should be supported. In this paper, we argue that current professional and public discourse on predictive DNA-testing is lacking when it comes to supporting (...)
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  7.  15
    Maintaining Trust in Newborn Screening.Simone van der Burg & Marcel Verweij - 2012 - Hastings Center Report 42 (5):41-47.
  8.  58
    Understanding Moral Responsibility in the Design of Trailers.Simone van der Burg & Anke van Gorp - 2005 - Science and Engineering Ethics 11 (2):235-256.
    This paper starts from the presupposition that moral codes often do not suffice to make agents understand their moral responsibility. We will illustrate this statement with a concrete example of engineers who design a truck’s trailer and who do not think traffic safety is part of their responsibility. This opinion clashes with a common supposition that designers in fact should do all that is in their power to ensure safety in traffic. In our opinion this shows the need for a (...)
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  9.  8
    Valuing Biomarker Diagnostics for Dementia Care: Enhancing the Reflection of Patients, Their Care-Givers and Members of the Wider Public.Simone van der Burg, Floris H. B. M. Schreuder, Catharina J. M. Klijn & Marcel M. Verbeek - 2019 - Medicine, Health Care and Philosophy 22 (3):439-451.
    What is the value of an early diagnosis of dementia in the absence of effective treatment? There has been a lively scholarly debate over this question, but until now patients have not played a large role in it. Our study supplements biomedical research into innovative diagnostics with an exlporation of its meanings and values according to patients. Based on seven focusgroups with patients and their care-givers, we conclude that stakeholders evaluate early diagnostics with respect to whether and how they expect (...)
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  10.  14
    Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research.Marianne Boenink, Lieke van der Scheer, Elisa Garcia & Simone van der Burg - 2018 - NanoEthics 12 (3):181-197.
    Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving (...)
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  11.  21
    Zijn er waarden in de wereld? Ten geleide.Simone van der Burg - 2007 - Wijsgerig Perspectief 47 (3):4-12.
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  12.  19
    Het Publieke Belang van Technische Wetenschappen.Simone van der Burg - 2009 - Wijsgerig Perspectief 49 (4):32-39.
    Onderzoekers die kritiek willen leveren op de institutionele eisen die doorgaans aan hun werk worden gesteld, nemen meestal een visie op de zin en noodzaak van onderzoek als uitgangspunt. Ze laten zien dat een onderzoeker die ‘goed scoort’ volgens de maatstaven van publieke onderzoeksfinanciers, zoals in Nederland nwo, nog geen goed onderzoekswerk levert. En ze geven redenen om te betwijfelen dat een instituut dat zich een ‘topinstituut’ mag noemen niet per se mensen opleidt die in staat zijn om zelfstandig hoogwaardig (...)
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  13.  8
    Fostering Caring Relationships: Suggestions to Rethink Liberal Perspectives on the Ethics of Newborn Screening.Simone van der Burg & Anke Oerlemans - 2018 - Bioethics 32 (3):171-183.
    Newborn screening involves the collection of blood from the heel of a newborn baby and testing it for a list of rare and inheritable disorders. New biochemical screening technologies led to expansions of NBS programs in the first decade of the 21st century. It is expected that they will in time be replaced by genetic sequencing technologies. These developments have raised a lot of ethical debate. We reviewed the ethical literature on NBS, analyzed the issues and values that emerged, and (...)
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  14.  22
    Material Morality: Towards a Posthumanist Ethics of Technology: Peter-Paul Verbeek: Moralizing Technology: Understanding and Designing the Morality of Things. Chicago and London: The University of Chicago Press, 2011, 200pp, $25.00 PB, $75.00 HB. [REVIEW]Simone van der Burg - 2013 - Metascience 22 (1):207-210.
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  15.  12
    The Moral Life of Professionals in Newborn Screening in the Netherlands: A Qualitative Study.Anke J. M. Oerlemans, Leo A. J. Kluijtmans & Simone van der Burg - 2017 - Public Health Ethics 10 (1).
    Newborn screening involves a complex logistical process, which depends on the close cooperation of many professionals, such as midwives, laboratory technicians, general practitioners and pediatricians. These professionals may encounter moral problems in the process, which have not been systematically studied before. This study fills this gap. We conducted interviews with 36 professionals involved in NBS in the Netherlands and made an inventory of the moral problems they encounter, as well as of the ways in which they tend to respond to (...)
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  16. Naar een functionele notie van het morele oordeel.Simone van der Burg - 2003 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 95 (2):100-110.
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  17. Ons kind blaakt van gezondheid!Simone van der Burg - 2011 - Wijsgerig Perspectief 51 (1).
    Toen onze grootouders als huilende baby’s ter wereld kwamen telde de vroedvrouw hun vingers en tenen om hun gezondheid te bepalen. Tegenwoordig wordt daarvoor een breed scala aan technieken ingezet, bijvoorbeeld om het bloed te screenen dat een paar dagen na de geboorte wordt afgenomen uit de hiel van een kind. Dit is de zogenaamde hielprik, ofwel de neonatale screening. De technieken die worden gebruikt om babybloed te analyseren hebben de afgelopen veertig jaar gezorgd voor verschuivingen in de visie op (...)
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  18. Ten geleide.Simone van der Burg - 2009 - Wijsgerig Perspectief 49 (4):3-5.
    De relatie tussen wetenschap en samenleving is de afgelopen vijf decennia geleidelijk veranderd. In de periode vlak na de Tweede Wereldoorlog genoten onderzoekers relatieve onafhankelijkheid. Ze konden hun eigen onderzoeksonderwerpen en praktijken ontwikkelen en maakten de resultaten daarvan toegankelijk voor de samenleving met behulp van publicaties en onderwijs. De wetenschappelijke beoordelingscriteria bedachten de onderzoekers zelf, want zij waren de experts die konden beoordelen of onderzoek vindingrijk was, een heldere methodologie gebruikte en een goede vraagstelling had en of de resultaten bestaande (...)
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