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  1.  18
    Early-Career Researchers’ Views on Ethical Dimensions of Patient Engagement in Research.Jean-Christophe Bélisle-Pipon, Geneviève Rouleau & Stanislav Birko - 2018 - BMC Medical Ethics 19 (1):21.
    Increasing attention and efforts are being put towards engaging patients in health research, and some have even argued that patient engagement in research is an ethical imperative. Yet there is relatively little empirical data on ethical issues associated with PER. A three-round Delphi survey was conducted with a panel of early-career researchers involved in PER. One of the objectives was to examine the ethical dimensions of PER as well as ECRs’ self-perceived level of preparedness to conduct PER ethically. The study (...)
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  2.  18
    Noninvasive Prenatal Testing: Views of Canadian Pregnant Women and Their Partners Regarding Pressure and Societal Concerns.Vardit Ravitsky, Stanislav Birko, Jessica Le Clerc-Blain, Hazar Haidar, Aliya O. Affdal, Marie-Ève Lemoine, Charles Dupras & Anne-Marie Laberge - 2021 - AJOB Empirical Bioethics 12 (1):53-62.
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  3.  13
    Mitochondrial/Nuclear Transfer: A Literature Review of the Ethical, Legal and Social Issues.Raphaëlle Dupras-Leduc, Stanislav Birko & Vardit Ravitsky - unknown
    Mitochondrial/nuclear transfer to avoid the transmission of serious mitochondrial disease raises complex and challenging ethical, legal and social issues. In February 2015, the United Kingdom became the first country in the world to legalize M/NT, making the heated debate surrounding this technology even more relevant. This critical interpretive review identified 95 relevant papers discussing the ELSI of M/NT, including original research articles, government-commissioned reports, editorials, letters to editors and research news. The review presents and synthesizes the arguments present in the (...)
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    Co-production and Managing Uncertainty in Health Research Regulation: A Delphi Study.Isabel Fletcher, Stanislav Birko, Edward S. Dove, Graeme T. Laurie, Catriona McMillan, Emily Postan, Nayha Sethi & Annie Sorbie - 2020 - Health Care Analysis 28 (2):99-120.
    European and international regulation of human health research is typified by a morass of interconnecting laws, diverse and divergent ethical frameworks, and national and transnational standards. There is also a tendency for legislators to regulate in silos—that is, in discrete fields of scientific activity without due regard to the need to make new knowledge as generalisable as possible. There are myriad challenges for the stakeholders—researchers and regulators alike—who attempt to navigate these landscapes. This Delphi study was undertaken in order to (...)
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  5.  13
    The “Three-Parent Baby”: A Case Study of How Language Frames the Ethical Debate Regarding an Emerging Technology.Vardit Ravitsky, Stanislav Birko & Raphaelle Dupras-Leduc - 2015 - American Journal of Bioethics 15 (12):57-60.
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