In an unusual instance of lay participation in biomedical research, U.S. AIDS treatment activists have constituted themselves as credible participants in the process of knowledge construction, thereby bringing about changes in the epistemic practices of biomedical research. This article examines the mechanisms or tactics by which these lay activists have constructed their credibility in the eyes of AIDS researchers and government officials. It considers the inwlications of such interventions for the conduct of medical research; examines some of the ironies, tensions, (...) and limitations in the process; and argues for the importance of studying social movements that engage with expert knowledge. (shrink)
The term queer has recently come into wide use to designate distinctive emphases in the politics and the intellectual study of sexuality. This article explores the unfortunate irony that most work falling under the rubric of queer theory has been undertaken largely at some remove from the discipline of sociology, despite the pioneering role that an earlier generation of sociologists played in formulating influential conceptions of the social construction of sexuality. The article suggests important continuities between the earlier sociological theories (...) and recent queer theory, but also analyzes the new challenges that queer theorists have posed by insisting on the indispensability of questions of sexual "marginality" to the larger understanding of social and cultural organization. The article concludes by suggesting how sociologists might engage with such a project. (shrink)
As a consequence of recent changes, health research policies in the United States mandate the inclusion of women and members of racial and ethnic minority groups as experimental subjects in biomedical research. This article analyzes debates that underlie these policies and that concern the medical management of bodies, groups, identities and differences. Much of the uncertainty surrounding these new policies reflects the fact that researchers, physicians, policy makers and health advocates have adopted competing, and often murky, understandings of the nature (...) of sex, gender, racial and ethnic differences, and of the relation of the biological to the social in the manifestation of bodily illness. (shrink)