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Susannah L. Rose [8]Susannah Rose [6]Susannah Leigh Rose [1]
  1.  24
    Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness.Susannah L. Rose - 2013 - Journal of Law, Medicine and Ethics 41 (3):680-687.
    Patient advocacy organizations provide patient- and caregiver-oriented education, advocacy, and support services. PAOs are formally organized nonprofit groups that concern themselves with medical conditions or potential medical conditions and have a mission and take actions that seek to help people affected by those medical conditions or to help their families. Examples of PAOs include the American Cancer Society, the National Alliance on Mental Illness, and the American Heart Association. These organizations advocate for, and provide services to, millions of people with (...)
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  2.  32
    Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness.Susannah L. Rose - 2013 - Journal of Law, Medicine and Ethics 41 (3):680-687.
    Patient advocacy organizations (PAOs) advocate for increased research funding and policy changes and provide services to patients and their families. Given their credibility and political clout, PAOs are often successful in changing policies, increasing research funding, and increasing public awareness of medical conditions and the problems of their constituents. In order to advance their missions, PAOs accept funding, frequently from pharmaceutical firms. Industry funding can help PAOs advance their goals but can also create conflicts of interest (COI). Research indicates that (...)
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  3.  12
    Developing and Testing a Checklist to Enhance Quality in Clinical Ethics Consultation.Martin L. Smith, Ruchi Sanghani, Anne Lederman Flamm, Margot M. Eves, Susannah L. Rose & Lauren Sydney Flicker - 2014 - Journal of Clinical Ethics 25 (4):281-290.
    Checklists have been used to improve quality in many industries, including healthcare. The use of checklists, however, has not been extensively evaluated in clinical ethics consultation. This article seeks to fill this gap by exploring the efficacy of using a checklist in ethics consultation, as tested by an empirical investigation of the use of the checklist at a large academic medical system (Cleveland Clinic). The specific aims of this project are as follows: (1) to improve the quality of ethics consultations (...)
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  4.  18
    Looking to Other Professions to Advance the Health Care Ethics Consultant Certification Program.Susannah Leigh Rose, Georgina Morley, Sharon L. Feldman & Jane Jankowski - 2020 - American Journal of Bioethics 20 (3):21-24.
    Volume 20, Issue 3, March 2020, Page 21-24.
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  5.  16
    Clinicians’ Duty to Participate in Pragmatic Clinical Trials: Further Considerations.Georgina Morley & Susannah L. Rose - 2023 - American Journal of Bioethics 23 (8):76-78.
    Well-designed pragmatic clinical trials (PCTs) are critical for improving healthcare delivery and patient outcomes (Haff and Choudhry 2018), and the article written by Garland et al. (2023) advance...
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  6.  16
    Patients Left Behind: Ethical Challenges in Caring for Indirect Victims of the Covid‐19 Pandemic.Bethany Bruno & Susannah Rose - 2020 - Hastings Center Report 50 (4):19-23.
    In response to the Covid‐19 pandemic, health care systems worldwide canceled or delayed elective surgeries, outpatient procedures, and clinic appointments. Although such measures may have been necessary to preserve medical resources and to prevent potential exposures early in the pandemic, moving forward, the indirect effects of such an extensive medical shutdown must not outweigh the direct harms of Covid‐19. In this essay, we argue for the reopening of evidence‐based health care with assurance provided to patients about the safety and necessity (...)
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  7.  16
    Implicit Fuzzy Specifications, Inferior to Explicit Balancing.Joseph P. DeMarco, Paul J. Ford & Susannah L. Rose - 2022 - American Journal of Bioethics 22 (7):21-23.
    Lukas J. Meier et al. offer the promise of a pathway for resolving clinical bioethical problems using an artificial intelligence interface. The ultimate goal, we assume, is...
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  8.  24
    Incorporating Stakeholder Perspectives on Scarce Resource Allocation: Lessons Learned from Policymaking in a Time of Crisis.Bethany Bruno, Heather Mckee Hurwitz, Marybeth Mercer, Hilary Mabel, Lauren Sankary, Georgina Morley, Paul J. Ford, Cristie Cole Horsburgh & Susannah L. Rose - 2021 - Cambridge Quarterly of Healthcare Ethics 30 (2):390-402.
    The coronavirus disease (COVID-19) crisis provoked an organizational ethics dilemma: how to develop ethical pandemic policy while upholding our organizational mission to deliver relationship- and patient-centered care. Tasked with producing a recommendation about whether healthcare workers and essential personnel should receive priority access to limited medical resources during the pandemic, the bioethics department and survey and interview methodologists at our institution implemented a deliberative approach that included the perspectives of healthcare professionals and patient stakeholders in the policy development process. Involving (...)
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  9. Disability, adaptation and inclusion.Norman Daniels, Susannah Rose & Ellen Daniels Zide - 2009 - In Kimberley Brownlee & Adam Cureton (eds.), Disability and Disadvantage. Oxford University Press.
     
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  10.  30
    Decision‐Making for an Incapacitated Pregnant Patient.Hilary Mabel, Susannah L. Rose & Eric Kodish - 2017 - Hastings Center Report 47 (4):12-15.
    Decisions about continuing or terminating a pregnancy touch on profound, individualized questions about bodily integrity, reproductive autonomy, deeply held values regarding one's capacity for parenthood, and, in the case of a high-risk pregnancy, the risks one is willing to take to have a baby. So far as possible, reproductive decisions are made between a patient, in some cases her partner, and her medical provider. However, this standard framework cannot be applied if the patient lacks decision-making capacity. In this essay, we (...)
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  11.  37
    Poverty: Not a Justification for Banning Physician‐Assisted Death.Lindsey M. Freeman, Susannah L. Rose & Stuart J. Youngner - 2018 - Hastings Center Report 48 (6):38-46.
    Many critics of the legalization of physician‐assisted death oppose it in part because they fear it will further disadvantage those who are already economically disadvantaged. This argument points to a serious problem of how economic considerations can influence medical decisions, but in the context of PAD, the concern is not borne out. We will provide empirical evidence suggesting that concerns about money influence medical decisions throughout the full course of illness, but at the end of life, financial pressure is much (...)
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  12.  15
    Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest.Bethany Bruno & Susannah Rose - 2020 - American Journal of Bioethics 20 (4):59-61.
    Volume 20, Issue 4, May 2020, Page 59-61.
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  13. and Inclusion.Norman Daniels, Susannah Rose & Ellen Daniels Zide - 2009 - In Kimberley Brownlee & Adam Cureton (eds.), Disability and Disadvantage. Oxford University Press.
     
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  14.  23
    Effect of Financial Relationships on the Behaviors of Health Care Professionals: A Review of the Evidence. [REVIEW]Christopher Robertson, Susannah Rose & Aaron S. Kesselheim - 2012 - Journal of Law, Medicine and Ethics 40 (3):452-466.
    Physicians, scholars, and policymakers continue to be concerned about conflicts of interests among health care providers. At least two main types of objections to conflicts of interest exist. Conflicts of interests may be intrinsically troublesome if they violate providers’ fiduciary duties to their patients or they contribute to loss of trust in health care professionals and the health care system. Conflicts of interest may also be problematic in practice if they bias the decisions made by providers, adversely impacting patient outcomes (...)
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