Results for 'T. Juengst Eric'

999 found
Order:
  1.  30
    Self-Critical Federal Science? The Ethics Experiment Within the U.S. Human Genome Project: ERIC T. JUENGST.Eric T. Juengst - 1996 - Social Philosophy and Policy 13 (2):63-95.
    On October 1, 1988, thirty-five years after co-discovering the structure of the DNA molecule, Dr. James Watson launched an unprecedented experiment in American science policy. In response to a reporter's question at a press conference, he unilaterally set aside 3 to 5 percent of the budget of the newly launched Human Genome Project to support studies of the ethical, legal, and social implications of new advances in human genetics. The Human Genome Project, by providing geneticists with the molecular maps of (...)
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  2.  20
    Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye & Eric T. Juengst - 2016 - BMC Medical Ethics 17 (1):1.
    The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. Originally, these labels were invoked by volunteer research efforts propelled by amateurs outside of traditional research institutions and aimed at appealing to those looking for more “democratic,” “patient-centric,” or “lay” alternatives to the professional science establishment. As mainstream translational biomedical research requires increasingly larger participant pools, however, corporate, academic and governmental research programs (...)
    Direct download (9 more)  
    Translate
     
     
    Export citation  
     
    Bookmark   12 citations  
  3.  9
    Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst - 2015 - American Journal of Bioethics 15 (7):3-14.
    Advances in genomics have led to calls for developing population-based preventive genomic sequencing programs with the goal of identifying genetic health risks in adults without known risk factors. One critical issue for minimizing the harms and maximizing the benefits of PGS is determining the kind and degree of control individuals should have over the generation, use, and handling of their genomic information. In this article we examine whether PGS programs should offer individuals the opportunity to selectively opt out of the (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   13 citations  
  4.  18
    Personalized Genomic Medicine and the Rhetoric of Empowerment.Eric T. Juengst, Michael A. Flatt & Richard A. Settersten - 2012 - Hastings Center Report 42 (5):34-40.
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   16 citations  
  5.  16
    Big Data, Open Science and the Brain: Lessons Learned From Genomics.Suparna Choudhury, Jennifer R. Fishman, Michelle L. McGowan & Eric T. Juengst - 2014 - Frontiers in Human Neuroscience 8.
  6.  64
    Can Enhancement Be Distinguished From Prevention in Genetic Medicine?Eric T. Juengst - 1997 - Journal of Medicine and Philosophy 22 (2):125-142.
    In discussions of the ethics of human gene therapy, it has become standard to draw a distinction between the use of human gene transfer techniques to treat health problems and their use to enhance or improve normal human traits. Some dispute the normative force of this distinction by arguing that it is undercut by the legitimate medical use of human gene transfer techniques to prevent disease - such as genetic engineering to bolster immune function, improve the efficiency of DNA repair, (...)
    Direct download (7 more)  
     
    Export citation  
     
    Bookmark   25 citations  
  7.  29
    Crowdsourcing the Moral Limits of Human Gene Editing?Eric T. Juengst - 2017 - Hastings Center Report 47 (3):15-23.
    In 2015, a flourish of “alarums and excursions” by the scientific community propelled CRISPR/Cas9 and other new gene-editing techniques into public attention. At issue were two kinds of potential gene-editing experiments in humans: those making inheritable germ-line modifications and those designed to enhance human traits beyond what is necessary for health and healing. The scientific consensus seemed to be that while research to develop safe and effective human gene editing should continue, society's moral uncertainties about these two kinds of experiments (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  8.  10
    Grudging Trust and the Limits of Trustworthy Biorepository Curation.Karen M. Meagher, Eric T. Juengst & Gail E. Henderson - 2018 - American Journal of Bioethics 18 (4):23-25.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  9.  26
    Groups as Gatekeepers to Genomic Research: Conceptually Confusing, Morally Hazardous, and Practically Useless.Eric T. Juengst - 1998 - Kennedy Institute of Ethics Journal 8 (2):183-200.
    : Some argue that human groups have a stake in the outcome of population-genomics research and that the decision to participate in such research should therefore be subject to group permission. It is not possible, however, to obtain prior group permission, because the actual human groups under study, human demes, are unidentifiable before research begins. Moreover, they lack moral standing. If identifiable social groups with moral standing are used as proxies for demes, group approval could be sought, but at the (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   12 citations  
  10.  8
    Commentary: What "Community Review" Can and Cannot Do.Eric T. Juengst - 2000 - Journal of Law, Medicine and Ethics 28 (1):52-54.
  11.  10
    Biogerontology, “Anti‐Aging Medicine,” and the Challenges of Human Enhancement.Eric T. Juengst, Robert H. Binstock, Maxwell Mehlman, Stephen G. Post & Peter Whitehouse - 2003 - Hastings Center Report 33 (4):21-30.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   9 citations  
  12.  22
    FACE Facts: Why Human Genetics Will Always Provoke Bioethics.Eric T. Juengst - 2004 - Journal of Law, Medicine and Ethics 32 (2):267-275.
  13.  14
    Thresholds and Boundaries in the Disclosure of Individual Genetic Research Results.Lynn G. Dressler & Eric T. Juengst - 2006 - American Journal of Bioethics 6 (6):18 – 20.
  14.  17
    FACE Facts: Why Human Genetics Will Always Provoke Bioethics.Eric T. Juengst - 2004 - Journal of Law, Medicine and Ethics 32 (2):267-275.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  15.  3
    Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy.Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis - 2014 - Journal of Law, Medicine and Ethics 42 (2):220-231.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  16.  36
    Germ-Line Gene Therapy: Back to Basics.Eric T. Juengst - 1991 - Journal of Medicine and Philosophy 16 (6):587-592.
  17.  10
    Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World.Eric T. Juengst & Eric M. Meslin - 2019 - Kennedy Institute of Ethics Journal 29 (1):67-95.
    Expectations are high around the world that more research on human genomic variation will improve the utility of “precision medicine” and help address population health disparities through “precision public health”. In large measure, these expectations rest on the premise that researchers will be able to share human DNA samples and genomic data freely and widely across the international scientific community. The human genomics community pioneered polices of early deposit of genomic research data into open databases to facilitate the exchange and (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  18.  24
    What Research Ethics Should Learn From Genomics and Society Research: Lessons From the ELSI Congress of 2011.Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski & Marsha Michie - 2012 - Journal of Law, Medicine and Ethics 40 (4):1008-1024.
    Research on the ethical, legal, and social implications (ELSI) of human genomics has devoted significant attention to the research ethics issues that arise from genomic science as it moves through the translational process. Given the prominence of these issues in today's debates over the state of research ethics overall, these studies are well positioned to contribute important data, contextual considerations, and policy arguments to the wider research ethics community's deliberations, and ultimately to develop a research ethics that can help guide (...)
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  19.  7
    What “Community Review” Can and Cannot Do.Eric T. Juengst - 2000 - Journal of Law, Medicine and Ethics 28 (1):52-54.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   6 citations  
  20.  42
    Ethical and Legal Issues in Enhancement Research on Human Subjects.Maxwell J. Mehlman, Jessica W. Berg, Eric T. Juengst & Eric Kodish - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (1):30--45.
    The United States, along with other nations and international organizations, has developed an elaborate system of ethical norms and legal rules to govern biomedical research using human subjects. These policies govern research that might provide direct health benefits to participants and research in which there is no prospect for participant health benefits. There has been little discussion, however, about how well these rules would apply to research designed to improve participants’ capabilities or characteristics beyond the goal of good health. When (...)
    Direct download (8 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  21.  7
    In Honor of LeRoy Walters: Introduction From the Editors.Eric M. Meslin, Eric T. Juengst & Carol Mason Spicer - 2019 - Kennedy Institute of Ethics Journal 29 (1):67-95.
    Since the birth of bioethics, a persistent refrain has been that advances in science, technology, and health are occurring so quickly that they threaten to outpace society’s ability to understand and react to them. Genomics, big data, and synthetic biology preoccupy current scholarly and policy debates, just as organ transplantation, in vitro fertilization, human subjects research, and gene therapy did over the past forty years. But the history of bioethics is more than the topics it has addressed. It is also (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark  
  22.  9
    Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy.Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis - 2014 - Journal of Law, Medicine and Ethics 42 (2):220-231.
    Recent advances in next generation sequencing along with high hopes for genomic medicine have inspired interest in genomic research with the newly dead. However, applicable law does not adequately determine ethical or policy responses to such research. In this paper we propose that such research stands at a crossroads between other more established biomedical clinical and research practices. In addressing the ethical and policy issues raised by a particular research project within our institution comparatively with these other practices, we illustrate (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  23. Can Prevention Be Distinguished From Enhancement in Genetic Medicine?Eric T. Juengst - 1997 - Journal of Medicine and Philosophy 22:125-142.
  24.  51
    Germ-Line Gene Therapy and the Clinical Ethos of Medical Genetics.Gregory Fowler, Eric T. Juengst & Burke K. Zimmerman - 1989 - Theoretical Medicine and Bioethics 10 (2).
    Although the ability to perform gene therapy in human germ-line cells is still hypothetical, the rate of progress in molecular and cell biology suggests that it will only be a matter of time before reliable clinical techniques will be within reach. Three sets of arguments are commonly advanced against developing those techniques, respectively pointing to the clinical risks, social dangers and better alternatives. In this paper we analyze those arguments from the perspective of the client-centered ethos that traditionally governs practice (...)
    Direct download  
     
    Export citation  
     
    Bookmark   2 citations  
  25.  26
    The Human Genome Project and Bioethics.Eric T. Juengst - 1991 - Kennedy Institute of Ethics Journal 1 (1):71-74.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  26.  56
    Symposium Report.Eric T. Juengst - 1980 - Theoretical Medicine and Bioethics 1 (3):379-379.
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark  
  27.  11
    Community Engagement in Genetic Research: The “Slow Code” of Research Ethics?Eric T. Juengst - 2003 - In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. pp. 181--197.
    Direct download  
     
    Export citation  
     
    Bookmark   1 citation  
  28.  34
    Patterns of Reasoning in Medical Genetics: An Introduction.Eric T. Juengst - 1989 - Theoretical Medicine and Bioethics 10 (2):101-105.
  29. Alice Dreger and Bruce Wilson Reply.Robert H. Binstock, Eric T. Juengst, Maxwell J. Mehlman & Stephen G. Post - forthcoming - Hastings Center Report.
     
    Export citation  
     
    Bookmark  
  30.  13
    Citizen Science or Scientific Citizenship? Disentangling the Uses of Public Engagement Rhetoric in National Research Initiatives.Michelle J. Patrick Woolley, Harriet L. McGowan, Victoria Coathup J. A. Teare, R. Fishman Jennifer, A. Settersten Richard, Jane Kaye Sigrid Sterckx & T. Juengst Eric - forthcoming - Most Recent Articles: Bmc Medical Ethics.
    The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists....
    Direct download  
     
    Export citation  
     
    Bookmark  
  31.  11
    Extraordinary Litmus Tests.Robert H. Binstock, Eric T. Juengst, Maxwell J. Mehlman & Stephen G. Post - 2004 - Hastings Center Report 34 (2):4-5.
  32.  15
    GINA and Preemployment Criminal Background Checks.Shawneequa L. Callier, John Huss & Eric T. Juengst - 2010 - Hastings Center Report 40 (1):15-19.
  33.  6
    Response to Open Peer Commentaries on “Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice”.Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst - 2015 - American Journal of Bioethics 15 (12):6-9.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  34.  6
    Genetic Diagnostic, Pedigree, and Screening Research.Eric T. Juengst & Aaron Goldenberg - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford Textbook of Clinical Research Ethics. Oxford University Press. pp. 298.
  35.  1
    Symposium Report.Eric T. Juengst - 1980 - Metamedicine 1 (3):379-379.
    No categories
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
  36.  20
    From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.Eric Juengst, Michelle L. McGowan, Jennifer R. Fishman & Richard A. Settersten - 2016 - Hastings Center Report 46 (5):21-33.
    Since the late 1980s, the human genetics and genomics research community has been promising to usher in a “new paradigm for health care”—one that uses molecular profiling to identify human genetic variants implicated in multifactorial health risks. After the completion of the Human Genome Project in 2003, a wide range of stakeholders became committed to this “paradigm shift,” creating a confluence of investment, advocacy, and enthusiasm that bears all the marks of a “scientific/intellectual social movement” within biomedicine. Proponents of this (...)
    Direct download (6 more)  
     
    Export citation  
     
    Bookmark   11 citations  
  37.  12
    Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.Maya Sabatello & Eric Juengst - 2019 - Hastings Center Report 49 (S1):S10-S18.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  38.  45
    Human Enhancement.Eric Juengst & Daniel Moseley - 2016 - The Stanford Encyclopedia of Philosophy.
    We examine a set of debates in Practical Ethics commonly labeled “the ethics of human enhancement.” Our essay focuses on (1) conceptual concerns about the limits of legitimate health care—the treatment vs. enhancement distinction, (2) moral considerations about fairness, authenticity, and human nature that are common in discussing the use of medical technologies in competitive institutions like sports and academia, and (3) broader issues that pertain to science policy and the distribution and regulation of medical technologies.
    Direct download  
     
    Export citation  
     
    Bookmark   3 citations  
  39.  8
    Are Parents Really Obligated to Learn as Much as Possible About Their Children's Genomes?Josephine Johnston & Eric Juengst - 2018 - Hastings Center Report 48 (S2):S14-S15.
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  40.  23
    Enhancing Cognition in the Intellectually Intact.Peter J. Whitehouse, Eric Juengst, Maxwell Mehlman & Thomas H. Murray - 1997 - Hastings Center Report 27 (3):14-22.
  41.  10
    From Metagenomics to the Metagenome: Conceptual Change and the Rhetoric of Translational Genomic Research.Eric Juengst & John Huss - 2009 - Genomics, Society and Policy 5 (3):1-19.
    As the international genomic research community moves from the tool-making efforts of the Human Genome Project into biomedical applications of those tools, new metaphors are being suggested as useful to understanding how our genes work – and for understanding who we are as biological organisms. In this essay we focus on the Human Microbiome Project as one such translational initiative. The HMP is a new ‘metagenomic’ research effort to sequence the genomes of human microbiological flora, in order to pursue the (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  42.  5
    Population Genetic Research and Screening: Conceptual and Ethical Issues.Eric Juengst - 2009 - In Bonnie Steinbock (ed.), The Oxford Handbook of Bioethics. Oxford University Press.
    Like all community-based public health campaigns, proposals to use genetic information to improve the health and welfare of communities, whether the old eugenic sterilization campaigns or the routinized population screening programs of today's ‘public health genetics’, can involve asking affected individuals to make special sacrifices or assume special responsibilities on behalf of the community's welfare. Moreover, unlike public health interventions that restrict individual liberties in order to prevent health problems which all community members risk more or less equally, genetic prevention (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  43.  19
    Pure Glenn-Fiditch. Review of Glenn McGee, Beyond Genetics: Putting the Power of DNA to Work in Your Life.Eric Juengst - 2004 - American Journal of Bioethics 4 (2):13 – 15.
  44.  3
    Subtracting Injury From Insult: Ethical Issues in the Use of Pharmaceutical Implants.Eric Juengst & Ronald Siegel - 1988 - Hastings Center Report 18 (6):41-46.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  45. Interpreting Proxy Directives: Clinical Decision-Making and the Durable Power of Attorney for Health Care.E. T. Juengst, C. J. Weil, C. Hackler, R. Mosely & D. Vawter - 1989 - In Chris Hackler, Ray Moseley & Dorothy E. Vawter (eds.), Advance Directives in Medicine. Praeger.
  46. The Art of Knowing One-Self: Or, an Enquiry Into the Sources of Morality [Tr. By T.W.].Jacques Abbadie & W. T. - 1695
    No categories
     
    Export citation  
     
    Bookmark  
  47. LAGUNA, T. DE.-Introduction to the Study of Ethics. [REVIEW]A. E. T. - 1915 - Mind 24:421.
     
    Export citation  
     
    Bookmark  
  48. An Account of the Life and Writings of Mr. John Locke [by J. Le Clerc, Tr. By T.F.P.].Jean Le Clerc & F. P. T. - 1713
     
    Export citation  
     
    Bookmark  
  49. An Account of the Life and Writings of Mr. John Locke [by J. Le Clerc, Tr. By T.F.P.]. [Followed by] the Last Will and Testament of John Locke. [REVIEW]Jean Le Clerc & F. P. T. - 1714
     
    Export citation  
     
    Bookmark  
  50. The Life and Character of Mr. John Locke. Done Into Engl. By T.F.P.Jean Le Clerc & F. P. T. - 1706
     
    Export citation  
     
    Bookmark  
1 — 50 / 999