34 found
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  1.  8
    Stem Cell Tourism and Doctors' Duties to Minors—A View From Canada.Amy Zarzeczny & Timothy Caulfield - 2010 - American Journal of Bioethics 10 (5):3-15.
    While the clinical promise of much stem cell research remains largely theoretical, patients are nonetheless pursuing unproven stem cell therapies in jurisdictions around the world?a phenomenon referred to as ?stem cell tourism.? These treatments are generally advertised on a direct-to-consumer basis via the Internet. Research shows portrayals of stem cell medicine on such websites are overly optimistic and the claims made are unsubstantiated by published evidence. However, anecdotal evidence suggests that parents are pursing these ?treatments? for their children, despite potential (...)
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  2.  6
    Handling Ethical, Legal and Social Issues in Birth Cohort Studies Involving Genetic Research: Responses From Studies in Six Countries.Nola M. Ries, Jane LeGrandeur & Timothy Caulfield - 2010 - BMC Medical Ethics 11 (1):4.
    Research involving minors has been the subject of much ethical debate. The growing number of longitudinal, pediatric studies that involve genetic research present even more complex challenges to ensure appropriate protection of children and families as research participants. Long-term studies with a genetic component involve collection, retention and use of biological samples and personal information over many years. Cohort studies may be established to study specific conditions (e.g. autism, asthma) or may have a broad aim to research a range of (...)
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  3.  23
    Why a Criminal Ban? Analyzing the Arguments Against Somatic Cell Nuclear Transfer in the Canadian Parliamentary Debate.Timothy Caulfield & Tania Bubela - 2007 - American Journal of Bioethics 7 (2):51 – 61.
    Somatic cell nuclear transfer (SCNT) remains a controversial technique, one that has elicited a variety of regulatory responses throughout the world. On March 29, 2005, Canada's Assisted Human Reproduction Act came into force. This law prohibits a number of research activities, including SCNT. Given the pluralistic nature of Canadian society, the creation of this law stands as an interesting case study of the policy-making process and how and why a liberal democracy ends up making the relatively rare decision to use (...)
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  4.  27
    Stem Cell Research and Economic Promises.Timothy Caulfield - 2010 - Journal of Law, Medicine & Ethics 38 (2):303-313.
    In the context of stem cell research, the promise of economic growth has become a common policy argument for adoption of permissive policies and increased government funding. However, declarations of economic and commercial benefit, which can be found in policy reports, the scientific literature, public funding policies, and the popular press, have arguably created a great deal of expectation. Can stem cell research deliver on the economic promise? And what are the implications of this economic ethos for the researchers who (...)
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  5.  8
    DNA Databanks and Consent: A Suggested Policy Option Involving an Authorization Model. [REVIEW]Timothy Caulfield, Ross Upshur & Abdallah Daar - 2003 - BMC Medical Ethics 4 (1):1-4.
    Background Genetic databases are becoming increasingly common as a means of determining the relationship between lifestyle, environmental exposures and genetic diseases. These databases rely on large numbers of research subjects contributing their genetic material to successfully explore the genetic basis of disease. However, as all possible research questions that can be posed of the data are unknown, an unresolved ethical issue is the status of informed consent for future research uses of genetic material. Discussion In this paper, we discuss the (...)
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  6.  17
    Public Perceptions and Biobanking: What Does the Research Really Say?Christen Rachul, Amy McGuire & Timothy Caulfield - 2012 - Studies in Ethics, Law, and Technology 6 (1).
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  7. What's Missing? Discussing Stem Cell Translational Research in Educational Information on Stem Cell “Tourism”.Zubin Master, Amy Zarzeczny, Christen Rachul & Timothy Caulfield - 2013 - Journal of Law, Medicine and Ethics 41 (1):254-268.
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  8.  6
    Ethics Hype?Timothy Caulfield - 2016 - Hastings Center Report 46 (5):13-16.
    There has been growing concern about the phenomenon of science hype, the tendency to exaggerate the value or near-future application of research results. Although this is a problem that touches every area of biomedicine, the topic of genetics seems to be particularly prone to enthusiastic predictions. The world has been told for over two decades-by the media, researchers, politicians, and the biotech industry-that a genome-driven health care revolution is just around the corner. And while the revolution never seems to arrive, (...)
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  9.  1
    Stem Cell Research and Economic Promises.Timothy Caulfield - 2010 - Journal of Law, Medicine and Ethics 38 (2):303-313.
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  10.  6
    Direct-To-Consumer Genetics and Health Policy: A Worst-Case Scenario?Timothy Caulfield - 2009 - American Journal of Bioethics 9 (6):48-50.
  11.  11
    Popular Representations of Race: The News Coverage of BiDil.Timothy Caulfield & Simrat Harry - 2008 - Journal of Law, Medicine & Ethics 36 (3):485-490.
    The BiDil story offers an ideal opportunity to explore the nature and tone of media representations of race and genetics. For example, was a biological view of race emphasized? Or was the notion of race presented in a critical fashion?
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  12. Popular Representations of Race: The News Coverage of BiDil.Timothy Caulfield & Simrat Harry - 2008 - Journal of Law, Medicine and Ethics 36 (3):485-490.
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  13.  2
    Conflicts of Interest in Clinical Research: Addressing the Issue of Physician Remuneration.Timothy Caulfield & Glenn Griener - 2002 - Journal of Law, Medicine & Ethics 30 (2):305-308.
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  14.  39
    Human Cloning Laws, Human Dignity and the Poverty of the Policy Making Dialogue.Timothy Caulfield - 2003 - BMC Medical Ethics 4 (1):1-7.
    Background The regulation of human cloning continues to be a significant national and international policy issue. Despite years of intense academic and public debate, there is little clarity as to the philosophical foundations for many of the emerging policy choices. The notion of "human dignity" is commonly used to justify cloning laws. The basis for this justification is that reproductive human cloning necessarily infringes notions of human dignity. Discussion The author critiques one of the most commonly used ethical justifications for (...)
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  15.  6
    The Gene Patent Controversy on Twitter: A Case Study of Twitter Users’ Responses to the CHEO Lawsuit Against Long QT Gene Patents.Li Du, Kalina Kamenova & Timothy Caulfield - 2015 - BMC Medical Ethics 16 (1):55.
    The recent Canadian lawsuit on patent infringement, filed by the Children’s Hospital of Eastern Ontario, has engendered a significant public debate on whether patenting genes should be legal in Canada. In part, this public debate has involved the use of social networking sites, such as Twitter. This case provides an opportunity to examine how Twitter was used in the context of this gene patent controversy.
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  16.  5
    Defining ‘Medical Necessity’ in an Age of Personalised Medicine: A View From Canada.Timothy Caulfield & Amy Zarzeczny - 2014 - Bioessays 36 (9):813-817.
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  17.  8
    Human Genetic Research, Race, Ethnicity and the Labeling of Populations: Recommendations Based on an Interdisciplinary Workshop in Japan.Yasuko Takezawa, Kazuto Kato, Hiroki Oota, Timothy Caulfield, Akihiro Fujimoto, Shunwa Honda, Naoyuki Kamatani, Shoji Kawamura, Kohei Kawashima, Ryosuke Kimura, Hiromi Matsumae, Ayako Saito, Patrick E. Savage, Noriko Seguchi, Keiko Shimizu, Satoshi Terao, Yumi Yamaguchi-Kabata, Akira Yasukouchi, Minoru Yoneda & Katsushi Tokunaga - 2014 - BMC Medical Ethics 15 (1):33.
    A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, social (...)
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  18.  10
    What's Missing? Discussing Stem Cell Translational Research in Educational Information on Stem Cell “Tourism”.Zubin Master, Amy Zarzeczny, Christen Rachul & Timothy Caulfield - 2013 - Journal of Law, Medicine & Ethics 41 (1):254-268.
    Stem cell tourism is a growing industry in which patients pursue unproven stem cell therapies for a wide variety of illnesses and conditions. It is a challenging market to regulate due to a number of factors including its international, online, direct-to-consumer approach. Calls to provide education and information to patients, their families, physicians, and the general public about the risks associated with stem cell tourism are mounting. Initial studies examining the perceptions of patients who have pursued stem cell tourism indicate (...)
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  19.  16
    Technology Assessment and Resource Allocation for Predictive Genetic Testing: A Study of the Perspectives of Canadian Genetic Health Care Providers.Alethea Adair, Robyn Hyde-Lay, Edna Einsiedel & Timothy Caulfield - 2009 - BMC Medical Ethics 10 (1):6-.
    BackgroundWith a growing number of genetic tests becoming available to the health and consumer markets, genetic health care providers in Canada are faced with the challenge of developing robust decision rules or guidelines to allocate a finite number of public resources. The objective of this study was to gain Canadian genetic health providers' perspectives on factors and criteria that influence and shape resource allocation decisions for publically funded predictive genetic testing in Canada.MethodsThe authors conducted semi-structured interviews with 16 senior lab (...)
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  20.  6
    Should We Call It Fraud?Timothy Caulfield - 2012 - Hastings Center Report 42 (1):inside back cover-inside back co.
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  21.  7
    Variations and Voids: The Regulation of Human Cloning Around the World. [REVIEW]Shaun Pattinson & Timothy Caulfield - 2004 - BMC Medical Ethics 5 (1):1-8.
    Background No two countries have adopted identical regulatory measures on cloning. Understanding the complexity of these regulatory variations is essential. It highlights the challenges associated with the regulation of a controversial and rapidly evolving area of science and sheds light on a regulatory framework that can accommodate this reality. Methods Using the most reliable information available, we have performed a survey of the regulatory position of thirty countries around the world regarding the creation and use of cloned embryos (see Table (...)
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  22.  3
    Balancing Efficiency and the Protection of Research Participants: Canadian Allergy/Asthma Researchers’ Perspectives on the Ethics Review of Multi-Site Health Research.Zubin Master, Nola M. Ries & Timothy Caulfield - 2011 - Journal of Clinical Research and Bioethics 2 (5).
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  23.  7
    Integrating Bioethics and Health Law Into the Canadian Institutes of Health Research.Susan Sherwin, Françoise Baylis, Alan Bernstein, Timothy Caulfield, Bernard Dickens, Jocelyn Downie, Bartha Knoppers, Thérèse Leroux, Neil MacDonald, Michael McDonald, Janet Storch & Charles Weijer - unknown
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  24.  3
    That Personal Touch.Timothy Caulfield - 2011 - Hastings Center Report 41 (3):4-4.
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  25.  2
    Policy Recommendations for Addressing Privacy Challenges Associated with Cell-Based Research and Interventions.Ubaka Ogbogu, Sarah Burningham, Adam Ollenberger, Kathryn Calder, Li Du, Khaled El Emam, Robyn Hyde-Lay, Rosario Isasi, Yann Joly, Ian Kerr, Bradley Malin, Michael McDonald, Steven Penney, Gayle Piat, Denis-Claude Roy, Jeremy Sugarman, Suzanne Vercauteren, Griet Verhenneman, Lori West & Timothy Caulfield - 2014 - BMC Medical Ethics 15 (1):7.
    The increased use of human biological material for cell-based research and clinical interventions poses risks to the privacy of patients and donors, including the possibility of re-identification of individuals from anonymized cell lines and associated genetic data. These risks will increase as technologies and databases used for re-identification become affordable and more sophisticated. Policies that require ongoing linkage of cell lines to donors’ clinical information for research and regulatory purposes, and existing practices that limit research participants’ ability to control what (...)
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  26.  1
    The Commercialization of University-Based Research: Balancing Risks and Benefits.Timothy Caulfield & Ubaka Ogbogu - 2015 - BMC Medical Ethics 16 (1):1-7.
    BackgroundThe increasing push to commercialize university research has emerged as a significant science policy challenge. While the socio-economic benefits of increased and rapid research commercialization are often emphasized in policy statements and discussions, there is less mention or discussion of potential risks. In this paper, we highlight such potential risks and call for a more balanced assessment of the commercialization ethos and trends.DiscussionThere is growing evidence that the pressure to commercialize is directly or indirectly associated with adverse impacts on the (...)
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  27.  2
    Currents in Contemporary Ethics.Timothy Caulfield, Trudo Lemmens, Douglas Kinsella & Michael McDonald - 2004 - Journal of Law, Medicine & Ethics 32 (2):365-368.
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  28.  4
    That Personal TouchTo the EditorTo the EditorTo the EditorTo the EditorLeonard M. Fleck repliesErrata.Timothy Caulfield - 2011 - Hastings Center Report 41 (3):4-4.
    To the Editor: Last year I sent a vial of my spit to a prominent direct-to-consumer genetic testing company. The company's Web site promised that, in return, I would get genetic risk information that would allow me to "make life-style choices" and "make more informed decisions" about my health—in other words, personalize my health behaviors and medical care.When the results arrived I found little that was helpful. There was lots of fun and interesting information. It was, after all, information about (...)
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  29.  1
    Harmonizing Commercialization and Gene Patent Policy with Other Social Goals.Lorraine Sheremeta, R. Gold & Timothy Caulfield - 2003 - In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. pp. 423--452.
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  30.  4
    Minimal Risk and Large-Scale Biobank and Cohort Research.Timothy Caulfield & Charles Weijer - unknown
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  31. Currents in Contemporary Ethics.Timothy Caulfield, Trudo Lemmens, Douglas Kinsella & Michael McDonald - 2004 - Journal of Law, Medicine and Ethics 32 (2):365-368.
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  32. Conflicts of Interest in Clinical Research: Addressing the Issue of Physician Remuneration.Timothy Caulfield & Glenn Griener - 2002 - Journal of Law, Medicine and Ethics 30 (2):305-308.
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  33. Glenn McGee, The Perfect Baby: A Pragmatic Approach to Genetics Reviewed By.Timothy Caulfield - 1997 - Philosophy in Review 17 (5):352-354.
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  34. Book Reviews-Legal Rights and Human Genetic Material.Bartha Maria Knoppers, Timothy Caulfield & T. Douglas Kinsella - 1998 - Bioethics 12 (4):343.
     
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