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Vicki Marsh [17]Vicki M. Marsh [1]
  1.  9
    Solidarity and Community Engagement in Global Health Research.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (5):43-56.
    Community engagement is gaining prominence in global health research. A number of ethical goals–spanning the instrumental, intrinsic, and transformative–have been ascribed to CE in global heal...
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  2.  35
    Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K Enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
    There is wide agreement that community engagement is important for many research types and settings, often including interaction with ‘representatives’ of communities. There is relatively little published experience of community engagement in international research settings, with available information focusing on Community Advisory Boards or Groups (CAB/CAGs), or variants of these, where CAB/G members often advise researchers on behalf of the communities they represent. In this paper we describe a network of community members (‘KEMRI Community Representatives’, or ‘KCRs’) linked to a (...)
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  3.  13
    Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast. [REVIEW]Sassy Molyneux, Stephen Mulupi, Lairumbi Mbaabu & Vicki Marsh - 2012 - BMC Medical Ethics 13 (1):13-.
    BackgroundThere is general consensus internationally that unfair distribution of the benefits of research is exploitative and should be avoided or reduced. However, what constitutes fair benefits, and the exact nature of the benefits and their mode of provision can be strongly contested. Empirical studies have the potential to contribute viewpoints and experiences to debates and guidelines, but few have been conducted. We conducted a study to support the development of guidelines on benefits and payments for studies conducted by the KEMRI-Wellcome (...)
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  4.  59
    Consulting Communities on Feedback of Genetic Findings in International Health Research: Sharing Sickle Cell Disease and Carrier Information in Coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.
    International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on disclosing genetic findings in the context of research highlights the role of community consultation in understanding and balancing ethically important issues from participants’ perspectives, including social forms of benefit and harm, and the influence of access to care. To inform research practice locally, (...)
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  5.  11
    Deliberately Infecting Healthy Volunteers with Malaria Parasites: Perceptions and Experiences of Participants and Other Stakeholders in a Kenyan‐Based Malaria Infection Study.Irene Jao, Vicki Marsh, Primus Che Chi, Melissa Kapulu, Mainga Hamaluba, Sassy Molyneux, Philip Bejon & Dorcas Kamuya - 2020 - Bioethics 34 (8):819-832.
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  6.  7
    “When They See Us, It’s Like They Have Seen the Benefits!”: Experiences of Study Benefits Negotiations in Community-Based Studies on the Kenyan Coast.Dorcas M. Kamuya, Vicki Marsh, Patricia Njuguna, Patrick Munywoki, Michael Parker & Sassy Molyneux - 2014 - BMC Medical Ethics 15 (1):90.
    Benefit sharing in health research has been the focus of international debates for many years, particularly in developing countries. Whilst increasing attention is being given to frameworks that can guide researchers to determine levels of benefits to participants, there is little empirical research from developing countries on the practical application of these frameworks, including in situations of extreme poverty and vulnerability. In addition, the voices of those who often negotiate and face issues related to benefits in practice - frontline researchers (...)
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  7.  21
    Community Members Employed on Research Projects Face Crucial, Often Under-Recognized, Ethical Dilemmas.Sassy Molyneux, Dorcas Kamuya & Vicki Marsh - 2010 - American Journal of Bioethics 10 (3):24-26.
  8.  38
    Working with C Ommunity H Ealth W Orkers as ‘ V Olunteers’ in a Vaccine Trial: Practical and Ethical Experiences and Implications.Vibian Angwenyi, Dorcas Kamuya, Dorothy Mwachiro, Vicki Marsh, Patricia Njuguna & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):38-47.
    Community engagement is increasingly emphasized in biomedical research, as a right in itself, and to strengthen ethical practice. We draw on interviews and observations to consider the practical and ethical implications of involving Community Health Workers (CHWs) as part of a community engagement strategy for a vaccine trial on the Kenyan Coast. CHWs were initially engaged as an important network to be informed about the trial. However over time, and in response to community advice, they became involved in trial information (...)
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  9.  19
    Who Should Decide About Children’s and Adolescents’ Participation in Health Research? The Views of Children and Adults in Rural Kenya.Vicki Marsh, Nancy Mwangome, Irene Jao, Katharine Wright, Sassy Molyneux & Alun Davies - 2019 - BMC Medical Ethics 20 (1):41.
    International research guidance has shifted towards an increasingly proactive inclusion of children and adolescents in health research in recognition of the need for more evidence-based treatment. Strong calls have been made for the active involvement of children and adolescents in developing research proposals and policies, including in decision-making about research participation. Much evidence and debate on this topic has focused on high-income settings, while the greatest health burdens and research gaps occur in low-middle income countries, highlighting the need to take (...)
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  10.  4
    Considering the Importance of Context for Ethical Practice on Reimbursement, Compensation and Incentives for Volunteers in Human Infection Controlled Studies.Primus Che Chi, Esther Owino, Irene Jao, Vicki Marsh & Dorcas Kamuya - 2021 - American Journal of Bioethics 21 (3):40-42.
    The proposed framework by Lynch et al. for promoting ethical forms of payment in Human Infection Controlled Studies in general and SARS-Cov-2 HICS in particular is an important contri...
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  11.  20
    What We Learned About Voluntariness and Consent: Incorporating “Background Situations” and Understanding Into Analyses.Dorcas Kamuya, Vicki Marsh & Sassy Molyneux - 2011 - American Journal of Bioethics 11 (8):31-33.
    The American Journal of Bioethics, Volume 11, Issue 8, Page 31-33, August 2011.
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  12.  21
    Debating Ethics in HIV Research: Gaps Between Policy and Practice in Nigeria.Morenike Oluwatoyin Folayan, Kristin Peterson, Bridget Haire, Brandon Brown, Kadiri Audu, Olumide Makanjuola, Babatunde Pelemo & Vicki Marsh - 2015 - Developing World Bioethics 15 (3):214-225.
    HIV prevention is a critical health issue in Nigeria; a country that has one of the worst HIV epidemic profiles in the world. With 270,000 new infections in 2012, Nigeria is a prime site for HIV prevention research. One effect of the HIV epidemic has been to revolutionalise ethical norms for the conduct of research: it is now considered unethical to design and implement HIV related studies without community engagement. Unfortunately, there is very little commensurate effort in building the capacity (...)
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  13.  35
    Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast.M. Marsh Vicki, M. Kamuya Dorcas, M. Mlamba Albert, N. Williams Thomas & S. Molyneux Sassy - 2010 - BMC Medical Ethics (1):13-.
    Background: There is general consensus internationally that unfair distribution of the benefits of research is exploitative and should be avoided or reduced. However, what constitutes fair benefits, and the exact nature of the benefits and their mode of provision can be strongly contested. Empirical studies have the potential to contribute viewpoints and experiences to debates and guidelines, but few have been conducted. We conducted a study to support the development of guidelines on benefits and payments for studies conducted by the (...)
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  14.  29
    Feedback of Research Findings for Vaccine Trials: Experiences From Two Malaria Vaccine Trials Involving Healthy Children on the K Enyan C Oast.Caroline Gikonyo, Dorcas Kamuya, Bibi Mbete, Patricia Njuguna, Ally Olotu, Philip Bejon, Vicki Marsh & Sassy Molyneux - 2013 - Developing World Bioethics 13 (1):48-56.
    Internationally, calls for feedback of findings to be made an ‘ethical imperative’ or mandatory have been met with both strong support and opposition. Challenges include differences in issues by type of study and context, disentangling between aggregate and individual study results, and inadequate empirical evidence on which to draw. In this paper we present data from observations and interviews with key stakeholders involved in feeding back aggregate study findings for two Phase II malaria vaccine trials among children under the age (...)
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  15.  20
    The “Difficult Patient” Conundrum in Sickle Cell Disease in Kenya: Complex Sociopolitical Problems Need Wide Multidimensional Solutions.Vicki Marsh, George Mocamah, Emmanuel Mabibo, Francis Kombe & Thomas N. Williams - 2013 - American Journal of Bioethics 13 (4):20 - 22.
    (2013). The “Difficult Patient” Conundrum in Sickle Cell Disease in Kenya: Complex Sociopolitical Problems Need Wide Multidimensional Solutions. The American Journal of Bioethics: Vol. 13, No. 4, pp. 20-22. doi: 10.1080/15265161.2013.767960.
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  16.  14
    Kenyan Health Stakeholder Views on Individual Consent, General Notification and Governance Processes for the Re-Use of Hospital Inpatient Data to Support Learning on Healthcare Systems.Daniel Mbuthia, Sassy Molyneux, Maureen Njue, Salim Mwalukore & Vicki Marsh - 2019 - BMC Medical Ethics 20 (1):3.
    Increasing adoption of electronic health records in hospitals provides new opportunities for patient data to support public health advances. Such learning healthcare models have generated ethical debate in high-income countries, including on the role of patient and public consent and engagement. Increasing use of electronic health records in low-middle income countries offers important potential to fast-track healthcare improvements in these settings, where a disproportionate burden of global morbidity occurs. Core ethical issues have been raised around the role and form of (...)
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  17. The Ethical Implications of Verbal Autopsy: Responding to Emotional and Moral Distress.Sassy Molyneux, Marylene Wamukoya, Amek Nyaguara, Vicki Marsh & Alex Hinga - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundVerbal autopsy is a pragmatic approach for generating cause-of-death data in contexts without well-functioning civil registration and vital statistics systems. It has primarily been conducted in health and demographic surveillance systems in Africa and Asia. Although significant resources have been invested to develop the technical aspects of verbal autopsy, ethical issues have received little attention. We explored the benefits and burdens of verbal autopsy in HDSS settings and identified potential strategies to respond to the ethical issues identified.MethodsThis research was based (...)
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  18.  2
    Response to Open Peer Commentaries on “Solidarity and Community Engagement in Global Health Research”.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (8):W14-W16.
    Volume 20, Issue 8, August 2020, Page W14-W16.
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