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  1. An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the Science, Health and (...)
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  2.  12
    Openness in Big Data and Data Repositories: The Application of an Ethics Framework for Big Data in Health and Research.Vicki Xafis & Markus K. Labude - 2019 - Asian Bioethics Review 11 (3):255-273.
    There is a growing expectation, or even requirement, for researchers to deposit a variety of research data in data repositories as a condition of funding or publication. This expectation recognizes the enormous benefits of data collected and created for research purposes being made available for secondary uses, as open science gains increasing support. This is particularly so in the context of big data, especially where health data is involved. There are, however, also challenges relating to the collection, storage, and re-use (...)
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    ‘What is Inconvenient for You is Life-Saving for Me’: How Health Inequities Are Playing Out During the COVID-19 Pandemic.Vicki Xafis - 2020 - Asian Bioethics Review 12 (2):223-234.
    Regrettably, in the original version of this article the name of one of the authors was spelt incorrectly. "Li Yan Hsu" should be "Li Yang Hsu".
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  4.  22
    The Perfect Moral Storm: Diverse Ethical Considerations in the COVID-19 Pandemic.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Yujia Zhu & Li Yan Hsu - 2020 - Asian Bioethics Review 12 (2):65-83.
    The COVID-19 pandemic has both exposed and created deep rifts in society. It has thrust us into deep ethical thinking to help justify the difficult decisions many will be called upon to make and to protect from decisions that lack ethical underpinnings. This paper aims to highlight ethical issues in six different areas of life highlighting the enormity of the task we are faced with globally. In the context of COVID-19, we consider health inequity, dilemmas in triage and allocation of (...)
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  5.  18
    AI-Assisted Decision-Making in Healthcare: The Application of an Ethics Framework for Big Data in Health and Research.Tamra Lysaght, Hannah Yeefen Lim, Vicki Xafis & Kee Yuan Ngiam - 2019 - Asian Bioethics Review 11 (3):299-314.
    Artificial intelligence is set to transform healthcare. Key ethical issues to emerge with this transformation encompass the accountability and transparency of the decisions made by AI-based systems, the potential for group harms arising from algorithmic bias and the professional roles and integrity of clinicians. These concerns must be balanced against the imperatives of generating public benefit with more efficient healthcare systems from the vastly higher and accurate computational power of AI. In weighing up these issues, this paper applies the deliberative (...)
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  6.  21
    The Acceptability of Conducting Data Linkage Research Without Obtaining Consent: Lay People’s Views and Justifications.Vicki Xafis - 2015 - BMC Medical Ethics 16 (1):79.
    A key ethical issue arising in data linkage research relates to consent requirements. Patients’ consent preferences in the context of health research have been explored but their consent preferences regarding data linkage specifically have been under-explored. In addition, the views on data linkage are often those of patient groups. As a result, little is known about lay people’s views and their preferences about consent requirements in the context of data linkage. This study explores lay people’s views and justifications regarding the (...)
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  7.  9
    Commentary: Treating Ambiguity in the Clinical Context: Is What You Hear the Doctor Say What the Doctor Means?Vicki Xafis & Dominic Wilkinson - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (3):422-432.
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  8.  36
    Balancing Obligations: Should Written Information About Life-Sustaining Treatment Be Neutral?Vicki Xafis, Dominic Wilkinson, Lynn Gillam & Jane Sullivan - 2015 - Journal of Medical Ethics 41 (3):234-239.
    Parents who are facing decisions about life-sustaining treatment for their seriously ill or dying child are supported by their child's doctors and nurses. They also frequently seek other information sources to help them deal with the medical and ethical questions that arise. This might include written or web-based information. As part of a project involving the development of such a resource to support parents facing difficult decisions, some ethical questions emerged. Should this information be presented in a strictly neutral fashion? (...)
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  9.  7
    Correction To: The Perfect Moral Storm: Diverse Ethical Considerations in the COVID-19 Pandemic.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Yujia Zhu & Li Yang Hsu - 2020 - Asian Bioethics Review 12 (2):85-85.
    Regrettably, in the original version of this article the name of one of the authors was spelt incorrectly. "Li Yan Hsu" should be "Li Yang Hsu".
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    Ethical Language and Decision-Making for Prenatally Diagnosed Lethal Malformations.Dominic Wilkinson, Lachlan De Crespigny & Vicki Xafis - unknown
    In clinical practice, and in the medical literature, severe congenital malformations such as trisomy 18, anencephaly, and renal agenesis are frequently referred to as ‘lethal’ or as ‘incompatible with life’. However, there is no agreement about a definition of lethal malformations, nor which conditions should be included in this category. Review of outcomes for malformations commonly designated ‘lethal’ reveals that prolonged survival is possible, even if rare. This article analyses the concept of lethal malformations and compares it to the problematic (...)
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  11.  7
    Ethically Justified Restrictions on Citizen Science: A Perspective From Singapore.Markus Labude & Vicki Xafis - 2019 - American Journal of Bioethics 19 (8):38-40.
    Volume 19, Issue 8, August 2019, Page 38-40.
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  12.  9
    Overruling Parental Decisions in Paediatric Medicine: A Comparison of Diekema’s Harm Threshold Framework and the Zone of Parental Discretion Framework.Vicki Xafis - 2017 - Clinical Ethics 12 (3):143-149.
    BackgroundThe complexity of decision-making in the paediatric context is well recognised. In the majority of cases, parents and healthcare professionals work together to decide which treatments the paediatric patient should receive. On occasions, however, parental wishes conflict with what clinicians think is best for the paediatric patient. Where persistent disagreement between clinicians and parents exists, clinicians must ascertain if they have a moral, professional, and legal obligation to overrule the parents' decision and implement their preferred option.PurposeFew decision-making frameworks to assist (...)
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