Results for 'benefit‐sharing'

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  1. Benefit Sharing: An Exploration on the Contextual Discourse of a Changing Concept. [REVIEW]Bege Dauda & Kris Dierickx - 2013 - BMC Medical Ethics 14 (1):36.
    The concept of benefit sharing has been a topical issue on the international stage for more than two decades, gaining prominence in international law, research ethics and political philosophy. In spite of this prominence, the concept of benefit sharing is not devoid of controversies related to its definition and justification. This article examines the discourses and justifications of benefit sharing concept.
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  2.  20
    Realizing Benefit Sharing - the Case of Post-Study Obligations.Doris Schroeder & Eugenijus Gefenas - 2012 - Bioethics 26 (6):305-314.
    In 2006, the Indonesian government decided to withhold avian flu samples from the World Health Organization. They argued that even though Indonesian samples were crucial to the development of vaccines, the results of vaccine research would be unaffordable for its citizens. Commentaries on the case varied from alleging blackmail to welcoming this strong stance against alleged exploitation. What is clear is that the concern expressed is related to benefit sharing. Benefit sharing requires resource users to return benefits to resource providers (...)
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  3.  10
    Benefit Sharing - It's Time for a Definition.Doris Schroeder - 2007 - Journal of Medical Ethics 33:205-209.
    Benefit sharing has been a recurrent theme in international debates for the past two decades. However, despite its prominence in law, medical ethics and political philosophy, the concept has never been satisfactorily defined. In this conceptual paper, a definition that combines current legal guidelines with input from ethics debates is developed. Philosophers like boxes; protective casings into which they can put concisely-defined concepts. Autonomy is the human capacity for self-determination; beneficence denotes the virtue of good deeds, coercion is the intentional (...)
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  4.  11
    Benefit Sharing: It's Time for a Definition.Doris Schroeder - 2007 - Journal of Medical Ethics 33 (4):205-209.
    Benefit sharing has been a recurrent theme in international debates for the past two decades. However, despite its prominence in law, medical ethics and political philosophy, the concept has never been satisfactorily defined. In this conceptual paper, a definition that combines current legal guidelines with input from ethics debates is developed. Philosophers like boxes; protective casings into which they can put concisely-defined concepts. Autonomy is the human capacity for self-determination; beneficence denotes the virtue of good deeds, coercion is the intentional (...)
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  5.  31
    Realizing Benefit Sharing – the Case of Post-Study Obligations.Doris Schroeder & Eugenijus Gefenas - 2012 - Bioethics 26 (6):305-314.
    In 2006, the Indonesian government decided to withhold avian flu samples from the World Health Organization. They argued that even though Indonesian samples were crucial to the development of vaccines, the results of vaccine research would be unaffordable for its citizens. Commentaries on the case varied from alleging blackmail to welcoming this strong stance against alleged exploitation. What is clear is that the concern expressed is related to benefit sharing.Benefit sharing requires resource users to return benefits to resource providers in (...)
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  6.  8
    Benefit-Sharing: An Inquiry Regarding the Meaning and Limits of the Concept in Human Genetic Research.Kadri Simm - 2005 - Genomics, Society and Policy 1 (2):29-40.
    The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining (...)
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  7.  10
    Benefit Sharing: From Obscurity to Common Knowledge.Doris Schroeder - 2006 - Developing World Bioethics 6 (3):ii-ii.
  8.  10
    Indigenous Peoples, Consent and Benefit Sharing– Learning Lessons From the San-Hoodia Case.Rachel Wynberg, Doris Schroeder & Roger Chennells (eds.) - 2009 - Dordrecht, Netherlands: Springer.
    Indigenous Peoples, Consent and Benefit Sharing is the first in-depth account of the Hoodia bioprospecting case and use of San traditional knowledge, placing it in the global context of indigenous peoples’ rights, consent and benefit-sharing. It is unique as the first interdisciplinary analysis of consent and benefit sharing in which philosophers apply their minds to questions of justice in the Convention on Biological Diversity (CBD), lawyers interrogate the use of intellectual property rights to protect traditional knowledge, environmental scientists analyse implications (...)
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  9.  51
    Forms of Benefit Sharing in Global Health Research Undertaken in Resource Poor Settings: A Qualitative Study of Stakeholders' Views in Kenya.Geoffrey Lairumbi, Michael Parker, Raymond Fitzpatrick & Michael English - 2012 - Philosophy, Ethics, and Humanities in Medicine 7:7.
    Background Increase in global health research undertaken in resource poor settings in the last decade though a positive development has raised ethical concerns relating to potential for exploitation. Some of the suggested strategies to address these concerns include calls for providing universal standards of care, reasonable availability of proven interventions and more recently, promoting the overall social value of research especially in clinical research. Promoting the social value of research has been closely associated with providing fair benefits to various stakeholders (...)
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  10.  30
    Vicissitudes of Benefit Sharing of Crop Genetic Resources: Downstream and Upstream.Bram de Jonge & Michiel Korthals - 2006 - Developing World Bioethics 6 (3):144–157.
  11.  47
    What is Fair and Equitable Benefit-Sharing?Bram De Jonge - 2011 - Journal of Agricultural and Environmental Ethics 24 (2):127-146.
    “Fair and equitable benefit-sharing” is one of the objectives of the UN Convention on Biological Diversity and the FAO International Treaty on Plant Genetic Resources for Food and Agriculture. In essence, benefit-sharing holds that countries, farmers, and indigenous communities that grant access to their plant genetic resources and/or traditional knowledge should share in the benefits that users derive from these resources. But what exactly is understood by “fair” and “equitable” in this context? Neither term is defined in the international treaties. (...)
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  12.  42
    North–South Benefit Sharing Arrangements in Bioprospecting and Genetic Research: A Critical Ethical and Legal Analysis.Udo Schuklenk & Anita Kleinsmidt - 2006 - Developing World Bioethics 6 (3):060814034439002-???.
  13.  5
    Benefit-Sharing and Other Protections for Communities in Genetic Research.Charles Weijer - unknown
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  14.  15
    The Views of Ethics Committee Members and Medical Researchers on the Return of Individual Research Results and Incidental Findings, Ownership Issues and Benefit Sharing in Biobanking Research in a South Indian City.Manjulika Vaz, Mario Vaz & Srinivasan K. - 2018 - Developing World Bioethics:321-330.
    The return of individual research results and incidental findings from biobanking research is a much debated ethical issue globally but has extensive relevance in India where the burden of out of pocket health care expenses is high for the majority. The views of 21 ethics committee members and 22 researchers from Bengaluru, India, concerning the ethics of biobanking research were sought through in-depth interviews using an unfolding case vignette with probes. A shared view among most was that individual research results (...)
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  15.  33
    Consent, Commodification and Benefit‐Sharing in Genetic Research1.Donna Dickenson - 2004 - Developing World Bioethics 4 (2):109-124.
    We are witnessing is nothing less than a new kind of gold rush, and the territory is the body.
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  16.  25
    Benefit Sharing.Doris Schroeder - 2020 - In Ron Iphofen (ed.), Handbook of Research Ethics and Scientific Integrity. Springer International Publishing. pp. 1-2.
    Research cannot be done by researchers alone. In most cases, additional resources are required, including human research participants, access to biodiversity for biological and genetic resources, or traditional knowledge. Benefit sharing has been part of global conventions and international ethics guidelines for over 25 years, predicated on the understanding that those who contribute to the research process and its outcomes should share in the benefits as a matter of fairness. This chapter explores the different understandings of benefit sharing in a (...)
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  17.  5
    Benefit-Sharing in the New Genomic Marketplace: Expanding the Ethical Frame of Reference.Ted Schrecker - 2003 - In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. pp. 405.
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  18.  13
    Benefit Sharing in a Global Context: Working Towards Solutions for Implementation.J. Hurst Daniel - 2017 - Developing World Bioethics 17 (2):70-76.
    Due to the state of globalized clinical research, questions have been raised as to what, if any, benefits those who contribute to research should receive. One model for compensating research participants is “benefit sharing,” and the basic premise is that, as a matter of justice, those who contribute to scientific research should share in its benefits. While incorporated into several international documents for over two decades, benefit sharing has only been sparsely implemented. This analysis begins by addressing the concept of (...)
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  19.  8
    The Benefit Sharing Vision of H3Africa.Bege Dauda & Steven Joffe - 2018 - Developing World Bioethics 18 (2):165-170.
    One of the central ethical tenets of research in developing countries is the sponsor's obligation to benefit host participants and communities. Two known models of benefits provision dominate the ethical discourse of research in developing countries. The first model, known as the “reasonable availability,” endorses the obligation to provide interventions proven to be effective at the end of a study. This contrasts with the second model, known as “fair benefits,” which endorses other forms of benefits that host communities may deem (...)
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  20.  15
    Benefit Sharing – From Biodiversity to Human Genetics.Doris Schroeder & Julie Cook Lucas (eds.) - 2013 - Dordrecht, Netherlands: Springer.
    Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to (...)
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  21.  8
    Consent, Commodification and Benefit-Sharing in Genetic Research. Donnadickenson - 2004 - Developing World Bioethics 4 (2):109–124.
  22.  20
    Stakeholders Understanding of the Concept of Benefit Sharing in Health Research in Kenya: A Qualitative Study.Geoffrey M. Lairumbi, Michael Parker, Raymond Fitzpatrick & Mike C. English - 2011 - BMC Medical Ethics 12 (1):20.
    BackgroundThe concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in international collaborative health research.The influence of benefit sharing framework on the conduct of collaborative health research is for instance evidenced by the number of publications and research ethics guidelines that require prior engagement between stakeholders to determine the (...)
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  23.  18
    Benefit Sharing in Health Research.Safia Mahomed & Ian Sanne - 2015 - South African Journal of Bioethics and Law 8 (2):60.
    Biobanks are repositories that store human biological materials and their associated data. They are rapidly becoming part of national and international networks and give rise to unique ethico-regulatory issues. Whether consent is informed and whether this term should be used when specimens are collected for biobank research is questionable. Where risks occur, they are usually social and relate to identifiability. Public trust and confidence are important for the success of this type of research. Consensus is growing that governance of biobanks (...)
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  24.  8
    Viewing Benefit Sharing in Global Health Research Through the Lens of Aristotelian Justice.Bege Dauda & Kris Dierickx - 2017 - Journal of Medical Ethics 43 (6):417-421.
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  25.  6
    Benefit Sharing: From Obscurity to Common Knowledge.Doris Schroeder Guest Editor - 2006 - Developing World Bioethics 6 (3):ii–ii.
  26.  8
    Toward Global Justice Through Benefit-Sharing.Roger Chennells - 2010 - Hastings Center Report 40 (1):3-3.
  27.  9
    The Rooibos Benefit Sharing Agreement–Breaking New Ground with Respect, Honesty, Fairness and Care.Doris Schroeder, Roger Chennells, Collin Louw, Leana Snyders & Timothy Hodges - 2019 - Cambridge Quarterly of Healthcare Ethics:1-26.
    The 1992 Convention on Biological Diversity (CBD) and its 2010 Nagoya Protocol brought about a breakthrough in global policy making. They combined a concern for the environment with a commitment to resolving longstanding human injustices regarding access to, and use of biological resources. In particular, the traditional knowledge of indigenous communities was no longer going to be exploited without fair benefit sharing. Yet, for 25 years after the adoption of the CBD, there were no major benefit sharing agreements that led (...)
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  28.  75
    Sharing the Benefits of Genetic Resources: From Biodiversity to Human Genetics.Doris Schroeder & Carolina Lasen-Diaz - 2006 - Developing World Bioethics 6 (3):135–143.
    Benefit sharing aims to achieve an equitable exchange between the granting of access to a genetic resource and the provision of compensation. The Convention on Biological Diversity, adopted at the 1992 Earth Summit in Rio de Janeiro, is the only international legal instrument setting out obligations for sharing the benefits derived from the use of biodiversity. The CBD excludes human genetic resources from its scope, however, this article considers whether it should be expanded to include those resources, so as to (...)
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  29.  17
    Women in Developing Countries and Benefit Sharing.Fatima Alvarez-Castillo & Dafna Feinholz - 2006 - Developing World Bioethics 6 (3):113–121.
  30.  23
    What Do the Various Principles of Justice Mean Within the Concept of Benefit Sharing?Bege Dauda, Yvonne Denier & Kris Dierickx - 2016 - Journal of Bioethical Inquiry 13 (2):281-293.
    The concept of benefit sharing pertains to the act of giving something in return to the participants, communities, and the country that have participated in global health research or bioprospecting activities. One of the key concerns of benefit sharing is the ethical justifications or reasons to support the practice of the concept in global health research and bioprospecting. This article evaluates one of such ethical justifications and its meaning to benefit sharing, namely justice. We conducted a systematic review to map (...)
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  31.  96
    Sharing the Benefits of Research Fairly: Two Approaches.Joseph Millum - 2012 - Journal of Medical Ethics 38 (4):219-223.
    Research projects sponsored by rich countries or companies and carried out in developing countries are often described as exploitative. One important debate about the prevention of exploitation in research centres on whether and how clinical research in developing countries should be responsive to local health problems. This paper analyses the responsiveness debate and draws out more general lessons for how policy makers can prevent exploitation in various research contexts. There are two independent ways to do this in the face of (...)
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  32.  36
    Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases.Yann Joly, Clarissa Allen & Bartha M. Knoppers - 2012 - Journal of Law, Medicine and Ethics 40 (1):143-146.
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  33.  4
    Transparency and Community Benefit-Sharing.Leonardo D. de Castro - 2012 - Asian Bioethics Review 4 (2):85-89.
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  34. Enforcement of Benefit Sharing Duties in User Countries' Courts.Christine Godt - 2009 - In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge, and the Law Solutions for Access and Benefit Sharing. Earthscan.
     
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  35. Double Standards and Benefit-Sharing: A Response to Linda Barclay.Doris Schroeder - 2008 - Monash Bioethics Review 27 (4):S45-S51.
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  36. Public Trust, Commercialisation, and Benefit Sharing : Towards a Trustworthy Biobank in Taiwan.Hung-En Liu & Terence Hua Tai - 2009 - In Margaret Sleeboom-Faulkner (ed.), Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
     
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  37. Access to GRs and Benefit Sharing : Underlying Concepts and the Idea of Justice.Peter-Tobias Stoll - 2009 - In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
  38.  44
    Gender and Vulnerable Populations in Benefit Sharing: An Exploration of Conceptual and Contextual Points.Fatima Alvarez-Castillo, Julie Cook Lucas & Rosa Cordillera Castillo - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (2):130.
  39.  23
    In the Ruins of Babel: Pitfalls on the Way Toward a Universal Language for Research Ethics and Benefit Sharing.Jan Helge Solbakk - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):341-355.
    At the end of a paper on international research ethics published in the July-August 2010 issue of the Hastings Center Report, London and Zollman argue the need for grounding our duties in international medical and health-related research within a broader normative framework of social, distributive, and rectificatory justice. The same goes for Thomas Pogge, who, in a whole range of publications during the past years, has argued for a human-rights-based approach to international research. In a thought-provoking paper in the June (...)
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  40.  16
    PXE International: Harnessing Intellectual Property Law for Benefit-Sharing.Patrick F. Terry - 2003 - In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. pp. 377--395.
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  41. Shared Encoding and the Costs and Benefits of Collaborative Recall.Celia Harris, Amanda Barnier & John Sutton - 2013 - Journal of Experimental Psychology: Learning, Memory, and Cognition 39 (1):183-195.
    We often remember in the company of others. In particular, we routinely collaborate with friends, family, or colleagues to remember shared experiences. But surprisingly, in the experimental collaborative recall paradigm, collaborative groups remember less than their potential, an effect termed collaborative inhibition. Rajaram and Pereira-Pasarin (2010) argued that the effects of collaboration on recall are determined by “pre-collaborative” factors. We studied the role of 2 pre-collaborative factors—shared encoding and group relationship—in determining the costs and benefits of collaborative recall. In Experiment (...)
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  42.  14
    Locating Responsible Research and Innovation Within Access and Benefit Sharing Spaces of the Convention on Biological Diversity: The Challenge of Emerging Technologies.Sarah A. Laird & Rachel P. Wynberg - 2016 - NanoEthics 10 (2):189-200.
    This paper reviews the location of Responsible Research and Innovation approaches within the access and benefit sharing policy spaces of the Convention on Biological Diversity and Nagoya Protocol. We describe how a range of dialogues on ethical research practices found a home, almost inadvertently, within the ABS policy process. However, more recent RRI dialogues around emerging technologies have not been similarly absorbed into ABS policy, due in part to the original framing of ABS and associated definitional and scope issues. Consideration (...)
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  43.  8
    Sharing the Benefits of Genetic Research.Doris Schroeder - 2005 - British Medical Journal 331:1351-1352.
    BMJ Editorial -/- Campaigners are calling on policy makers at next week's sixth World Trade Organization ministerial conference in Hong Kong to make trade fairer for and improve the lives and health of the world's poorest people. This broad and important aim may dominate the headlines, but ministers will also be discussing technical issues surrounding international patenting laws. One issue with implications for the development of medical products is the tension between international patenting laws and benefit sharing requirements, which may (...)
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  44.  44
    Sharing in or Benefiting From Scientific Advancement?Cristian Timmermann - 2014 - Science and Engineering Ethics 20 (1):111-133.
    The intellectual property regimes we have currently in place are heavily under attack. One of the points of criticism is the interaction between two elements of article 27 of the Universal Declaration of Human Rights, the widely discussed issue of being able to benefit from scientific progress and the less argued for position of having a right to take part in scientific enterprises. To shine light on the question if we should balance the two elements or prioritize one of them, (...)
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  45.  19
    Commutative Justice and Access and Benefit Sharing for Genetic Resources.Anna Deplazes-Zemp - 2018 - Ethics, Policy and Environment 21 (1):110-126.
    The Convention on Biological Diversity and its Nagoya Protocol established an Access and Benefit Sharing system between utilizers and providers of genetic resources. ABS is understood as a tool that should promote commutative justice between the involved parties. This essay discusses what exactly it is that is being exchanged in the ABS process. It critically analyses moral claims to compensation that are implied by the ABS system for genetic resources. It argues that with the exception of cases in which traditional (...)
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  46.  4
    A Scoping Review of Considerations and Practices for Benefit Sharing in Biobanking.Dorcas Kamuya, Jantina De Vries & Allan Sudoi - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundDespite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little attention. Questions such as the types and range of benefits that can arise in biobanking, who should be entitled to those benefits, when they should be provided, by whom and in what form remain mostly unanswered. We conducted a scoping review to describe benefit sharing considerations (...)
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  47.  55
    Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing.Evanson C. Kamau & Gerd Winter (eds.) - 2009 - Earthscan.
    The need to regulate access to genetic resources and ensure a fair and equitable sharing of any resulting benefits was at the core of the development of the Convention on Biological Diversity (CBD). The CBD established a series of principles and requirements around access and benefit sharing (ABS) in order to increase transparency and equity in the international flow of genetic resources, yet few countries have been able to effectively implement them and ABS negotiations are often paralysed by differing interests. (...)
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  48. The Diversity of Principles Underlying the Concept of Benefit Sharing.De Jonge Bram & Louwaars Niels - 2009 - In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
     
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  49.  9
    From UNESCO's Declaration to National Law: Challenges of Legislating Community Benefit-Sharing of Genetic Research.Chen Chung-Lin - 2012 - Asian Bioethics Review 4 (2):90-101.
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  50. The Law-Making Process of Access and Benefit-Sharing Regulations : The Case of Kenya.Anne N. Angwenyi - 2009 - In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
     
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