Results for 'empirical bioethics'

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  1.  38
    Standards of Practice in Empirical Bioethics Research: Towards a Consensus.Jonathan Ives, Michael Dunn, Bert Molewijk, Jan Schildmann, Kristine Bærøe, Lucy Frith, Richard Huxtable, Elleke Landeweer, Marcel Mertz, Veerle Provoost, Annette Rid, Sabine Salloch, Mark Sheehan, Daniel Strech, Martine de Vries & Guy Widdershoven - 2018 - BMC Medical Ethics 19 (1):68.
    This paper responds to the commentaries from Stacy Carter and Alan Cribb. We pick up on two main themes in our response. First, we reflect on how the process of setting standards for empirical bioethics research entails drawing boundaries around what research counts as empirical bioethics research, and we discuss whether the standards agreed in the consensus process draw these boundaries correctly. Second, we expand on the discussion in the original paper of the role and significance (...)
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  2.  26
    Constructing Empirical Bioethics: Foucauldian Reflections on the Empirical Turn in Bioethics Research. [REVIEW]Richard E. Ashcroft - 2003 - Health Care Analysis 11 (1):3-13.
    The empirical turn in bioethics has been widely discussed by philosophical medical ethicists and social scientists. The focus of this discussion has been almost exclusively on methodological issues in research, on the admissibility of empirical evidence in rational argument, and on the possible superiority of empirical methods for permitting democratic lay involvement in decision-making. In this paper I consider how the collection of qualitative and quantitative social research evidence plays its part in the construction of social (...)
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  3.  26
    A Systematic Review of Empirical Bioethics Methodologies.Rachel Davies, Jonathan C. S. Ives & Michael Dunn - 2015 - BMC Medical Ethics 16 (1):15.
    Despite the increased prevalence of bioethics research that seeks to use empirical data to answer normative research questions, there is no consensus as to what an appropriate methodology for this would be. This review aims to search the literature, present and critically discuss published Empirical Bioethics methodologies.
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  4.  27
    Setting Standards for Empirical Bioethics Research: A Response to Carter and Cribb.Michael Dunn, Jonathan Ives, Bert Molewijk & Jan Schildmann - 2018 - BMC Medical Ethics 19 (1):66.
    This paper responds to the commentaries from Stacy Carter and Alan Cribb. We pick up on two main themes in our response. First, we reflect on how the process of setting standards for empirical bioethics research entails drawing boundaries around what research counts as empirical bioethics research, and we discuss whether the standards agreed in the consensus process draw these boundaries correctly. Second, we expand on the discussion in the original paper of the role and significance (...)
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  5.  74
    Appropriate Methodologies for Empirical Bioethics: It's All Relative.Jonathan Ives & Heather Draper - 2009 - Bioethics 23 (4):249-258.
    In this article we distinguish between philosophical bioethics (PB), descriptive policy orientated bioethics (DPOB) and normative policy oriented bioethics (NPOB). We argue that finding an appropriate methodology for combining empirical data and moral theory depends on what the aims of the research endeavour are, and that, for the most part, this combination is only required for NPOB. After briefly discussing the debate around the is/ought problem, and suggesting that both sides of this debate are misunderstanding one (...)
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  6.  39
    ‘Encounters with Experience’: Empirical Bioethics and the Future. [REVIEW]Jonathan Ives - 2008 - Health Care Analysis 16 (1):1-6.
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  7.  35
    AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship.Chris Feudtner, Jeremy Sugarman, Barbara A. Koenig, Peter A. Ubel, Richard F. Ittenbach, Laura Weiss Roberts & Laurence B. McCullough - 2014 - Ajob Empirical Bioethics 5 (1):1-2.
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  8.  36
    Systematic Reviews of Empirical Bioethics.D. Strech, M. Synofzik & G. Marckmann - 2008 - Journal of Medical Ethics 34 (6):472-477.
    Background: Publications and discussions of survey research in empirical bioethics have steadily increased over the past two decades. However, findings often differ among studies with similar research questions. As a consequence, ethical reasoning that considers only parts of the existing literature and does not apply systematic reviews tends to be biased. To date, we lack a systematic review (SR) methodology that takes into account the specific conceptual and practical challenges of empirical bioethics. Methods: The steps of (...)
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  9.  37
    Critical Realism and Empirical Bioethics: A Methodological Exposition.Alex McKeown - 2017 - Health Care Analysis 25 (3):191-211.
    This paper shows how critical realism can be used to integrate empirical data and philosophical analysis within ‘empirical bioethics’. The term empirical bioethics, whilst appearing oxymoronic, simply refers to an interdisciplinary approach to the resolution of practical ethical issues within the biological and life sciences, integrating social scientific, empirical data with philosophical analysis. It seeks to achieve a balanced form of ethical deliberation that is both logically rigorous and sensitive to context, to generate normative (...)
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  10.  3
    Debating Diversity: A Commentary on Standards of Practice in Empirical Bioethics Research.Stacy M. Carter - 2018 - BMC Medical Ethics 19 (1):67.
    This article provides a commentary on Standards of practice in empirical bioethics research by Ives and colleagues. There is much to admire in the paper, and in the demanding consensus-building process on which it reports. I discuss the problems and limits of methodological standardisation, and a central conceptual tension that appears to have divided participants. I suggest that the finished product should be understood as a record of a methodological conversation, rather than being used as a disciplinary tool (...)
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  11.  20
    Empirical Bioethics Research in the Developing World: When the 'Is' is Close to an 'Ought'.Claudia I. Emerson, Ross E. G. Upshur & Abdallah S. Daar - 2009 - American Journal of Bioethics 9 (6-7):101-103.
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  12.  11
    Advancing Methods in Empirical Bioethics: Bioxphi Meets Digital Technologies.Brian D. Earp, Ivar R. Hannikainen & Emilian Mihailov - 2021 - American Journal of Bioethics 21 (6):53-56.
    Historically, empirical research in bioethics has drawn on methods developed within the social sciences, including qualitative interviews, focus groups, ethnographic studies, and opinion surveys, t...
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  13. An Empirical Bioethical Examination of Norwegian and British Doctors' Views of Responsibility and (de)Prioritization in Healthcare.Jim A. C. Everett, Hannah Maslen, Anne-Marie Nussberger, Berit Bringedal, Dominic Wilkinson & Julian Savulescu - forthcoming - Wiley: Bioethics.
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  14.  5
    An Empirical Bioethical Examination of Norwegian and British Doctors' Views of Responsibility and (de)Prioritization in Healthcare.Jim A. C. Everett, Hannah Maslen, Anne-Marie Nussberger, Berit Bringedal, Dominic Wilkinson & Julian Savulescu - 2021 - Bioethics 35 (9):932-946.
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  15.  36
    Empirical Bioethics: Present and Future Possibilities.Wayne Shelton - 2009 - American Journal of Bioethics 9 (6-7):74-75.
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  16.  38
    Methodology, Epistemology, and Empirical Bioethics Research: A Constructive/Ist Commentary.Michael Dunn & Jonathan Ives - 2009 - American Journal of Bioethics 9 (6-7):93-95.
  17.  2
    Empirical Bioethics: Coming to Maturity?Alison Harvey - 2011 - Clinical Ethics 6 (2):101-102.
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  18. Hypothetical Vignettes in Empirical Bioethics Research.Connie M. Ulrich & Sarah J. Ratcliffe - 2007 - Advances in Bioethics 11:161-181.
     
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  19.  21
    Beyond Integrating Social Sciences: Reflecting on the Place of Life Sciences in Empirical Bioethics Methodologies.Marcel Mertz & Jan Schildmann - 2018 - Medicine, Health Care and Philosophy 21 (2):207-214.
    Empirical bioethics is commonly understood as integrating empirical research with normative-ethical research in order to address an ethical issue. Methodological analyses in empirical bioethics mainly focus on the integration of socio-empirical sciences and normative ethics. But while there are numerous multidisciplinary research projects combining life sciences and normative ethics, there is few explicit methodological reflection on how to integrate both fields, or about the goals and rationales of such interdisciplinary cooperation. In this paper we (...)
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  20.  10
    Reasons to Redefine Moral Distress: A Feminist Empirical Bioethics Analysis.Georgina Morley, Caroline Bradbury-Jones & Jonathan Ives - 2021 - Bioethics 35 (1):61-71.
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  21.  13
    Mapping, Framing, Shaping: A Framework for Empirical Bioethics Research Projects.Richard Huxtable & Jonathan Ives - 2019 - BMC Medical Ethics 20 (1):1-8.
    Background There is growing interest in the use and incorporation of empirical data in bioethics research. Much of the recent focus has been on specific “empirical bioethics” methodologies, which attempt to integrate the empirical and the normative. Researchers in the field are, however, beginning to explore broader questions, including around acceptable standards of practice for undertaking such research. The framework: In this article, we further widen the focus to consider the overall shape of an (...) bioethics research project. We outline a framework that identifies three key phases of such research, which are conveyed via a landscaping metaphor of Mapping-Framing-Shaping. First, the researcher maps the field of study, typically by undertaking literature reviews. Second, the researcher frames particular areas of the field of study, exploring these in depth, usually via qualitative research. Finally, the researcher seeks to shape the terrain by issuing recommendations that draw on the findings from the preceding phases. To qualify as empirical bioethics research, the researcher will utilise a methodology that seeks to bridge these different elements in order to arrive at normative recommendations. We illustrate the framework by citing examples of diverse projects which broadly adopt the three-phase framework. Amongst the strengths of the framework are its flexibility, since it does not prescribe any specific methods or particular bridging methodology. However, the framework might also have its limitations, not least because it appears particularly to capture projects that involve qualitative – as opposed to quantitative – research. Conclusions Despite its possible limitations, we offer the Mapping-Framing-Shaping framework in the hope that this will prove useful to those who are seeking to plan and undertake empirical bioethics research projects. (shrink)
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  22.  8
    COVID-19: Advancing Empirical Bioethics Research.Connie M. Ulrich, Emily E. Anderson & Jennifer K. Walter - 2020 - AJOB Empirical Bioethics 11 (3):145-147.
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  23.  58
    IEEN Workshop Report: Aims and Methods in Interdisciplinary and Empirical Bioethics.John Owens, Jonathan Ives & Alan Cribb - 2012 - Clinical Ethics 7 (4):157-160.
    Bioethics is a diverse field that accommodates a broad range of perspectives and disciplines. The recent explosion of literature on methods in interdisciplinary and empirical ethics might appear, however, to overshadow the fact that ‘bioethics’ has long been an interdisciplinary field. The Interdisciplinary and Empirical Ethics Network (IEEN) was established, with funding from the Wellcome Trust, to facilitate critical and constructive discussion around the nature of this disciplinary diversity and shift focus away from the ‘empirical (...)
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  24.  19
    Let’s Talk About Standards: A Commentary on Standards of Practice in Empirical Bioethics.Alan Cribb - 2018 - BMC Medical Ethics 19 (1):69.
    This commentary welcomes the work of Ives et al. on Standards of practice in Empirical Bioethics, and especially the dialogical spirit in which the standards have been constructed and offered. It also raises some questions about the consistent interpretation and use of such standards.
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  25.  9
    Hurrah for Empirical Bioethics (Where Hermeneutically Clarified) or How Perception of Facts 'Depends' on Values.Dawson S. Schultz - 2009 - American Journal of Bioethics 9 (6-7):95-99.
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  26.  20
    Beware Dichotomies and Grand Abstractions: Attending to Particularity and Practice in Empirical Bioethics.Stacy M. Carter - 2009 - American Journal of Bioethics 9 (6-7):76-77.
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  27.  28
    The Use of Empirical Research in Bioethics: A Survey of Researchers in Twelve European Countries.Tenzin Wangmo & Veerle Provoost - 2017 - BMC Medical Ethics 18 (1):79.
    The use of empirical research methods in bioethics has been increasing in the last decades. It has resulted in discussions about the ‘empirical turn of bioethics’ and raised questions related to the value of empirical work for this field, methodological questions about its quality and rigor, and how this integration of the normative and the empirical can be achieved. The aim of this paper is to describe the attitudes of bioethics researchers in this (...)
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  28.  11
    Responsible Translation of Psychiatric Genetics and Other Neuroscience Developments: In Need of Empirical Bioethics Research.Gabriel Lázaro-Muñoz - 2017 - American Journal of Bioethics 17 (4):33-35.
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  29.  16
    An Update on the “Empirical Turn” in Bioethics: Analysis of Empirical Research in Nine Bioethics Journals.Tenzin Wangmo, Sirin Hauri, Eloise Gennet, Evelyn Anane-Sarpong, Veerle Provoost & Bernice S. Elger - 2018 - BMC Medical Ethics 19 (1):6.
    A review of literature published a decade ago noted a significant increase in empirical papers across nine bioethics journals. This study provides an update on the presence of empirical papers in the same nine journals. It first evaluates whether the empirical trend is continuing as noted in the previous study, and second, how it is changing, that is, what are the characteristics of the empirical works published in these nine bioethics journals. A review of (...)
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  30.  58
    What ‘Empirical Turn in Bioethics’?Samia Hurst - 2010 - Bioethics 24 (8):439-444.
    ABSTRACTUncertainty as to how we should articulate empirical data and normative reasoning seems to underlie most difficulties regarding the ‘empirical turn’ in bioethics. This article examines three different ways in which we could understand ‘empirical turn’. Using real facts in normative reasoning is trivial and would not represent a ‘turn’. Becoming an empirical discipline through a shift to the social and neurosciences would be a turn away from normative thinking, which we should not take. Conducting (...)
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  31.  91
    Becoming a Father/Refusing Fatherhood: An Empirical Bioethics Approach to Paternal Responsibilities and Rights.J. Ives, H. Draper, H. Pattison & C. Williams - 2008 - Clinical Ethics 3 (2):75-84.
    In this paper, we present the first stage of an empirical bioethics project exploring the moral sources of paternal responsibilities and rights. In doing so, we present both (1) data on men's normative constructions of fatherhood and (2) the first of a two-stage methodological approach to empirical bioethics. Using data gathered from 12 focus groups run with UK men who have had a variety of different fathering experiences (n = 50), we examine men's perspectives on how (...)
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  32. The Relation Between Normative and Descriptive Ethics – A Consideration of Empirical Bioethics.Jon Hugaas - 2009 - Eubios Journal of Asian and International Bioethics 19 (1):21-26.
    This article offers a discussion of the relevance of empirical studies to normative ethics focusing on the new trend in bioethics called empirical bioethics. The author sees this trend as an answer to a call made by anthropologists decades ago that ethicists should be more aware of the situatedness of the moral institution of life. Through a discussion of two opposing views expressed in the final publications of the EU-funded EMPIRE-project, the middle way is sought between (...)
     
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  33.  27
    Making the Cut: Analytical and Empirical Bioethics.Dominic Wilkinson - 2014 - Journal of Medical Ethics 40 (9):581-582.
    This issue of the journal includes papers across both analytical and empirical schools within bioethics.In his feature article, ‘The kindest cut? Surgical castration, sex offenders and coercive offers’, John McMillan asks whether surgical castration can be ethically provided as medical treatment for sex offenders . While surgical castration has previously been available in a number of European countries, in recent years it has only been available in the Czech Republic and in Germany. The European Committee for the Prevention (...)
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  34.  9
    IEEN Workshop Report: Professionalism in Interdisciplinary and Empirical Bioethics.John Owens, Jonathan Ives & Alan Cribb - 2014 - Clinical Ethics 9 (4):109-112.
    The Interdisciplinary and Empirical Ethics Network was established in 2012 with funding from the Wellcome Trust in order to facilitate critical and constructive discussion around the nature of the disciplinary diversity within bioethics and to consider the ongoing development of bioethics as an evolving field of interdisciplinary study. In April 2013, the Interdisciplinary and Empirical Ethics Network organized a workshop at the Centre for Public Policy Research, King’s College London, which discussed the nature and possibility of (...)
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  35.  28
    Using Cognitive Interviews to Enhance Measurement in Empirical Bioethics: Developing a Measure of the Preventive Misconception in Biomedical HIV Prevention Trials.Jeremy Sugarman, Damon M. Seils, J. Kemp Watson-Ormond & Kevin P. Weinfurt - 2016 - Ajob Empirical Bioethics 7 (1):17-23.
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  36. What is ‘Moral Distress’ in Nursing? A Feminist Empirical Bioethics Study.Georgina Morley, Caroline Bradbury-Jones & Jonathan Ives - 2020 - Nursing Ethics 27 (5):1297-1314.
    BackgroundThe phenomenon of ‘moral distress’ has continued to be a popular topic for nursing research. However, much of the scholarship has lacked conceptual clarity, and there is debate about what it means to experience moral distress. Moral distress remains an obscure concept to many clinical nurses, especially those outside of North America, and there is a lack of empirical research regarding its impact on nurses in the United Kingdom and its relevance to clinical practice.Research aimTo explore the concept of (...)
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  37.  16
    Kon's Reinvention of the Empirical Bioethics Wheel.Søren Holm - 2009 - American Journal of Bioethics 9 (6-7):69-70.
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  38.  25
    Does Empirical Research Make Bioethics More Relevant? “The Embedded Researcher” as a Methodological Approach.Stella Reiter-Theil - 2004 - Medicine, Health Care and Philosophy 7 (1):17-29.
    What is the status of empirical contributions to bioethics, especially to clinical bioethics? Where is the empirical approach discussed in bioethics related to the ongoing debate about principlism versus casuistry? Can we consider an integrative model of research in medical ethics and which empirical methodology could then be valuable, the quantitative or the qualitative? These issues will be addressed in the first, theoretical part of the paper. The concept of the “embedded researcher” presented in (...)
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  39.  64
    Evidence-Based Ethics? On Evidence-Based Practice and the "Empirical Turn" From Normative Bioethics.Maya J. Goldenberg - 2005 - BMC Medical Ethics 6 (1):1-9.
    Background The increase in empirical methods of research in bioethics over the last two decades is typically perceived as a welcomed broadening of the discipline, with increased integration of social and life scientists into the field and ethics consultants into the clinical setting, however it also represents a loss of confidence in the typical normative and analytic methods of bioethics. Discussion The recent incipiency of "Evidence-Based Ethics" attests to this phenomenon and should be rejected as a solution (...)
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  40.  24
    Empirical Ethics: A Challenge to Bioethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2004 - Medicine, Health Care and Philosophy 7 (1):1-3.
    The field of bioethics is increasingly coming into contact with empirical research findings. In this article, we ask what role empirical research can play in the process of ethical clarification and decision-making. Ethical reflection almost always proceeds in three steps: the description of the moral question,the assessment of the moral question and the evaluation of the decision-making. Empirical research can contribute to each step of this process. In the description of the moral object, first of all, (...)
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  41.  16
    Review of Jonathan Ives, Michael Dunn, and Alan Cribb, Eds., Empirical Bioethics: Theoretical and Practical Perspectives1. [REVIEW]Silvia Camporesi - 2018 - American Journal of Bioethics 18 (3):W1-W3.
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  42.  18
    How to Build a Theory About Empirical Bioethics: Acknowledging the Limitations of Empirical Research.Craig L. Fry - 2009 - American Journal of Bioethics 9 (6-7):83-85.
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  43.  5
    Empirical Research in Bioethical Journals. A Quantitative Analysis.P. Borry - 2006 - Journal of Medical Ethics 32 (4):240-245.
    Objectives: The objective of this research is to analyse the evolution and nature of published empirical research in the fields of medical ethics and bioethics.Design: Retrospective quantitative study of nine peer reviewed journals in the field of bioethics and medical ethics .Results: In total, 4029 articles published between 1990 and 2003 were retrieved from the journals studied. Over this period, 435 studies used an empirical design. The highest percentage of empirical research articles appeared in Nursing (...)
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  44.  7
    Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?Jonathan Ives, Giles Birchley & Richard Huxtable - 2020 - American Journal of Bioethics 20 (4):80-82.
    Volume 20, Issue 4, May 2020, Page 80-82.
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  45. Assessing Empirical Research in Bioethics.Baruch A. Brody - 1993 - Theoretical Medicine and Bioethics 14 (3).
    Empirical research can aid ethical reflection in bioethics by identifying issues, by seeing how they are currently resolved, and by assessing the consequences of these current resolutions. This potential can be misused when the ethical issues in question are fundamentally non-consequentialist or when they are consequentialist but the empirical research fails to address the important consequences. An example of the former problem is some recent studies about bad consequences resulting from commercialized living kidney donor programs. These consequences (...)
     
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  46.  1
    Empirical Research in Bioethical Journals. A Quantitative Analysis.P. Borry, P. Schotsmans & K. Dierickx - 1995 - Journal of Medical Ethics 32 (4):240-245.
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  47.  15
    The Role of Empirical Research in Bioethics.Alexander A. Kon - 2009 - American Journal of Bioethics 9 (6-7):59-65.
    There has long been tension between bioethicists whose work focuses on classical philosophical inquiry and those who perform empirical studies on bioethical issues. While many have argued that empirical research merely illuminates current practices and cannot inform normative ethics, others assert that research-based work has significant implications for refining our ethical norms. In this essay, I present a novel construct for classifying empirical research in bioethics into four hierarchical categories: Lay of the Land, Ideal Versus Reality, (...)
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  48.  14
    Categorizing Empirical Research in Bioethics: Why Count the Ways?Jeremy Sugarman, Nancy Kass & Ruth Faden - 2009 - American Journal of Bioethics 9 (6-7):66-67.
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  49.  32
    The Birth of the Empirical Turn in Bioethics.Pascal Borry, Paul Schotsmans & Kris Dierickx - 2005 - Bioethics 19 (1):49–71.
  50.  17
    The Future of Empirical Research in Bioethics.Jeremy Sugarman - 2004 - Journal of Law, Medicine and Ethics 32 (2):226-231.
    Empirical research in bioethics can be defined as the application of research methods in the social sciences to the direct examination of issues in [bioethics]. As such, empirical work is a form of descriptive ethics, focused on describing a particular state of affairs that has some moral or ethical relevance. For example, empirical research can help to describe cultural beliefs about the appropriateness of providing health-related information, such as the diagnosis of a life-threatening illness, which (...)
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