Results for 'genetic privacy'

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  1.  12
    Democracy and Genetic Privacy: The Value of Bodily Integrity. [REVIEW]Ludvig Beckman - 2004 - Medicine, Health Care and Philosophy 8 (1):97-103.
    The right to genetic privacy is presently being incorporated in legal systems all over the world. It remains largely unclear however what interests and values this right serves to protect. There are many different arguments made in the literature, yet none takes into account the problem of how particular values can be justified given the plurality of moral and religious doctrines in our societies. In this article theories of public reason are used in order to explore how (...) privacy could be justified in a way that is sensitive to the “fact of pluralism”. The idea of public reason is specified as the idea that governments should appeal only to values and beliefs that are acceptable to all reasonable citizens in the justification of rights. In examining prevalent arguments for genetic privacy – based on the value of autonomy or on the value of intimacy – it is concluded that they do not meet this requirement. In dealing with this deficiency in the literature, an argument is developed that genetic privacy is fundamental to the democratic participation of all citizens. By referring to the preconditions of democratic citizenship, genetic privacy can be justified in a way that respects the plurality of comprehensive doctrines of morality and religion in contemporary societies. (shrink)
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  2.  41
    Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice.Eli Feiring - 2009 - Bioethics 23 (5):300-310.
    Many countries have imposed strict regulations on the genetic information to which insurers have access. Commentators have warned against the emerging body of legislation for different reasons. This paper demonstrates that, when confronted with the argument that genetic information should be available to insurers for health insurance underwriting purposes, one should avoid appeals to rights of genetic privacy and genetic ignorance. The principle of equality of opportunity may nevertheless warrant restrictions. A choice-based account of this (...)
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  3.  12
    Review of Graeme Laurie, Genetic Privacy[REVIEW]Donna Dickenson - 2003 - Journal of Medical Ethics 29:271-374.
    Review of Graeme Laurie, Genetic Privacy: A Challenge to Medico-Legal Norms.
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  4.  44
    Genetic Privacy: A Challenge to Medico-Legal Norms.Graeme Laurie - 2002 - Cambridge University Press.
    The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments (...)
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  5.  75
    Privacy and Policy for Genetic Research.Judith Wagner DeCew - 2004 - Ethics and Information Technology 6 (1):5-14.
    I begin with a discussion of the value of privacy and what we lose without it. I then turn to the difficulties of preserving privacy for genetic information and other medical records in the face of advanced information technology. I suggest three alternative public policy approaches to the problem of protecting individual privacy and also preserving databases for genetic research:(1) governmental guidelines and centralized databases, (2) corporate self-regulation, and (3) my hybrid approach. None of these (...)
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  6. The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility.Ruth Chadwick, Mairi Levitt & Darren Shickle (eds.) - 2014 - Cambridge University Press.
    The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and (...)
     
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  7.  84
    Genetic Privacy: A Challenge to Medico-Legal Norms: G Laurie. Cambridge University Press, 2002, 50.00 (Hbk), Pp 335. ISBN 0521660270. [REVIEW]D. Dickenson - 2003 - Journal of Medical Ethics 29 (6):373-374.
    Review of Graeme Laurie, Genetic Privacy.
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  8.  28
    Genetic Privacy: Orthodoxy or Oxymoron?A. Sommerville & V. English - 1999 - Journal of Medical Ethics 25 (2):144-150.
    In this paper we question whether the concept of "genetic privacy" is a contradiction in terms. And, if so, whether the implications of such a conclusion, inevitably impact on how society comes to perceive privacy and responsibility generally. Current law and ethical discourse place a high value on self-determination and the rights of individuals. In the medical sphere, the recognition of patient "rights" has resulted in health professionals being given clear duties of candour and frankness. Dilemmas arise, (...)
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  9.  10
    Disclosure 'Downunder': Misadventures in Australian Genetic Privacy Law.B. Arnold & W. Bonython - 2014 - Journal of Medical Ethics 40 (3):168-172.
    Along with many jurisdictions, Australia is struggling with the unique issues raised by genetic information in the context of privacy laws and medical ethics. Although the consequences of disclosure of most private information are generally confined to individuals, disclosure of genetic information has far-reaching consequences, with a credible argument that genetic relatives have a right to know about potential medical conditions. In 2006, the Privacy Act was amended to permit disclosure of an individual's genetic (...)
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  10. Genetic Privacy and Discrimination: An Overview of Selected Major Issues.Eugene Oscapella - 2012 - Bc Civil Liberties Association.
     
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  11.  65
    The Privacy of Tutankhamen – Utilising the Genetic Information in Stored Tissue Samples.Søren Holm - 2001 - Theoretical Medicine and Bioethics 22 (5):437-449.
    Recent technical developments in genetictesting has led to a situation where the DNA inpreviously stored tissue samples can beextracted and used for genetic analysis. Thisraises the question of how to decide whether aspecific use of such samples should be allowed.Using the genetic testing of ancient DNA ingeneral, and the DNA of the pharaoh Tutankhamenin particular as examples this paper analysesthe question. It investigates whether ethicalframeworks based on proxy consent, culturalaffiliation, ownership, or the privacy rightsof the dead are (...)
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  12.  29
    When Public Health and Genetic Privacy Collide: Positive and Normative Theories Explaining How ACA's Expansion of Corporate Wellness Programs Conflicts with GINA's Privacy Rules.Jennifer S. Bard - 2011 - Journal of Law, Medicine and Ethics 39 (3):469-487.
    The Patient Protection and Affordable Care Act of 2010 (ACA) contains many provisions intended to increase access to and lower the cost of health care by adopting public health measures. One of these promotes the use of at-work wellness programs by both providing employers with grants to develop these programs and also increasing their ability to tie the price employees pay for health insurance for participating in these programs and meeting specific health goals. Yet despite ACA's specific alteration of three (...)
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  13.  43
    Privacy, the Individual and Genetic Information: A Buddhist Perspective.Soraj Hongladarom - 2009 - Bioethics 23 (7):403-412.
    Bioinformatics is a new field of study whose ethical implications involve a combination of bioethics, computer ethics and information ethics. This paper is an attempt to view some of these implications from the perspective of Buddhism. Privacy is a central concern in both computer/information ethics and bioethics, and with information technology being increasingly utilized to process biological and genetic data, the issue has become even more pronounced. Traditionally, privacy presupposes the individual self but as Buddhism does away (...)
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  14.  19
    Genetic Privacy, Disease Prevention, and the Principle of Rescue.Madison K. Kilbride - 2018 - Hastings Center Report 48 (3):10-17.
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  15.  12
    Genetic Privacy and Confidentiality: Why They Are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.
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  16.  8
    Genetic Privacy and Confidentiality: Why They Are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.
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  17.  30
    Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.
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  18.  36
    Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.
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  19.  6
    Genetic Privacy.Lawrence O. Gostin - 1995 - Journal of Law, Medicine and Ethics 23 (4):320-330.
  20.  4
    When Public Health and Genetic Privacy Collide: Positive and Normative Theories Explaining How ACA's Expansion of Corporate Wellness Programs Conflicts with GINA's Privacy Rules.Jennifer S. Bard - 2011 - Journal of Law, Medicine and Ethics 39 (3):469-487.
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  21.  6
    Genetic Privacy.Lawrence O. Gostin - 1995 - Journal of Law, Medicine and Ethics 23 (4):320-330.
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  22.  23
    Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?Heidi Malm - 2009 - American Journal of Bioethics 9 (6-7):52-54.
  23.  8
    The Genetic Privacy Act: An Analysis of Privacy and Research Concerns.Edwin S. Flores Troy - 1997 - Journal of Law, Medicine and Ethics 25 (4):256-272.
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  24.  16
    The Impact of the Genetic Privacy Act on Medicine.Philip R. Reilly - 1995 - Journal of Law, Medicine and Ethics 23 (4):378-381.
  25.  20
    Genetic Privacy Laws and Patients' Fear of Discrimination by Health Insurers: The View From Genetic Counselors.Mark A. Hall & Stephen S. Rich - 2000 - Journal of Law, Medicine and Ethics 28 (3):245-257.
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  26.  5
    The Genetic Privacy Act: An Analysis of Privacy and Research Concerns.Edwin S. Flores Troy - 1997 - Journal of Law, Medicine and Ethics 25 (4):256-272.
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  27.  26
    Genetic Privacy, Abandonment, and DNA Dragnets: Is Fourth Amendment Jurisprudence Adequate?Holly K. Fernandez - 2005 - Hastings Center Report 35 (1):21-23.
    : Forensic DNA testing threatens American civil liberties.
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  28.  12
    Genetic Privacy Laws and Patients' Fear of Discrimination by Health Insurers: The View From Genetic Counselors.Mark A. Hall & Stephen S. Rich - 2000 - Journal of Law, Medicine and Ethics 28 (3):245-257.
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  29.  23
    The Jurisprudence of Genetic Privacy.Tony McGleenan - 1998 - Medicine, Healthcare and Philosophy 1 (3):225-233.
  30.  8
    Genetic Privacy From Locke?S Point of View.Ludvig Beckman - 2004 - Journal of Value Inquiry 38 (2):224-251.
  31.  9
    The Attempt to Pass the Genetic Privacy Act in Maryland.Neil A. Holtzman - 1995 - Journal of Law, Medicine and Ethics 23 (4):367-370.
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  32.  11
    Genetic Privacy and the Use of Archival Human Material in Genetic Studies – Current Perspectives.D. Gareth Jones - forthcoming - Medicolegal and Bioethics:43.
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  33.  4
    Genetic Privacy, Abandonment, and DNA Dragnets: Is Fourth Amendment Jurisprudence Adequate?Holly K. Fernandez - 2005 - Hastings Center Report 35 (1):21.
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  34.  7
    Laboratory Specimens and Genetic Privacy: Evolution of Legal Theory.Michelle Huckaby Lewis - 2013 - Journal of Law, Medicine and Ethics 41 (s1):65-68.
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  35.  5
    Genetic Privacy: Families, Healthcare Professionals and the State.Tracey Phelan - 1999 - Chisholm Health Ethics Bulletin 5 (2):7.
  36.  3
    Genetic Privacy in Employment.David B. Resnik - 1993 - Public Affairs Quarterly 7 (1):47-56.
  37. Privacy Versus Public Interest In Developing Human Genetic Databases.Baoqi Su & Darryl Macer - 2004 - Eubios Journal of Asian and International Bioethics 14 (3):82-85.
    The issue of large-scale, population based DNA collections has become a world-wide discussion, which is hoped to bring substantial improvements in medicine. Continuous access to clinical data linked to the genetic samples is very important for some research that aims to find significant association between genes and diseases. This raises ethical issues related to privacy and confidentiality of medical records and the genetic information of the individuals who may be involved in the research. Genetic databases can (...)
     
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  38.  28
    Privacy and Equality in Diagnostic Genetic Testing.Tarja Nyrhinen, Marja Hietala, Pauli Puukka & Helena Leino-Kilpi - 2007 - Nursing Ethics 14 (3):295-308.
    This study aimed to determine the extent to which the principles of privacy and equality were observed during diagnostic genetic testing according to views held by patients or child patients' parents (n = 106) and by staff (n = 162) from three Finnish university hospitals. The data were collected through a structured questionnaire and analysed using the SAS 8.1 statistical software. In general, the two principles were observed relatively satisfactorily in clinical practice. According to patients/parents, equality in the (...)
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  39.  52
    Thinking Ethically About Genetic Inheritance: Liberal Rights, Communitarianism and the Right to Privacy for Parents of Donor Insemination Children.J. Burr & P. Reynolds - 2008 - Journal of Medical Ethics 34 (4):281-284.
    The issue of genetic inheritance, and particularly the contradictory rights of donors, recipients and donor offspring as to the disclosure of donor identities, is ethically complicated. Donors, donor offspring and parents of donor offspring may appeal to individual rights for confidentiality or disclosure within legal systems based on liberal rights discourse. This paper explores the ethical issues of non-disclosure of genetic inheritance by contrasting two principle models used to articulate the problem—liberal and communitarian ethical models. It argues that (...)
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  40.  39
    Using Genetic Information While Protecting the Privacy of the Soul.James H. Moor - 1999 - Ethics and Information Technology 1 (4):257-263.
    Computing plays an important role in genetics (and vice versa).Theoretically, computing provides a conceptual model for thefunction and malfunction of our genetic machinery. Practically,contemporary computers and robots equipped with advancedalgorithms make the revelation of the complete human genomeimminent – computers are about to reveal our genetic soulsfor the first time. Ethically, computers help protect privacyby restricting access in sophisticated ways to genetic information.But the inexorable fact that computers will increasingly collect,analyze, and disseminate abundant amounts of genetic (...)
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  41.  32
    Genetic Information: Consumers' Right to Privacy Versus Insurance Companies' Right to Know a Public Opinion Survey. [REVIEW]Shaheen Borna & Stephen Avila - 1999 - Journal of Business Ethics 19 (4):355 - 362.
    In this paper we present arguments for and against the disclosure of genetic information to the insurance companies. One of the main issues which emerges from these arguments is the question of who should be responsible for the health insurance costs of the individuals who are most likely to be affected by the disclosure of genetic information. The results of a resident opinion survey related to the above question are presented and public policy alternatives related to the survey (...)
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  42.  93
    Owning Genetic Information and Gene Enhancement Techniques: Why Privacy and Property Rights May Undermine Social Control of the Human Genome.Adam D. Moore - 2000 - Bioethics 14 (2):97–119.
  43.  7
    Genetic Information, Privacy and Insolvency.Edward J. Janger - 2005 - Journal of Law, Medicine and Ethics 33 (1):79-88.
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  44.  5
    Genetic Information, Privacy and Insolvency.Edward J. Janger - 2005 - Journal of Law, Medicine and Ethics 33 (1):79-88.
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  45.  5
    Owning Genetic Information and Gene Enhancement Techniques: Why Privacy and Property Rights May Unde.Adam D. Moore - 2000 - Bioethics 14 (2):97-119.
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  46.  31
    Retaining the Genetic Profile of Innocent People: A Difficult Balance Between Respecting the Individual's Privacy and Public Security.Luciana Caenazzo & Pamela Tozzo - 2013 - Synesis: A Journal of Science, Technology, Ethics, and Policy 4 (1).
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  47.  1
    Sharing Personal Genetic Information: The Impact of Privacy Concern and Awareness of Benefit.Don Heath, Ali Ardestani & Hamid Nemati - 2016 - Journal of Information, Communication and Ethics in Society 14 (3):288-308.
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  48.  19
    Privacy, Liberty, Property, and the Genetic Modification of Humans.Adam D. Moore - 2005 - Journal of Philosophical Research 30 (Supplement):81-94.
  49.  26
    Privacy, Property, and the Family in the Age of Genetic Testing: Observations From Transformative Feminism.Elisabeth Boetzkes - 2001 - Journal of Social Philosophy 32 (3):301–316.
  50. Privacy, the Individual and Genetic Information: A Buddhist Perspective.Ts Champlin - forthcoming - Bioethics.
     
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